A couple days before my honeymoon with Asacol on Monday, I resumed a flair that has been simmering for months. The med info on Asacol says it won't stop a flair, but will help to maintain remissions (my Dr. wouldn't put me on Entocort - not yet).
So I am going through this explosive flair, taken 8 immodium in the last 2 days, Pepto, Charcoal, zero grains, zero dairy, lot of fluids. Solid foods of any type including chicken soup produce gas within an hour, and then become ammo. Been mainly eating small meals of beef, chicken, fish, with veggies that are usually tolerated OK. Nothing is being tolerated lately.
1. Do you folks go on a liquid diet? Soups? Some sort of protein shakes?
2. Electrolyte drinks - this MC Support site has a nice intro article with a suggested recipe (I have been substituting honey for sugar). Does anyone know what the baking soda is for? Are there any other electrolytes besides salt and baking soda that should be added? (like Emergen-C type ingredients, more potassium).
Flair City & Solid Foods?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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annie oakley
- King Penguin
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Hi Bob, when I was first diagnosed in 2001, I lived on yogurt w/acidophilus, Dannon has it and activia is the best. Then I also took extra acidophilus, I live on applesauce and very bland things. I lost 36 pounds in 30 days. Scared everyone, they all thought I had cancer. Plus I drank alot of gatoraide and anything with electrolytes in it. Hang in there, things will straighten out, I thought they never would.
Love Oma
Love Oma
May I be more compassionate and loving than yeterday*and be able to spot the idiots in advance
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bobh
- Gentoo Penguin
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- Location: California, San Luis Obispo (coast)
Good info - this is the first day I "stopped" solid foods, and seems to be turning around.Herb_Lady wrote:I lived on yogurt w/acidophilus... Then I also took extra acidophilus, I live on applesauce and very bland things.
Last week I did some yogurt, and it backfired (like gasoline on a fire). So I stopped it a few days, and took a powdered DF acidophilus from Metagenics, same reaction. I have always suspected there is a bad bacteria overgrowth "beyond" where it should live, in the upper intestines. I take good flora, and a "civil war" breaks out. Dunno if I should retreat, or add reinforcements. But for now, the liquid diet is helping.
Bob H
Bob,
You might try to find some Pedialyte in the baby food area of a regular grocery store. Think the reason it's recommended over regular sports drinks is because it doesn't have corn in it.
Think it's designed to keep your electrolytes in balance.
Bananas are a good source of potassium, and so is orange juice, but the latter might upset your gut right now, and some people always have trouble with it. I would lay off the tomatoes for a while also, and add them back in one at a time when you are ready for that.
Don't forget the old trick of drinking the juice off frozen or other vegetables that you cook for the nutritional value, and that would be liquids if you are unable to handle the solid vegetables for now.
Keep your doctor informed of your progress while you're in this flare, and sometimes it's a good idea to make a diary of what you're eating and the response, and while you're at it, you may as well write down all the times you do these things, including the times you take all those medications. Then, take this written information in with you when you see the doc next. It's amazing what we can forget from visit to visit.
What else did the doc say about flaring?
Best wishes for a speedy response!
Yours, LUce
You might try to find some Pedialyte in the baby food area of a regular grocery store. Think the reason it's recommended over regular sports drinks is because it doesn't have corn in it.
Think it's designed to keep your electrolytes in balance.
Bananas are a good source of potassium, and so is orange juice, but the latter might upset your gut right now, and some people always have trouble with it. I would lay off the tomatoes for a while also, and add them back in one at a time when you are ready for that.
Don't forget the old trick of drinking the juice off frozen or other vegetables that you cook for the nutritional value, and that would be liquids if you are unable to handle the solid vegetables for now.
Keep your doctor informed of your progress while you're in this flare, and sometimes it's a good idea to make a diary of what you're eating and the response, and while you're at it, you may as well write down all the times you do these things, including the times you take all those medications. Then, take this written information in with you when you see the doc next. It's amazing what we can forget from visit to visit.
