Cristi, it's Dr Marti at the Bellevue Fatigue and Fibro Center.
Tex, that is exactly the emoticon I needed.
Adrenal support is maintaining remission, Cortef
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Whoa! Do you have any more info? I live in Redmond, WA, right next to Bellevue. On quick look I couldn't find the place you are talking about.Reggie wrote:Cludwig, it's Dr Marti at the Bellevue Fatigue and Fibro Center.
Tex, that is exactly the emoticon I needed.
EDIT Nevermind, I found it here:
http://www.fibroandfatigue.com/center_seattle.php
Seems that the Dr there isn't covered by my insurance. :(
Here's a quote from a guy named Thor on the Yahoo group:
If you are looking for someone to treat your condition, you should check
out Dr. Steven Hall MD in Bellevue. He is a medical doctor, but treats
CFS/Fibro with alternative methods. He's friendly and easy to talk to as
well, but does not take medicare. As far as what he's done for me, the
jury's still out, but he's worth looking into. If you have any questions please
e-mail me off the list as I don't get to check it that often. Good luck!
EDIT:
Here's his web site. I think I'm in love:
http://www.stevenmhallmd.com/aboutsteve.htm
If you are looking for someone to treat your condition, you should check
out Dr. Steven Hall MD in Bellevue. He is a medical doctor, but treats
CFS/Fibro with alternative methods. He's friendly and easy to talk to as
well, but does not take medicare. As far as what he's done for me, the
jury's still out, but he's worth looking into. If you have any questions please
e-mail me off the list as I don't get to check it that often. Good luck!
EDIT:
Here's his web site. I think I'm in love:
http://www.stevenmhallmd.com/aboutsteve.htm
We interrupt our regular broadcast to bring you this special announcement:
Has anyone else noticed that every one of you with adrenal insufficiency issues is located in the PNW area, (except for one, and he's still on the Pacific coast, just a little farther south.
Is this just a huge coincidence, or what's going on out there? It's also interesting that the recommended doctors are located out there, adding credence to the suggestion that it's a PNW phenomenon. I find the demographics of this to be extremely interesting.
Tex
Has anyone else noticed that every one of you with adrenal insufficiency issues is located in the PNW area, (except for one, and he's still on the Pacific coast, just a little farther south.
Is this just a huge coincidence, or what's going on out there? It's also interesting that the recommended doctors are located out there, adding credence to the suggestion that it's a PNW phenomenon. I find the demographics of this to be extremely interesting.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Oh yeah. Sorry about that. LOL.
So how long did you live in the PNW, before you moved to Boston? LOL. Okay, I guess I'm all wet on that one. It just struck me as rather odd that four people in the same general location, turned up with the same rare issue.
Wayne
So how long did you live in the PNW, before you moved to Boston? LOL. Okay, I guess I'm all wet on that one. It just struck me as rather odd that four people in the same general location, turned up with the same rare issue.
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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bobh
- Gentoo Penguin
- Posts: 253
- Joined: Wed Aug 09, 2006 10:07 am
- Location: California, San Luis Obispo (coast)
His site looks good. My only concern is that I went through a number of "natural" type docs who think that over the counter vites and supplements (like the 3 he stresses on his treatments page) will fix people with adrenal insufficiency. Maybe he's great. I would make one phone call before seeing him (this is me personally - I'm not telling you what to do). I would want to know if he prescribes Cortef for patients with labs showing adrenal insufficiency.Reggie wrote:.... you should check out Dr. Steven Hall MD in Bellevue.
Some Dr's, like the "Bellevue Fatigue and Fibro Center" you referenced above that prescribes Cortef, and Dr. Teitelbaum (wrote "fatigued to fantastic") have come to realize that the glandulars and supplements just don't cut it when the patient is into adrenal insufficiency.
Some Dr's just WON'T DO IT. I mean they REFUSE. I had a long talk with my wife's Dr that she had to see when out of town a couple weeks ago on this subject, and was amazed how ignorant she was on the stuff I was bringing up, we just couldn't even have a decent conversation, it was like a foreign language to her. But the Dr just clung to arrogance and switched over to "talking down to me" as a solution to the conversation. Jeez.
Ask if they prescribe Cortef, and if they prescribe Armours (not synthetic thyroid) and if they will help you get to the upper 1/3 of normal on FT3 rather than focus on the TSH lab.
If they focus on the TSH you won't get better. They will do a follow up blood check, see that the thyroid meds you are taking are lowering the TSH, and they will lower your dose to an amount that leaves you walking-wounded. You either need to treat the thyroid or you don't.
If the body is not creating adequate levels, you basically need to roll up the sleeves and be prepared to do a replacement dose, as mentioned earlier on this thread. I keep saying this, because literaly thousands of the 43,347 posts on that other board are on this direct issue. The proof is if the patient gets better.
