Hi Marsha,
I doubt that your doctor would find Whipple's, unless he/she were actually looking for it. It's an extremely rare disease, that usually affects men, and it's normally diagnosed by the presence of the symptoms listed at the site below, and a biopsy of the small intestine. Note that the symptoms include intestinal bleeding, swollen lympth glands, and a change in skin color in about half the cases
Were any biopsies taken during your upper endoscopy exam? If so, a pathologist might be able to re-examined them, with Whipple's disease in mind, and confirm or rule out the possibility of Whipple's disease.
http://whipplesdisease.upmc.com/Diagnosis.htm
I don't believe we have a hypochondriac emoticon. I don't recall ever seeing one, but maybe I just haven't looked in the right place.
Love,
Wayne
Buckwheat
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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Dear Wayne,
That's because I haven't sent you a photograph yet.
And I have my test results except for the one from the upper endoscopy, so I don't know if they just looked around, or what . . does that include the small intestine, or parts of it?
As ever,
Marsha
That's because I haven't sent you a photograph yet.
And I have my test results except for the one from the upper endoscopy, so I don't know if they just looked around, or what . . does that include the small intestine, or parts of it?
As ever,
Marsha
Hi Marsha,
Hahahahaha. We can always use another good emoticon.
An upper endoscopy often includes at least a peek into the duodenum, to get an idea of the conditon of the villi, and I would think that's where they would normally take any biopsies, (if they take biopsies).
Love,
Wayne
Hahahahaha. We can always use another good emoticon.
An upper endoscopy often includes at least a peek into the duodenum, to get an idea of the conditon of the villi, and I would think that's where they would normally take any biopsies, (if they take biopsies).
Love,
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Marsha,
I just had an upper endoscopy and my doctor definitely asked the lab to look for Whipples (and Sprue) when they examined the biopsy sample from the duodenun (the first part of the small intestine). She also said that the lab would notice if there was any other type of pathology. In other words, they don't just look for the dx the doctor provides. They will indicate any pathology they see.
I don't think it's out of the ballpark to ask your doctor to see a copy of the biopsy report --- I always get copies of mine --- so you can see exactly where they did look and exactly what they said they saw!
All the best, Celia
I just had an upper endoscopy and my doctor definitely asked the lab to look for Whipples (and Sprue) when they examined the biopsy sample from the duodenun (the first part of the small intestine). She also said that the lab would notice if there was any other type of pathology. In other words, they don't just look for the dx the doctor provides. They will indicate any pathology they see.
I don't think it's out of the ballpark to ask your doctor to see a copy of the biopsy report --- I always get copies of mine --- so you can see exactly where they did look and exactly what they said they saw!
All the best, Celia
I beleive in magic!
Celia,
While it's true that pathologists will generally report whatever they "see", it's also true that when they are requestid to check for something specific, they are much more likely to notice subtle features that can be easily overlooked, otherwise, in some cases.
Biopsy features are not always as clear as black print on a white page. If that were the case, there would be no need for a second opinion, but the fact of the matter is that some diagnoses are based to some degree on judgment, and in those situations, experience matters.
In a perfect world, every pathologist would report every remarkable feature of every sample examined, and come up with the same diagnosis as every other pathologist who examined that same slide. Alas, the world is not perfect, so that doesn't always happen. It turns out that pathologists are human, and subject to human frailties.
Tex
While it's true that pathologists will generally report whatever they "see", it's also true that when they are requestid to check for something specific, they are much more likely to notice subtle features that can be easily overlooked, otherwise, in some cases.
Biopsy features are not always as clear as black print on a white page. If that were the case, there would be no need for a second opinion, but the fact of the matter is that some diagnoses are based to some degree on judgment, and in those situations, experience matters.
In a perfect world, every pathologist would report every remarkable feature of every sample examined, and come up with the same diagnosis as every other pathologist who examined that same slide. Alas, the world is not perfect, so that doesn't always happen. It turns out that pathologists are human, and subject to human frailties.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Mornin'!
I am happy to report that I've had absolutely NO PROBLEM with the buckwheat in the first 24 hours. YIPPEE!!! YAY!!!! How exciting to have a nutritious and filling new food to add to my limited arsenal of foods.
Love,
Polly
P.S. Marsha - if you REALLY want to drive yourself crazy, go to medical school. We all were sure that we had whatever disease we were learning about. It was quite anxiety-provoking. LOL!