What else did the doc say about flaring?
Best wishes for a speedy response!
Yours, LUce
Bob
In the nine months it took me to see some resolution in my symptoms I tried a lot of things.
Dairy free Probiotics in general and particularly those that contained Foss and Inulin gave me explosive D. Strap myself down to the toilet D. Foss and Inulin are supposed to promote bacterial growth but are not selective. In other words they promote good bacteria as well as bad bacteria. I am sure thier is evidence to the contrary but from my personal experience they only made things way worse as I began to find my way.
Giving myself and my digestive system a time out on a regular basis was and still is an important part of my recovery. I would make a big pot of the SCD chicken soup with the addition of lots of garlic and ginger on a Thursday as a start to a three day time for myself. After skimming off the fat and removing the Chicken and Vegetables I would eat nothing but the broth all day Friday. No limits as much as I wanted This is not a time to try to get anything done, read a book, go for a walk,watch a movie, sit in the park. Laying in bed just made things worse in that it only made me feel like I was sick. Try to be outside. Go to bed early.
Saturday put the vegetables through a blender and in the course of the day add a little more to the broth each time you eat it . At the end of the day add some pureed chicken. Don’t have any expectations of acheiving anything. Read something inspiring. Watch the sun come up, it always does. Watch the stars come out, they always do. Go for a walk. Go to bed early.
Sunday start off the day with the chicken stock with the pureed chicken and vegeatables. Eat as much as you want all day . Have a high omega three dinner like a small piece of fresh caught salmon coated in walnuts and a vegeatable that you have found easy to digest. Go for a walk. Go to bed early
I have to eat a lot more than this during the week so would return to my more normal MI diet during the week, always feeling like I had given myself and my digestive system a time out.
Even a three day period twice a month of not chalenging my digestive system made a lot of diference.
Hope this gives you some new ideas.
Matthew
In the nine months it took me to see some resolution in my symptoms I tried a lot of things.
Dairy free Probiotics in general and particularly those that contained Foss and Inulin gave me explosive D. Strap myself down to the toilet D. Foss and Inulin are supposed to promote bacterial growth but are not selective. In other words they promote good bacteria as well as bad bacteria. I am sure thier is evidence to the contrary but from my personal experience they only made things way worse as I began to find my way.
Giving myself and my digestive system a time out on a regular basis was and still is an important part of my recovery. I would make a big pot of the SCD chicken soup with the addition of lots of garlic and ginger on a Thursday as a start to a three day time for myself. After skimming off the fat and removing the Chicken and Vegetables I would eat nothing but the broth all day Friday. No limits as much as I wanted This is not a time to try to get anything done, read a book, go for a walk,watch a movie, sit in the park. Laying in bed just made things worse in that it only made me feel like I was sick. Try to be outside. Go to bed early.
Saturday put the vegetables through a blender and in the course of the day add a little more to the broth each time you eat it . At the end of the day add some pureed chicken. Don’t have any expectations of acheiving anything. Read something inspiring. Watch the sun come up, it always does. Watch the stars come out, they always do. Go for a walk. Go to bed early.
Sunday start off the day with the chicken stock with the pureed chicken and vegeatables. Eat as much as you want all day . Have a high omega three dinner like a small piece of fresh caught salmon coated in walnuts and a vegeatable that you have found easy to digest. Go for a walk. Go to bed early
I have to eat a lot more than this during the week so would return to my more normal MI diet during the week, always feeling like I had given myself and my digestive system a time out.
Even a three day period twice a month of not chalenging my digestive system made a lot of diference.
Hope this gives you some new ideas.
Matthew
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bobh
- Gentoo Penguin
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- Joined: Wed Aug 09, 2006 10:07 am
- Location: California, San Luis Obispo (coast)
Nothing really - just started me on the Asacol and advised that the other (steroid) meds had more side effects. So I was kind of on my own. With the great advice from you folks, I know I will get past this flair. And hopefully the anti-inflammatory will give me a more stable foundation than the years of over-the-counter stuff so I can heal. Then I can nail the diet issues better.Lucy wrote:What else did the doc say about flaring?
