This is a family that I love. MC may not be nice; but each of you are! I'd like to get into a discussion of how malabsorbtion might affect our stool. I will search for a previous thread or start a new one.
I drank some milk this last week and am again finding many small white oval globules. It reminds me of curdled milk or more specifically what floats to the top of the pot when milk or cream reaches too high a temperature.
I'll check for a more appropriate spot for this discussion. Thanks for the welcome back.
Spondilitis---Anyone have it, or a relative?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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genealogy-janet
- Posts: 10
- Joined: Sun Aug 19, 2007 8:55 pm
- Location: SLC, Utah
Hmmm... what a strange coincidence. I got back from my Chiro Dr this morning. My back/neck seems to seize up at times. And what's even stranger is that it was around this time last year that this happened.
And even stranger and related to this thread. I complained that it seemed like there was something wrong with me that Drs couldn't seem to find. So he decided to have some X-rays taken. Now this hasn't been diagnosed yet as there's more testing to do, but he mentioned Ankylosing spondylitis showing up in my Left SI joint. I remember reading about this before and it turns out that I read about it here, and in association with Vitamin D as well as dysbiosis. Turns out it's related to IBD as well.
Like I said, it could turn out not to be this, but looking at some of the symptoms it sure does sound familiar at times.
Mike
And even stranger and related to this thread. I complained that it seemed like there was something wrong with me that Drs couldn't seem to find. So he decided to have some X-rays taken. Now this hasn't been diagnosed yet as there's more testing to do, but he mentioned Ankylosing spondylitis showing up in my Left SI joint. I remember reading about this before and it turns out that I read about it here, and in association with Vitamin D as well as dysbiosis. Turns out it's related to IBD as well.
Like I said, it could turn out not to be this, but looking at some of the symptoms it sure does sound familiar at times.
Mike
for whatever is best.Got the first report back from the lab that did the xrays. "Left SI joint sclerosis, not well evaluated on this examl." My chiro sent me back for some xrays of that specfic area. Also getting the HLA-B27 lab test.
http://en.wikipedia.org/wiki/HLA-B27
There we go again with another HLA test.
http://en.wikipedia.org/wiki/HLA-B27
There we go again with another HLA test.
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harvest_table
- Rockhopper Penguin
- Posts: 1509
- Joined: Wed May 25, 2005 6:29 pm
- Location: Fergus Falls, Minnesota
MC- AN UNDIAGNOSIBLE PAIN GENERATOR?
I know of a woman in her mid-30's with AS that had Dr. Fines tests done about a year ago, found she had gluten and diary issues so began a Paleo type diet and it's helped her back pain alot. She had a colonoscopy which showed no MC at that time.
It may be off topic, maybe not-probably discussed here previously but for some reason I haven't paid attention or done much research reading until Luce posted this thread. I've now got a much better understanding of the spectrum of MC that sort of rounds the picture/pattern of my experience and also for those of you here with pain along with MC. About 3 years prior to my DX of CC I began having suttle muscle and joint pain which became chronic, extreme and vary random. My symptoms of D came later and I've read a few articles about this being a pattern. Thankfully, I no longer have any muscle, joint or pain issues.
What also may be important to keep in mind is that MC is a musculoskeletal disease and an enterapathic arthropathy, IOW, a general term for a joint disorder originating the the gastrointestonal track.
This is a quote from a physicans blog who is questioning/suspecting MC-AS AN UNDIAGNOSIBLE PAIN GENERATOR?
http://painmuse.org/?p=21
Anyone else have extreme chronic and random muscle and joint pain prior to D and an MC DX?
Love,
Joanna
It may be off topic, maybe not-probably discussed here previously but for some reason I haven't paid attention or done much research reading until Luce posted this thread. I've now got a much better understanding of the spectrum of MC that sort of rounds the picture/pattern of my experience and also for those of you here with pain along with MC. About 3 years prior to my DX of CC I began having suttle muscle and joint pain which became chronic, extreme and vary random. My symptoms of D came later and I've read a few articles about this being a pattern. Thankfully, I no longer have any muscle, joint or pain issues.
