Newbie here again...I just got my results from Enterolab, and all of my suspicions have been confirmed. I think I'm interpreting them correctly, if not, someone please jump in and put me on the right track.
Antigliadin IgA 32 (normal <10)
Antitissue Transglutaminase IgA 32 (normal <10)
Fecal Fat Score 366 (normal <300)
Anti-casein IgA 32 (normal <10)
So I clearly am gluten sensitive and casein sensitive.
HLA-DQB1 Molecular analysis, Allele 1 0201
HLA-DQB1 Molecular analysis, Allele 2 0302
Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)
Thus, I have 2 copies of the mains genes that predispose me to gluten sensitivity and celiac sprue (are they different?), which means my parents each have at least one and my children have at least one. Should they all be tested? If so, gene tested or blood or stool tested?
I am in a bit of disbelief...partly because I expected these results, but to actually have them confirmed is huge. No more farting around (so to speak). I know what I have to do!
Thanks for all of your support--looks like I'll be hanging around for the duration. Guess I'd better get myself a real signature!
Wendy
Enterolab results in...suspicions confirmed!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Wendy,
Thanks for the update. As far as I can see, you are interpreting the test results correctly. Actually, the two genes you have both indicate a predisposition to celiac sprue, and gluten sensitivity. There are other gene types that indicate a predisposition to gluten sensitivity, but not celiac sprue. Having both celiac genes puts you in a fairly rare class.
Since you have both celiac genes, it would probably be a very good idea to have all your kids tested. I'm not sure there is any point to spending money on the gene test for them, unless you just want that information, but they should certainly have either the serum or stool test for gluten sensitivity. The stool test is the most reliable, as far as accuracy goes, but if they actually have celiac disease, the blood tests would probably suffice, if they are cheaper or easier to have done.
I'd like to add your gene test results to the forum where we collect that type of information, if you don't have any objection.
Eliminating all the guesswork, right of the bat, is surely the way to go. You're on the fast track, now, since you know exactly what you're doing.
Good luck with your treatment program.
Tex
Thanks for the update. As far as I can see, you are interpreting the test results correctly. Actually, the two genes you have both indicate a predisposition to celiac sprue, and gluten sensitivity. There are other gene types that indicate a predisposition to gluten sensitivity, but not celiac sprue. Having both celiac genes puts you in a fairly rare class.
Since you have both celiac genes, it would probably be a very good idea to have all your kids tested. I'm not sure there is any point to spending money on the gene test for them, unless you just want that information, but they should certainly have either the serum or stool test for gluten sensitivity. The stool test is the most reliable, as far as accuracy goes, but if they actually have celiac disease, the blood tests would probably suffice, if they are cheaper or easier to have done.
I'd like to add your gene test results to the forum where we collect that type of information, if you don't have any objection.
Eliminating all the guesswork, right of the bat, is surely the way to go. You're on the fast track, now, since you know exactly what you're doing.
Good luck with your treatment program.
Tex
Hi Wendy!
Hurray (or is it condolences - LOL!) At least you now know for sure. I agree with Tex and you about what the results show.
Even with the confirmation that you now have, it is incredibly difficult to make a major lifestyle change like diet. You will be doing lots of reading, re-stocking your pantry with different items, reading labels, learning a new way to bake and cook. It is not unusual to go through a full-blown grief reaction - from missing the old days when you could eat whatever you wished without thinking about it. Holidays can be difficult (food plays such a major role in our family rituals), etc. It is a steep learning curve, but I can tell that you are ready fro the challenge. Please ask questions and feel free to rant and rave all you want. Check out the forum just above the main mesage board.......that is where a lot of discussion occurs about diet. We are here for you anytime.
One member actually had a "funeral" for her old gluten-containing foods on the day she threw them out. No kidding. Whatever works!
I am a pediatrician, so I was especially interested to hear you say that you wondered if your kids had some food issues. What are you observing, if you don't mind me being nosy? Do any have short stature?
Love,
Polly
Hurray (or is it condolences - LOL!) At least you now know for sure. I agree with Tex and you about what the results show.
