everyone must feel like I dropped off the face of the earth, and for me sometimes it feels like that. But I want to say it had nothing to do with anyone here, it had to do with what was going on with me. Well, besides having CC/LC, I have fibro, and it was that part that was pulling me down. As I have been working with the symtoms and so forth to try and keep myself from having a flare-up, and it just didn't work. I was just feeling worse and worse. To top it off the family doctor I had, did not feel too enthusiastic about finding out if more was going on. So to me, it was walking on a treadmill, I wasn't getting anywhere, and it felt like I was a failure, because anyone else I knew didn't not have all the problems I kept getting more and more. Well, the bestest thing that ever happened to me was getting my rhuematologist, she finally diagnosed me with Lupus, and I am on an antimarlia drug that has been having great success in putting people with rhuematoid arthritis and Lupus into remission. So although it has not kicked in, just knowing that it might put me into remission in as little time as 4 months from now, is fantastic. My health had been getting worse, and I didn't have much hope of it improving. And if this doesn't do it, we will try another drug till we get it into remission. And I can hardly wait, I have not been able to walk too far and the pain everywhere has been too much to take some days. I have been unable to use my fingers and hands for long periods, and that prevents me from writing too many emails. I have been housebound for long periods, but the good part about that is that I moved! The small apartment that I was in might have had a nice outdoors, but the fact that it was in a basement was not good for me. So I moved to an great apartment and I can get around pretty good to where I need, and it doesn't cost me an arm and a leg, nor does it take me two hours or more one way to go see my daughters, or for them to come see me. And I have doctors close by, a pharmacy that delivers, grocery stores close, you name it, it is near, either I can walk to it, or take a short taxi ride. Bestest of all is that I am close to my little gransdon, and he is just amazing. He will be 1 year old on May 13, can you beieve it. He is adorable, always smiling and is a big show off. He has been walking a little, four or five steps at a time, but is walks around things continually and can crawl so fast you can barely catch up to him. If he catches the gate open, you can barely get there before him to close it. He loves people and hates naps, as then he cannot play or he might miss something. So my goal right now is to get better enough so that this summer I can actually do more with him. Right now I can't hold him for long, and he is just so cute that you just want squeese him and kiss his little cheeks. Amanda is not going back to retail, she ihas cut down on her work week, to just 16 hours, but with the city part in the daycare programs and part in the offices, and they pay well enough that she can stay home with her son more. Which also means that I will see them even more. I have also met and made a friend here! That has been great, I have not had a live girlfriend for so long, its really fun to have someone to go out with shopping and or just to have fun. IT is also great to have someone to chat with on the phone every week. The other event that has happened is the loss of Pebbles, my longtime buddy. She took a turn for the worse when we got a real cold snap in early Feb. With her heart condition, she just got really bad and I had to say good-bye to her. It has been very different since her death. My youngest daughter gave me their persian cat to help ease the lonelyness, and he has been a real sweetheart. Well I am going to have to say good=bye, as right now one of those little things that I have to deal with is something wrong with my eyes, and my close=up vision gets bad. So if there are spelling errors, sorry, I know my keys but I cannot see the screen too well.
As per my usual ending
Gentle Hugs
Wendy
Wendy from Toronto, here is the scoop
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Wendy,
It's good to hear from you again, and thanks for the update. It's great to "hear" that you've finally got a diagnosis, and found a treatment that may actually get the SLE under control. I hope it works.
I'm very sorry to hear of the loss of your long-time companion, but it's good that you've found a friend nearby, to share some time with. I hope that the treatment resolves the eye problem, also. Good vision is a precious part of our lives.
Hugs,
Tex
It's good to hear from you again, and thanks for the update. It's great to "hear" that you've finally got a diagnosis, and found a treatment that may actually get the SLE under control. I hope it works.
I'm very sorry to hear of the loss of your long-time companion, but it's good that you've found a friend nearby, to share some time with. I hope that the treatment resolves the eye problem, also. Good vision is a precious part of our lives.
Hugs,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Wendy, my fellow Canuck...great to see you!
As Wayne said, it's always great to finally get a diagnosis and know just what you're dealing with. The unknown sucks, and I think we can all attest to that.
I'm really sorry to hear about Pebbles. I know how much pets mean to us. Those who have never had pets have a hard time understanding that they become our family members. Maybe when you're feeling somewhat better you could go rescue some needy critter from a pound...who would be more than blessed to have you for a Mom!!!
Keep in touch, when you can.
Love
Pegster
As Wayne said, it's always great to finally get a diagnosis and know just what you're dealing with. The unknown sucks, and I think we can all attest to that.
I'm really sorry to hear about Pebbles. I know how much pets mean to us. Those who have never had pets have a hard time understanding that they become our family members. Maybe when you're feeling somewhat better you could go rescue some needy critter from a pound...who would be more than blessed to have you for a Mom!!!
Keep in touch, when you can.
Love
Pegster
Good to hear from you and I'm glad you have a new doctor and and a new diagnosis. I surely hope the outlook will be better for you.
Sorry about Pebbles. I know you loved her so much, but glad you are enjoying the new kitty. I think Persian's are beautiful.
Love, Shirley
Sorry about Pebbles. I know you loved her so much, but glad you are enjoying the new kitty. I think Persian's are beautiful.
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
So sad. -
MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Hi Wendy,
Welcome home and so happy to hear that you finally have a diagnosis and a good doctor but sorry to hear about your eye problem and really, really sorry that Pebbles has left you. I know how dear she was to you and hopefully some time in the future, when you are ready, you can again had a cutie join your family.
Love, Maggie
Welcome home and so happy to hear that you finally have a diagnosis and a good doctor but sorry to hear about your eye problem and really, really sorry that Pebbles has left you. I know how dear she was to you and hopefully some time in the future, when you are ready, you can again had a cutie join your family.
Love, Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
___________________
Resident Birder - I live to bird and enjoy life!