Bob H
Tex, there's a study posted here somewhere that says most people get diagnosed in summer, but my initial D started in late March last year and my relapse started in mid January this year. I don't think that's a coincidence. They're linking vitamin D to MS, and I got a bunch of autoimmune symptoms in the beginning. Winter in the dark Northwest is NOT good for me, nor for MS sufferers.
Bob, I've pretty much decided to call the FFC this morning and pay the price. I don't know yet if they prescribe armour, but I'm sure I'll get cortef there. You've convinced me.
My doctor only ordered half the tests I asked for, and he completely ignored my question about the time of day to get cortisol tested. When I went to the clinic lab yesterday at noon the tech started to draw for cortisol as well as the rest of it. I went to the hospital lab and asked it I could arrange to come in for a 7am draw and went in this morning.
I wasn't too thrilled with the supplements that doctor recommended, but I'm more open them than you I think. I had pretty good luck with ribose, NADh, coq10, magnesium, B12, acetyl-l-carnitine taken together for energy. I've taken some l-theonine for calmness and it helps a little. When my pelvic syndrome was producing urinary symptoms I got more relief from quercetin and saw palmentto than from the Proscar and alpha blockers.
Bob, I've pretty much decided to call the FFC this morning and pay the price. I don't know yet if they prescribe armour, but I'm sure I'll get cortef there. You've convinced me.
My doctor only ordered half the tests I asked for, and he completely ignored my question about the time of day to get cortisol tested. When I went to the clinic lab yesterday at noon the tech started to draw for cortisol as well as the rest of it. I went to the hospital lab and asked it I could arrange to come in for a 7am draw and went in this morning.
I wasn't too thrilled with the supplements that doctor recommended, but I'm more open them than you I think. I had pretty good luck with ribose, NADh, coq10, magnesium, B12, acetyl-l-carnitine taken together for energy. I've taken some l-theonine for calmness and it helps a little. When my pelvic syndrome was producing urinary symptoms I got more relief from quercetin and saw palmentto than from the Proscar and alpha blockers.
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bobh
- Gentoo Penguin
- Posts: 253
- Joined: Wed Aug 09, 2006 10:07 am
- Location: California, San Luis Obispo (coast)
Gotcha on all that. I don't have anything aganst natural supplements, I do take some. It's just that nothing had any lasting "cure" for me during the time when my adrenal cortisol was flatlining, and low Ft3.
When the very basic metabolism engine isn't running, these NADH pills etc just don't get traction. I wouldn't feel a thing. I know some people would get results, and wondered why I didn't.
Ever since my CFS "label" 20 years ago no one would insure me - so I have the freedom to see any Dr I want, and go as deep in debt as I want. It is a balancing act, for sure.
When the very basic metabolism engine isn't running, these NADH pills etc just don't get traction. I wouldn't feel a thing. I know some people would get results, and wondered why I didn't.
Ever since my CFS "label" 20 years ago no one would insure me - so I have the freedom to see any Dr I want, and go as deep in debt as I want. It is a balancing act, for sure.
Bob H
Hi Friends,
The last time I saw my latest gastro at harborview she mentioned that a lot of my symptoms seemed hormonal and that they had a chronic fatigue clinic there and did I think I had it? I was pretty wrapped up in the pain in my gut (gallbladder) to really listen but now that Reggie has brought up the connection between CFS and hormone imbalances I am thinking I should look at those specialists...esp. since I am getting nowhere with the endocrinologists. Perhaps they are are more open minded. I sent my gastro an email to see if I can get some names.
Love,
Cristi
The last time I saw my latest gastro at harborview she mentioned that a lot of my symptoms seemed hormonal and that they had a chronic fatigue clinic there and did I think I had it? I was pretty wrapped up in the pain in my gut (gallbladder) to really listen but now that Reggie has brought up the connection between CFS and hormone imbalances I am thinking I should look at those specialists...esp. since I am getting nowhere with the endocrinologists. Perhaps they are are more open minded. I sent my gastro an email to see if I can get some names.
Love,
Cristi
Hey Bob and others. Here's another site for thyroid/adrenal issues:
http://hormonegeeks.com/forum/index.php
I came across this from a person who I've talked to a great deal about this sort of stuff. Some very knowlegable folks up there as well who like to discuss this sort of stuff. :)
Mike
http://hormonegeeks.com/forum/index.php
I came across this from a person who I've talked to a great deal about this sort of stuff. Some very knowlegable folks up there as well who like to discuss this sort of stuff. :)
Mike
Hi Cristi,
I'm running out the door right now, but here's a quick answer:
melatonin, licorice, kavinace, 5HTP, B-vitamins, Vitamin D - and I think that's it. She tried me on acidopholus, but that was a complete failure. Bloating and cramping within ten minutes of taking the stuff.
Will post later if I can think of anything else.
Best,
Beth
I'm running out the door right now, but here's a quick answer:
melatonin, licorice, kavinace, 5HTP, B-vitamins, Vitamin D - and I think that's it. She tried me on acidopholus, but that was a complete failure. Bloating and cramping within ten minutes of taking the stuff.
Will post later if I can think of anything else.
Best,
Beth