Just letting everyone know I am here !
Gotta run, but will post more later - looking forward to seeing you all !
Carla
I am here !
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
I am here !
LC - dx'd 2004 - Celiac -biopsy dx'd 2004 - pernicious anemia... ;)
Hi Carla and welcome! I'll be back later but wanted to say now that you are the first person I've seen who has both LC -and- Celiac. Wow. Well at least you know not to eat gluten. I have LC but tested negative for Celiac although I do have the DQ2 gene. Did you get diagnosed with both diseases at the same time? I'm really, really curious becuase I have a hunch that I may have Celiac, although possibly a latent or silent type. Thanks - to be continued.
Carrie
diagnosed LC 9/04, in remission since 1/05
P.S. I hope you will stay with this forum. I know there are lots of rooms for Celiac but IMHO this is the best for MC/CC/LC. I, for one, am really interested in learing more about your medical history!!!
Carrie
diagnosed LC 9/04, in remission since 1/05
P.S. I hope you will stay with this forum. I know there are lots of rooms for Celiac but IMHO this is the best for MC/CC/LC. I, for one, am really interested in learing more about your medical history!!!
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annie oakley
- King Penguin
- Posts: 3859
- Joined: Fri May 13, 2011 5:56 pm
YAY! Carla is here! Now we can party! 
I am so happy you have joined us. I always enjoy your informative posts - and you have done quite a bit of research that you are always willing to share. What a great addition to the board you are! Here's a group hug to welcome you.
Love,
Polly
I am so happy you have joined us. I always enjoy your informative posts - and you have done quite a bit of research that you are always willing to share. What a great addition to the board you are! Here's a group hug to welcome you.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
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moremuscle
- Rockhopper Penguin
- Posts: 706
- Joined: Wed May 25, 2005 6:16 am
- Location: South Carolina
Hi Carla,
Welcome to the family
I am looking forward to seeing you post and learning about how you cope with Microscopic Colitis and Celiac Disease. Someone mentioned they don't know of any others with both dxs but I think Lucy is one. It actually doesn't matter so much whether you have Celiac Disease or not - there is a wide spectrum of gluten sensitivity and many of us fall into it somewhere on the scale. The treatment is the same
I guess I'm getting too serious
Love,
Karen
Welcome to the family
I am looking forward to seeing you post and learning about how you cope with Microscopic Colitis and Celiac Disease. Someone mentioned they don't know of any others with both dxs but I think Lucy is one. It actually doesn't matter so much whether you have Celiac Disease or not - there is a wide spectrum of gluten sensitivity and many of us fall into it somewhere on the scale. The treatment is the same
I guess I'm getting too serious
Love,
Karen
Thank you all for the warm welcome
I really enjoy reading all your posts, even though I may not be an everyday poster, I still come here several times a day - and always learn something !
As far as being dx'd with both LC and celiac, in my reading I have found it far more common for a Celiac to be dx'd with LC or CC after being dx'd with Celiac. I think I read somewhere in one study or another that approximately 30% of LC sufferers have actual biopsy proven Celiac, and that doesn't account for what they term "gluten intolerant" I also remember reading that in certain people, the MC may actually be the colon's response to gluten - as the villous atrophy is the small intestines response to gluten.
I think that in the coming years, there will be lots more research done (hopefully) on Celiac & MC, with the result being that they may be even more connected than previously thought. Just think, a few years ago, Celiac was "something extremely rare in the US - maybe one in 4000 people" Now, we know that the prevalence is closer to 1 in 150 in the general population, and in a symptomatic person, closer to 1 in 50. I remember the first gastroenterologist I saw told me this, "You can't have Celiac, you are in your 30's." Well, i guess my second (and far better) gastroenterologist has proven him wrong ! I often thought about stopping by to see the first one and saying, "Ha ! You were wrong !" (After telling my pcp what this guy said, he kinda rolled his eyes and said that he wasn't suprised- he had sent me to him specifically for the upper endoscopy to test for Celiac - the gastro didn't even want to do the Celiac panel, thought it would be a waste of time.
In my humble opinion, I think we are all in a learning process, and that the best way to learn is by exchanging ideas, and also, that what works for one may not necessarily work for another !
