Update on Kait---
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- barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Update on Kait---
Kait should be home today---
And this is the scenerio of her condition~~~~~she uses the Xpression *feels like something is squeezing my head together*
There is nothing more that can be done for Kait--other than adjusting the dial on her shunt----
They will NOT put in the newer valve due to a few peoples coming down with infections
Kait certainly has had her share of those little demons invading her body--
Lynn was very calm---and so was I---
She did get in touch with the college--Xplaining all----and trying to re-adjust her classes so that she doesnt have too much in one day~~~
And if time shows that this be much to much for her *head* to handle than she can try Community college---
The realization is----this is Kait's life---and it was a RELIEF for Lynn and I to acknowledge the fact ~~~~
She does bio-feed back---she goes to pain managment----but she will have to deal with these issues forever-----there is no TOTAL release from the pain~~~~
And yes, there is always someone worse off--like little Alyssa--
We hope Kait keeps her good attitude---and can find enjoyment in just seeing the sun shinning and the raindrops falling---
Kait should be home today---Lou and I are going there to bring her the computer--and just to hug Kait and give Lynn a bigger hug---cus she has done a great job in raising the girls----she is a great MOM--
Kait will make her way thru life---she will be the see/saw--but she will always land right back on her 2
my last few words---and I think U know what I am going to say~~~
I blame *H* for all this---cus he DIDNT do as he was supposed to do--
saying Kait didnt need a SHUNT and sending her home without one--
I think the fact of *verbally* saying this with Lynn,Gramps,Deb,Doug has cleared my and we all felt *OK* with seeing whats before Kait--
Thanks for listening
Namaste--
Barbara
And this is the scenerio of her condition~~~~~she uses the Xpression *feels like something is squeezing my head together*
There is nothing more that can be done for Kait--other than adjusting the dial on her shunt----
They will NOT put in the newer valve due to a few peoples coming down with infections
Kait certainly has had her share of those little demons invading her body--
Lynn was very calm---and so was I---
She did get in touch with the college--Xplaining all----and trying to re-adjust her classes so that she doesnt have too much in one day~~~
And if time shows that this be much to much for her *head* to handle than she can try Community college---
The realization is----this is Kait's life---and it was a RELIEF for Lynn and I to acknowledge the fact ~~~~
She does bio-feed back---she goes to pain managment----but she will have to deal with these issues forever-----there is no TOTAL release from the pain~~~~
And yes, there is always someone worse off--like little Alyssa--
We hope Kait keeps her good attitude---and can find enjoyment in just seeing the sun shinning and the raindrops falling---
Kait should be home today---Lou and I are going there to bring her the computer--and just to hug Kait and give Lynn a bigger hug---cus she has done a great job in raising the girls----she is a great MOM--
Kait will make her way thru life---she will be the see/saw--but she will always land right back on her 2
my last few words---and I think U know what I am going to say~~~
I blame *H* for all this---cus he DIDNT do as he was supposed to do--
saying Kait didnt need a SHUNT and sending her home without one--
I think the fact of *verbally* saying this with Lynn,Gramps,Deb,Doug has cleared my and we all felt *OK* with seeing whats before Kait--
Thanks for listening
Namaste--
Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
Barbara,
Thank you for the update. I agree with you, and I think it's great that your family has reached the point where you can all accept the reality of the situation. We all have to accept our lives, or strive to change them, and when change is not possible, we learn to cope.
Luve,
Tex
Thank you for the update. I agree with you, and I think it's great that your family has reached the point where you can all accept the reality of the situation. We all have to accept our lives, or strive to change them, and when change is not possible, we learn to cope.
Luve,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Mornin' Sis!
You sound so calm and accepting. My, what a long and difficult road it has been to arrive at this point. I remember an earlier conversation we had about the fact that we sometimes will never know the "WHY" of something, that we may just have to accept "what is" without ever knowing why it happened. And getting to that acceptance is so difficult, because it is natural for the mind to continually look for answers, for reasons. When no logical reasons can be found, intense anger and frustration result.
You and your family have truly been through the wringer, and all of you have survived. And in the process it appears that you have gained even more love, appreciation, and respect for each other. I guess that's the silver lining.