Even with the confirmation that you now have, it is incredibly difficult to make a major lifestyle change like diet. You will be doing lots of reading, re-stocking your pantry with different items, reading labels, learning a new way to bake and cook. It is not unusual to go through a full-blown grief reaction - from missing the old days when you could eat whatever you wished without thinking about it. Holidays can be difficult (food plays such a major role in our family rituals), etc. It is a steep learning curve, but I can tell that you are ready fro the challenge. Please ask questions and feel free to rant and rave all you want. Check out the forum just above the main mesage board.......that is where a lot of discussion occurs about diet. We are here for you anytime.
One member actually had a "funeral" for her old gluten-containing foods on the day she threw them out. No kidding. Whatever works!
I am a pediatrician, so I was especially interested to hear you say that you wondered if your kids had some food issues. What are you observing, if you don't mind me being nosy? Do any have short stature?
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi there...thanks for your words of advice (and your condolences, Polly!--very appropriate). Know that you are never prying in asking questions! I wouldn't be here if if I didn't want to share my information.
Tex, feel free to add my info to wherever that may be. I keep thinking that I should join some study somewhere--maybe some scientist could learn something from this body of mine.
Polly, I'm thrilled to know you are a pediatrician. Have been playing phone tag with ours for over a week. We did a celiac panel on all 3 and they all came back negative. So did mine, so I'm not done with following up on this for them. I had thought that only a few labs in the country were reliable for celiac testing, but I guess not? I just don't know if I should trust the lab or not. Perhaps we need to go the stool route, I just would not like to have to pay the $300 for each child to do it if I don't have to!
I have 3 kids, 13 yo daughter, 10 yo son and 7 yo son. They all have different issues--my daughter has frequent diarrhea and a constant clear runny nose (no matter of the season--been going on for months). She also complains of gas, bloating and a couple other symptoms.
My 10 yo has had problems with constipation on and off, I suspect some malabsorption with him, though hard to tell when you don't see the poop every day. He is very skinny--absolutely no meat on his bones whatsoever. He has some sleep issues and definitely has irritability and mood swings (could be related to the sleep). He also complains of gas. His issues have been around since he was a toddler--they seem to be better now, but I don't know if that's only because I haven't changed a diaper in a long time, so haven't been as intimate with it in the past several years...
My 7 yo complains of his tummy hurting on a pretty regular basis. He also has gas (hmmm...seems to run in the family, doesn't it?). He also has diarrhea, though not as often as my daughter. He seems the least afftected by any symptoms except for the tummy aches.
It's very possible that they just eat too much dairy. They are all good eaters as far as making good choices, eating lots of fruit and vegetables, and we don't eat a lot of sweets in our house--though we do eat a lot of dairy and a lot of gluten. They all get a good amount of exercise as well--the older two swim and the youngest plays soccer. We limit screen time to about 2 hours/day on the weekends only--no tv or computer during the week. They are all great students and we seem to have no emtional or learning issues beyond the normal occasional teenager door slamming.
Since I have two sets of the genes, I have contacted my parents and sisters to let them know that they may want to be tested as well. I did not get a warm reception from any of them. However, I feel as though I have done my duty in giving them the information and whatever they decide to do with it is their choice.
Well, thanks again--"see" you soon!
Wendy
Tex, feel free to add my info to wherever that may be. I keep thinking that I should join some study somewhere--maybe some scientist could learn something from this body of mine.
Polly, I'm thrilled to know you are a pediatrician. Have been playing phone tag with ours for over a week. We did a celiac panel on all 3 and they all came back negative. So did mine, so I'm not done with following up on this for them. I had thought that only a few labs in the country were reliable for celiac testing, but I guess not? I just don't know if I should trust the lab or not. Perhaps we need to go the stool route, I just would not like to have to pay the $300 for each child to do it if I don't have to!
I have 3 kids, 13 yo daughter, 10 yo son and 7 yo son. They all have different issues--my daughter has frequent diarrhea and a constant clear runny nose (no matter of the season--been going on for months). She also complains of gas, bloating and a couple other symptoms.
