Hi All,
This is the 14th day of eating the exact same thing...the only change from the previous menu was eliminating blueberries.Of the last 14 days I have had 9 pretty good days...a record. Last night the rumblings got much worse and today I have had a major cleaning out...along with the nausia again. I am so confused..this can not be diet related. Did any of you experience this in the beginning...going back and forth with no apparent diet connection? The only stupid thing that I did was use a shampoo that I know has gluten in it but was soo careful not to get it in my face. Is this something you guys never do or do you think I am being paranoid? I just have no other idea unless it is my thyroid somehow complicating this whole recovery process. I just feel so sick today.
Love,
Cristi
Having a sick day
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Cristi,
I'm so sorry to read that you're having a really bad day. Yes, back in the early stages of my recovery, I would sometimes get sick for no apparent reason--at least I wasn't able to make a connection that made sense.
Call me paranoid, but I use only GF skin products. Jean, who is super sensitive, says she doesn't believe that products like that should be a problem, but I wonder if there might be some individuals who could be exceptions. As we so often say, "we are all different".
Are you taking any meds that might possibly cause a problem?
Love,
Tex
I'm so sorry to read that you're having a really bad day. Yes, back in the early stages of my recovery, I would sometimes get sick for no apparent reason--at least I wasn't able to make a connection that made sense.
Call me paranoid, but I use only GF skin products. Jean, who is super sensitive, says she doesn't believe that products like that should be a problem, but I wonder if there might be some individuals who could be exceptions. As we so often say, "we are all different".
Are you taking any meds that might possibly cause a problem?
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Tessa
- Rockhopper Penguin
- Posts: 774
- Joined: Thu May 26, 2005 2:49 pm
- Location: Málaga, Spain (Costa del Sol)
- Contact:
Hi Cristi,
I am sorry that you are feeling so bad. Even though, please, keep up with your diet.
When I started the GF & DF diet, I also felt sick sometimes for no reason, but finally I assumed that it takes time for the body to balance and to start recovering.
Well, Tex it seems we are already 2 paranoids on Earth
LOL
I use only GF & DF skin products. I do believe that we should avoid these products and as there are plenty of GF & DF skin products in the market, why would we use something that might be bad for us?
In relation with meds, take care, some include gluten. Check it out.
Remember that you are feeling bad now, but that you will feel better after it.
Have a good rest,
Eat only what your stomach admits
Avoid stress
And above all, keep being positive.
You will find better soon,
Love,
Tessa
P.S.: Please, keep us updated.
I am sorry that you are feeling so bad. Even though, please, keep up with your diet.
When I started the GF & DF diet, I also felt sick sometimes for no reason, but finally I assumed that it takes time for the body to balance and to start recovering.
Well, Tex it seems we are already 2 paranoids on Earth
LOLI use only GF & DF skin products. I do believe that we should avoid these products and as there are plenty of GF & DF skin products in the market, why would we use something that might be bad for us?
In relation with meds, take care, some include gluten. Check it out.
Remember that you are feeling bad now, but that you will feel better after it.
Have a good rest,
Eat only what your stomach admits
Avoid stress
And above all, keep being positive.
You will find better soon,
Love,
Tessa
P.S.: Please, keep us updated.
DX Secondary Adrenal Insufficiency= Panhypopituitarism,POTS & MC. Anaphylactic reaction to foods & some drugs.
Gluten & Dairy free diet+hydrocortisone, Florinef, Sea Salt, Vit B Complex, Potassium, Sodium, Magnesium...
Gluten & Dairy free diet+hydrocortisone, Florinef, Sea Salt, Vit B Complex, Potassium, Sodium, Magnesium...
Hi Tex,
I am taking clonazepam ..half of a.5mg tablet. It does not have gluten but it does have fillers..probably corn starch and lactose, however I have been taking it the whole time. I would definitely stop it if I could but with my thyroid still hyper, it is the only way I have to stop my heart from racing. I am still waiting to see if my doctor will give me a compounding prescrition for the methimazole. As soon as I start that I hope to drop the clonazepam. I was careful with the shampoo, but I just cannot link this to anything else so I will not use it again. The only other possibility is I eat fish for lunch everyday and could have swallowed a bone. I did have 9 good days and am grateful for that...but this nausia is hard to deal with. Thanks for the support Tex.
Love,
Cristi
I am taking clonazepam ..half of a.5mg tablet. It does not have gluten but it does have fillers..probably corn starch and lactose, however I have been taking it the whole time. I would definitely stop it if I could but with my thyroid still hyper, it is the only way I have to stop my heart from racing. I am still waiting to see if my doctor will give me a compounding prescrition for the methimazole. As soon as I start that I hope to drop the clonazepam. I was careful with the shampoo, but I just cannot link this to anything else so I will not use it again. The only other possibility is I eat fish for lunch everyday and could have swallowed a bone. I did have 9 good days and am grateful for that...but this nausia is hard to deal with. Thanks for the support Tex.
