Hi Friends,
I wanted to follow up on a conversation between Joanna and Marsha. Joanna had found some info indicating that people with CC react more favorably to the gf diet and in a speedier timeframe than the LC people, and that LC people tend to be intolerent of more foods than CC people. I hope I interpreted your post correctly.
So, I was wondering if those assumptions hold true for our group? I have LC,and while I am feeling a lot better gf...my D has made no progress. I know from Dr. Fine's test that I am also multi-intolerent. I would love to hear from you guys as to which type you have, how long it took to get your symptoms under control, and if you're sensitive or not to gluten, or gluten plus other intolerences.
Sorry if you guys have been over this a million times previously. Thanks again for all your help.
Love,
Cristi
CC and LC
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Cristi,
I have LC. I gave up gluten and saw immediate improvement in about 2 weeks. But, 6 months later I was back to D and aches. I used my elimination diet and found corn, soy and diary. Felt great again, but 6 months later fell back into D and aches. Gave up rice and have been symptom free since (except when I get contaminated).
Hope this helps and never worry about asking something we may have talked about before.
Love, Jean
I have LC. I gave up gluten and saw immediate improvement in about 2 weeks. But, 6 months later I was back to D and aches. I used my elimination diet and found corn, soy and diary. Felt great again, but 6 months later fell back into D and aches. Gave up rice and have been symptom free since (except when I get contaminated).
Hope this helps and never worry about asking something we may have talked about before.
Love, Jean
Be kind to everyone, because you never know what battles they are fighting.
Hi Cristi. I have LC but no known food intolerances. I had constant D for 6 months and was just about at the end of my rope when I went into spontaneous remission. Since then (over 20 months ago) I've been eating just about whatever I want and the only foods I avoid, or am careful about, are those that are high in insoluble fiber (soluble fiber is ok and in fact very helpful). And while I have a few theories about what "caused" my LC and what "helped" me go into remission, I don't really know anything for sure (sound familiar?). Good luck and keep trying things and perhaps like me, time will help you heal.
Love,
Caroe
P.S. If you are really having a hard time with the D, try COMPLETE BED REST for a week. I did and that's when things started to get better.
Love,
Caroe
P.S. If you are really having a hard time with the D, try COMPLETE BED REST for a week. I did and that's when things started to get better.
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Hi Cristi-----CC here----
Treatment had to be aggressive @ first cus *X* GI wasnt treating me with anything---just words---cus he had NO idea what MCC was--
I have to watch what I eat---as far as roughage--
I was lactose intolerant for awhile but appears once my CC got under control I can indulge in goodies--???-- and this confused me
I have no gluten issues----all veggies have to be cooked nice and soft--(but I like them cooked like mush
)
I can have fake eggs(which I call them-- for cholesterol issues)
I eat ground wheat bread
I eat low sodium turkey--chicken
I eat a banana every day
I eat apple sauces--all flavors (which I luve)
I eat yogurt----jellos----peanut butter----NO regular butter cus I never used butter--hate it!!!???
I know--I am weird--as I have been told!!!
I never used ketsup---mayo--either!!!!
The things I have to very careful of is SORBITOL!!!! and Mannitol---capsicum-----(a cayenne peppery thing)--these things will WIZ thur me faster than fast---
And this Capsicum stuff is in an ointment used for aches and pains---Well once---among many ONCES I didnt READ and just USED and boy was I running!!!
So all I know is that being treated for CC---by my new GI---instead of WORDS from my *X* GI---was the first step to feeling better--
STRESS will definately stir me up----certain antibiotics will--which *knock-on wood* I havent had the need for----Xcept in 04---vancomyacin + something else---but they were intravenously given---which kept me safe--
Ask away Cristi-------we are so proud of what U have done for yourself---U are a shining
luve Barbara
Treatment had to be aggressive @ first cus *X* GI wasnt treating me with anything---just words---cus he had NO idea what MCC was--
I have to watch what I eat---as far as roughage--
I was lactose intolerant for awhile but appears once my CC got under control I can indulge in goodies--???-- and this confused me
I have no gluten issues----all veggies have to be cooked nice and soft--(but I like them cooked like mush
)I can have fake eggs(which I call them-- for cholesterol issues)
I eat ground wheat bread
I eat low sodium turkey--chicken
I eat a banana every day
I eat apple sauces--all flavors (which I luve)
I eat yogurt----jellos----peanut butter----NO regular butter cus I never used butter--hate it!!!???