Wow, that just shined a big spotlight into the "mystery cave". Thanks man, thanks for taking the time.Mathew wrote:Dairy free Probiotics in general and particularly those that contained Foss and Inulin gave me explosive D... Giving myself and my digestive system a time out on a regular basis was and still is an important part of my recovery... Hope this gives you some new ideas.
Mathew, are you taking "any" probiotics? I assume if you were trying Dairy Free, Casein (and/or Lactose) was part of your MI. My 2004 test from Dr. Fine = Gluten + Casein.
BTW, I have tried to update my "intolerances" on my profile and they never "stick". It would be interesting to see who is on Meds as well (I am a newbie on Meds).
Bob H
Bob
I rushed off last night to do some last glue ups and failed to mention a few things. Two years after starting the diet I found that I could tolerate Culturelle. I took it for quite some time thinking that it was helping. Maybe it did. In a moment of waiting for a bunch of checks in the mail I decided to opt out in order to buy other food. I have not gone back to it since. I see little difference without it. It seems like such a good idea but an expensive one in that I gave a lot of stuff away to my sister and friends that simply did not work. I remain open to the idea.
I noticed in another post that you said you would eat saw dust if that is what it took. As much as maple , with some walnut and cherry on top might sound appetizing I guarantee it does not work. I have accidentally eaten enough over the years and , even though I can’t sight references, feel qualified to recommend not to try it . HaHahah!
I noticed you are interested in woodworking . What do you like to make? I wonder if MC comes with creativity. If I name names I will leave someone out but their are members that Garden, make up great crocks of homemade sauerkraut ,cook, sew, bead, weld up their own barbecues, paint, make poetry and pottery , write, are great photographers or work with the extensive palette of nature in developing their own backyards just to name a few. It’s just the tip of the iceberg once you know so many here. Tell us more and welcome , good and bad, to all the permutations of MC.
Love
Matthew
P.S. I am Dairy free, Grain free, Nightshade free, Soy free, Legume free Sugar free, Coffee free, only use olive oil and do my best to eat only natural meats, grain fed when I can afford it. I eat no comercial products gluten free or otherwise.
I rushed off last night to do some last glue ups and failed to mention a few things. Two years after starting the diet I found that I could tolerate Culturelle. I took it for quite some time thinking that it was helping. Maybe it did. In a moment of waiting for a bunch of checks in the mail I decided to opt out in order to buy other food. I have not gone back to it since. I see little difference without it. It seems like such a good idea but an expensive one in that I gave a lot of stuff away to my sister and friends that simply did not work. I remain open to the idea.
I noticed in another post that you said you would eat saw dust if that is what it took. As much as maple , with some walnut and cherry on top might sound appetizing I guarantee it does not work. I have accidentally eaten enough over the years and , even though I can’t sight references, feel qualified to recommend not to try it . HaHahah!
I noticed you are interested in woodworking . What do you like to make? I wonder if MC comes with creativity. If I name names I will leave someone out but their are members that Garden, make up great crocks of homemade sauerkraut ,cook, sew, bead, weld up their own barbecues, paint, make poetry and pottery , write, are great photographers or work with the extensive palette of nature in developing their own backyards just to name a few. It’s just the tip of the iceberg once you know so many here. Tell us more and welcome , good and bad, to all the permutations of MC.
Love
Matthew
P.S. I am Dairy free, Grain free, Nightshade free, Soy free, Legume free Sugar free, Coffee free, only use olive oil and do my best to eat only natural meats, grain fed when I can afford it. I eat no comercial products gluten free or otherwise.
Hi guys,
Hate to be a kill joy, but my neighbor has idiopathic pulmonary fibrosis, so I looked it up, and read that this condition has much higher incidence among woodworkers, and woodworking is something he spent lots of time doing. Soooo, I hope you guys are taking all the precautions not to inhale or ingest this stuff.