My 10 yo has had problems with constipation on and off, I suspect some malabsorption with him, though hard to tell when you don't see the poop every day. He is very skinny--absolutely no meat on his bones whatsoever. He has some sleep issues and definitely has irritability and mood swings (could be related to the sleep). He also complains of gas. His issues have been around since he was a toddler--they seem to be better now, but I don't know if that's only because I haven't changed a diaper in a long time, so haven't been as intimate with it in the past several years...
My 7 yo complains of his tummy hurting on a pretty regular basis. He also has gas (hmmm...seems to run in the family, doesn't it?). He also has diarrhea, though not as often as my daughter. He seems the least afftected by any symptoms except for the tummy aches.
It's very possible that they just eat too much dairy. They are all good eaters as far as making good choices, eating lots of fruit and vegetables, and we don't eat a lot of sweets in our house--though we do eat a lot of dairy and a lot of gluten. They all get a good amount of exercise as well--the older two swim and the youngest plays soccer. We limit screen time to about 2 hours/day on the weekends only--no tv or computer during the week. They are all great students and we seem to have no emtional or learning issues beyond the normal occasional teenager door slamming.
Since I have two sets of the genes, I have contacted my parents and sisters to let them know that they may want to be tested as well. I did not get a warm reception from any of them. However, I feel as though I have done my duty in giving them the information and whatever they decide to do with it is their choice.
Well, thanks again--"see" you soon!
Wendy
Wendy,
Thanks. This is where I added the results of your genetic testing:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=2645
It's under the "Polls" forum.
It sure sounds as though each of your kids have symptoms which point the finger to suspicion to gluten intolerance. I have a hunch that Polly will have some suggestions.
Actually, you can get a stool test for gluten sensitivity alone, (or casein intolerance alone), for $99, at Enterolab. If they're willing to do at least a month-long trial on a GF diet, though, the stool testing may be unnecessary. The proof is in the pudding, as they say, and if they are gluten sensitive, they should feel so much better, after a few weeks on the diet, that it should resolve any questions about whether or not they are gluten sensitive.
I had to laugh when I read your comment about not getting a warm reception from your relatives, when you suggested they might want to get tested - I had exactly the same reception from my relatives. LOL. It seems that virtually everyone would rather deny the problem, than to own up to it.
Tex
Thanks. This is where I added the results of your genetic testing:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=2645
It's under the "Polls" forum.
It sure sounds as though each of your kids have symptoms which point the finger to suspicion to gluten intolerance. I have a hunch that Polly will have some suggestions.
Actually, you can get a stool test for gluten sensitivity alone, (or casein intolerance alone), for $99, at Enterolab. If they're willing to do at least a month-long trial on a GF diet, though, the stool testing may be unnecessary. The proof is in the pudding, as they say, and if they are gluten sensitive, they should feel so much better, after a few weeks on the diet, that it should resolve any questions about whether or not they are gluten sensitive.
I had to laugh when I read your comment about not getting a warm reception from your relatives, when you suggested they might want to get tested - I had exactly the same reception from my relatives. LOL. It seems that virtually everyone would rather deny the problem, than to own up to it.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Holy Crap, Polly!
*I* have a kid with short stature - hanging in about the 3%!! I never really considered him having a gluten problem since he's been short his whole life (he was between 5-10% @ birth) - and had no grains except rice until 7-8 mos...my ped has always said "constitutional growth delay combined with prematurity". I had a similar growth pattern, but my other two kids are tall and slightly below average. I may press @ the next visit to rule it out, though! He doesn't have GI issues, though - would that be possible to be asymptomatic, but have as drastic a symptom as short stature? Oh good - something new to worry about
I hope I haven't dropped the ball on this...it will be a disaster if he *is* however - he's my sensory kid and a picky eater - he will HATE his choices 
Mary
*I* have a kid with short stature - hanging in about the 3%!! I never really considered him having a gluten problem since he's been short his whole life (he was between 5-10% @ birth) - and had no grains except rice until 7-8 mos...my ped has always said "constitutional growth delay combined with prematurity". I had a similar growth pattern, but my other two kids are tall and slightly below average. I may press @ the next visit to rule it out, though! He doesn't have GI issues, though - would that be possible to be asymptomatic, but have as drastic a symptom as short stature? Oh good - something new to worry about
I hope I haven't dropped the ball on this...it will be a disaster if he *is* however - he's my sensory kid and a picky eater - he will HATE his choices Mary
My niece is VERY small, off the growth charts, 10 years old and shorter than my 7 yo, and has been put on an acid reflux med...they can't find anything wrong with her growth hormones, proteins, etc. But, the main staples of her diet are bread and pasta...hmmm. Makes you wonder. My sister wants nothing to do with listening to having her tested. Oh well, what can you do? 
