Celia-
I just longed for some chicken nuggest. saw these in teh health food store and just had to buy them. I dont think I react to corn (popcorn maybe b/c of the butter). I hope my only intolerances are gluten and casien- does anyoneknow when Dr FInes new list of food sensativity tests are coming out?
Started diet... Heres my log... Diet trouble... help
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
That ingredient list looks safe, with one caveat: Most U S manufacturers use corn to make carmel color, because corn is a cheaper feedstock than wheat. However, carmel color can be made from wheat, and in fact, some imported carmel color is reportedly made from wheat.
Therefore the question here is whether or not the individual who compiled that ingredient list was astute enough to consider that possibility, and actually checked out the source of the carmel color that was used in the product.
Most celiacs in the U S just assume that domestic products made with carmel color are safe, but I'm not that trusting. These days, there are too many computer controlled formulation processes, that allow manufacturers to easily switch ingredient sources, in order to save money on the finished product.
With the advent of the new labeling law, most conscientious manufacturers clearly state on the label what a questionable ingredient is actually derived from. IOW, in this case the label should read . . . .carmel color (made from corn), . . . If I don't see that breakdown on a label, I either don't buy it, or I call the manufacturer to verify the source.
That label is quite legal, (as long as the carmel color is not made from wheat), it's just not very satisfying, since it leaves some doubt in the customer's mind.
Another possibility is that the manufacturer incorrectly assumed that a foreign supplier would inform them if an ingredient was derived from a source that required disclosure on a U S label. Or, the individual in charge of approving that label may have assumed that the process by which carmel color is made would not have transmitted more than negligible amounts of gluten to the final product.
Anyway, right or wrong, I don't trust a label that doesn't spell out questionable ingredients, that might possibly be derived from a source that contains gluten.
That said, the odds are very high that the nuggets are probably safe, but it sure seems like a suspicious coincidence that you noticed that something was wrong, soon after eating them. That would make me gun-shy, anyway.
Tex
Therefore the question here is whether or not the individual who compiled that ingredient list was astute enough to consider that possibility, and actually checked out the source of the carmel color that was used in the product.
Most celiacs in the U S just assume that domestic products made with carmel color are safe, but I'm not that trusting. These days, there are too many computer controlled formulation processes, that allow manufacturers to easily switch ingredient sources, in order to save money on the finished product.
With the advent of the new labeling law, most conscientious manufacturers clearly state on the label what a questionable ingredient is actually derived from. IOW, in this case the label should read . . . .carmel color (made from corn), . . . If I don't see that breakdown on a label, I either don't buy it, or I call the manufacturer to verify the source.
That label is quite legal, (as long as the carmel color is not made from wheat), it's just not very satisfying, since it leaves some doubt in the customer's mind.
Another possibility is that the manufacturer incorrectly assumed that a foreign supplier would inform them if an ingredient was derived from a source that required disclosure on a U S label. Or, the individual in charge of approving that label may have assumed that the process by which carmel color is made would not have transmitted more than negligible amounts of gluten to the final product.
Anyway, right or wrong, I don't trust a label that doesn't spell out questionable ingredients, that might possibly be derived from a source that contains gluten.
That said, the odds are very high that the nuggets are probably safe, but it sure seems like a suspicious coincidence that you noticed that something was wrong, soon after eating them. That would make me gun-shy, anyway.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Maybe it was just too early to introduce chicken nuggets... I have never done well with fried food. But maybe that is because most fried food contains wheat, but at any rate I think it might have been too early
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Day 12:
As I mentioned earlier I had 1/2 of a normal BM with 1/2 very soft
meds: 3 imodium, 2 calcium, 2 wellbutrin, 1/2 ativan (had gluten- recieved wrong kind from pharmacy), 2 asacol, 3 entocort
Breakfast: HOt Rice cereal
Snack: Banan rice muffin
Lunch: brown rice wrap with GF lunch meat and mayo
Snack: rice muffin
Dinner: chicken, potato, rice, mushroom soup, w/ 1 part GF chicken broth and 1 part water
Drink: peppermint tea, gatorade, water
I think I may be noticing some improvement. I seem to be constipated a little bit lately. I have less anxiety (well it fluctuates) and there are times when I feel really good. But then I have those times, like this morning, when I did not feel very good at all.