I know--I am weird--as I have been told!!!
I never used ketsup---mayo--either!!!!
The things I have to very careful of is SORBITOL!!!! and Mannitol---capsicum-----(a cayenne peppery thing)--these things will WIZ thur me faster than fast---
And this Capsicum stuff is in an ointment used for aches and pains---Well once---among many ONCES
I didnt READ and just USED and boy was I running!!!So all I know is that being treated for CC---by my new GI---instead of WORDS from my *X* GI---was the first step to feeling better--
STRESS will definately stir me up----certain antibiotics will--which *knock-on wood* I havent had the need for----Xcept in 04---vancomyacin + something else---but they were intravenously given---which kept me safe--
Ask away Cristi-------we are so proud of what U have done for yourself---U are a shining
luve Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
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harvest_table
- Rockhopper Penguin
- Posts: 1509
- Joined: Wed May 25, 2005 6:29 pm
- Location: Fergus Falls, Minnesota
Hi Cristi,
The conversation you mentioned was here but as Tex pointed out, I didn't quite understand what that study was about.
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=4401
I have CC, have been GF for 2 years and if I had to name my diet it would be close to Paleo for 18 months. Doing pretty well, consistantly pooping properly 90% of the time although I do have gas problems and brain fog. I have had an unexplained rash on my elbows for a few months(it comes and goes) which I think is diet related.I also have had a mouth ulcer for a couple months which I think might be diet related?
Carole, what's your theory?It would be interesting if we could discover a pattern of LC or CC reactions to GF or if multi-intolerance tends to lean towards one or the other.
Hope everyone will chime in here.
Love,
Joanna
The conversation you mentioned was here but as Tex pointed out, I didn't quite understand what that study was about.
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=4401
I have CC, have been GF for 2 years and if I had to name my diet it would be close to Paleo for 18 months. Doing pretty well, consistantly pooping properly 90% of the time although I do have gas problems and brain fog. I have had an unexplained rash on my elbows for a few months(it comes and goes) which I think is diet related.I also have had a mouth ulcer for a couple months which I think might be diet related?
Carole, what's your theory?It would be interesting if we could discover a pattern of LC or CC reactions to GF or if multi-intolerance tends to lean towards one or the other.
Hope everyone will chime in here.
Love,
Joanna
THE GLUTEN FILES
http://jccglutenfree.googlepages.com/
http://jccglutenfree.googlepages.com/
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kate_ce1995
- Rockhopper Penguin
- Posts: 1321
- Joined: Wed May 25, 2005 5:53 pm
- Location: Vermont
I'm in the CC crowd. Went into remission without diet changes although I've since learned I'm gluten senstive. I do not suspect additional intolerances, although I've never gotten to that "feeling really good without gluten but seems something else is a miss" feeling because I am not so good at sticking to the gf diet. But certainly nothing sets my gut off on a regular basis either.
Katy
Katy
I'd like to hear your ideas on the cause and what helped as well. Thanks!Carrie wrote:Hi Cristi. I have LC but no known food intolerances. I had constant D for 6 months and was just about at the end of my rope when I went into spontaneous remission. Since then (over 20 months ago) I've been eating just about whatever I want and the only foods I avoid, or am careful about, are those that are high in insoluble fiber (soluble fiber is ok and in fact very helpful). And while I have a few theories about what "caused" my LC and what "helped" me go into remission, I don't really know anything for sure (sound familiar?). Good luck and keep trying things and perhaps like me, time will help you heal.
Love,
Caroe
P.S. If you are really having a hard time with the D, try COMPLETE BED REST for a week. I did and that's when things started to get better.
Hi all,
We'll have to ask Carrie when she gets back if she tried an elimination diet during the 6 months from Hades.
