Doctor's reaction to Dr. Fine's tests

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Lucy
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Post by Lucy »

Hi Cristi,

Remember that movie theme song from "Rockie?" Well, I have a tape of that that goes off in my head whenever I need to be fearless! Haha!

Uh oh, now my secret is out!
Anyway, try it sometime when you are frightened.

Yours, Luce
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Post by Polly »

Hi Cristi!

I think your plan is a good one. Pick/choose whatever conventional tests you feel comfortable with, get the results, and then devise your own plan of treatment. That's what most of us here have done. Luckily, with the knowledge and experience of each other.

The weight will come back......don't worry. Are you paying attention to the higher calorie foods that might be safe? Like guacamole, olives, nuts.....or even better nut butters, which are more easily digestible. I have a yummy macadamia butter which I love to dip veggies into. How about dried fruits? A Medjool date makes a wonderful dessert Lara bars have lots of calories too - the apple one is my favorite. Can you eat bananas? They are delicious frozen!

Love,

Polly
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moremuscle
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Post by moremuscle »

Lucy, I don't know that "Rokie" one - can you let me in on your secret? I am often faced with my fears; is there a way to turn it around?

Cristi, I am with Polly on the calories - avocados, nuts, and dates are among my favorite snack foods; the nuts and dates are easy to carry in your pocket book to so you don't run out of safe and wonderful food while away from home.

I am glad Polly said that thing about taking the conventional tests - I didn't mean to discourage you from taking seriously what your doctor(s) says and recommends.

If you write down some of your questions before you go into the doctors office you can refer to your list when you feel the panic taking over. In that way you maintain control and when you walk away you have some answers.

Love,
Karen
Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
cludwig
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Post by cludwig »

Hi,

Luce, I will certainly try your secret weapon....I've always wanted a theme song! haha.

Okay....here's my exact diet.....samething everyday.

Breakfast

1/2 cup rise and shine rice cereal
1 T. rice protein powder
1 whole banana
1/3 cup blueberries
2 t. flaxseed oil
1 t. cashew nut butter


snack

1/2 apple with 1T. cashew butter

Lunch

Cod..size of my hand or more cooked in olive oil

1/2 cup mashed potatoes made with olive oil andchicken stock and chives

1 cup mixed vegetables...carrots asparagus and green beans

1/3 cup rice soup made with stock, shredded coconut and coconut water

1T. olive oil and salt


snack

1/2 apple with 1 T. cashew butter



Dinner



1 chicken breast or 2 chicken thighs cooked in olive oil

mashed potatoes

veggies ..same as above

rice soup
olive oil and salt



snack


rice cereal with 1/2 banana
rice protein powder
flaxseed oil and a little cashew butter





It's dull but thats what i have been eating everyday for 4 weeks. the three months before that i was eating the same thing but instead of rice cereal I was eating oatmeal....didn't know about the gluten yet.


I love guacamole....will have to see if I can eat avocadoes. I'll look for the macadamia nut butter too. Is there a brand you like or do you make it? Also...how can you tell which dried fruits are coated with flour and which aren't?


So I think I'm getting plenty of calories...just not a lot of variety. And I'm not sure I should be introducing new foods when I have D every couple of days even when not changing my diet...so I wouldn't know If it was caused by something or not.

Thanks for any ideas,
Cristi
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tex
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Post by tex »

Hi Cristi,

Ok, in general, I don't see anything wrong with your diet. I eat the same thing every day also, (not the same as what you're eating), and it hasn't killed me yet. You're eating more variety than I am, so you're eating a more balanced ration.

Searching for something to blame the occasional diarrhea on--I suppose it could possibility be coming from the flax seed oil, olive oil, and the oil in the cashew butter. Flax seed oil is not nearly as likely to cause diarrhea as flax seed itself, but it can cause a problem for some people. A lot of olive oil would have to be ingested to cause diarrhea, but again, your digestive system might possibly still be so sensitive that it's more prone to be affected. And the combination of the three oils might be causing it, (along with the oil in the coconut).

