Tex-
Ativan is potent stuff, so you must take them at prescribed doses or you will have a real problem trying to come off of them. I am taking a very low dose but it does the trick well.
I hope it isnt UC but usually after having UC for about 1.5 years- wouldnt you have blood then? Or is it possible that my gluten and casien sensativity is causing the inflammation? I know docs say food doesnt do that- but they have been wrong before.
Started diet... Heres my log... Diet trouble... help
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
It's certainly possible, (and the test results from Enterolab go along with this), that if you do have UC, it's in remission, as of the date of that sample.
Since UC normally develops at the distal end of the colon, and spreads upward toward the proximal end, (but rarely actually approaches the proximal end), I would think that a stool sample would allow for a very valid test of the presence of the protein that indicates inflammation due to UC, (since the sample will be located in the area of the colon most likely to be inflammed the most, just before the sample is procured). (You might email them to verify that opinion, but that's my impression).
Anyway, by default, then, my thoughts are that the D you have been experiencing may indeed have been due to inflammation caused by gluten and/or casein, just as you suggest.
Tex
Since UC normally develops at the distal end of the colon, and spreads upward toward the proximal end, (but rarely actually approaches the proximal end), I would think that a stool sample would allow for a very valid test of the presence of the protein that indicates inflammation due to UC, (since the sample will be located in the area of the colon most likely to be inflammed the most, just before the sample is procured). (You might email them to verify that opinion, but that's my impression).
Anyway, by default, then, my thoughts are that the D you have been experiencing may indeed have been due to inflammation caused by gluten and/or casein, just as you suggest.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Day 14:
Totally out of ativan withdrawal and feeling good *knock on wood*
Meds: 1 mg ativan, 150 mg wellbutrin, 3 entocort, 0 asacol, 3 imodium, calcium
Breakfast: 1 Vans Original GF waffle and 1 Vans GF Apple Cin waffle
Snack: Banana rice muffin
Lunch: shrimp with brown rice pasta, left over greenbeans
Dinner: Salmon, rice pasta, apple sauce
Snack: 1 Enjoy Life GFCFSF apple cin bar (gas afterwards) too early to introduce that
1 normalish BM in morning
On day 15 of the diet (today) I had a pretty much normal bm but a little soft, but hey Im not complaining b/c I ate that apple cin bar and I expected worse when the gas came on later that night.
Wow two weeks into the diet. I feel that the diet is getting easier and easier because I have rice pasta (I used to love wheat pasta) that is comparable to wheat pasta. I have been able to make breads and muffins to snack on and I make sure I always have a lot of protien at dinner because I rarely have protien in the morning. I hope this will change as I might add in eggs in a few days. Dr Fine says I am not intolerant of them so I think everything should be fine, but it might be a matter of how much I have healed in the past two weeks. Probably not that much; however, I did not show any damage on Dr Fines test.
Totally out of ativan withdrawal and feeling good *knock on wood*
Meds: 1 mg ativan, 150 mg wellbutrin, 3 entocort, 0 asacol, 3 imodium, calcium
Breakfast: 1 Vans Original GF waffle and 1 Vans GF Apple Cin waffle
Snack: Banana rice muffin
Lunch: shrimp with brown rice pasta, left over greenbeans
Dinner: Salmon, rice pasta, apple sauce
Snack: 1 Enjoy Life GFCFSF apple cin bar (gas afterwards) too early to introduce that
1 normalish BM in morning
On day 15 of the diet (today) I had a pretty much normal bm but a little soft, but hey Im not complaining b/c I ate that apple cin bar and I expected worse when the gas came on later that night.
Wow two weeks into the diet. I feel that the diet is getting easier and easier because I have rice pasta (I used to love wheat pasta) that is comparable to wheat pasta. I have been able to make breads and muffins to snack on and I make sure I always have a lot of protien at dinner because I rarely have protien in the morning. I hope this will change as I might add in eggs in a few days. Dr Fine says I am not intolerant of them so I think everything should be fine, but it might be a matter of how much I have healed in the past two weeks. Probably not that much; however, I did not show any damage on Dr Fines test.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Day 15:
Meds: 2 asacol, 150 mg wellbutrin, 1 mg ativan, 3 imodium, calcium 3 entocort
Breakfast: 2 apple cin vans GF waffles
Lunch: rolled up GF lunch meat and banana rice muffin and midel gfcf ginger snap cookes
Dinner: salmon, brown rice pasta, slice of pamelas gfcf bread
Meds: 2 asacol, 150 mg wellbutrin, 1 mg ativan, 3 imodium, calcium 3 entocort
Breakfast: 2 apple cin vans GF waffles
Lunch: rolled up GF lunch meat and banana rice muffin and midel gfcf ginger snap cookes
Dinner: salmon, brown rice pasta, slice of pamelas gfcf bread
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Sorry I forgot the poop report on day 15: it was mentioned in a later post- normalish, first part very formed, last half relatively formed but softer than the first half.
