Effect of heat on any autoimmune diseases?

[Lucy]

Hi all,

Not sure whether this question has come up or not, but do any of you notice that you feel different, other than hotter, when the temperature is extremely high?

Before going gf, etc., I used to come closest to D accidents after leaving a restaurant and going out into the heat, particularly if the car had been out in the sun and was hard to cool off once we got inside.

Reason for asking this was that someone, maybe Wendy, mentioned in a recent post that for some reason, she'd come out of remission recently, so guess I was thinking that summer heat would coincide with that.

Also, since so many of us have AI diseases or else our relatives do, perhaps you could ask some of them as well, and report back to us.

It was interesting to me that the other day the heat brought on parastalsis in my colon that produced the usual norman like always, but thought it was unusual that I could feel the gut responding to the heat, even with a normal stool. Hope I'm making sense.

OK, your thoughts, please on any heat sensitive AI diseases including M.C.

Yours, Luce

[TendrTummy]

Hmmm, not sure, Luce..

I've had AI diseases since 15.. mostly the TMJ, which I guess really wouldn't be affected much by heat, but I do have to say, I've always been particularly sensitive to heat - IOW, heat has always been a factor when I got sick prior to having CC. I used to have to eat every 2 hours, or I'd practically pass out. Heat played a HUGE role in that. It would increase the effects of this "condition" by two times, at least.

Anyway, hopefully someone else has more to add to this..

Christine

[Polly]

Me too, Luce. Ever since MC I don't like or tolerate hot weather as well. I have episodes where I'll feel dizzy and lightedheaded, even without any D or other symptoms. It is worse after I have worked out in hot weather. I also wonder if it is related to some effect of the MC/gluten sensitivity???

Love,

Polly

[moremuscle]

Lucy,

I remember from back when I was still having reactions that if I turned on the heat in the car seat I would feel VERY uncomfortable - I really had to avoid that in order to prevent accidents in the car. Now that I am symptom free I don't have any problem with the heat - yesterday was very humid and hot here in SC. We are really getting into the sweltering summer - but wow, it feels great outside this morning. Low humidity.

Love,
Karen

[Sally]

How strange. I was just talking to Barbara (in CA) and I was complaining to her about the heat. It's been my experience that as people age they become extremely sensitive to cold. With me it's heat. Anything much over 75 degrees and I start to wilt. I can't remember if I have always been this way. I don't think so. How would I have survived 6 years in the Philippines? Anyway, heat causes me to feel dizzy, fatigued, and, yes, it does tend to start those rumbling feelings in my gut.

Interesting.

Love,

Sally

[starfire]

I was one who was more on the chilly side until a few years ago when it seemed like my temp just started "running hot" all the time. I would have periods that I call/called hot flashes but overall I am just a lot warmer than I used to be. I try to freeze most of the people I know (my age) because I'm just so much warmer than they are.

Don't know what's that worth or what it means. It started long before I had MC (or at least before I knew something was wrong). Maybe it was perculating way back then.

Love, Shirely

[Sally]

Hmmm. This is beginning to look like one on those "nitnoids" as we used to call them. Polly, Wayne, what do you think?

Love,

Sally

[Mars]

Hi everyone!

Heat also does the same for me. I start gurgling, light-headed and fatigued. Also, quite sick to my stomach.

It has been in the upper 80's and low 90's here in Ohio and when it reaches those temps, the humidity is high. I am at my worst during high humidity. I also notice that the fibro seems to be worse.

Dang it! Quit reminding me of all my problems!

[Tessa]

I agree too... Heat and Tessa does not match together...

For instance, yesterday, I went to Hospital (to visit a friend) It was soo hot and as there was no seat, I had been standing for a while... I suddenly felt weak, sweating and very dizzy. My friend said I was pale and with redness eyes... My friend wanted to call a but I refused... Even though, I know it
They helped me to take a seat and gave me something to drink. (juice)
And I recovered.

One of my symptoms includes being unable to be standing too long because otherwise I have abdominal pain and dizziness... So, that was too close...

Love, Tessa.

[mle_ii]

Yeah, I don't like the heat much either. Luckily around here it doesn't get too hot, but once it gets into the 80s it's too hot for me. Used to live in Salem Oregon where I swear I remember it getting to the 110+, most likely only 100 but still too hot for me.

[Bobbie]

Hi All,

I seem to be the opposite to everyone, as its the cold with me, for instance in work today it was roasting, then i had to go and work out on the shop floor, where it was freezing, i was only out there about ten minuets and got the Dsss, but i have always had this problem for years if i had gone on holiday to spain i could be on the beach all day but as soon as i went in the cold water i would get the D., years ago i went on holiday to Florida, i was fine in the water because it was warm and even outside because it was warm but as soon as i went in a shop that had air con i would get the D, has anyone any idea WHY ?.

Bye for now,
Bobbie

[Lucy]

I don't get into cold very much... well, maybe when the freezer door's open. Ha. Do you suppose it could be EITHER and it's just a stimulus kind of thing?

I have perfectly normal stools now, and some of the old timers from Sally's board may remember when we talked about being "misdiagnosed" with IBS.
Welp, my GI thought I had both even after the path report. Think the consensus with us has sort of always been that we were misdiagnosed with IBS before the M.C. diagnosis, but recently, I've noticed something that makes me wonder if perhaps my GI's not correct about my case.

What I noticed just the other day when my colon was full, and it was time, I was outdoors just briefly, and that gave me a slight sensation in the gut that told me it was time for delivery, so off to the potty I go. Stools are completely normal, and big now, but I just think it's strange the way I feel the contraction very mildly, and it feels like the very same muscle that used to cramp badly when I was symptomatic with D. I remember thinking, "oh no, is this going to have a more liquid follow-up?," but alas, it stayed solid, and I only had to go once, so things are still good in that department.

Do you suppose the IBS type contractions are actually a little seizure or something? Where did I hear that, anyway? Maybe migraines in people like me are the same, but I won't go into my theories on that! You are spared, but just for tonight, ok? Hahaha!

Yours, Luce

[MaggieRedwings]

Morning All,

Great topic. I never really had much dislike for the heat or effects from it until MC. I now, like Sally and others, just wilt, have more gurgling and get very light headed. Also the aches in my joints increase 10 fold. We just put up a new electric awning on the back patio so I can sit out without the sun affecting me so. For $3,500 it was well worth it - the motor for $600 - was a free addition. Money very well spent to save my system.

Love, Maggie

[Carrie]

Luce, Wow your last post really hit a nerve with me!!! My GI also first diagnosed IBS, then told me he was "skeptical" about the LC diagnosis from my second opinion. And I now have the exact same stool symptoms that you describe (I've been in remission for almost six months but still not exactly my "old normal"). Anyway, Luce, how about starting a new thread for all of this including the possibility of mini-seizures?

Love, Carrie

[Polly]

Hi All,

Sally, this does appear to be an MC "nitnoid" along with the recessive eye color we recently discovered.

I think it is possible to have some IBS features along with the MC. And yes, Luce, I also read somewhere about the colon having a "seizure" in IBS. Isn't it thought that the main problem in IBS is with the "nervous system" of the colon?

Luce, your idea about a catalyst to initiate the gut reaction is interesting. Besides the heat and cold folks have just noted, we had much discussion in the past about flourescent lights. Do the oldtimers remember? It seemed that many of us noted the urge to poop shortly after we entered any big store like Walmart or a grocery store, and we wondered if maybe it could be the lights that triggered the response.

Interesting stuff.

Love,

Polly