I finally got in touch with my endo and asked if he could write me a compounding perscription for my thyroid medication as it has dairy and corn. He refused saying no one in twenty years of perscribing this has ever had a problem and that he didn't trust the quality of compounding pharmacies anyway.
If it was only for a couple of weeks I wouldn't mind risking it ...but I'm sure I will be on this for a long time.
What's with these endocrinologists? The first one told me to get used to the idea that I probably had cancer and now this one. It takes so long to get an appointment with one and I hate to wait so long before starting my medication. But, he refuses to treat me if I try to get it compounded.
Has anyone else ran into this problem? I'm definitely allergic to dairy even before the MC....and I told the endo this....wouldn't budge.
Any suggestions for me? I'm so frustrated.
Love,
Cristi
what's with endo???
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Cristi,
Geesh, do I hate this attitude.
It is not uncommon among specialists. They do not seem to appreciate any idea that does not come from themselves........and are threatened by info they don't know about.
This really IS unacceptable behavior. My suggestion would be to work through your family doc or internist. Many of us have found that primary care docs are far more flexible.....and much more willing to learn from their patients and work together as a team. If you don't have that kind of doc now, perhaps you can ask around and find one of the "good guys". They ARE out there. There is no reason why a primary care doc cannot write your compounding prescriptions.
Good luck. I don't blame you at all for being frustrated. I am continually embarrassed by some of my colleagues......sigh.
Love,
Polly
Geesh, do I hate this attitude.
It is not uncommon among specialists. They do not seem to appreciate any idea that does not come from themselves........and are threatened by info they don't know about.This really IS unacceptable behavior. My suggestion would be to work through your family doc or internist. Many of us have found that primary care docs are far more flexible.....and much more willing to learn from their patients and work together as a team. If you don't have that kind of doc now, perhaps you can ask around and find one of the "good guys". They ARE out there. There is no reason why a primary care doc cannot write your compounding prescriptions.
Good luck. I don't blame you at all for being frustrated. I am continually embarrassed by some of my colleagues......sigh.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi Cristi,
It sounds like the guy is nuts, or maybe it's just the pain from his swollen head, (due to his huge ego), that is causing him to behave like a spoiled brat. That really sucks, especially since it takes so long to get set up with another one.
Personally, I would feel obligated to tell him where to stick his childish behavior, but I'm glad to see that Polly was able to offer a much better solution.
Your request is quite reasonable, and is certainly in your best interest, as far as your health is concerned. Personally, I don't believe that I could trust a doctor who was so inconsiderate of my personal welfare.
Guys like that should be in another line of work. Like maybe doing custodial work in one of the popular bullrings in Spain, where he could shovel BS to his heart's delight.
Love,
Tex
It sounds like the guy is nuts, or maybe it's just the pain from his swollen head, (due to his huge ego), that is causing him to behave like a spoiled brat. That really sucks, especially since it takes so long to get set up with another one.
Personally, I would feel obligated to tell him where to stick his childish behavior, but I'm glad to see that Polly was able to offer a much better solution.
Your request is quite reasonable, and is certainly in your best interest, as far as your health is concerned. Personally, I don't believe that I could trust a doctor who was so inconsiderate of my personal welfare.
Guys like that should be in another line of work. Like maybe doing custodial work in one of the popular bullrings in Spain, where he could shovel BS to his heart's delight.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Wayne,
Why don't you tell us what you really think about docs, LOL!!!
Cristi,
Why don't you go at from another direction. Find a compounding pharmacist and ask him/her if they know of any good doctors who are willing to write compounding prescriptions. My (ex) family doctor told me she didn't know how to write one because it was too complicated.
Love, Jean
Why don't you tell us what you really think about docs, LOL!!!
Cristi,
Why don't you go at from another direction. Find a compounding pharmacist and ask him/her if they know of any good doctors who are willing to write compounding prescriptions. My (ex) family doctor told me she didn't know how to write one because it was too complicated.
Love, Jean
Be kind to everyone, because you never know what battles they are fighting.