Love,
Cristi
Hi Tessa,
Thanks for the hug and support. I am going to have to do some research. I have found gf dish soap and hand soap and I bought some gf lotion(california baby) but it is expensive and in a small bottle to boot. I still have not found a gf shampoo. I need to do some research.
Well, at least this appears to be the normal course for some people. I sure did enjoy those 9 days.Thanks, Tessa.
Love,
Cristi
PS. You have a beautiful name.
Thanks for the hug and support. I am going to have to do some research. I have found gf dish soap and hand soap and I bought some gf lotion(california baby) but it is expensive and in a small bottle to boot. I still have not found a gf shampoo. I need to do some research.
Well, at least this appears to be the normal course for some people. I sure did enjoy those 9 days.Thanks, Tessa.
Love,
Cristi
PS. You have a beautiful name.
Cristi,
You're taking a very low dose of clonazepam, (one third the normal starting dose), so even though the drug sometimes causes nausea and/or diarrhea, it probably isn't causing you to be sick today. I would think that if it were the problem, it would make you sick virtually day that you take it. Also, you would probably be noticing other side effects.
At any rate, you can't stop taking it for the reason you mentioned. Also, as you probably know, after you've been taking it for a month or so, you cannot just stop taking it abruptly--you will have to withdraw from it slowly.
If the nausea continues to be a problem, see if your doctor will give you a prescription for something to control it. After my surgery, the hospital gave me some 25mg tablets of promethazine to take home, when they discharged me, in case I had problems with nausea. I never had to use them, though.
Nausea is the pits. I used to have nausea fairly often, back before my gut healed. I could still go to work with the diarrhea, and aches and pains, etc., but nausea would put me out of commission quicker than anything.
Love,
Tex
P S I use plain old Prell shampoo. It works just fine, and it's reasonably priced. I usually get mine at WalMart.
You're taking a very low dose of clonazepam, (one third the normal starting dose), so even though the drug sometimes causes nausea and/or diarrhea, it probably isn't causing you to be sick today. I would think that if it were the problem, it would make you sick virtually day that you take it. Also, you would probably be noticing other side effects.
At any rate, you can't stop taking it for the reason you mentioned. Also, as you probably know, after you've been taking it for a month or so, you cannot just stop taking it abruptly--you will have to withdraw from it slowly.
If the nausea continues to be a problem, see if your doctor will give you a prescription for something to control it. After my surgery, the hospital gave me some 25mg tablets of promethazine to take home, when they discharged me, in case I had problems with nausea. I never had to use them, though.
Nausea is the pits. I used to have nausea fairly often, back before my gut healed. I could still go to work with the diarrhea, and aches and pains, etc., but nausea would put me out of commission quicker than anything.
Love,
Tex
P S I use plain old Prell shampoo. It works just fine, and it's reasonably priced. I usually get mine at WalMart.
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Cristi---
I have Xperienced the same @ times---
Tried like crazy to figure *how come* but was clueless--
The only issue that attacks me is ---STRESS---and it could be the mildest thing---and I could be saying BUT I am NOT stressed --YET what the brain says the TUMMY dont care
There are certain things that I know will cause me rumbeling so I DO avoid them--
Dont drive yourself crazy---just sit back and slowly think over whats been doing and the answer might
----
It happens to us all---
Take care and feel better
luve Barbara
I have Xperienced the same @ times---
Tried like crazy to figure *how come* but was clueless--
The only issue that attacks me is ---STRESS---and it could be the mildest thing---and I could be saying BUT I am NOT stressed --YET what the brain says the TUMMY dont care
There are certain things that I know will cause me rumbeling so I DO avoid them--
Dont drive yourself crazy---just sit back and slowly think over whats been doing and the answer might
----It happens to us all---
Take care and feel better
luve Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
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annie oakley
- King Penguin
- Posts: 3859
- Joined: Fri May 13, 2011 5:56 pm
Gee Christi, I hope you get some relief from all this soon. I'm Like Barbara, the slightest stress can have an effect on me, never used to but it does now. Hope you feel better soon. Good Vibes headed your way
((((((((((((((((((Christi Feel Good))))))))))))))
Love Oma
((((((((((((((((((Christi Feel Good))))))))))))))
Love Oma
May I be more compassionate and loving than yeterday*and be able to spot the idiots in advance
Thanks Oma and Barbara,
Well, I'm a mom even tho my babies are 16 and 21...we never stop worrying about our babies...but nothing more than my doctors and this illness is causing me stress. LOL as if that's not enough. This just feels like a reaction to me..it's been extreme and lasting all day. The only thing I did differently was go back to using that shampoo which I hadn't used in a few weeks. I had been using some gf stuff I found but it had left my hair a dry mess. So vanity won out and I thought if I was careful I could use it. Well my hair looks good and I feel like #$%^. I know it's a long shot but I just don't know what else it could be.