This might be a condition you'd like to do a little research on, if you've not already, particularly given our dysfunctional immune systems.
Yours, Luce
Hate to be a kill joy, but my neighbor has idiopathic pulmonary fibrosis, so I looked it up, and read that this condition has much higher incidence among woodworkers, and woodworking is something he spent lots of time doing. Soooo, I hope you guys are taking all the precautions not to inhale or ingest this stuff.
This might be a condition you'd like to do a little research on, if you've not already, particularly given our dysfunctional immune systems.
Yours, Luce
Lucy
What you have brought up is so simple to deal with why it might happen and basically eliminate the possibility of, by shop hygiene , inexpensive dust and particulate masks , material safety data sheets and just common sense. Your neighbor has apparently ignored it all or has other issues.
Lets not get so paranoid that we lock ourselves into total inactivity from fear that what we love the most is also going to kill us.
It is going to anyway. And what a way to go enjoying what you love the most.
This post was supposed to be about creativity, MC and all that we can be despite it. Maybe I missed my mark in thinking that it is not justs science but the human spirit that leads us to a sense of welness . Hoh well!?
Love
Matthew
What you have brought up is so simple to deal with why it might happen and basically eliminate the possibility of, by shop hygiene , inexpensive dust and particulate masks , material safety data sheets and just common sense. Your neighbor has apparently ignored it all or has other issues.
Lets not get so paranoid that we lock ourselves into total inactivity from fear that what we love the most is also going to kill us.
It is going to anyway. And what a way to go enjoying what you love the most.
This post was supposed to be about creativity, MC and all that we can be despite it. Maybe I missed my mark in thinking that it is not justs science but the human spirit that leads us to a sense of welness . Hoh well!?
Love
Matthew
Uh oh, Matthew! Think I remember asking you about this one time before, because after reading your answer, I remembered some of those precautions you take.
I do hope that my neighbor always takes the appropriate precautions as, like you, he apparently loves his hobby.
Yup, "Flair City and Solid Food" is pretty darn creative, isn't it! Haha!
Hope you don't mind my picking on you a bit, but I couldn't resist!
Matthew, I tried out a blended drink called "Pond Scum" tonight.
A friend told me that someone in Denver had discovered it. Think I put something about it on this board last night in my sleep, but perhaps I didn't.
Anyway, have you heard of it? I forgot about the bananas when making it, and used a small number of raw almonds in place of the bran.
Must say the taste surprised me -- quite good, even without the bananas and bran. Is this stuff all the rage in Denver, or is this just something obscure that my cousin happily stumbled upon?
Yours,
Luce
I do hope that my neighbor always takes the appropriate precautions as, like you, he apparently loves his hobby.
Yup, "Flair City and Solid Food" is pretty darn creative, isn't it! Haha!
Hope you don't mind my picking on you a bit, but I couldn't resist!
Matthew, I tried out a blended drink called "Pond Scum" tonight.
A friend told me that someone in Denver had discovered it. Think I put something about it on this board last night in my sleep, but perhaps I didn't.
Anyway, have you heard of it? I forgot about the bananas when making it, and used a small number of raw almonds in place of the bran.
Must say the taste surprised me -- quite good, even without the bananas and bran. Is this stuff all the rage in Denver, or is this just something obscure that my cousin happily stumbled upon?
Yours,
Luce
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bobh
- Gentoo Penguin
- Posts: 253
- Joined: Wed Aug 09, 2006 10:07 am
- Location: California, San Luis Obispo (coast)
Well folks, as you may recall from my other thread (15 years MC - should I consider Meds?) getting a prescription was really not something I wanted to do. But I just couldn't seem to get the condition under control.