Hi All,
I'm glad to hear you think this is unacceptable behavior as well. He really surprised me as his bedside manner was so good...his explainations were very clear and his plan was a conservative one ...a lot of endos go straight to the radioactive iodine treatment...and he was going to start with low dose medication since my graves' disease is mild. So I was totally surprised when he refused the compounding prescription.Darn...I thought I'd found a "good guy". I agree Tex, It will be very difficult to trust him now.
I've left a message with my primary doctor...she's very good friends with the endo...used to work with him and are social friends now. I don't know if politics is going to enter into this but I know her loyalties are with him if she feels at all uncomfortable about this.
Jean, you may be on to something. At this point I'm wondering if even the good doctors are going to view me as a problem given that I'm choosing to use diet for a disease(MC) they've never heard of with allergies from a lab they are not sure of(enterolabs) and now want a compounding prescription based on those suspect labs. I know they are all crunched for time and I must look like a major drain on their already precious time. So if I do as you suggest and start out with a doctor who has already used a compounding pharmacy..half my battle will already be won.
A rant for another day...but I think the stupid insurance companies have gotten both patients and doctors into this mess.
Thanks for the support. As always you guys are great. I'll keep you posted.
Love
Cristi
I'm glad to hear you think this is unacceptable behavior as well. He really surprised me as his bedside manner was so good...his explainations were very clear and his plan was a conservative one ...a lot of endos go straight to the radioactive iodine treatment...and he was going to start with low dose medication since my graves' disease is mild. So I was totally surprised when he refused the compounding prescription.Darn...I thought I'd found a "good guy". I agree Tex, It will be very difficult to trust him now.
I've left a message with my primary doctor...she's very good friends with the endo...used to work with him and are social friends now. I don't know if politics is going to enter into this but I know her loyalties are with him if she feels at all uncomfortable about this.
Jean, you may be on to something. At this point I'm wondering if even the good doctors are going to view me as a problem given that I'm choosing to use diet for a disease(MC) they've never heard of with allergies from a lab they are not sure of(enterolabs) and now want a compounding prescription based on those suspect labs. I know they are all crunched for time and I must look like a major drain on their already precious time. So if I do as you suggest and start out with a doctor who has already used a compounding pharmacy..half my battle will already be won.
A rant for another day...but I think the stupid insurance companies have gotten both patients and doctors into this mess.
Thanks for the support. As always you guys are great. I'll keep you posted.
Love
Cristi
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harvest_table
- Rockhopper Penguin
- Posts: 1509
- Joined: Wed May 25, 2005 6:29 pm
- Location: Fergus Falls, Minnesota
Hi Cristi,
Here's a site to help you find a compounding pharmacist in your area- if your in the US.
http://www.angelfire.com/fl/endohystnhrt/pharmacy.html
I agree with Jean, it will be alot easier to pick up the phone and call a pharmacist ( they will at least talk to you on the phone, unlike Docs ) explain your situation and see if they would reccomend a Doc to you. They would be familiar with Docs that are prone to write these types of perscriptions. It's worth a try.
Hang in there.
Love,
Joanna
Here's a site to help you find a compounding pharmacist in your area- if your in the US.
http://www.angelfire.com/fl/endohystnhrt/pharmacy.html
I agree with Jean, it will be alot easier to pick up the phone and call a pharmacist ( they will at least talk to you on the phone, unlike Docs ) explain your situation and see if they would reccomend a Doc to you. They would be familiar with Docs that are prone to write these types of perscriptions. It's worth a try.
Hang in there.
Love,
Joanna
THE GLUTEN FILES
http://jccglutenfree.googlepages.com/
http://jccglutenfree.googlepages.com/
Cristi-
What a pain! I'm sorry he's being a jerk! You got some good suggestions here. If you speak with him again regarding this, you may want to remind him your intolerances cause rapid transit diarrhea, so if you take the prescription, you will be absorbing little if any of the active ingredient in the medication..seems likea no-brainer!!
I like Jean's idea - I talked to a pharmacist when I was on meds for preterm labor and they were more than helpful about answering questions and looking things up.
Good luck!
Mary
What a pain! I'm sorry he's being a jerk! You got some good suggestions here. If you speak with him again regarding this, you may want to remind him your intolerances cause rapid transit diarrhea, so if you take the prescription, you will be absorbing little if any of the active ingredient in the medication..seems likea no-brainer!!