Maybe someone else can spot something that I missed. Basically, though, that's a good-looking diet.

Incidentally, were you aware that olive oil may have a lowering effect on blood sugar?

http://query.nytimes.com/gst/fullpage.h ... A966958260

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
cludwig
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Post by cludwig »

Hi Tex,

Interesting about the oils..... I also noticed that my cashew butter is mixed with canola oil.

At this point I don't know whether to adjust the diet or if it's just a time thing...it's been a month. Perhaps my gut just needs more time to heal...regardless of what I put in it. I don't know.....very confusing.


Thanks'
Cristi
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tex
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Post by tex »

Cristi,

Note that I added something to the end of my previous post at the same time that you were posting.

Also, if the diarrhea is coming from the oils, I doubt that will slow down your healing, since it shouldn't inflame your colon. I think the oils simply have a lubricating effect.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Lucy
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Post by Lucy »

Hi all,

Don't think I've brought this up before, but Dr. Fine was actually having trouble on his own diet maintaining his weight, so he had to rely more on nuts and seeds, some of which were flax seeds. After a while, he realized that flax seeds were giving him symptoms (achiness, I think, for one), so he figured out which nuts and seeds didn't give him trouble, and now he just uses those. I would imagine that he would also avoids their oils as well.

You might want to try using something else besides the flax for a while while leaving everything else the same to see if it makes any difference in your symptoms.

If that doesn't work, perhaps you could try a different nut butter. Another benefit of this is that it would provide a little bit of variety.
Still, it's probably a good idea to just change one thing at a time so that you don't get confused and eliminate something that you don't have to.

Yep, that's a lot of fat alright, but if you're not reacting to the protein, I should think that it wouldn't interfere with healing as has already been said.

Most people assume that the oils themselves are the problem before they discover their allergens and the delayed responses to them. This is because the responses tend to come full force right after eating oils, etc., and all those other so-called IBS triggers.

It's funny how those will eventually not cause us any trouble once all the significant allergens have been removed.

This is why my sister could never understand why she could eat something really oily one day and tolerate it fine, but the next day, eat something mildly oily, and have bigtime D.
Now she knows why -- it was what she'd had the day before.

My preference for nut butters is the organic ones in the smaller jars at Whole Foods. If I remember correctly, nothing in their store is known to be genetically modified (GMO).
Reason I get the smaller ones is because I don't want to waste any and this way it all gets eaten -- it's VERY expensive to buy the organic, so we use it sparingly. I get the smooth rather than the crunch as that way there's less chance of it leading to diverticulitis, and less chance of my mom choking on hers since she has progressing PD.

If you use the nut butters up very completely (before they go bad) then it might benefit you to buy the bigger jar -- price per oz is somewhat less that way, and this mounts up if you go organic.

One way of varying our smoothies that I've discovered is to throw a rounded spoon of smooth nut butter into the blender with the bananas, and whatever frozen fruit we want for that day. We don't have a problem with coconut, so I often throw in some dried coconut as well. Of course you'll need some sort of liquid such as apple juice so that you can blend it. Use your creative genius and you can have lots of variety this way.

Since I use organic strawberries always, I buy the organic ones in the frozen section at Whole Foods. They always seem to be delicious which is not always guaranteed with the fruit that's sold fresh organic or fresh anything, for that matter. Besides, they can go bad before they're all eaten, and they seem more expensive to me than the frozen. The way I make smoothies, I don't have to use any other sweetners, but some might prefer them really sweet, so taste and see what you would like.

Whole Foods frozen organic also has frozen blueberries, so this makes a good smoothie also. Fresh mangos are good with them in with the banana, as always.

Do share with us if you discover a new formula for smoothies, ok. This group loves 'em.

Oh, and if your bananas look like they won't last, you might consider PEELING them, and throwing the fruit part into a baggie. When bananas are frozen, they make a nice, ice cream like frozen dessert all by themselves.
Some of us even use them frozen for the frozen part of our smoothies.