Hi All!
Wendy,
The kids' symptoms you describe could certainly be due to gluten sensitivity. Gas is often the result of poorly absorbed proteins like gluten and dairy. One of our members here with severe gluten sensitivity (Jean) had family members with gas only. I think her sister felt better immediately after going GF, and gas was her only symptom. It is certainly possible (and not unusual) to have even full-blown celiac disease without any abdominal symptoms. Children tend to have more rashes and mouth sores along with celiac. Neurological problems too. Did you know that GERD often goes along with gluten sensitivity?
I believe the prevalence of celiac disease is about 1 in 250-300 individuals, and that is just the tip of the iceberg. Most of us here have a "milder" or perhaps earlier form of celiac disease that is just called gluten sensitivity. This milder form will NOT be picked up on the classic celiac BLOOD test, and thus docs often miss it. Miss it? Heck, they don't even know about it! The only way to find it is through STOOL tests like Dr. Fine's. So, it is not your lab that is in error - I'm sure your celiac blood test was done properly - as was mine. We just don't have enough damage to our small intestine at this point for the gluten antibodies to seep from the stool into the bloodstream. BTW, "mild" is not a good word - gluten sensitivity can be just as debilitating as full-blown celiac disease. Dr. Fine wrote an excellent 4-piece article that explains this "spectrum" of celiac disease. You can find it on his website and I think it's also here in out research or links forum.
If I were you I would definitely think about getting at least the STOOL tests for the kids. Gene tests would be interesting, but as Tex says, they may not necessarily mean that the child has gluten sensitivity now - it could develop at a later time or not at all. Or, in order to save $$$$, you could just go ahead and try them all on the GF diet. If you have a response, that is your answer. Perhaps Dr. Fine has a family rate?
CA Mary!
Holy Crap! LOL! You are too funny! Sounds like one of those "AHA" moments. If I were you, I'd want to get testing. Of course, it certainly could be constitutional, because kids with full-blown CD usually follow the normal growth curve for the first 9 mos. of life and then begin dopping off. It sounds like he has always been small. Since preemies catch up to normal weight by age 2, we can't blame the short stature on that. BUT, in view of your history, we all know here that gluten sensivity is a possibility.
I forget the percentage of those with actual CD who do not have diarrhea as a symptom, but I remember thinking it was significant. So I'm sure that there may be even more folks with "our" form of gluten sensitivity (that you called "gluten lite" at one point) who are not having diarrhea.I know it has been said here that we are actually lucky to have diarrhea along with our disease because it forced us into getting a diagnosis more quickly. How many docs would look for gluten sensitivity just based on the other common symptoms of fatigue, muscle and joint aches/pains, mental fog or confusion?
Even if he tests positive for gluten, you don't need to beat yourself up. Catch up growth will occur, and his major growth will occur at adolesence. So all is not lost by a long shot.
Reggie,
Have fun pooping into that little container.
LOL! Actually, it is not too difficult. I wonder if our poop has to go through security at the airport? HAHAHAHAHA! Hopefully it can be xrayed and doesn't have to be visually (or should I say olfactorily) inspected.
Have you been eating gluten again prior to the test?
Pleasant dreams, all.
Love,
Polly
Wendy,
The kids' symptoms you describe could certainly be due to gluten sensitivity. Gas is often the result of poorly absorbed proteins like gluten and dairy. One of our members here with severe gluten sensitivity (Jean) had family members with gas only. I think her sister felt better immediately after going GF, and gas was her only symptom. It is certainly possible (and not unusual) to have even full-blown celiac disease without any abdominal symptoms. Children tend to have more rashes and mouth sores along with celiac. Neurological problems too. Did you know that GERD often goes along with gluten sensitivity?