Also, if she did, would she have known then that you can't tell it's working by observing what happens immediately after eating the food just re-introduced?
Somehow, I just don't think if someone goes into remission that long after 6 months of diarrhea, that the cause of their positive colon biopsy would be the same as that of those of us who were sick for decades without any sign of remission.
Does anyone remember if Carole mentioned any other autoimmune symptoms or diagnoses that she's had or perhaps still has? Perhaps Pegster would know??
I'm still of the opinion that the lining of the colon can be temporarily damaged by "chemicals," and some even say the prep itself can cause a positive biopsy.
This is a way out theory, but, er ah, theoretically, wouldn't it be possible to have some sort of pathogen or something causing one to have diarrhea which prompts a colonoscopy with bxs, and get a, for lack of a better word, false positive for M.C.?
Back to which of the M.C. types one has, if it's true that we M.I's tend to be the ones who predominantly have one type of M.C., since we know that it's the genotype which determines WHICH foods we react to, then wouldn't it be possible that one could predict WHICH form of M.C. simply by knowing the HLA genotype?
At this point, I've still not found out which type of M.C. I have/had, if you can believe that. However, since I have one of the HDL DQ2 genes to go with an HDL DQ 1 subtype, and that combination always seems to lead to gluten, dairy casein, ovalbumin in eggs, dietary yeast species protein, and apparently soy protein reactions as well, would that mean that I most likely have L.C. according to Jean, and some others, apparently?
While I'm on the topic, think I saw somewhere that people with classic celiac disease who are also diagnosed with M.C. tend to have one form of M.C. than the other.
Does anyone remember reading about this?
I guess if it's true that we who are MI's take longer to get healed up, then I would qualify, but compared to decades, those months didn't seem all that long, particularly since I felt so much better, and the diarrhea was less frequent and urgent, particularly off of ALL the "allergens."
I kind of doubt that people with short term diarrhea get included in M.C. studies, but if the index of suspicion is high enough now, that could change, and start to blur the lines a bit in terms of what does and doesn't work to relieve the symtoms.
I think that Dr. Fine's subjects were people who didn't respond to the usual medical treatments, weren't they, or why would they have been in his studies to begin with?
Have a hunch that Carole is onto something, so will eagerly await her theories. It almost sounds like she was recovering from something during that week on bedrest, doesn't it?
Yours, Luce
We'll have to ask Carrie when she gets back if she tried an elimination diet during the 6 months from Hades.
Also, if she did, would she have known then that you can't tell it's working by observing what happens immediately after eating the food just re-introduced?
Somehow, I just don't think if someone goes into remission that long after 6 months of diarrhea, that the cause of their positive colon biopsy would be the same as that of those of us who were sick for decades without any sign of remission.
Does anyone remember if Carole mentioned any other autoimmune symptoms or diagnoses that she's had or perhaps still has? Perhaps Pegster would know??
I'm still of the opinion that the lining of the colon can be temporarily damaged by "chemicals," and some even say the prep itself can cause a positive biopsy.
This is a way out theory, but, er ah, theoretically, wouldn't it be possible to have some sort of pathogen or something causing one to have diarrhea which prompts a colonoscopy with bxs, and get a, for lack of a better word, false positive for M.C.?
Back to which of the M.C. types one has, if it's true that we M.I's tend to be the ones who predominantly have one type of M.C., since we know that it's the genotype which determines WHICH foods we react to, then wouldn't it be possible that one could predict WHICH form of M.C. simply by knowing the HLA genotype?
At this point, I've still not found out which type of M.C. I have/had, if you can believe that. However, since I have one of the HDL DQ2 genes to go with an HDL DQ 1 subtype, and that combination always seems to lead to gluten, dairy casein, ovalbumin in eggs, dietary yeast species protein, and apparently soy protein reactions as well, would that mean that I most likely have L.C. according to Jean, and some others, apparently?
While I'm on the topic, think I saw somewhere that people with classic celiac disease who are also diagnosed with M.C. tend to have one form of M.C. than the other.
Does anyone remember reading about this?