I'll be watching for those good vibes to come my way. Thanks ladies.
Love,
Cristi
Well, I'm a mom even tho my babies are 16 and 21...we never stop worrying about our babies...but nothing more than my doctors and this illness is causing me stress. LOL as if that's not enough. This just feels like a reaction to me..it's been extreme and lasting all day. The only thing I did differently was go back to using that shampoo which I hadn't used in a few weeks. I had been using some gf stuff I found but it had left my hair a dry mess. So vanity won out and I thought if I was careful I could use it. Well my hair looks good and I feel like #$%^. I know it's a long shot but I just don't know what else it could be.
I'll be watching for those good vibes to come my way. Thanks ladies.
Love,
Cristi
I know what you mean about the nausea. The only way I could deal with that was to take Phenergan. I could take the tabs if I wasn't already close to vomiting and the supposotories if I was. Course, if you have constant D to boot getting either one to stay put would be a problem.
Seemed like the nausea was worse to deal with than the D for me. I still keep the meds on hand......just in case I need them.
However, I have no idea what is in either one.
Hope you feel better soon.
Love, Shirley
Seemed like the nausea was worse to deal with than the D for me. I still keep the meds on hand......just in case I need them.
However, I have no idea what is in either one.
Hope you feel better soon.
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
Thanks Shirley,
The nausia is very difficult for me to cope with as well. It is easing up a bit this evening thank goodness. I might have to look into somthing to take for it. I sure would like to be able to get something accomplished on days like this other than trying not to cry all the time. I'm keeping my fingers crossed that this will all be better tomorrow.
Thanks for the support Shirley.
Love,
Cristi
The nausia is very difficult for me to cope with as well. It is easing up a bit this evening thank goodness. I might have to look into somthing to take for it. I sure would like to be able to get something accomplished on days like this other than trying not to cry all the time. I'm keeping my fingers crossed that this will all be better tomorrow.
Thanks for the support Shirley.
Love,
Cristi
Cristi,
You did have 9 good days! That's something to be thankful for, and encouraged by. It looks like you're on the right track. I don't think the fish bone is a problem, but good thinking. You are obviously paying attention to everything, like we have to.
I did suspect my shampoo and switched to Prell. I didn't use conditioner for a year. Sorry Wayne, but Prell sucks as a shampoo on my hair. When I switched back to my regular, it didn't cause me any problems. However, I think it could, especially if you accidentally got it in your mouth or nose. I had to break myself of putting things in my mouth, like my fingers and holding things when I needed another hand.
Have you licked any envelopes? That might have been one of the hardest habits for me to break. How about kisses from pets who have just eaten? Like Polly always says, we have to be real detectives. I often feel like Monk.
I think the funniest thing that ever contaminated me was Irish Spring soup. Dave took a shower, we went to bed and there was mouth to skin contact...
The thought just occurred to me that you are probably at the point where you are the most sensitive to contamination. I have noticed that being intolerance free for 3 years, I react less severe than when I was at your stage. I actually went about 6 months without a reaction and was feeling rather untouchable, then I had two reactions in the last two weeks. Darn!
I guess what I'm saying is that right now you are supper sensitive and maybe you are reacting to things that don't bother me anymore, like shampoo.
I did discover that cocoa butter and jojoba oil work pretty well as a skin cream. Health food stores carry pure things like that. I tried straight aloe, but didn't like it alone. I even tried making a conditioner which was just a greasy mess, LOL.
I believe that every time a person has a reaction it is a contamination. I'm not so sure about your stage, but I would definitely suspect it.
About your meds. Now that you have eliminated the major sources of your possible intolerances, the minute amounts will start to bother you. I really think that the clonazepam might be the problem. What to do about it is another can of worms. For now, would it be possible to change the time you take it so that the worst symptoms from it happen when you're sleeping?
I hope this helps. Love, Jean
PS A 16 and 21 year old? That's constant stress!!!
You did have 9 good days! That's something to be thankful for, and encouraged by. It looks like you're on the right track. I don't think the fish bone is a problem, but good thinking. You are obviously paying attention to everything, like we have to.
I did suspect my shampoo and switched to Prell. I didn't use conditioner for a year. Sorry Wayne, but Prell sucks as a shampoo on my hair. When I switched back to my regular, it didn't cause me any problems. However, I think it could, especially if you accidentally got it in your mouth or nose. I had to break myself of putting things in my mouth, like my fingers and holding things when I needed another hand.