I think I may have pushed day 15's foods too much. After ingestind day 14's food I got a little gas after the apple cin vans waffle, and then a lot of gas after the enjoy life apple cin bar. Well yesterday I ate 2 apple cin waffles and ate 7 or 8 ginger snap cookies (I think it may have been too early to introduce the apple cin waffles, the enjoy life bar, and the ginger snap cookies- because today my stomach is grumbling, and I have some rectum pressure (gas maybe?). So I think I am going to eliminate those foods for now and just concentrate more on the foods that were going well before. I think my gut needs more healing time before I introduce more complex foods.
I think I may have pushed day 15's foods too much. After ingestind day 14's food I got a little gas after the apple cin vans waffle, and then a lot of gas after the enjoy life apple cin bar. Well yesterday I ate 2 apple cin waffles and ate 7 or 8 ginger snap cookies (I think it may have been too early to introduce the apple cin waffles, the enjoy life bar, and the ginger snap cookies- because today my stomach is grumbling, and I have some rectum pressure (gas maybe?). So I think I am going to eliminate those foods for now and just concentrate more on the foods that were going well before. I think my gut needs more healing time before I introduce more complex foods.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Day 16:
Meds: 2 asacol, 150 mg wellbutrin, 3 imodium, calcium, 1 mg ativan
No bowel movement but feeling a bit malaised
Breakfast: hot rice cereal
Snack: Banana rice muffin
Lunch: poached egg, GF lunchmeant, 2 slices Pamelas bread
Dinner: chciken and shrimp with rice pasta
Today on Day 17: I had a normal bowel movement, quite a lot actually, and then for the rest of the day I was a bit light headed and felt like my colon was having spasms. Anyone experience this? I could just be a little nervous because I should find out tomorrow if I got the job I interviewed for, and my parents are coming into town... I will be glad to see them but stressing about the visit a bit.
Meds: 2 asacol, 150 mg wellbutrin, 3 imodium, calcium, 1 mg ativan
No bowel movement but feeling a bit malaised
Breakfast: hot rice cereal
Snack: Banana rice muffin
Lunch: poached egg, GF lunchmeant, 2 slices Pamelas bread
Dinner: chciken and shrimp with rice pasta
Today on Day 17: I had a normal bowel movement, quite a lot actually, and then for the rest of the day I was a bit light headed and felt like my colon was having spasms. Anyone experience this? I could just be a little nervous because I should find out tomorrow if I got the job I interviewed for, and my parents are coming into town... I will be glad to see them but stressing about the visit a bit.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
I hope you just forgot to list the Entocort, because if you stop taking it abruptly, you will have adverse effects, as I'm sure you're aware.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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harvest_table
- Rockhopper Penguin
- Posts: 1509
- Joined: Wed May 25, 2005 6:29 pm
- Location: Fergus Falls, Minnesota
Hi Andrew, I was wondering about that too.
I also noticed (and wondered about it) on day 14 you didn't take any asacol at all but resumed taking 2 on day 15 & 16. I know your plan is to wean down the meds but be sure to do it slowly. I'm not sure it's a safe plan to go from 3 Entocort a day to none. Just my thoughts.
Yes, I have experienced rather violent colon spasms but only when I was having chronic explosive D while reacting poorly to asacol. I had no problems taking Entocort though.
Congrats on a somewhat normal bowel movement. Keep the faith! Hope you get the job offer and have fun with Mom and Dad.
Love,
Joanna
I also noticed (and wondered about it) on day 14 you didn't take any asacol at all but resumed taking 2 on day 15 & 16. I know your plan is to wean down the meds but be sure to do it slowly. I'm not sure it's a safe plan to go from 3 Entocort a day to none. Just my thoughts.
Yes, I have experienced rather violent colon spasms but only when I was having chronic explosive D while reacting poorly to asacol. I had no problems taking Entocort though.
Congrats on a somewhat normal bowel movement. Keep the faith! Hope you get the job offer and have fun with Mom and Dad.
Love,
Joanna
THE GLUTEN FILES
http://jccglutenfree.googlepages.com/
http://jccglutenfree.googlepages.com/
Sorry guys forgot to list the entocort. That is the last of the UC meds to taper off of. I ran out of asacol on day 14 and had to wait until day 15 to get it again.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Hi there,
Sounds as though you are responding nicely to diet.
Don't forget that immodium, of course, is constipating, and calcium can be as well. Maybe you should think about weaning off of immodium about now, and also, drink plenty of water, and other things that will keep from stopping up the plumbing.
It took a while for the nerves to the longer end of my gut to start firing correctly, and of course, those muscles hadn't been used to push more than liquid for soooo long, that they were just plain out of shape for Olympic events like having formed stools! Ha!
My contractions felt more like "The Little Train that Can't," but gradually, they got up to speed. It's a weird feeling feeling your lower gut relearn how to do it's thing! Eventually, that "struggling" feeling will just not be there if it goes well. Maybe you've not gotten to that point yet, but it gives you something to ponder as you are sitting there waiting later on in the process! Ha!