From what I understand I should expect these ups and downs for a little while right?
As I mentioned earlier I had 1/2 of a normal BM with 1/2 very soft
meds: 3 imodium, 2 calcium, 2 wellbutrin, 1/2 ativan (had gluten- recieved wrong kind from pharmacy), 2 asacol, 3 entocort
Breakfast: HOt Rice cereal
Snack: Banan rice muffin
Lunch: brown rice wrap with GF lunch meat and mayo
Snack: rice muffin
Dinner: chicken, potato, rice, mushroom soup, w/ 1 part GF chicken broth and 1 part water
Drink: peppermint tea, gatorade, water
I think I may be noticing some improvement. I seem to be constipated a little bit lately. I have less anxiety (well it fluctuates) and there are times when I feel really good. But then I have those times, like this morning, when I did not feel very good at all.
From what I understand I should expect these ups and downs for a little while right?
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Andrew,
You are correct--the road to recovery is not always straight and smooth.
Some of your meds may be contributing to your not feeling well at times. I don't believe that anyone else here has ever taken that many inflammatory drugs at one time, certainly not for an extended period.
Tex
You are correct--the road to recovery is not always straight and smooth.
Some of your meds may be contributing to your not feeling well at times. I don't believe that anyone else here has ever taken that many inflammatory drugs at one time, certainly not for an extended period.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Andrew,
OK, maybe you are not intolerant of corn! Chances are it's something else on that ingredient list. I found that it's a little tricky to figure out one's intolerances though so you might just want to keep the notion of corn in the back of your mind, and see how you do the next time you eat it...unless you've already been eating it lots.
Good luck! Celia
OK, maybe you are not intolerant of corn! Chances are it's something else on that ingredient list. I found that it's a little tricky to figure out one's intolerances though so you might just want to keep the notion of corn in the back of your mind, and see how you do the next time you eat it...unless you've already been eating it lots.
Good luck! Celia
I beleive in magic!
Hiya Terps.
Yep, the rollercoaster is normal. But it is a good sign that you are feeling less anxious as time goes on. Many have experienced an increased sense of well-being (also described as a lifting of the fog) fairly soon after going GF. I know I did. But it will be a few steps forward and one step back for a while until you get the hang of this diet and your gut has had some time to heal.
I am pretty sure I read somewhere that BARLEY is also used to make caramel color. Of course, we all know that barley contains gluten.
Keep up the good work! You are doing just fine.
Love,
Polly
Yep, the rollercoaster is normal. But it is a good sign that you are feeling less anxious as time goes on. Many have experienced an increased sense of well-being (also described as a lifting of the fog) fairly soon after going GF. I know I did. But it will be a few steps forward and one step back for a while until you get the hang of this diet and your gut has had some time to heal.
I am pretty sure I read somewhere that BARLEY is also used to make caramel color. Of course, we all know that barley contains gluten.
Keep up the good work! You are doing just fine.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Thank you all for your encouraging words. It helps that I am not necessarily doing this on my own. I have the support of my wife, family, and of course you guys who have been there and done that.
Tex- the only antiinflammatory drugs I am taking are asacol (2 per day- drop from 4 per day) and entocort. Is that too much? Of course that is what the GI gave me when he tought I had ulcerative colitis. Hopefully we will know for sure come july when I have my c scope.
As I mentioned before I made amistake and took ativan with gluten in it. Immediately I felt the "brain fog" come back and had an overall bad feeling. I think and hope that gluten is the cause of many of my "problems", for lack of a better word.
I hope Dr Fine's new tests come out soon, so I can rule out rice and corn, although I do not think I have a problem with corn and I highly doubt I havea problem with rice.
No one said this diet was going to be easy and it has been a ride... hopefully one that will end in me feeling normal again... actually I think I would take 80% normal again.
Thank you again for following my diet log. Hopefully I will get good at this like the rest of you so I that I can be there for a newcomer as you all have been there for me.
Tex- the only antiinflammatory drugs I am taking are asacol (2 per day- drop from 4 per day) and entocort. Is that too much? Of course that is what the GI gave me when he tought I had ulcerative colitis. Hopefully we will know for sure come july when I have my c scope.
