Hi Everyone,
I wanted to let you know that I had a doctor's appointment and found an MD who will write me a compounding prescription. Only one problem.....he completely disagrees with the endocrinologist that my thyroid problem is significant enough to justify using methimazole. He said that in my "depleted" state, the rare side effect of lowering the white blood count and thus a possible infection, out weighs the benefit I would get from taking the drug. He was much less concerned about my thyroid and my colitis and much more alarmed about my restrictive diet. I told him my diet would get better after I got the colitis under control...but he felt the restrictive diet (not my allergens...he got that) was going to hurt my health more than the colitis.
So, I have an appointment with my plan D doctor tomorrow. This is the last appointment I am going to go to. I'm going to listen to this doctor's opinion and then sit down with all of my notes and try to determine what to do. I'm still gluten free and intolerences free and will stay that way....but I have yet to see norman....but I'll come back to you guys to guide me through that.
I'll keep you posted. It sounds like everyone is enjoying the summer.
Love,
Cristi
update
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Oh Man, you are really going though it. I'm so sorry. You are right that you have to decide what's best for you in the end. The docs don't usually like that attitude but it's true. I wish you could have found one willing to work with you.
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
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harvest_table
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Hi Cristi,
Just for what it's worth, alot of people are alarmed by my restrictive diet (not) and wonder what I eat and how I can survive on it. I'm doing really well after 2 years although, I don't have any other health issues other than MC to deal with.
Hang in there! Glad you found a compounder.
Love,
Joanna
Just for what it's worth, alot of people are alarmed by my restrictive diet (not) and wonder what I eat and how I can survive on it. I'm doing really well after 2 years although, I don't have any other health issues other than MC to deal with.
Hang in there! Glad you found a compounder.
Love,
Joanna
THE GLUTEN FILES
http://jccglutenfree.googlepages.com/
http://jccglutenfree.googlepages.com/
Hi Cristi,
It's hard to win sometimes, isn't it. Sigh.
Just for the record, in my opinion, you're right. That doc is wrong. He sounds like a typical doctor who thinks that MC is "just a little diarrhea", and nothing to be alarmed about. None of the doctors with that attitude have ever had MC, (unfortunately). If they had it, their attitude, (and their game plan), would be completely different.
It's encouraging that he is actually concerned about the risk of a possible side effect of a drug, because most doctors seem to feel that those statistical risks are so low that they should be ignored for most patients, and those doctors are usually willing to write prescriptions for the most potent, and risky, drugs available, without batting an eye. While I applaud him for that, it's also true that no drug is completely risk free--some are just riskier than others.
Also, a balanced diet is pretty much irrelevant, when you have severe cronic D, and a serious malabsorption problem. It's a moot point, and only of academic interest, until you get the D and malabsorption problems under control, IMO.
I hope you luck out and hit a home run with your last appointment, tomorrow. You're overdue for some good luck, with the medical establishment. That's for dang sure.
Love,
Tex
It's hard to win sometimes, isn't it. Sigh.
Just for the record, in my opinion, you're right. That doc is wrong. He sounds like a typical doctor who thinks that MC is "just a little diarrhea", and nothing to be alarmed about. None of the doctors with that attitude have ever had MC, (unfortunately). If they had it, their attitude, (and their game plan), would be completely different.
It's encouraging that he is actually concerned about the risk of a possible side effect of a drug, because most doctors seem to feel that those statistical risks are so low that they should be ignored for most patients, and those doctors are usually willing to write prescriptions for the most potent, and risky, drugs available, without batting an eye. While I applaud him for that, it's also true that no drug is completely risk free--some are just riskier than others.
Also, a balanced diet is pretty much irrelevant, when you have severe cronic D, and a serious malabsorption problem. It's a moot point, and only of academic interest, until you get the D and malabsorption problems under control, IMO.
I hope you luck out and hit a home run with your last appointment, tomorrow. You're overdue for some good luck, with the medical establishment. That's for dang sure.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Cristi,
I was wondering were you where. Darn, you found a half good doctor. Did he seem willing to listen at all? Maybe he's educatable?
Hope things go good for you with the last doctor. Make sure you tell us all about it and we'll be glad to help with your final decision. IMHO, I'd worry about getting the D under control before I worried about taking any drugs. As Wayne mentioned, the malabsorption will probably interfere with the drug anyway.
Thinking of you, Jean
I was wondering were you where. Darn, you found a half good doctor. Did he seem willing to listen at all? Maybe he's educatable?
Hope things go good for you with the last doctor. Make sure you tell us all about it and we'll be glad to help with your final decision. IMHO, I'd worry about getting the D under control before I worried about taking any drugs. As Wayne mentioned, the malabsorption will probably interfere with the drug anyway.
Thinking of you, Jean
Be kind to everyone, because you never know what battles they are fighting.