Have you licked any envelopes? That might have been one of the hardest habits for me to break. How about kisses from pets who have just eaten? Like Polly always says, we have to be real detectives. I often feel like Monk.
I think the funniest thing that ever contaminated me was Irish Spring soup. Dave took a shower, we went to bed and there was mouth to skin contact...
The thought just occurred to me that you are probably at the point where you are the most sensitive to contamination. I have noticed that being intolerance free for 3 years, I react less severe than when I was at your stage. I actually went about 6 months without a reaction and was feeling rather untouchable, then I had two reactions in the last two weeks. Darn!
I guess what I'm saying is that right now you are supper sensitive and maybe you are reacting to things that don't bother me anymore, like shampoo.
I did discover that cocoa butter and jojoba oil work pretty well as a skin cream. Health food stores carry pure things like that. I tried straight aloe, but didn't like it alone. I even tried making a conditioner which was just a greasy mess, LOL.
I believe that every time a person has a reaction it is a contamination. I'm not so sure about your stage, but I would definitely suspect it.
About your meds. Now that you have eliminated the major sources of your possible intolerances, the minute amounts will start to bother you. I really think that the clonazepam might be the problem. What to do about it is another can of worms. For now, would it be possible to change the time you take it so that the worst symptoms from it happen when you're sleeping?
I hope this helps. Love, Jean
PS A 16 and 21 year old? That's constant stress!!!
Be kind to everyone, because you never know what battles they are fighting.
Stress. I remember back in the bad old days when the slightest stress, even undetectable by me, was picked up by my gut. It is still where I carry stress even though the reactions to it are not nearly as severe. Quite mild, in fact. I just know it is there.
I am curious about those of you with nausea. I guess I was lucky because I can't remember feeing nauseous even once even at the worst of times. You are right, though. That is the most horrible feeling in the world. I would rather have a raging toothache. When I DO feel nauseaous, I can be pretty sure that I've picked up a bug or eaten something bad.
Are there any others out there like me who did not suffer nausea as part of this repulsive syndrome.
Cristi, I am so sorry that you are feeling so awful. I wonder if, now that you have pretty much stopped with the gluten, if your body is reacting to that? We do get habituated to things even when they are bad for us. Like when I stopped prednisone. My body went nuts. Is there such a thing as gluten withdrawal? I hope that you get to feeling better VERY soon. I don't like it that you feel bad.
Lots of love,
Sally
I am curious about those of you with nausea. I guess I was lucky because I can't remember feeing nauseous even once even at the worst of times. You are right, though. That is the most horrible feeling in the world. I would rather have a raging toothache. When I DO feel nauseaous, I can be pretty sure that I've picked up a bug or eaten something bad.
Are there any others out there like me who did not suffer nausea as part of this repulsive syndrome.
Cristi, I am so sorry that you are feeling so awful. I wonder if, now that you have pretty much stopped with the gluten, if your body is reacting to that? We do get habituated to things even when they are bad for us. Like when I stopped prednisone. My body went nuts. Is there such a thing as gluten withdrawal? I hope that you get to feeling better VERY soon. I don't like it that you feel bad.
Lots of love,
Sally
Mitakuye oyasin
(Lakota for "We are all related")
(Lakota for "We are all related")
Jean,
Hahahahahaha. Are you saying that hair is not supposed to look like straw? I never said that Prell was great shampoo, I just said it was GF.
Since I have to wash my hair almost every day, anyway, (due to working in hot, dusty conditions), I figure it's a lost cause anyway, so I don't even notice that my hair pretty much resembles straw. LOL.
Sally,
I used to think that nausea was more likely to be a symptom for those of us with alternating C abnd D, (since nausea is often present with C), though I'm not sure that's chiseled in stone. Of course the C phase can be deceptive. It doesn't necessaarily mean that you are not having any BMs--it just implies that something is backed up. Your GI tract can be backed up, even though you have D. Eventually, of course, the D will eliminate the problem, and you will start to feel better. At least, that's been my experience.
Love,
Tex
Hahahahahaha. Are you saying that hair is not supposed to look like straw? I never said that Prell was great shampoo, I just said it was GF.
Since I have to wash my hair almost every day, anyway, (due to working in hot, dusty conditions), I figure it's a lost cause anyway, so I don't even notice that my hair pretty much resembles straw. LOL.
Sally,
I used to think that nausea was more likely to be a symptom for those of us with alternating C abnd D, (since nausea is often present with C), though I'm not sure that's chiseled in stone. Of course the C phase can be deceptive. It doesn't necessaarily mean that you are not having any BMs--it just implies that something is backed up. Your GI tract can be backed up, even though you have D. Eventually, of course, the D will eliminate the problem, and you will start to feel better. At least, that's been my experience.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.