I'm sure that you will have bouts of anger/frustration at times, but it does sound as if you have conquered some of the major obstacles on the acceptance path. My love and admiration to all of you ..............
Namaste,
Polly
You sound so calm and accepting. My, what a long and difficult road it has been to arrive at this point. I remember an earlier conversation we had about the fact that we sometimes will never know the "WHY" of something, that we may just have to accept "what is" without ever knowing why it happened. And getting to that acceptance is so difficult, because it is natural for the mind to continually look for answers, for reasons. When no logical reasons can be found, intense anger and frustration result.
You and your family have truly been through the wringer, and all of you have survived. And in the process it appears that you have gained even more love, appreciation, and respect for each other. I guess that's the silver lining.
I'm sure that you will have bouts of anger/frustration at times, but it does sound as if you have conquered some of the major obstacles on the acceptance path. My love and admiration to all of you ..............
Namaste,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
- barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Wayne---U know, this too has been such a relief--facing the fact that this is Kait and will be
I also know we always knew it but didnt want to believe it--
Kait will achieve other great things with her life and if she gets thru college --HOORAY---
Whatever will be will be--
luve Barb
I also know we always knew it but didnt want to believe it--
Kait will achieve other great things with her life and if she gets thru college --HOORAY---
Whatever will be will be--
luve Barb
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
- barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Morning Sis---
And I tell U---I really feel good--
None of us are pretending----and I like what *U* said----there is a silver lining---we just have to brush the soot away and SEE its there~~~~
No doubt I will get frustrated @ times but I see now----nothing one can do---and why get oneself all churned up!!!!
Polly and thanks for all the times U listened to my *anger* --U have been of great support all this time-
Namaste-
sisBarb
And I tell U---I really feel good--
None of us are pretending----and I like what *U* said----there is a silver lining---we just have to brush the soot away and SEE its there~~~~
No doubt I will get frustrated @ times but I see now----nothing one can do---and why get oneself all churned up!!!!
Polly and thanks for all the times U listened to my *anger* --U have been of great support all this time-
Namaste-
sisBarb
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
Barbara-
Not a day goes by that sweet Kait isn't in my thoughts and prayers - I don't always post to your updates, as I am often at a loss for words....I have to say, this post gives me a wonderful feeling inside - I can see you have moved beyond the anger and have made some sort of peace with the situation....
Peace to all of you as you adjust to your "new normal". You have gotten through things so far, and perhaps, sometime down the road, Kait's new purpose in life will be revealed as a result of her experiences - I will continue to keep your family in my prayers as you all adjust to what the future holds....
Love,
Mary
Not a day goes by that sweet Kait isn't in my thoughts and prayers - I don't always post to your updates, as I am often at a loss for words....I have to say, this post gives me a wonderful feeling inside - I can see you have moved beyond the anger and have made some sort of peace with the situation....
Peace to all of you as you adjust to your "new normal". You have gotten through things so far, and perhaps, sometime down the road, Kait's new purpose in life will be revealed as a result of her experiences - I will continue to keep your family in my prayers as you all adjust to what the future holds....
Love,
Mary
- MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Morning Barbara,
Kait was dealt a really crappy hand by Dr. H and he is fully to blame. I am glad that all of you have accepted what is to BE for Kait but I am left empty feeling that she deserves so much better in life.
My prayers are always with her and your family.
Love, Maggie
Kait was dealt a really crappy hand by Dr. H and he is fully to blame. I am glad that all of you have accepted what is to BE for Kait but I am left empty feeling that she deserves so much better in life.
My prayers are always with her and your family.
Love, Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
___________________
Resident Birder - I live to bird and enjoy life!
So, what does Kait want to do with her life....what kind of classes is she taking?
What college is she going to?
I have college on my brain a lot lately....My daughter, Alex, will be going next year....
She has her sights set on Mt. Holyoke in Mass. so far.....but this may change....
Happy Sunday!
Love,
Mo
What college is she going to?
I have college on my brain a lot lately....My daughter, Alex, will be going next year....
She has her sights set on Mt. Holyoke in Mass. so far.....but this may change....
Happy Sunday!
Love,
Mo