As I mentioned before I made amistake and took ativan with gluten in it. Immediately I felt the "brain fog" come back and had an overall bad feeling. I think and hope that gluten is the cause of many of my "problems", for lack of a better word.
I hope Dr Fine's new tests come out soon, so I can rule out rice and corn, although I do not think I have a problem with corn and I highly doubt I havea problem with rice.
No one said this diet was going to be easy and it has been a ride... hopefully one that will end in me feeling normal again... actually I think I would take 80% normal again.
Thank you again for following my diet log. Hopefully I will get good at this like the rest of you so I that I can be there for a newcomer as you all have been there for me.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Hi Andrew,
I guess you and I are the newbies here. Sounds like we are at about the same place recovery wise....some okay days and some bad. I'm with you....I'd be thankful for 80% at this point. I looked back at some of the postings from awhile back and there were people up there having problems that are now mostly symptom free. so that sounds good for us.
Anyway, just wanted to wish you good luck,
Cristi
I guess you and I are the newbies here. Sounds like we are at about the same place recovery wise....some okay days and some bad. I'm with you....I'd be thankful for 80% at this point. I looked back at some of the postings from awhile back and there were people up there having problems that are now mostly symptom free. so that sounds good for us.
Anyway, just wanted to wish you good luck,
Cristi
Well I think I have found the reason why I have felt poorly the past few days. I attribute my stomach upset, mental fog, and hazy vision to withdrawal symptoms of ativan. Since my original script had gluten in it, I prettly much stopped it cold turkey for about 3 days (which you arent supposed to do by the way) because the pharmacy made an "error" when ordering. Finally it came in today and I took one dose immediately (15 mins ago) and I already feel the general sense of malaise lifting- it is lifting slowly but I feel better.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Andrew,
Concerning the anti-inflammatory drugs--most patients with MC take only one at at time. If one doesn't work, then they try another. I don't believe that anyone else here has taken those two together. It should never be necessary to take more than one at a time--either a drug works, or it doesn't
The problem with taking two drugs at the same time, in order to treat diarrhea, is that for some people, Asacol, for example, can cause D. When that happens, the problem is pretty obvious, and it's time to switch drugs. If you're taking both at the same time, however, you have no way of knowing if one is actually causing problems for your system, and the other is partially or completely covering the damage that the other is causing.
Almost everyone here, who has tried more than one med, (separately), has found that one or more meds either don't help, or actually cause additional problems, (usually D).
Doctors tend to overlook little details like that. They like to believe that all drugs work according to the label. Unfortunately, that just isn't true in a lot of cases. We are all different.
Tex
Concerning the anti-inflammatory drugs--most patients with MC take only one at at time. If one doesn't work, then they try another. I don't believe that anyone else here has taken those two together. It should never be necessary to take more than one at a time--either a drug works, or it doesn't
The problem with taking two drugs at the same time, in order to treat diarrhea, is that for some people, Asacol, for example, can cause D. When that happens, the problem is pretty obvious, and it's time to switch drugs. If you're taking both at the same time, however, you have no way of knowing if one is actually causing problems for your system, and the other is partially or completely covering the damage that the other is causing.
Almost everyone here, who has tried more than one med, (separately), has found that one or more meds either don't help, or actually cause additional problems, (usually D).
Doctors tend to overlook little details like that. They like to believe that all drugs work according to the label. Unfortunately, that just isn't true in a lot of cases. We are all different.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex-
It is very common for people who have ulcerative colitis to take more than 1 drug to treat their symptoms. The asacol and Entocort was meant to treat UC.
It is very common for people who have ulcerative colitis to take more than 1 drug to treat their symptoms. The asacol and Entocort was meant to treat UC.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Ah yes, you're right. I keep forgetting that your doctor is treating you for a disease that you probably don't have. What do you think about that? If you actually had UC, you should be passing blood, at least a reasonable percentage of the time. Isn't that true?
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Indeed Tex; you hit the nail on the head. But since he said my case was so mild (only able to be seen under a miscroscope) that there is a chance that I wont bleed if we keep it at that stage. At first when he told me this I thought I had microscopic colitis for obvious reasons but again he was the doctor not me. I started to think that since the meds I was taking (asacol, rowasa enemas, and colazal) and they were doing nothing for me... I mean shouldnt they be able to treat a small case of UC? When I realized that the meds didnt work I started to do some more research; found Dr Fine's tests, found this forum, found a new doctor etc. I surely hope I dont have UC but would Dr FIne's test show that? It came back negative for ulcerative colitis and crohns colitis.