I believe the prevalence of celiac disease is about 1 in 250-300 individuals, and that is just the tip of the iceberg. Most of us here have a "milder" or perhaps earlier form of celiac disease that is just called gluten sensitivity. This milder form will NOT be picked up on the classic celiac BLOOD test, and thus docs often miss it. Miss it? Heck, they don't even know about it! The only way to find it is through STOOL tests like Dr. Fine's. So, it is not your lab that is in error - I'm sure your celiac blood test was done properly - as was mine. We just don't have enough damage to our small intestine at this point for the gluten antibodies to seep from the stool into the bloodstream. BTW, "mild" is not a good word - gluten sensitivity can be just as debilitating as full-blown celiac disease. Dr. Fine wrote an excellent 4-piece article that explains this "spectrum" of celiac disease. You can find it on his website and I think it's also here in out research or links forum.
If I were you I would definitely think about getting at least the STOOL tests for the kids. Gene tests would be interesting, but as Tex says, they may not necessarily mean that the child has gluten sensitivity now - it could develop at a later time or not at all. Or, in order to save $$$$, you could just go ahead and try them all on the GF diet. If you have a response, that is your answer. Perhaps Dr. Fine has a family rate?
CA Mary!
Holy Crap! LOL! You are too funny! Sounds like one of those "AHA" moments. If I were you, I'd want to get testing. Of course, it certainly could be constitutional, because kids with full-blown CD usually follow the normal growth curve for the first 9 mos. of life and then begin dopping off. It sounds like he has always been small. Since preemies catch up to normal weight by age 2, we can't blame the short stature on that. BUT, in view of your history, we all know here that gluten sensivity is a possibility.
I forget the percentage of those with actual CD who do not have diarrhea as a symptom, but I remember thinking it was significant. So I'm sure that there may be even more folks with "our" form of gluten sensitivity (that you called "gluten lite" at one point) who are not having diarrhea.I know it has been said here that we are actually lucky to have diarrhea along with our disease because it forced us into getting a diagnosis more quickly. How many docs would look for gluten sensitivity just based on the other common symptoms of fatigue, muscle and joint aches/pains, mental fog or confusion?
Even if he tests positive for gluten, you don't need to beat yourself up. Catch up growth will occur, and his major growth will occur at adolesence. So all is not lost by a long shot.
Reggie,
Have fun pooping into that little container.
LOL! Actually, it is not too difficult. I wonder if our poop has to go through security at the airport? HAHAHAHAHA! Hopefully it can be xrayed and doesn't have to be visually (or should I say olfactorily) inspected.Have you been eating gluten again prior to the test?
Pleasant dreams, all.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Thanks, Polly, for your reply and information.
Tex, I think you're right--my mother in particular REALLY doesn't want to deal with it, and she's the one I am 99% sure has some form of gluten intolerance!
We are starting gluten free on Sunday (I told my daughter that we'd wait until after her birthday party). Talked with the kids last night and they all seem to understand what needs to be done both for me, and why we're going to follow up on this for them. They all seem to be on board with it. My husband is wonderful--supportive in whatever I need to get healthy and feel better.
I am not quite prepared yet--need to get rid of a few things in the house and stock up on some others. I have lots of reading and research to do....We have all tried the gluten free bread from Gluten Free Pantry and loved it, so bread won't be an issue. Except that I'd like to start making my own.
Where do you all buy your gluten free products? I know there are some online places, but don't know which are cheapest. We have Whole Foods and Vitamin Cottage, so those are the local places I'll start with, but they're so expensive!
Well, better get those kids up and off to school! Another busy day ahead.
After only 3 days I can honestly say that I love you guys!
Wendy
Tex, I think you're right--my mother in particular REALLY doesn't want to deal with it, and she's the one I am 99% sure has some form of gluten intolerance!
We are starting gluten free on Sunday (I told my daughter that we'd wait until after her birthday party). Talked with the kids last night and they all seem to understand what needs to be done both for me, and why we're going to follow up on this for them. They all seem to be on board with it. My husband is wonderful--supportive in whatever I need to get healthy and feel better.