I guess if it's true that we who are MI's take longer to get healed up, then I would qualify, but compared to decades, those months didn't seem all that long, particularly since I felt so much better, and the diarrhea was less frequent and urgent, particularly off of ALL the "allergens."
I kind of doubt that people with short term diarrhea get included in M.C. studies, but if the index of suspicion is high enough now, that could change, and start to blur the lines a bit in terms of what does and doesn't work to relieve the symtoms.
I think that Dr. Fine's subjects were people who didn't respond to the usual medical treatments, weren't they, or why would they have been in his studies to begin with?
Have a hunch that Carole is onto something, so will eagerly await her theories. It almost sounds like she was recovering from something during that week on bedrest, doesn't it?
Yours, Luce
Luce,
You raise some interesting points. You know, MC is defined by certain "arbitrary" distinguishing markers, such as intraepithelial lymphocytic infiltration, and/or thickening of subepithelial collagen layers. Perhaps these conditions can occur, as you suggest, due to temporary chemical and/or bacterial imbalances, (NSAIDs come to mind, for example), and when the trigger, (or combination of triggers), is withdrawn, spontaneous remission occurs, never to return again, (unless the unique combination of triggering imbalances, reoccurs.
I would think that it would be possible that if conditions are favorable for maintaining the inflammatory state, (IOW, the trigger or triggers are not eliminated), then eventually additional imbalances and additional triggers might enter the picture, (such as gluten sensitivity, etc.), as damage to the intestinal mucosa continues to acrue.
Tex
You raise some interesting points. You know, MC is defined by certain "arbitrary" distinguishing markers, such as intraepithelial lymphocytic infiltration, and/or thickening of subepithelial collagen layers. Perhaps these conditions can occur, as you suggest, due to temporary chemical and/or bacterial imbalances, (NSAIDs come to mind, for example), and when the trigger, (or combination of triggers), is withdrawn, spontaneous remission occurs, never to return again, (unless the unique combination of triggering imbalances, reoccurs.
I would think that it would be possible that if conditions are favorable for maintaining the inflammatory state, (IOW, the trigger or triggers are not eliminated), then eventually additional imbalances and additional triggers might enter the picture, (such as gluten sensitivity, etc.), as damage to the intestinal mucosa continues to acrue.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
As I said waaaaaay back---I do belive my issues started when my retired GP---started me on all this amox. due to his misdiagnosing me with MVP!!
Plus NOT being treated correctly by my *X* GI---but have the best GI now--who went for the gusto---no choice--prednisone + colazal--and bed rest---was a good relief to my feeling miserable---
And then my new GP---said *U dont have MVP*-----
So learning--learning---better late than never--
Barbara
Plus NOT being treated correctly by my *X* GI---but have the best GI now--who went for the gusto---no choice--prednisone + colazal--and bed rest---was a good relief to my feeling miserable---
And then my new GP---said *U dont have MVP*-----
So learning--learning---better late than never--
Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
-
artteacher
- Rockhopper Penguin
- Posts: 731
- Joined: Wed Aug 24, 2005 11:13 pm
.
Hi guys,
I have multiple intolerances, and am LC. My pattern of discovering intolerances is REALLY similar to what Jean wrote. After thinking I had all my intolerances eliminated, I'd get sick again and discover another. First dairy, then wheat/beer/gluten, then legumes, then rice, eggs, soy, sulfites, corn. There are exceptions, though. I drink a vegetarian organic soy milk called MoonRose that gives me no problems, can eat eggs in things, but not by themselves, and have eaten organic cornmeal that didn't bother me. I still haven't figured that out.
I hope other people write in: maybe start a poll?
Love, Marsha
I have multiple intolerances, and am LC. My pattern of discovering intolerances is REALLY similar to what Jean wrote. After thinking I had all my intolerances eliminated, I'd get sick again and discover another. First dairy, then wheat/beer/gluten, then legumes, then rice, eggs, soy, sulfites, corn. There are exceptions, though. I drink a vegetarian organic soy milk called MoonRose that gives me no problems, can eat eggs in things, but not by themselves, and have eaten organic cornmeal that didn't bother me. I still haven't figured that out.
I hope other people write in: maybe start a poll?
Love, Marsha