Looking forward to gossiping lots and lots with all of you !
Love,
Carla
As far as being dx'd with both LC and celiac, in my reading I have found it far more common for a Celiac to be dx'd with LC or CC after being dx'd with Celiac. I think I read somewhere in one study or another that approximately 30% of LC sufferers have actual biopsy proven Celiac, and that doesn't account for what they term "gluten intolerant" I also remember reading that in certain people, the MC may actually be the colon's response to gluten - as the villous atrophy is the small intestines response to gluten.
I think that in the coming years, there will be lots more research done (hopefully) on Celiac & MC, with the result being that they may be even more connected than previously thought. Just think, a few years ago, Celiac was "something extremely rare in the US - maybe one in 4000 people" Now, we know that the prevalence is closer to 1 in 150 in the general population, and in a symptomatic person, closer to 1 in 50. I remember the first gastroenterologist I saw told me this, "You can't have Celiac, you are in your 30's." Well, i guess my second (and far better) gastroenterologist has proven him wrong ! I often thought about stopping by to see the first one and saying, "Ha ! You were wrong !" (After telling my pcp what this guy said, he kinda rolled his eyes and said that he wasn't suprised- he had sent me to him specifically for the upper endoscopy to test for Celiac - the gastro didn't even want to do the Celiac panel, thought it would be a waste of time.
In my humble opinion, I think we are all in a learning process, and that the best way to learn is by exchanging ideas, and also, that what works for one may not necessarily work for another !
Looking forward to gossiping lots and lots with all of you !
Love,
Carla
LC - dx'd 2004 - Celiac -biopsy dx'd 2004 - pernicious anemia... ;)
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Tessa
- Rockhopper Penguin
- Posts: 774
- Joined: Thu May 26, 2005 2:49 pm
- Location: Málaga, Spain (Costa del Sol)
- Contact:
Hi, Carla. Welcome to the board! You have incredible references. 
You do not know me yet. I cannot remember having posted before with you. It is nice to know someone new who shares the same as I have.
I have MC, in fact, LC and I am going to have my tests on gluten sensivity done. I really think I could have problems with gluten, maybe even celiac, who knows? Then we would share much more than just LC...
I am sure I will learn a lot from your experience & I am looking forward to it. Thank you for being here with us.
Should you need a conversation or compare experiences, just ask me.
Love,
Tessa.
You do not know me yet. I cannot remember having posted before with you. It is nice to know someone new who shares the same as I have.
I have MC, in fact, LC and I am going to have my tests on gluten sensivity done. I really think I could have problems with gluten, maybe even celiac, who knows? Then we would share much more than just LC...
I am sure I will learn a lot from your experience & I am looking forward to it. Thank you for being here with us.
Should you need a conversation or compare experiences, just ask me.
Love,
Tessa.
DX Secondary Adrenal Insufficiency= Panhypopituitarism,POTS & MC. Anaphylactic reaction to foods & some drugs.
Gluten & Dairy free diet+hydrocortisone, Florinef, Sea Salt, Vit B Complex, Potassium, Sodium, Magnesium...
Gluten & Dairy free diet+hydrocortisone, Florinef, Sea Salt, Vit B Complex, Potassium, Sodium, Magnesium...
Tessa...
Thank you for such kind words ! Don't worry, if you are gluten intolerant or Celiac (to me it is the same thing), the diet (I hate that word - we should say "the gluten free lifestyle - that doesn't sound so restrictive!)
anyway, avoiding gluten is not bad at all ! Take it from me as one that LOVED Subway sandwiches and biscuits & gravy, it just takes a little getting used to !
Although, I do still salivate when I pass Subway and hum to myself "precious memories"
Anyhoo, I look forward to getting to know you better !
Love,
Carla
anyway, avoiding gluten is not bad at all ! Take it from me as one that LOVED Subway sandwiches and biscuits & gravy, it just takes a little getting used to !
Although, I do still salivate when I pass Subway and hum to myself "precious memories"
Anyhoo, I look forward to getting to know you better !
Love,
Carla
LC - dx'd 2004 - Celiac -biopsy dx'd 2004 - pernicious anemia... ;)
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MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