Seriously, I would up the fluids, maybe walk or something for exercise, and think about whether or not it's time to work on fazing out the immodium.
You may need a little more help to prevent constipation before long due to the other central nervous system depressents I see you are taking.
Most of all, be happy, and enjoy your success so far.
Yours, Luce
Sounds as though you are responding nicely to diet.
Don't forget that immodium, of course, is constipating, and calcium can be as well. Maybe you should think about weaning off of immodium about now, and also, drink plenty of water, and other things that will keep from stopping up the plumbing.
It took a while for the nerves to the longer end of my gut to start firing correctly, and of course, those muscles hadn't been used to push more than liquid for soooo long, that they were just plain out of shape for Olympic events like having formed stools! Ha!
My contractions felt more like "The Little Train that Can't," but gradually, they got up to speed. It's a weird feeling feeling your lower gut relearn how to do it's thing! Eventually, that "struggling" feeling will just not be there if it goes well. Maybe you've not gotten to that point yet, but it gives you something to ponder as you are sitting there waiting later on in the process! Ha!
Seriously, I would up the fluids, maybe walk or something for exercise, and think about whether or not it's time to work on fazing out the immodium.
You may need a little more help to prevent constipation before long due to the other central nervous system depressents I see you are taking.
Most of all, be happy, and enjoy your success so far.
Yours, Luce
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moremuscle
- Rockhopper Penguin
- Posts: 706
- Joined: Wed May 25, 2005 6:16 am
- Location: South Carolina
Hi Andrew,
It's not easy to figure out how to change one's diet to something that works - let there be no doubt about it. I can see you are struggling with it and that's probably necessary for you to do at this time. You will get past this phase. A lot of it has to do with being willing to break old habits - it can be hard to do because we tend to LOVE certain foods and rituals around eating so much that we go into a pattern of grief when we give those habits up. It makes us angry and sad at the same time - why me?!
It took me a long time to figure out what works for me. I went through several phases of realizations on the way. One of the major breaktroughs for me was when I realized that I could not become well on a diet that consisted of subsitutes for the things that I could no longer have; example: Trying to find gluten/dairy free bread. Trying to find a drink that could replace milk such as for example rice milk. Trying to find corn chips w/o corn LOL! Etc. you get the picture, right
Butter w/o butter, a cereal made w/o grain, corn syrup w/o corn - this is funny; it just doesn't work!! What you need is a diet based on real food - not substitutes.
When you are ready or if this is what you want to do you will stop searching the aisles of the HF store of gluten and dairy free breads/cereals/cookies etc and instead try to figure out what you can make for breakfast that is not a substitute for bread, cereal w/milk, muffins, pancakes etc. etc.
What is wrong with eating eggs and pork chops or salmon for breakfast? What is wrong with eating fruit and vegetables for breakfast?
Your current diet is so complicated that it is difficult to know which item causes a reaction - it could be one or several of the foods you eat in addition to one or several of your medications. It is necessary to make is simpler.
Please, don't beat yourself up over this - you will find foods and a new lifestyle that will work for you; it just takes some experimenting and some time to figure it out. Try to savor the opportunity to focus on yourself and your body - something good will come from this.
Love,
Karen
It's not easy to figure out how to change one's diet to something that works - let there be no doubt about it. I can see you are struggling with it and that's probably necessary for you to do at this time. You will get past this phase. A lot of it has to do with being willing to break old habits - it can be hard to do because we tend to LOVE certain foods and rituals around eating so much that we go into a pattern of grief when we give those habits up. It makes us angry and sad at the same time - why me?!
It took me a long time to figure out what works for me. I went through several phases of realizations on the way. One of the major breaktroughs for me was when I realized that I could not become well on a diet that consisted of subsitutes for the things that I could no longer have; example: Trying to find gluten/dairy free bread. Trying to find a drink that could replace milk such as for example rice milk. Trying to find corn chips w/o corn LOL! Etc. you get the picture, right
Butter w/o butter, a cereal made w/o grain, corn syrup w/o corn - this is funny; it just doesn't work!! What you need is a diet based on real food - not substitutes.When you are ready or if this is what you want to do you will stop searching the aisles of the HF store of gluten and dairy free breads/cereals/cookies etc and instead try to figure out what you can make for breakfast that is not a substitute for bread, cereal w/milk, muffins, pancakes etc. etc.
What is wrong with eating eggs and pork chops or salmon for breakfast? What is wrong with eating fruit and vegetables for breakfast?
Your current diet is so complicated that it is difficult to know which item causes a reaction - it could be one or several of the foods you eat in addition to one or several of your medications. It is necessary to make is simpler.
Please, don't beat yourself up over this - you will find foods and a new lifestyle that will work for you; it just takes some experimenting and some time to figure it out. Try to savor the opportunity to focus on yourself and your body - something good will come from this.
Love,
Karen
Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
living w/o gluten, dairy, soy, corn, and yeast.