Hey all,
I was wondering if any of you have had good experiences with Dr.'s in the mid-atlantic region (I live in Va Beach, parents live in Harrisburg, family in Richmond and DC). I am awaiting results from my colonoscopy/biopsy and as soon as I get them, I am dropping my quack of a GI (as well as my GP) and finding someone who 1. if I have MC, is actually someone who knows something about it---like at Johns Hopkins, maybe? or 2., if I don't have positive biopsies, find a dr. who is willing to have an open mind and work with me.
Any insights would be appreciated!
Laura
Doctors
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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kate_ce1995
- Rockhopper Penguin
- Posts: 1321
- Joined: Wed May 25, 2005 5:53 pm
- Location: Vermont
Try PMing Polly. She is in the Baltimore area, but is on vacation right now. By sending her a PM she won't miss this while she's gone.
Other than that advice, the only recommendation I can give you is who to avoid in the greater Boston area!
Good Luck! You may also want to read up on Dr. Fine's site and/or email him with some questions. He is by far the most knowlegable of any I remember hearing about on here. And most folks who have followed his advice, have gotten better. www.finerhealth.com in case you don;t have the link yet.
Katy
Other than that advice, the only recommendation I can give you is who to avoid in the greater Boston area!
Good Luck! You may also want to read up on Dr. Fine's site and/or email him with some questions. He is by far the most knowlegable of any I remember hearing about on here. And most folks who have followed his advice, have gotten better. www.finerhealth.com in case you don;t have the link yet.
Katy
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Laura~~~~
For years I went to a *schmuck* of a GI----
Got nowhere cus I didnt know what it was all about---but trusted this GI that things would get better!! And he had NO idea of the whole thing--
Well they didnt so,with good fortune, I found a group in New York City and this GI is the one who got me back to living---
As he said-----I cant *cure* this issue but we can *controll* it and thats what he did---
I wish I could help U with names but unfortunately I cant--
Wishing U good luck in finding the right GI group!!!!!
Lets hear how U make out with locating one--
Keep a
luve Barbara
For years I went to a *schmuck* of a GI----
Got nowhere cus I didnt know what it was all about---but trusted this GI that things would get better!! And he had NO idea of the whole thing--
Well they didnt so,with good fortune, I found a group in New York City and this GI is the one who got me back to living---
As he said-----I cant *cure* this issue but we can *controll* it and thats what he did---
I wish I could help U with names but unfortunately I cant--
Wishing U good luck in finding the right GI group!!!!!
Lets hear how U make out with locating one--
Keep a
luve Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
With the on-going research by Dr. Fasano and others, at the U. of Maryland, I would think that GI's in that area would be more likely to be up to speed on current developments in this area of medicine.
I agree with Katy, I'll bet that Polly can give you some excellent guidance there. If I remember correctly, she should be back home about Thursday night, if all goes according to plan.
Tex
I agree with Katy, I'll bet that Polly can give you some excellent guidance there. If I remember correctly, she should be back home about Thursday night, if all goes according to plan.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Laura,
For many of us, we took over the management of ourselves, once the diagnosis came back M.C., and since we weren't doing it with medication, there was really no reason to go back to the GI.
However, I did do some testing related to nutritional deficiencies due to the malabsorption, so that I'd know what supplements were needed, and it's also important to check the bones with a bone density test to see how much calcium loss you may have had.
In my case, my thyroid manager MD, PhD happened to be a bone metabolism specialist, among other things, so he was able to follow the blood tests along with the routine thyroid rechecks.
A good radiologist with the latest equipment would be a good place to go for a bone density if you've not had one recently. Perhaps a large hospital near you would have a good radiology dept.
If they are large enough, they tend to replace their equipment more frequently, thus, they acquire better and better technology.
Perhaps your primary care person could recommend a good radiologist they've had good experience with.
Hopefully, you won't have much damage to your bones at this point.
I, unfortunately, had delayed in doing anything about my symptoms for years and years, thus being late in getting diagnosed, and then delayed another year getting on the gf diet. As a result, I was already osteoporotic, which the stage you, for sure, don't want to get to.
Of course, if you don't have M.C. afterall, you'll probably need to see your GI lots more often.
Even with those of us who control our symptoms by removal of our "allergens," I still have a question in my mind as to how long we should wait before repeating our colon biopsies.
I'm thinking that perhaps 10 years would be too long for someone with a diagnosis, but then, there's not much president for this stuff, is there? Perhaps five years after the biopsy and diagnosis I'll make an appointment to see a good GI, and see what he thinks.
Then, there are some on this board who have a history of other things, like polyps, for instance, and/or a family history of colon cancer, who, of course, will be getting their colonoscopies sooner than the average person.
Good idea to check with Polly on the GI departments. It would be interesting to get a feel for what it's like to be a patient of Dr. Fasano's at UofMaryland, if you could see him, but I'm sure there are lots of other good ones in that area.
To get someone who's considered tops in the field of whatever diagnosis you get, check to see which institutions have been selected as "Centers of Excellence,"
related to your condition. You may have to go broader than just M.C., but you'd do well to pick one with at least a good rep in terms of diagnosis and treatment of celiac disease, such as UofMaryland, but there may be others closer to you.
Yours, Luce
For many of us, we took over the management of ourselves, once the diagnosis came back M.C., and since we weren't doing it with medication, there was really no reason to go back to the GI.
However, I did do some testing related to nutritional deficiencies due to the malabsorption, so that I'd know what supplements were needed, and it's also important to check the bones with a bone density test to see how much calcium loss you may have had.
In my case, my thyroid manager MD, PhD happened to be a bone metabolism specialist, among other things, so he was able to follow the blood tests along with the routine thyroid rechecks.
A good radiologist with the latest equipment would be a good place to go for a bone density if you've not had one recently. Perhaps a large hospital near you would have a good radiology dept.
If they are large enough, they tend to replace their equipment more frequently, thus, they acquire better and better technology.
Perhaps your primary care person could recommend a good radiologist they've had good experience with.
Hopefully, you won't have much damage to your bones at this point.
I, unfortunately, had delayed in doing anything about my symptoms for years and years, thus being late in getting diagnosed, and then delayed another year getting on the gf diet. As a result, I was already osteoporotic, which the stage you, for sure, don't want to get to.
Of course, if you don't have M.C. afterall, you'll probably need to see your GI lots more often.
Even with those of us who control our symptoms by removal of our "allergens," I still have a question in my mind as to how long we should wait before repeating our colon biopsies.
I'm thinking that perhaps 10 years would be too long for someone with a diagnosis, but then, there's not much president for this stuff, is there? Perhaps five years after the biopsy and diagnosis I'll make an appointment to see a good GI, and see what he thinks.
Then, there are some on this board who have a history of other things, like polyps, for instance, and/or a family history of colon cancer, who, of course, will be getting their colonoscopies sooner than the average person.
Good idea to check with Polly on the GI departments. It would be interesting to get a feel for what it's like to be a patient of Dr. Fasano's at UofMaryland, if you could see him, but I'm sure there are lots of other good ones in that area.
To get someone who's considered tops in the field of whatever diagnosis you get, check to see which institutions have been selected as "Centers of Excellence,"
related to your condition. You may have to go broader than just M.C., but you'd do well to pick one with at least a good rep in terms of diagnosis and treatment of celiac disease, such as UofMaryland, but there may be others closer to you.
Yours, Luce