http://web.archive.org/web/200212032102 ... /id22.html
NOTE: At the time of the original posting, Lotronex was pulled from the market by the FDA. Today, Lotronex is again on the market with controlled restrictions.
Medication Guide - This Guide was Compiled By Sally
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh, mbeezie
Medication Guide - This Guide was Compiled By Sally
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi,
Welcome to our discussion and support board. Apriso was only approved by the FDA on October 31, 2008, so as far as I am aware, no one here has been given a prescription for it, yet. Many have used the other 5-ASA medicatons, (mesalamine), however, for use mostly as a maintenance medication, after remission has been achieved by the use of Entocort.
This is an information forum. You will find that most of the discussions take place in these forums:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=2
http://www.perskyfarms.com/phpBB2/viewforum.php?f=27
Again, welcome aboard, and I hope you will find the information you are seeking, here. Please feel free to ask any questions.
Tex
Welcome to our discussion and support board. Apriso was only approved by the FDA on October 31, 2008, so as far as I am aware, no one here has been given a prescription for it, yet. Many have used the other 5-ASA medicatons, (mesalamine), however, for use mostly as a maintenance medication, after remission has been achieved by the use of Entocort.
This is an information forum. You will find that most of the discussions take place in these forums:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=2
http://www.perskyfarms.com/phpBB2/viewforum.php?f=27
Again, welcome aboard, and I hope you will find the information you are seeking, here. Please feel free to ask any questions.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I would like to know what reactions people had when attempting to taper off from Entocort. Three capsules per day to two capsules . I did not seem to do well on two so I take three every other day, Any suggestions would be appreciated . I would like to reduce the dosage but I do not do well on only two.
Hi Jane,
Welcome to the board. You can find a lot of information concerning one member's experience with weaning off Entocort, in this thread:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=6730
Typically, most members have found that if they make the necessary diet changes, to eliminate from their diet, the foods to which they are sensitive, they can eventually wean their dosage rate of Entocort down to 1 capsule per day, or even one capsule every other day. Some are able to completely stop taking Entocort, and remain in a state of stable remission, provided that they have fine-tuned their diet, and they have allowed sufficient time for their gut to heal, (usually roughly a year or more). Without the proper diet changes, though, most people with MC will relapse virtually every time that they attempt to wean off Entocort.
IOW, in order to phase out treatment with Entocort, the source of the inflammation that is causing the MC, must be removed. For most of us, that's food sensitivities, but for some people, the inflammation is caused by a drug that they are taking, to treat another issue. MC can be triggered by NSAIDs, SSRIs, PPIs, statins, bisphosphonates, and a number of other drugs. Some people are fortunate enough that they can simply stop taking the drug that triggered their MC, and they can achieve remission, and maintain it, as long as they avoid that drug, (or that family of drugs), but for others, food sensitivities are triggered when the MC is triggered, so they have to make diet concessions, if they are to achieve remission and maintain it, without the long-term use of drugs, to control the inflammation. Most doctors are totally unaware of the fact that food-sensitivities are the primary cause of MC, and they will insist that diet has nothing to do with the disease. They are wrong, of course.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to the board. You can find a lot of information concerning one member's experience with weaning off Entocort, in this thread:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=6730
Typically, most members have found that if they make the necessary diet changes, to eliminate from their diet, the foods to which they are sensitive, they can eventually wean their dosage rate of Entocort down to 1 capsule per day, or even one capsule every other day. Some are able to completely stop taking Entocort, and remain in a state of stable remission, provided that they have fine-tuned their diet, and they have allowed sufficient time for their gut to heal, (usually roughly a year or more). Without the proper diet changes, though, most people with MC will relapse virtually every time that they attempt to wean off Entocort.
IOW, in order to phase out treatment with Entocort, the source of the inflammation that is causing the MC, must be removed. For most of us, that's food sensitivities, but for some people, the inflammation is caused by a drug that they are taking, to treat another issue. MC can be triggered by NSAIDs, SSRIs, PPIs, statins, bisphosphonates, and a number of other drugs. Some people are fortunate enough that they can simply stop taking the drug that triggered their MC, and they can achieve remission, and maintain it, as long as they avoid that drug, (or that family of drugs), but for others, food sensitivities are triggered when the MC is triggered, so they have to make diet concessions, if they are to achieve remission and maintain it, without the long-term use of drugs, to control the inflammation. Most doctors are totally unaware of the fact that food-sensitivities are the primary cause of MC, and they will insist that diet has nothing to do with the disease. They are wrong, of course.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi,
Welcome to the Board. Yes, a few members have been prescribed Pentasa, and sometimes it is effective when the other mesalamine-based medications are not. Like all drugs, though, it doesn't work for everyone. This is an information forum. You'll get a lot more responses from other members if you post on the Main Message Board.
Tex
Welcome to the Board. Yes, a few members have been prescribed Pentasa, and sometimes it is effective when the other mesalamine-based medications are not. Like all drugs, though, it doesn't work for everyone. This is an information forum. You'll get a lot more responses from other members if you post on the Main Message Board.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
replacement for NSAIDS
If MC's are not supposed to take NSAID's, what are we allowed to take for a headache? I always took ibuprofen. When I have a migraine, I used my Imitrex injections but also have to take a couple ibuprofen to knock the pain. I have been doing without for weeks now, trying to substitute a cup of coffee, breathing steam, sniffing VICKS, using heating pad or ice packs, etc. But I surely miss ibuprofen. Please advise.
You can find a list of medications and how they relate to MC at this link:
Medications And Supplements That Are Safe For Most Of Us
As you can see from that list, the following painkillers can be used without having adverse affects on MC.
Medications And Supplements That Are Safe For Most Of Us
As you can see from that list, the following painkillers can be used without having adverse affects on MC.
TexPainkillers:
acetaminophen (Tylenol)
tramadol (Ultram)
narcotic-based painkillers
Note that many members of this discussion board have successfully used topically-applied analgesics (including NSAIDs) with no apparent ill effects
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Just ordered the Enterol Lab Tests!
$638... It will be worth it if it helps! 
Diagnosed with Microscopic Lymphacitic Colitis August 2017; Results from Enterolab reveal Gluten, Oat and Almond sensitivity!
Hi Rudi,
Welcome to the group. Here is a link to an old discussion about Esdifan from 13 years ago:
https://perskyfarms.com/phpBB2/viewtopi ... ht=esdifan
Have you seen the letter from the FDA (sent 11 years ago) to the owners of that enterprise? I don't know how they responded.
http://casewatch.net/fdawarning/prod/2007/zeo.shtml
Here's another thread from 6 years ago:
https://perskyfarms.com/phpBB2/viewtopi ... ht=esdifan
Apparently no one here has used it since then.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to the group. Here is a link to an old discussion about Esdifan from 13 years ago:
https://perskyfarms.com/phpBB2/viewtopi ... ht=esdifan
Have you seen the letter from the FDA (sent 11 years ago) to the owners of that enterprise? I don't know how they responded.
http://casewatch.net/fdawarning/prod/2007/zeo.shtml
Here's another thread from 6 years ago:
https://perskyfarms.com/phpBB2/viewtopi ... ht=esdifan
Apparently no one here has used it since then.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.