Polly, you are reminding me WHY I can't lose wt -- I eat ALL that stuff!

Karen, I just didn't want to do "I Am Woman" -- everybody does that one!!
The Rocky theme goes something like,

"Dadot daaaaaa
Dadot daaaaaa
Dadidot didodot..."

Is it all coming back to you now? My trumpet playing just ain't what it used to be.

If not, maybe you can catch the movie on tv late one night. Ha! Jissst kiddin' ya!

Anyway, Cristi, try experimenting with the different nuts to see if you notice any difference. Have you formed any opinions about how long it takes after you ingest an allergen before you notice a response?

Transit times vary from individual to individual, particularly once one is off the great majority of allergens. Age is one of the big factors. Even though I'm older, my transit time is about 24 hours, so knowing that makes it lots easier to track down the cause of any reaction, or at least it did as it's been a while since I've had one at all now.

Matter of fact, I even wonder if it's possible that I would now have to eat a contaminated product for several meals before I could do enough damage to bring on diarrhea. In a way, that's not a good thing cause I want to know if something's doing damage.

In another way, it might mean my immune systems much better than when I would react to even a tiny bit of additive made from wheat.

Take care. I can see that you are very determined to get to the bottom of your problems and solve these types of mysteries -kinda like being a detective, isn't it?

Be well. Luce
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Post by cludwig »

Hi Tex,

I had missed the end of your post. I'm confused about the whole blood sugar thing.I can't remember if it was my fasting blood sugar or insulin levels were low. I do know I'm having symptoms of hypoglycemia, which is low blood sugar, right? So I've tried to increase my fats and protein to help the symptoms. Is that what this article is suggesting as well? Or are they talking about high blood sugar and diabetes prevention?

I'm glad to hear that the oils won't prevent my gut from healing.

Thanks Tex,

Cristi
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Post by moremuscle »

Cristi,

We are bombarding you with information but just take what you need and leave the rest alone.

There is an excellent book written by a married couple of MDs, they are the Eades - the book title is Protein Power. This book explains in great detail but surprisingly easy language for the lay person what insulin does. Insulin is connected not only to regulation of blood sugar but also to how the body does or does not store calories consumed as fat.

It is an excellent book that I highly recommend - try checking it out of the library or buying it used online to save money, in that way if you don't care for the book you haven't invested too much.

Love,
Karen
Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
cludwig
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Post by cludwig »

Hi All,

You are all so kind....trying to help me.

So, if I haven"t altered my diet...except for the bite of steak last Wednesday, I appear to have two days with asingle bowel movement softly formed and the third day I have two or three bm, the first softly formed and the last two unformed. So if this is my pattern how will I know if I'm reacting to anything. I have no idea what my transit time is. The only thing I vary is the amount slightly depending on how nausiated I am.

I can eat the exact same thing one day and be pretty good and the same thing the next day and be miserable.

So I guess I'll go on the assumption that something that I'm currently eating is not agreeing with me.

The most likely offenders from what i gather are: flaxseed oil, coconut or cashew butter.

So should I pick one and eliminate for three days and see what happens....then move on to the next? Should I substitute something else in ...like macadamia butter or will that just muddy the results.

Thanks for all the advice,
Cristi
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tex
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Post by tex »

Cristi,

Olive oil actually tends to lower cholesterol levels and sugar levels in the blood. In fact it is recommended that diabetics and people with hypoglycemia not use very much of it, since it can suppress sugar levels to where the symptoms of hypoglycemia can appear unexpectedly. IOW, if you are experiencing the symptoms of hypoglycemia, it might be a good idea to use less olive oil.

It can actually be dangerous to diabetics, since it can interfere with the action of insulin and oral drugs taken for diabetes.

http://www.drugdigest.org/DD/PrintableP ... 75,00.html

If you want to test a diet item, you shouldn's substitute an item, since that will confound the test. The best procedure is to remove the item for a few days, and see what happens, (four or five days is abut right), and then re-introduce it to see what happens both ways.