I am not quite prepared yet--need to get rid of a few things in the house and stock up on some others. I have lots of reading and research to do....We have all tried the gluten free bread from Gluten Free Pantry and loved it, so bread won't be an issue. Except that I'd like to start making my own.
Where do you all buy your gluten free products? I know there are some online places, but don't know which are cheapest. We have Whole Foods and Vitamin Cottage, so those are the local places I'll start with, but they're so expensive!
Well, better get those kids up and off to school! Another busy day ahead.
After only 3 days I can honestly say that I love you guys!
Wendy
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MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
HI Wendy,
You are definitely taking a positive approach and glad to see your children are on board.
I have been GF since the beginning which is almost 6 years now. WOW! Back when there were just a few of us - Polly, Alice, Barbara, Sally. Seems so very long ago.
At first I did a lot of mailorder for GF items but I now do very little that way. I do mine at a local healthfood store, Wegman's Super Market, Whole Foods, etc. We seem to have an unusually high concentration of Celiacs in SE PA and more stores are carrying a small selection of GF. I also make all my own bread and use the GF Pantry bread mix - it is very good. By far more like home made. The frozen loafs you can by are what I call sawdust bread or doorstop bread.
Being a scratch cook and not using many processed foods gives me a leg up on modifying things so they are GF. The more you work at it, the easier it becomes. My husband is extremely supportive and he eats very few things that are not GF. Has to have his bagels and cookies though.
Glad to see you here.
Maggie
You are definitely taking a positive approach and glad to see your children are on board.
I have been GF since the beginning which is almost 6 years now. WOW! Back when there were just a few of us - Polly, Alice, Barbara, Sally. Seems so very long ago.
At first I did a lot of mailorder for GF items but I now do very little that way. I do mine at a local healthfood store, Wegman's Super Market, Whole Foods, etc. We seem to have an unusually high concentration of Celiacs in SE PA and more stores are carrying a small selection of GF. I also make all my own bread and use the GF Pantry bread mix - it is very good. By far more like home made. The frozen loafs you can by are what I call sawdust bread or doorstop bread.
Being a scratch cook and not using many processed foods gives me a leg up on modifying things so they are GF. The more you work at it, the easier it becomes. My husband is extremely supportive and he eats very few things that are not GF. Has to have his bagels and cookies though.
Glad to see you here.
Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
___________________
Resident Birder - I live to bird and enjoy life!
Wendy-
I will post some food ideas over in the food/diet room - I think Maggie and I have been GF about the same length of time. I'll also let you know which things are "kid friendly". Umm, I hope you are not trying to save on your food budget, as this is an expensive endeavor!! But if we can help make the learning process easier for you, we will!
Mary
I will post some food ideas over in the food/diet room - I think Maggie and I have been GF about the same length of time. I'll also let you know which things are "kid friendly". Umm, I hope you are not trying to save on your food budget, as this is an expensive endeavor!! But if we can help make the learning process easier for you, we will!
Mary
Wendy,
If you haven't already done so, check out the forum titled "Information on Diet" under the list of Info Forums. Lots of good info there - if you will scroll down, you will see a post I wrote about starting the GF/DF diet (sort of a GF/DF 101 course - LOL).
Love,
Polly
If you haven't already done so, check out the forum titled "Information on Diet" under the list of Info Forums. Lots of good info there - if you will scroll down, you will see a post I wrote about starting the GF/DF diet (sort of a GF/DF 101 course - LOL).
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hey Wendy-
Great to hear that your tests came back with some conclusive evidence. Did you test for soy, eggs, yeast as well?
Our tests are very similar.. gluten and casein sensative as well as having the two genes.
At least you know what is going on now. What were your symptoms?
Do you plan on going on a GFCF diet soon? Tough stuff but well worth it.
Great to hear that your tests came back with some conclusive evidence. Did you test for soy, eggs, yeast as well?
Our tests are very similar.. gluten and casein sensative as well as having the two genes.
At least you know what is going on now. What were your symptoms?
