Well, I'm back and it's good!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Well, I'm back and it's good!
I only got a preliminary report since a couple of the pathologists can't agree on what they see...but they DO agree on the important stuff which is stage 0/non-invasive and grade 2 which is pretty common as far as aggressiveness (grade 3 would be more concerning)...
Apparently they saw a different type of atypia mixed in with the pathology - many women can have both - but not usually in the same tissue, and it is considered something that puts a person at-risk, but not pre-cancerous, like the other stuff - so it is actually "less" worrisome than what was initially found, but still abnormal - does that make sense?
Anyways, since this is a sort of unusual finding, they will be discussing me @ next Tuesday's tumor board meeting, and will probably send the sample out to UCSF (which is a major research facility) to have their pathologists take a look and get a definitive diagnosis...
If they agree it is more of the original stuff, I will have to go back in for re-excision, as the margin of clear tissue on one side was not large enough - if it is the other kind of atypia they won't need to do anything more...I'm fine with either finding. The important thing is the staging and prognosis remain unchanged. Also, they do not yet know hormone-receptor status, since they are still arguing over what it is - but the surgeon implied I would likely be a candidate for Tamoxifen, as a risk-lowering treatment....
SO yeah, it's good news! FINALLY!!
Love you guys,
Mary
Apparently they saw a different type of atypia mixed in with the pathology - many women can have both - but not usually in the same tissue, and it is considered something that puts a person at-risk, but not pre-cancerous, like the other stuff - so it is actually "less" worrisome than what was initially found, but still abnormal - does that make sense?
Anyways, since this is a sort of unusual finding, they will be discussing me @ next Tuesday's tumor board meeting, and will probably send the sample out to UCSF (which is a major research facility) to have their pathologists take a look and get a definitive diagnosis...
If they agree it is more of the original stuff, I will have to go back in for re-excision, as the margin of clear tissue on one side was not large enough - if it is the other kind of atypia they won't need to do anything more...I'm fine with either finding. The important thing is the staging and prognosis remain unchanged. Also, they do not yet know hormone-receptor status, since they are still arguing over what it is - but the surgeon implied I would likely be a candidate for Tamoxifen, as a risk-lowering treatment....
SO yeah, it's good news! FINALLY!!
Love you guys,
Mary
- barbaranoela
- Emperor Penguin
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Great news, Mary!
You sound more relieved and less stressed than before - it's better knowing isn't it?
I think the "round table" discussion is a good idea - two (or more) heads are better than one, usually.
Also, sending the sample out to UCSF is a great idea too. I like the second opinion idea when it comes to invasive and radical proceedures.
Take care of yourself and let us know as things progress. I'm really happy you received good news.
Love and
Mars
You sound more relieved and less stressed than before - it's better knowing isn't it?
I think the "round table" discussion is a good idea - two (or more) heads are better than one, usually.
Also, sending the sample out to UCSF is a great idea too. I like the second opinion idea when it comes to invasive and radical proceedures.
Take care of yourself and let us know as things progress. I'm really happy you received good news.
Love and
Mars
"Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful." -- Buddha
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- Carol Arnett
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- MaggieRedwings
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Morning Mary,
Great News!! The kind you really needed to hear and I think their approach to send a sample away and discuss it at their weekly meeting is really one to be applauded. You sound like you found a physician and his colleagues who are really proactive.
Love, Maggie
Great News!! The kind you really needed to hear and I think their approach to send a sample away and discuss it at their weekly meeting is really one to be applauded. You sound like you found a physician and his colleagues who are really proactive.
Love, Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
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Resident Birder - I live to bird and enjoy life!
Yep-
Knowing (something, anything!) is *always* better than not knowing - I feel a sense of inner-calm and control inside that I haven't felt for about 6 weeks. Because now I know what is, and I have a plan to make it alright...
You know, if it weren't so clinical, it would *almost* be flattering to think that my :boobs: will be the topic of discussion for a tableful of men @ next week's tumor board... Apparently my surgeon has diagnosed 4 cases in the last week-and-a-half...I was shocked at that rate - truly an epidemic and no woman is immune from the risk...
I am also glad I did not hear of Elizabeth Edwards' recurrence while I was waiting for results. The type she initially had is what starts out as what I have - but hers was not caught until it already became invasive...
I feel like I am a weird combination of unfortunate, yet very, very lucky!
Mary
Knowing (something, anything!) is *always* better than not knowing - I feel a sense of inner-calm and control inside that I haven't felt for about 6 weeks. Because now I know what is, and I have a plan to make it alright...
You know, if it weren't so clinical, it would *almost* be flattering to think that my :boobs: will be the topic of discussion for a tableful of men @ next week's tumor board... Apparently my surgeon has diagnosed 4 cases in the last week-and-a-half...I was shocked at that rate - truly an epidemic and no woman is immune from the risk...
I am also glad I did not hear of Elizabeth Edwards' recurrence while I was waiting for results. The type she initially had is what starts out as what I have - but hers was not caught until it already became invasive...
I feel like I am a weird combination of unfortunate, yet very, very lucky!
Mary
- kate_ce1995
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- Location: Vermont
Mary, I vote for very very lucky. Even if it is unfortuate to have (and there is no denying that) your docs and your raised awareness that you have it, will allow for the careful screening and with a little more luck hopefully will never get to the invasive point. I heard through the grapevine that a classmate of mine has BC but it wasn't found until it had spread throughout her spine.
I dread the day I have to deal with mammograms and such because of my mom's history. Hers wasn't even a lump. They did the biopsy because of lumps (cysts) and an area that was concave instead of convex (or is that the otherway around...dented in instead of rounded out). Hers was likely the flat tissue type that doesn't create lumps. Even after the surgery her surgeon could not pick out the area on her mammogram.
I'm glad you are calm about it now. Katy
I dread the day I have to deal with mammograms and such because of my mom's history. Hers wasn't even a lump. They did the biopsy because of lumps (cysts) and an area that was concave instead of convex (or is that the otherway around...dented in instead of rounded out). Hers was likely the flat tissue type that doesn't create lumps. Even after the surgery her surgeon could not pick out the area on her mammogram.
I'm glad you are calm about it now. Katy