Normal transit time is around 30 hours, and that works for a lot of us, also, unless we're having a serious reaction to something.

Gotta stop here, 'cause I gotta go to the chatrooom.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by starfire »

Hmmmmmm, may I question your transit time estimate, Wayne?
I'm really positive mine is much less. I can't give you a definite time but I'd say at the most - 24 - and I think it's less.

I believe I'll have to test that out. I know when I eat nuts I see little nut pieces in my stool so I'll have to pay attention to how long it takes sometime.

I know you said NORMAL transit time, but it sounds like Cristi might not be in the "normal" catagory yet.

Love, Shirley
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Post by moremuscle »

Hi Cristi,

I see some rice protein powder on your menu - what is in that supplement other than rice? This supplement could be messing you up - try to read the ingredient list. If in doubt you can write the list of ingredients here and we can help you with it.

Some rice is enriched - it is generally a bad idea to eat enriched products; try to use plain rice. Again, generally speaking it is a very good idea to always use plain (not processed) food - clean products that have not been altered. You can add your own spices if needed.

Too much rice may be the problem. Some of us have problems with grains overall - instead of rice you could try to use more potatoes if you need a starch. If you feel like you can do without so much starch in the diet you can try to add more meat, vegetables, and fruit to your diet. Cashews are a little questionable since they are a legume - almonds, pecans, or walnuts are better choices of nuts for most of us.

All of the above are just suggestions as to possible pitfalls or potential hazards in your diet - we are trying to figure out how to make progress, right LOL!

You are already doing a good job with your diet if you are eating as simply as described above.

Are you taking any kind of supplements or drinks that are not on your list above? Supplements can be a HUGE problem for MI'ers.

Hopefully you are not drinking any rice milks? Or soy milks?

Personally, I drink water, black tea (Earl Grey, English Breakfast, Darjeeling, Ceylon etc.), black coffee either decaf or regular (no flavored coffees). Ocassionally I drink a small amount of fruit juice - be vry careful with the ingredients in any kind of drink consumed.

Do you have a problem with bananas? Bananas used to be one of the items we would always recommend to a person starting out the gluten free diet - I eat some banana on a daily basis along with lots of other fresh fruit; but some people don't take well to fresh fruit and/or vegetables while they still have diarrhea. Doesn't sound like diarrhea is your main symptom? Having only 2-3 bowel movements in a day is a very mild case of diarrhea - of course it would still be nice to see the bowel movements consistantly formed and somewhat firm. To me it sounds like you are already doing well with the diet.

Is your stock home made? You can buy chicken stock (Imagine brand, Pacific brand, Shelton brand) in the HF stores and some regular super markets carry those brands too. They are delicious. If you are using a canned stock product it may contain something that is a problem. Again, carefully read the labels :smile:

Love,
Karen
Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
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Post by Polly »

Whew! Lots of good info in this thread.

Cristi - I don't do too well with coconut, so you might want to consider that. And I agree with Karen about maybe eliminating the rice powder supplement - might be too much grain there. (Remember, even if you don't have an intolerance to rice, all grains contain lectins, which make the gut more permeable to other proteins). IMHO, meats or nuts are a much better source of protein anyway. Grains do not really give a huge nutritional bang-for-the-buck.

I have read a million times that the processing of oils removes the protein component to which people may react. Well, I am here to tell you that this is not true for me in the case of soy. I cannot eat anything with soy oil or soy lecithin. As Matthew always says, I have found olive oil to be the best-tolerated.

Karen, correct me if I'm wrong, but I thought that cashews were tree nuts, not legumes like peanuts. A good reason to eat walnuts is that they are the highest in omega 3s. Macadamias are the second highest, and almonds the worst.

Good luck Cristi. Feel free to list your menu anytime - the best way to fine-tune it is to hear about the experience of others.

Love,

Polly
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