Do you plan on going on a GFCF diet soon? Tough stuff but well worth it.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
I have always been underweight and slightly smaller than the rest of my peers at my age. At my "peak of teenage years" (I am 24 now) I think I was 5'10 at the most and 140 at the most- skin and bones. So I started to have trouble a lot in late college (always had troubles before but they went away after a few days/weeks) and dropped to 115 pounds.
Since on the diet (7 months about) my weight has definately gone up and down- but the most surprising thing is that I grew almost 1 1/4 inches at age 24 within that 7 moonth time frame. About 3 months into the diet my ankles started to hurt worse than they did before and I got mad leg cramps. I didnt even suspect that I was growing until i went to the Dr's office. My ankles still hurt from time to time which makes me think I am not done growing (my mom always thought I was not tall enough- Dad is 6'4", unlce 6'3" and Aunt 5'11"- very tall on that side of the family.
Now I am not perfect my any means. I still get moody, stomach cramps, gas, but really no more D- which usually is the first to go. Everythng else takes months to years to completely get nomral- if normal is ever obtained. However I feel so much better now and strongly encourage you to not give up.
Cooking is much harder with the different types of GF flours- however practice makes... (no not perfect- that is impossible) practice makes better! You can find rice flour, tapioca flour, bean flour, blends of flours at glutenfreemall.com- reasonable prices compared to teh health food store.
At first if I were you I would stick to a simple and boring diet- Chicken, potato, rice, very very well cooked greenbeans or a veggie that you tollerate very well- I made some banana muffins (directiosn on teh back of Bob's Red Mill Gluten Free rice flour- but I dont use Bobs Red Mill) and ate a ton of them. Hot Rice cereal with small amounts of honey or maple syrup for breakfast, or if you can tolerate an egg go for that! Eggs took me about 2 months to tollerate. And dont forget meat. Eat meat or protien at every meal- heck have a piece of chicken for breakfast if you want- it will give you more energy than just carbs.
Kinnickinick has a great website with breads, bagels, muffins, etc that are gluten and casein free- but those might take you a little while to fully tollerate. Vans Gluten free waffles are good as well but again took a litle while. Basically start out slow and eat chicken and chicken broth (MUST BE GLUTEN FREE)
bETTE hAGMAN HAS GREAT BOOKS
Since on the diet (7 months about) my weight has definately gone up and down- but the most surprising thing is that I grew almost 1 1/4 inches at age 24 within that 7 moonth time frame. About 3 months into the diet my ankles started to hurt worse than they did before and I got mad leg cramps. I didnt even suspect that I was growing until i went to the Dr's office. My ankles still hurt from time to time which makes me think I am not done growing (my mom always thought I was not tall enough- Dad is 6'4", unlce 6'3" and Aunt 5'11"- very tall on that side of the family.
Now I am not perfect my any means. I still get moody, stomach cramps, gas, but really no more D- which usually is the first to go. Everythng else takes months to years to completely get nomral- if normal is ever obtained. However I feel so much better now and strongly encourage you to not give up.
Cooking is much harder with the different types of GF flours- however practice makes... (no not perfect- that is impossible) practice makes better! You can find rice flour, tapioca flour, bean flour, blends of flours at glutenfreemall.com- reasonable prices compared to teh health food store.
At first if I were you I would stick to a simple and boring diet- Chicken, potato, rice, very very well cooked greenbeans or a veggie that you tollerate very well- I made some banana muffins (directiosn on teh back of Bob's Red Mill Gluten Free rice flour- but I dont use Bobs Red Mill) and ate a ton of them. Hot Rice cereal with small amounts of honey or maple syrup for breakfast, or if you can tolerate an egg go for that! Eggs took me about 2 months to tollerate. And dont forget meat. Eat meat or protien at every meal- heck have a piece of chicken for breakfast if you want- it will give you more energy than just carbs.
Kinnickinick has a great website with breads, bagels, muffins, etc that are gluten and casein free- but those might take you a little while to fully tollerate. Vans Gluten free waffles are good as well but again took a litle while. Basically start out slow and eat chicken and chicken broth (MUST BE GLUTEN FREE)
bETTE hAGMAN HAS GREAT BOOKS
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!