What also may be important to keep in mind is that MC is a musculoskeletal disease and an enterapathic arthropathy, IOW, a general term for a joint disorder originating the the gastrointestonal track.
This is a quote from a physicans blog who is questioning/suspecting MC-AS AN UNDIAGNOSIBLE PAIN GENERATOR?
Read more hereThere is a growing awareness that colitis can occur without any observable lesions on colonoscopy. Microscopic colitis is occasionally associated with spondylitis and may be associated with myofascial back pain by activating psoas and abdominal wall spasms. How then does one make a diagnosis?
In:
Collagenous Colitis and Spondylarthropathy
Arthritis Care & Research
Vol. 55, No. 3, June 15, 2006, pp 507–512
JAVIER NARVA´ EZ et al
Classified as a disease of unknown etiology causing “chronic watery diarrhea, crampy abdominal pain, and weight loss in the absence of endoscopic abnormalities”.
Microscopic colitis comes in two forms:
1) Lymphocytic colitis - lymphocytes seen on biopsies
2) Collagenous colitis - in addition a layer of collagen seen on biopsy. There is more literature on this disease.
It apparently is controversial if the differences matter.
There appears a connection between this and various Connective Tissue and autoimmune diseases - thyroid, polymyalgia, RA, sarcoid, Lupus, Sjogren’s, recurrent Uveitis, and idiopathic pulmonary fibrosis.
More disturbing is it’s association with ” diverse musculoskeletal symptoms”. Given the number of referenced reports they classify it as potentially “new type of enteropathic arthropathy”.
http://painmuse.org/?p=21
Anyone else have extreme chronic and random muscle and joint pain prior to D and an MC DX?
Love,
Joanna
THE GLUTEN FILES
http://jccglutenfree.googlepages.com/
http://jccglutenfree.googlepages.com/
Joanna,
Thanks for posting that. There's also a link there to a good article on Glucosamine and it's pain mitigating effects on RA, that I found to be very interesting.
That's a very interesting question, and call me retarded, but until you mentioned it, I wasn't aware of any known connection between joint and/or muscle pain, prior to the onset of D, that far in advance of the diagnostic markers of MC. To answer your question, yes, I did indeed have severe, chronic joint pain in an elbow, and a couple of fingers, that I assumed was RA, and this occurred somewhere in the vicinity of around three years before the D started. The pain in the elbow, for example, was so severe that I had to wear a pad on it, because if I accidentally bumped it while working, it would bring me to my knees. I even wore a sling, for a while, to help protect it. It was sore for probably around 6 to 8 months, but the pain was in the severe category for around 3 or 4 months. I sometimes wore a metal finger guard on one of my little fingers, to keep from bumping it.
I also had serious knee pain, but I believe that was after the D started, because I recall being overjoyed a few months later, when I started the GF diet, and found that my knee problems went away. I don't recall having chronic muscle pain, though, prior to the onset of D. I had a few bouts of flu-like episodes early on, with severe muscle and joint pain, but they usually lasted only for a few days to maybe a week or 10 days, (IOW, not chronic). At first, they were usually devoid of any GI symptoms, (headache, stiff neck, body aches and pains, etc., only), but later they began to be accompanied by nausea, vomiting, and D. These flu-like episodes lasted for somewhere around a year, (before the chronic D started), and after about half a year, they became more frequent. Roughly 6 months later, I went to see a doctor, after the D had become continuous and "uncontrollable" for a couple of weeks. After the D became chronic, of course, so did the general body aches and pains.
Unfortunately, though, as you are aware, I was never diagnosed, because my GI doc failed to take biopsies, so he concluded that there was nothing wrong with me. A little over a year later, I discovered the GF diet, and eventually resolved my problems by fine tuning my diet.
