I have been diagnosed MC Lymphatic MC a long time ago, I did the Entero Lab at that time. What I want to know what testing can I do to find out if I have celiac? The only tests I have had is an sigmoid scope and the Entero Lab. I have read that if you have celiac you could get colon cancer if you don't follow a strict diet, that it's a possibility. I would like to know what other tests can I get, other than reintroduce gluten for a few months? Gene testing? I have also read if you don't have a celiac diagnosis and are hospitalized they may not give you GF or DF meals, I kind of doubt that is true. So if you are not worried about occasional cross contamination that doesn't bother you, you definitely need to be worried if you have celiac disease. Should I do the Entero Lab testing again?
Also has anyone tried the AIP diet? AIP diet food delivery service?
Thank you,
Barb
Celiac testing
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Re: Celiac testing
Here are my thoughts. A gene test can tell you whether or not you have one of the celiac genes, but if you do have one, that doesn't guarantee that you are sensitive to gluten (or that you have celiac disease). And if you don't have one of the genes, that doesn't guarantee that you are not gluten sensitive (although many improperly trained doctors will probably interpret the result to imply that you cannot be sensitive to gluten). So the results of a gene test probably won't be very helpful.
This may depend on the hospital where you are being treated, but I've been through two major abdominal surgeries, and a hospital stay after a stroke, and whenever they asked about any allergies before treating me (and before feeding me), I always mentioned gluten sensitivity. After the surgeries, I couldn't eat anything for two or three days (abdominal surgery causes ileus, a condition which completely stops your digestion for two or three days), but before they started feeding me, they always sent a food service dietitian to my room who was knowledgeable about the ingredients in all the food options, and they allowed me to select the foods for each and every one of my meals.
In other words, even though I didn't have a celiac diagnosis, they took my word that I was gluten sensitive, and catered to my food selections. While they certainly didn't go out of their way to round up any special foods not on the menu, they always allowed me to choose from the foods available on the menu for any particular meal.
I may be out of touch with reality, but I've never seen any reason to submit to the cruel and unusual treatment required by a gluten challenge, just to make some Doctor happy. Life's too short to spend all that time needlessly suffering.
Tex
This may depend on the hospital where you are being treated, but I've been through two major abdominal surgeries, and a hospital stay after a stroke, and whenever they asked about any allergies before treating me (and before feeding me), I always mentioned gluten sensitivity. After the surgeries, I couldn't eat anything for two or three days (abdominal surgery causes ileus, a condition which completely stops your digestion for two or three days), but before they started feeding me, they always sent a food service dietitian to my room who was knowledgeable about the ingredients in all the food options, and they allowed me to select the foods for each and every one of my meals.
In other words, even though I didn't have a celiac diagnosis, they took my word that I was gluten sensitive, and catered to my food selections. While they certainly didn't go out of their way to round up any special foods not on the menu, they always allowed me to choose from the foods available on the menu for any particular meal.
I may be out of touch with reality, but I've never seen any reason to submit to the cruel and unusual treatment required by a gluten challenge, just to make some Doctor happy. Life's too short to spend all that time needlessly suffering.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.