Good evening,
I'm sure this has been discussed before. Since I had been able to control my MC symptoms with GF diet, I did not pay much attention to what was posted. The infectious disease doctor gave me yet another round of antibiotics due to this staph infection I have. He recommended I take this probiotic to keep from having D. I did not have any D but I was on the GF diet. I finished the medication last week and decided to try adding a couple of servings of something with gluten each day.
So far so good. I continue to take the probiotic and I'm wondering if it will continue to work. I'm taking Florajen 3 with Lactobacillus acidophilus - 7.5 billion cultures, Bifidobacterium bifidum Bb-12 - 6.0 billion, & Bifidobacterium longum - 1.5 billion.
Feedback would be appreciated. Sorry if I'm repeating.
Thanks
Brenda
Probiotics?
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Hi TXBrenda,
I, of course, can't tell you what to do, but I thought I'd share with you my experiences with a GF diet. Three years ago I was diagnosed with MC, and through the precursor to this site, I discovered that I could achieve remission within three days with a GF diet. It was rather astounding. However, we all know that gluten is everywhere, and after I was better for awhile, I started eating a little gluten here and there. It wasn't so bad - I'd get cramps, and then I'd know to pull back. That was fine until about two and half months ago. All of a sudden, I was getting really sick. So, I immediately went back to a gluten-free diet. I was really amazed when I didn't find immediate relief. So, I came back to this site, and I started eliminating dairy, then corn, then soy, then all grains - and still I was getting sick. In fact, it got so bad that just today I've started a round of prednisone to help me over this flare. I guess my word of caution would be that though it might feel okay to eat gluten at first, I think I did myself a lot of damage by not remaining very strict about it. I would hate for you to run into a flare that's even worse than what you had. I'm not saying you will, but I would air of the side of caution, just based on my experience.
Hope this is helpful.
Best,
Beth
I, of course, can't tell you what to do, but I thought I'd share with you my experiences with a GF diet. Three years ago I was diagnosed with MC, and through the precursor to this site, I discovered that I could achieve remission within three days with a GF diet. It was rather astounding. However, we all know that gluten is everywhere, and after I was better for awhile, I started eating a little gluten here and there. It wasn't so bad - I'd get cramps, and then I'd know to pull back. That was fine until about two and half months ago. All of a sudden, I was getting really sick. So, I immediately went back to a gluten-free diet. I was really amazed when I didn't find immediate relief. So, I came back to this site, and I started eliminating dairy, then corn, then soy, then all grains - and still I was getting sick. In fact, it got so bad that just today I've started a round of prednisone to help me over this flare. I guess my word of caution would be that though it might feel okay to eat gluten at first, I think I did myself a lot of damage by not remaining very strict about it. I would hate for you to run into a flare that's even worse than what you had. I'm not saying you will, but I would air of the side of caution, just based on my experience.
Hope this is helpful.
Best,
Beth
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barbaranoela
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BRENDA---I have been taking CULTURELLE ---which I do believe is of great help--
It has zillions of that stuff U mentioned---and I took it on the recommendation of my GI----
It is a little costly BUT it is something that I can take without having my tummy go on a rampage--
I am not gluten sensitive----BUT I do run into troubles if my prescriptions are changed to GENERIC---due to the *fillers*
So every one is marked DAW!!!
BETH---sorry U had a flare up and needed the dreaded PRED. but it does the job---Unfortunately we sometimes have to go the *DREADED* WAY!!!
I was on PRED. twice with a flare up and then Pred.,while in the hospital for a weird pneumonia---
Good health to U both--
luve Barbara
It has zillions of that stuff U mentioned---and I took it on the recommendation of my GI----
It is a little costly BUT it is something that I can take without having my tummy go on a rampage--
I am not gluten sensitive----BUT I do run into troubles if my prescriptions are changed to GENERIC---due to the *fillers*
So every one is marked DAW!!!
BETH---sorry U had a flare up and needed the dreaded PRED. but it does the job---Unfortunately we sometimes have to go the *DREADED* WAY!!!
I was on PRED. twice with a flare up and then Pred.,while in the hospital for a weird pneumonia---
Good health to U both--
luve Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
Hi Brenda,
Based on what I have seen experienced by various members of this board, over the past 3+ years, here's my 2 cents worth:
I think there are four possibilities:
1. You might possibly be in a state of spontaneous remission, which could last indefinitely, or end tomorrow.
2. Some of us go into remission with certain antibiotics, and it takes a while for the effects of the antibiotics to wear off.
3. It takes a while for some of us to get sick from gluten, because some of us have to accrue a certain amount of gluten damage to the small intestine before the symptoms begin to appear.
4. You may be onto something with a treatment program of antibiotics, followed by an optimum course of probiotics.
Only time will tell, but my personal vote is for number 3, with a second choice of number 2, since statistically, those are the most likely possibilities. I think Beth is correct with her thoughts on the subject, and I believe that her experience was somewhat typical. With the exception of two spontaneous remissions that I'm aware of, most members who have strayed from their treatment programs, (whether it be diet or meds), have found that remission can be extremely elusive, the second time around.
I wish you the best of luck with your "experiment".
Tex
Based on what I have seen experienced by various members of this board, over the past 3+ years, here's my 2 cents worth:
I think there are four possibilities:
1. You might possibly be in a state of spontaneous remission, which could last indefinitely, or end tomorrow.
2. Some of us go into remission with certain antibiotics, and it takes a while for the effects of the antibiotics to wear off.
3. It takes a while for some of us to get sick from gluten, because some of us have to accrue a certain amount of gluten damage to the small intestine before the symptoms begin to appear.
4. You may be onto something with a treatment program of antibiotics, followed by an optimum course of probiotics.
Only time will tell, but my personal vote is for number 3, with a second choice of number 2, since statistically, those are the most likely possibilities. I think Beth is correct with her thoughts on the subject, and I believe that her experience was somewhat typical. With the exception of two spontaneous remissions that I'm aware of, most members who have strayed from their treatment programs, (whether it be diet or meds), have found that remission can be extremely elusive, the second time around.
I wish you the best of luck with your "experiment".
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks for the feedback. Beth - sorry your symptoms caused you to take the pred. I also usually react quickly to being back on the GF wagon - also within a few days. When I was on Asacol and my D started again, I tried cutting out dairy with no change. I reduced the Asacol dosage to 1/2 what my GI prescibed. The D was not as bad and my hair stopped falling out. I stopped the Asacol completely and didn't go back to my GI until my gall bladder was acting up - that is another story.
I'll get back on the GF wagon tomorrow because we plan to travel to Oklahoma City this weekend (weather permitting!). Don't need a flare on the road.
Again thanks for the feedback - Ya'll are the best!
Brenda
I'll get back on the GF wagon tomorrow because we plan to travel to Oklahoma City this weekend (weather permitting!). Don't need a flare on the road.
Again thanks for the feedback - Ya'll are the best!
Brenda