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Hey...my first student arrived...she is from Japan, and I liked her right away! I took her to Target...and she helped me cook spaghetti sauce....low English skills, but we seem to communicate OK.
I think I am going to up my dosage of Entocort...instead of 3pills X week, I will take it every other day until Norman returns...he has been gone for a looooong time. My GI retired, I'll have to see someone else in his office later this summer.
I have small classes for my summer workshops which start Monday...3 kids in the morning, and 5 in the afternoon...it will be soooo much fun, but not much $$$$. Oh well!
More soon...student #2 arrives from Vietnam on Sunday.
Sounds like a fun summer. I'm sure you're really busy...but when you get the chance I'd love to hear your experience with taking entocort and diet. Do you sometimes get D after remission? Do you have any side effects from the entocort? It sounds like you have a full life even when you haven't seen norman in a while....do you not feel poorly when going through this...or do you just push yourself to get through it? How long have you had MC?
Sorry..I know I'm full of questions. I know we're all different ,but I guess I'm trying to understand this disease long term. Do you live with occasional D but with no other discomfort or aches and fatigue? Or is this like other auto immune diseases where some days are good and some are not? Thanks for any insight you can send my way.
BTY, We're not only in the same state...but share the same birthday. Small world!
Hope increasing your Entocort will get you back on track real soon. (I bet it will) I don't recall, did you lower your dosage or stop using it altogether awhile back, maybe to see how you would do on a lower dosage or without it?
Enjoy your kids this summer! I know they will enjoy you.
I think I was diagnosed with CC about 4 years ago...I have totally lost track...after having a bad reaction to Asacol, Pepto B. didn't work, (and the doc tried something else too), the Entocort has been a blessing. The doc weaned me down to 2 pills per week and the D came back (I think I originally started with 1 pill per day)...then I have been back to 3 X week and still having probs. Today I started the every other day routine...did not call the doc...he retired, so will have to see someone new later this summer....sigh....I have been under great stress, so the D is no surprise. I have had achy hands lately...don't know if that is from my flare...other wise feel well. The D hasn't been as bad for the past few days..I swear that yogurt with live whatevers, set me back...not a good reaction. Am looking forward to getting back to having Norman in the house and going back to 3 pills per week. I start teaching tomorrow...so can't afford to be ill. My other International student arrives later today...I also need to go to school soon to get set-up for tomorrow...TTFN...JJ
I'm glad the entocort has been a blessing for you. I was on 9 mg ( 3pills a day) for 8 weeks...but I didn't stop eating gluten ..so it helped somewhat with the D but not the symptoms (nausia and body aches). But people here seem to think that was from eating gluten and not side effects from the entocort. BTY, are you eating a gluten free diet or just using the entocort? I'm thinking of giving the diet only stategy a few more weeks then trying to combine it with entocort to see if I can get better.
I've also been experiencing achey hands...mainly the joints in my fingers....it hangs around for a week then disappears for a while. My doctor thought it might be withdrawal symptoms from eliminating gluten....but if you're gf then I assume it can't be that but is somehow related to the MC. I wonder if others here have achey hands?
Well JJ, I hope the stress in your life eases up and you are back to Norman soon.
Love,
Cristi
Hi....no, I have not gone GF...too lazy! I had a bone density test to see if the Entocort had done any dammage, and I was fine. I seem to bruise a bit easier...and the achy hands just started recently...thought I had done too much yard work or something. ?????? It will be interesting to see if the higher dosage of Entocort makes a difference...I'll keep you posted.
My second student is here..her name is Tuyet...pronounced Twee...means snow in Vietnmese. I made a roast for dinner...got it from Costco and it was not a very tender cut. Oh well.....tomorrow I need to make rice...Tuyet says she eats it at every meal...I don't want her to go through major withdrawels. She has never seen a microwave, Starbucks or McDonalds....and...did not bring a computer with her......I can imagine how weird my life must seem to her!
I start teaching tomorrow, and the girls start Orientation at the college... nite nite all...JJ
JJ
Have fun!