Maybe I'm the only one here who wasn't aware of that connection, but thanks again for bringing that to our attention.
Love,
Tex
Thanks for posting that. There's also a link there to a good article on Glucosamine and it's pain mitigating effects on RA, that I found to be very interesting.
That's a very interesting question, and call me retarded, but until you mentioned it, I wasn't aware of any known connection between joint and/or muscle pain, prior to the onset of D, that far in advance of the diagnostic markers of MC. To answer your question, yes, I did indeed have severe, chronic joint pain in an elbow, and a couple of fingers, that I assumed was RA, and this occurred somewhere in the vicinity of around three years before the D started. The pain in the elbow, for example, was so severe that I had to wear a pad on it, because if I accidentally bumped it while working, it would bring me to my knees. I even wore a sling, for a while, to help protect it. It was sore for probably around 6 to 8 months, but the pain was in the severe category for around 3 or 4 months. I sometimes wore a metal finger guard on one of my little fingers, to keep from bumping it.
I also had serious knee pain, but I believe that was after the D started, because I recall being overjoyed a few months later, when I started the GF diet, and found that my knee problems went away. I don't recall having chronic muscle pain, though, prior to the onset of D. I had a few bouts of flu-like episodes early on, with severe muscle and joint pain, but they usually lasted only for a few days to maybe a week or 10 days, (IOW, not chronic). At first, they were usually devoid of any GI symptoms, (headache, stiff neck, body aches and pains, etc., only), but later they began to be accompanied by nausea, vomiting, and D. These flu-like episodes lasted for somewhere around a year, (before the chronic D started), and after about half a year, they became more frequent. Roughly 6 months later, I went to see a doctor, after the D had become continuous and "uncontrollable" for a couple of weeks. After the D became chronic, of course, so did the general body aches and pains.
Unfortunately, though, as you are aware, I was never diagnosed, because my GI doc failed to take biopsies, so he concluded that there was nothing wrong with me. A little over a year later, I discovered the GF diet, and eventually resolved my problems by fine tuning my diet.
Maybe I'm the only one here who wasn't aware of that connection, but thanks again for bringing that to our attention.
Love,
Tex
I've mentioned before that I had arthritic pain in my finger joints for years prior to getting DXd. Now that I'm GF and on Entocort, the pain is gone.
This summer I had lower back pain while reading messages on the boards, but I attributed it to sitting in front of the computer too much. I was pretty obsessed with reading everything I could about this disease. But that pain also is gone. I don't know if it's because of the Entocort, because I'm back working full-time (and more active), or because of the GF diet.
I have arthritis in both knees, but it's not RA. I had arthroscopic knee surgery last year for a torn meniscus. My orthopedic surgeon said there wasn't anything he could do for the arthritis. It will continue to get worse as time passes. I take glucosamine-chondroitin every day and that has helped a lot.
I was reading about several members who have Plantar fasciitis. I also have that, as do both my daughters and husband. It must be hereditary. We have all found orthopedic inserts to be a miraculous cure for it. My husband no longer finds it necessary to wear orthotics; he's been cured for over a dozen years.
This summer I had lower back pain while reading messages on the boards, but I attributed it to sitting in front of the computer too much. I was pretty obsessed with reading everything I could about this disease. But that pain also is gone. I don't know if it's because of the Entocort, because I'm back working full-time (and more active), or because of the GF diet.
I have arthritis in both knees, but it's not RA. I had arthroscopic knee surgery last year for a torn meniscus. My orthopedic surgeon said there wasn't anything he could do for the arthritis. It will continue to get worse as time passes. I take glucosamine-chondroitin every day and that has helped a lot.
I was reading about several members who have Plantar fasciitis. I also have that, as do both my daughters and husband. It must be hereditary. We have all found orthopedic inserts to be a miraculous cure for it. My husband no longer finds it necessary to wear orthotics; he's been cured for over a dozen years.
You never know what you can do until you have to do it.