Ok So Day 13:
woke up felt horrible, flu-like symptoms, headache, upset stomach, fogginess... all of which were getting worse the past few days. Anyways it was ativan withdrawal (I knew I shouldnt go 3 days cold turkey but thought the pharmacy would get it in sooner- big mistake on their part). Anyways I took the max dose yesterday (which is below the average dose- most range from 2-4 mgs split up throughout the day- I take at most 1 mg split up throughout the day
SO meds: 1 ativan, 2 wellbutrin, 2 asacol, 3 entocort, calcium 3 imodium
BM- in morning kinda soft (probably due to ativan withdrawal)
breakfast: hot rice cereal
lunch- rice muffin with gf lunch meant (eating light b/c still not feeling well)
dinner- salmon, brown rice pasta (brand start with a "T" Tinkyka?? but tastes just like wheat pasta), banana rice muffin
I started to feel normal again after my second dose of ativan around 8 pm last night. I woke up this morning at 8:00 am (last fews days sleeping until 11) and felt great and refreshed. *knock on wood*
My BM this morning day 14 was normal! *knock on wood*
Ok So Day 13:
woke up felt horrible, flu-like symptoms, headache, upset stomach, fogginess... all of which were getting worse the past few days. Anyways it was ativan withdrawal (I knew I shouldnt go 3 days cold turkey but thought the pharmacy would get it in sooner- big mistake on their part). Anyways I took the max dose yesterday (which is below the average dose- most range from 2-4 mgs split up throughout the day- I take at most 1 mg split up throughout the day
SO meds: 1 ativan, 2 wellbutrin, 2 asacol, 3 entocort, calcium 3 imodium
BM- in morning kinda soft (probably due to ativan withdrawal)
breakfast: hot rice cereal
lunch- rice muffin with gf lunch meant (eating light b/c still not feeling well)
dinner- salmon, brown rice pasta (brand start with a "T" Tinkyka?? but tastes just like wheat pasta), banana rice muffin
I started to feel normal again after my second dose of ativan around 8 pm last night. I woke up this morning at 8:00 am (last fews days sleeping until 11) and felt great and refreshed. *knock on wood*
My BM this morning day 14 was normal! *knock on wood*
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Hmmmmmmmmm. Your doctor may well be right. Certainly, if he is familiar enough with the markers of the disease, he may well be able to detect it before any lesions have actually developed to the stage where they begin to bleed. I'll bet it's pretty uncommon to get a diagnosis at that stage. I'm guessing that most people don't go to the doctor until the symptoms get pretty bad, (like blood in the stool). I know I didn't go until the D got completely out of control, and I was getting so weak and run-down, that I couldn't work anymore.
This is what Dr. Fine's site says about their Acute/Chronic Colitis test:
Of course, this begs the question, "if you don't have active colitis, then what's causing the D?" By default, that would only leave gluten sensitivity, unless I'm overlooking something. Hopefully the diet will start showing results soon, and the question will be moot. It sounds as though it may already be helping.
I'm glad you're finally feeling better. That Ativan must be pretty potent stuff.
Tex
This is what Dr. Fine's site says about their Acute/Chronic Colitis test:
I would assume that a negative result would have to mean that your sample did not show any evidence of an active colitis reaction. The test checks for the presence of a protein found in inflammatory cells (lactoferrin from neutrophils), so apparently none was being produced at the time you took your sample. (Unless, of course), one or more of the meds you are taking happens to masks that protein).Strongly positive in Crohn's colitis, ulcerative colitis, and acute bacterial colitis; also positive in some people with microscopic colitis. Can be used to determine if colitis is active.
Of course, this begs the question, "if you don't have active colitis, then what's causing the D?" By default, that would only leave gluten sensitivity, unless I'm overlooking something. Hopefully the diet will start showing results soon, and the question will be moot. It sounds as though it may already be helping.
I'm glad you're finally feeling better. That Ativan must be pretty potent stuff.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.