I like Jean's idea - I talked to a pharmacist when I was on meds for preterm labor and they were more than helpful about answering questions and looking things up.
Good luck!
Mary
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annie oakley
- King Penguin
- Posts: 3859
- Joined: Fri May 13, 2011 5:56 pm
Love OmaLOL. Now there's a statement that should be framed and hung in a prominent place. Thanks for that illuminating observation. I love it.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Cristi,
Have an idea for you that may circumvent the politics. Go into your primary care doc's office, and fill out a form to have copies sent from the endo's office of all your records there.
If you want, you can check first to see if your primary has enough info to prescribe the correct dosage as the endo had written, and THEN, request that she write the compounding order.
You can always tell her that the endo had never done this before, and didn't know what to do. This way, she's not likely to call him up and say, "Ha, ha, ha, you don't know how to order from a compounding pharmacy!"
I have a feeling that if he's selected the dosage and forwarded that to her in writing already, that she'll be glad to write the compounding version of it based on that. It might take a little longer for her to get the usual referral letter from the endo, however, so in the meantime, what will you do without it?
If you've got the written script, perhaps you could show her that, and she'd call it into a compounding pharmacy for you based on that.
Wow, what a ***** Luce
Have an idea for you that may circumvent the politics. Go into your primary care doc's office, and fill out a form to have copies sent from the endo's office of all your records there.
If you want, you can check first to see if your primary has enough info to prescribe the correct dosage as the endo had written, and THEN, request that she write the compounding order.
You can always tell her that the endo had never done this before, and didn't know what to do. This way, she's not likely to call him up and say, "Ha, ha, ha, you don't know how to order from a compounding pharmacy!"
I have a feeling that if he's selected the dosage and forwarded that to her in writing already, that she'll be glad to write the compounding version of it based on that. It might take a little longer for her to get the usual referral letter from the endo, however, so in the meantime, what will you do without it?
If you've got the written script, perhaps you could show her that, and she'd call it into a compounding pharmacy for you based on that.
Wow, what a ***** Luce
Hi, Cristi,
I don't have anything to add to the very good suggestions above except to agree that your endo shows an appalling lack of "first do no harm."
And it's nice to meet you. I am kind of a prodigal child coming home after a long absence.
Love,
Sally
I don't have anything to add to the very good suggestions above except to agree that your endo shows an appalling lack of "first do no harm."
And it's nice to meet you. I am kind of a prodigal child coming home after a long absence.
Love,
Sally
Mitakuye oyasin
(Lakota for "We are all related")
(Lakota for "We are all related")
Hi Luce,
I left a message with her last Friday morning and haven't heard from her yet. I'm waiting around hoping to hear from her and the compounding pharmacies today. I guess this is the type of situation where you find out if you and your doctor are a good match. If we're not...I'll move on until I find a good match. Good doctors are out there...and I'm going to find me one. My thyroid condition is mild and although I'd love to start the medication sooner...I've been living with these symptoms for 6 months and can wait a little longer to start.
Hi Sally,
I've heard a lot of great things about you. Thanks for helping all these great people get well....they have been passing the kindness on by helping me. I'm still in the process of healing....but am in a much stronger place than I was a couple of months ago when I found this site. The emotional support along with great information have been a huge help. Very nice to meet you.
Love, Cristi
I left a message with her last Friday morning and haven't heard from her yet. I'm waiting around hoping to hear from her and the compounding pharmacies today. I guess this is the type of situation where you find out if you and your doctor are a good match. If we're not...I'll move on until I find a good match. Good doctors are out there...and I'm going to find me one. My thyroid condition is mild and although I'd love to start the medication sooner...I've been living with these symptoms for 6 months and can wait a little longer to start.
Hi Sally,
I've heard a lot of great things about you. Thanks for helping all these great people get well....they have been passing the kindness on by helping me. I'm still in the process of healing....but am in a much stronger place than I was a couple of months ago when I found this site. The emotional support along with great information have been a huge help. Very nice to meet you.
Love, Cristi