I am happy to say that at the end of the 4th day on Asacol my "explosive flair" is 1/2 gone, and it started tapering off yesterday. I feel a definite "stability" in my guts that has been missing for a long time. It isn't "normal" yet, but the gas, and urgency is way down. The paint has turned to oatmeal, and that is the right direction. With the help you folks have given me on diet, I know that I can keep improving.
Mathew, your 2 posts are very, very valuable to me. They resonate with what I had been experiencing, and will help me to weather the next "storm" because I know the MC tends to cycle in and out. Giving the body a "time out" as you describe makes a hell of a lot of sense. Time for this workaholic to chill out at least one day a week, that would be a start.
I am happy to say that at the end of the 4th day on Asacol my "explosive flair" is 1/2 gone, and it started tapering off yesterday. I feel a definite "stability" in my guts that has been missing for a long time. It isn't "normal" yet, but the gas, and urgency is way down. The paint has turned to oatmeal, and that is the right direction. With the help you folks have given me on diet, I know that I can keep improving.
I cut a lot of redwood, building gazebos & enclosures for exotic birds (my wife sells the birds, her customers like our aviaries, asking me to make theirs). That's what I do when I'm not doing insurance claims - and hurricane season is approaching.Matthew wrote:I noticed in another post that you said you would eat saw dust if that is what it took... You are interested in woodworking... What do you like to make?
Mathew, your 2 posts are very, very valuable to me. They resonate with what I had been experiencing, and will help me to weather the next "storm" because I know the MC tends to cycle in and out. Giving the body a "time out" as you describe makes a hell of a lot of sense. Time for this workaholic to chill out at least one day a week, that would be a start.
Bob H
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bobh
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- Location: California, San Luis Obispo (coast)
Hi Jean, in the 21 years I've been with my wife, she's had all kinds of parrots, conures, etc. Right now she is focused on Australian birds with lots of color, gouldian finches, tourquoisine parakeets, and owl finches.
You can see more of the aviaries I built at http://www.centralcoastaviaries.com
Since Katrina, I am phasing out of that business, and just wrapping up a roof on one of my last commitments today. It is an 8'x12' aviary connected to a gazebo style aviary. When the next big storm hits, I will be on the road. Luckily this Asacol is beginning to do it's thing, the anti-inflammatory is helping a lot.
Thanks for all your hard work on this site - once I fully halt this "flair" I will do your elimination diet. Prior to that point, all solid food became ammunition.
You can see more of the aviaries I built at http://www.centralcoastaviaries.com
Since Katrina, I am phasing out of that business, and just wrapping up a roof on one of my last commitments today. It is an 8'x12' aviary connected to a gazebo style aviary. When the next big storm hits, I will be on the road. Luckily this Asacol is beginning to do it's thing, the anti-inflammatory is helping a lot.
Thanks for all your hard work on this site - once I fully halt this "flair" I will do your elimination diet. Prior to that point, all solid food became ammunition.
Bob H
Bob,
Very cool aviaries. I've thought of setting my birds up outside, but they could only be out for a few months and I have bad neighbors. Who's that pretty model, your wife?
Does she breed Alexandrians by any chance? I have a vet friend here looking for a baby and they are hard to find.
I'm working on a new mutation, pied, of the green cheek conure. I've only been breeding for a few years. My African Grey is sitting next to me as I type this.
I'm so glad to hear that the meds are helping. You sure deserve to get some relief!!! Let me know when you're ready to try the elimination diet, it sure helped me.
Love, Jean
Very cool aviaries. I've thought of setting my birds up outside, but they could only be out for a few months and I have bad neighbors. Who's that pretty model, your wife?
Does she breed Alexandrians by any chance? I have a vet friend here looking for a baby and they are hard to find.
I'm working on a new mutation, pied, of the green cheek conure. I've only been breeding for a few years. My African Grey is sitting next to me as I type this.
I'm so glad to hear that the meds are helping. You sure deserve to get some relief!!! Let me know when you're ready to try the elimination diet, it sure helped me.
Love, Jean
Be kind to everyone, because you never know what battles they are fighting.