I am happy to report that I've had absolutely NO PROBLEM with the buckwheat in the first 24 hours. YIPPEE!!! YAY!!!! How exciting to have a nutritious and filling new food to add to my limited arsenal of foods.
Love,
Polly
P.S. Marsha - if you REALLY want to drive yourself crazy, go to medical school. We all were sure that we had whatever disease we were learning about. It was quite anxiety-provoking. LOL!
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
I'm really happy for you, Polly, and I hoping you can report the same after 30 hours. -
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Bless you, Polly, for the kind word. My husband says his first wife was such a hypochondriac that she would get whatever disease was featured in Readers Digest that month. Seriously. And then he marries me! That just tells you what a good person he is, because he is so 
supportive. (Of course I didn't get really sick until we got married, so he was stuck with me then). And he won't even go to the doctor unless he's dying.
Yay! about the buckwheat!
We need to tell Matthew . . .
Marsha
supportive. (Of course I didn't get really sick until we got married, so he was stuck with me then). And he won't even go to the doctor unless he's dying.Yay! about the buckwheat!
We need to tell Matthew . . .Marsha
Tex,
I guess that's just my G. I. covering for the fact that she didn't check for h. pylori or for lymphocytic gastritis! I'm sure you are right. While there is a good chance an intelligent pathologist is going to pick up other stuff, no one is perfect, and many people aren't even very thorough.
Be well, Celia
I guess that's just my G. I. covering for the fact that she didn't check for h. pylori or for lymphocytic gastritis! I'm sure you are right. While there is a good chance an intelligent pathologist is going to pick up other stuff, no one is perfect, and many people aren't even very thorough.
Be well, Celia
I beleive in magic!
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Boy, this is getting to be a long post.
Polly, I just wanted to tell you that although I didn't get really sick from the buckwheat, I did have a few symptoms that normally would come from grains - waking up at night, bloating, and softer stools. But it could have been other things, like the decaf latte I had at 6 pm (pretty late in the day for me, even if it's decaf). So I'll try it again in a couple days.
I love the taste of buckwheat. It's way better than oatmeal or millet (especially millet).
Love,
Marsha
Polly, I just wanted to tell you that although I didn't get really sick from the buckwheat, I did have a few symptoms that normally would come from grains - waking up at night, bloating, and softer stools. But it could have been other things, like the decaf latte I had at 6 pm (pretty late in the day for me, even if it's decaf). So I'll try it again in a couple days.
I love the taste of buckwheat. It's way better than oatmeal or millet (especially millet).
Love,
Marsha
Polly and all
I have been gone all week but had no luck finding Bob’s Red Mill Buckwheat before I left. All my stores carry all his other products but not the Buckwheat. Go figure. Found a baby cereal made with buckwheat but in tiny letters at the bottom of the package it said it was packaged in a plant that also produces wheat products . Same with the Sobo noodles. Either they contained wheat or were made on machines that also made wheat products. I am not ready to take those chances.
So glad to hear it worked for you. You know me. I WILL find them eventually.
Love
Matthew
I have been gone all week but had no luck finding Bob’s Red Mill Buckwheat before I left. All my stores carry all his other products but not the Buckwheat. Go figure. Found a baby cereal made with buckwheat but in tiny letters at the bottom of the package it said it was packaged in a plant that also produces wheat products . Same with the Sobo noodles. Either they contained wheat or were made on machines that also made wheat products. I am not ready to take those chances.
So glad to hear it worked for you. You know me. I WILL find them eventually.
Love
Matthew
Matthew,
I don't know what kind of setup Bob's Red Mill has, but they also sell wheat and other gluten containing products. It's possible that they have separate facilities for the gluten-free products, but I really don't know.
Another source of buckwheat in my area is Arrowhead Mills. Everything from them that I've tried, has been exccellent. Here again, though, they do sell products that contain gluten. I'm pretty sure that virtually all of the larger millers are in this same situation, since the GF market base is so tiny in comparison with the rest of the market.
Tex
I don't know what kind of setup Bob's Red Mill has, but they also sell wheat and other gluten containing products. It's possible that they have separate facilities for the gluten-free products, but I really don't know.
Another source of buckwheat in my area is Arrowhead Mills. Everything from them that I've tried, has been exccellent. Here again, though, they do sell products that contain gluten. I'm pretty sure that virtually all of the larger millers are in this same situation, since the GF market base is so tiny in comparison with the rest of the market.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.