I'm a new member. Any information on exercise and MC
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
I'm a new member. Any information on exercise and MC
I was diagnosed this summer and kind of thought it was an overall wake up call to better health. I've lost 20 pounds and have exercised quite regularly. A couple of days ago, I hired a trainer to push me further. Now, I feel like I was hit by a train. I'm way more achey and sore than I think I should be. I'm wondering if anyone has info. on the correlation of MC and exercise, what I should and shouldn't be doing?
Thanks!
Thanks!
Becky
Hi, and welcome to the board.
I'm not aware that exercise necessarily makes the symptoms of MC any worse, but most of us have experienced that "hit by a train" feeling, that comes with the reactions that occur with untreated MC. Those severe symptoms will disappear as you achieve remission.
Are you following any treatment program for MC? Most of us here are controlling our symptoms either by diet or by medication, or by a combination of the two.
Many of our members are quite athletic, but most have found it necessary to reduce their exercise levels while they were still reacting, simply because they did not have the energy, or the strength to follow a strenuous exercise regime while their MC was active. MC is most definitely a life-altering disease. It cannot be cured, but it can certainly be controlled.
I don't believe that there is any evidence that the onset of MC has any correlation with physical fitness, or the absence thereof. Some of our members developed MC, even though they were very active as runners, body builders, etc. For MC to occur, a victim must first have at least one of the genes that predisposes to MC, (or celiac sprue), and a triggering event must occur, to activate the gene. Triggers range from the use of NSAIDS, (and certain other meds), through such things as the cessation of a smoking habit, and include things such as bacterial overgrowth in the digestive system, and various other events that cause enteritis.
The good news is that most of our members have been able to work out their own treatment programs that allow them to resume their former activities, and pretty much lead normal lives, so long as they keep their symptoms under control, by continuing their treatment programs.
Again, welcome to the group.
Tex
I'm not aware that exercise necessarily makes the symptoms of MC any worse, but most of us have experienced that "hit by a train" feeling, that comes with the reactions that occur with untreated MC. Those severe symptoms will disappear as you achieve remission.
Are you following any treatment program for MC? Most of us here are controlling our symptoms either by diet or by medication, or by a combination of the two.
Many of our members are quite athletic, but most have found it necessary to reduce their exercise levels while they were still reacting, simply because they did not have the energy, or the strength to follow a strenuous exercise regime while their MC was active. MC is most definitely a life-altering disease. It cannot be cured, but it can certainly be controlled.
I don't believe that there is any evidence that the onset of MC has any correlation with physical fitness, or the absence thereof. Some of our members developed MC, even though they were very active as runners, body builders, etc. For MC to occur, a victim must first have at least one of the genes that predisposes to MC, (or celiac sprue), and a triggering event must occur, to activate the gene. Triggers range from the use of NSAIDS, (and certain other meds), through such things as the cessation of a smoking habit, and include things such as bacterial overgrowth in the digestive system, and various other events that cause enteritis.
The good news is that most of our members have been able to work out their own treatment programs that allow them to resume their former activities, and pretty much lead normal lives, so long as they keep their symptoms under control, by continuing their treatment programs.
Again, welcome to the group.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks Tex!
I was on 2 Entocort daily for Aug., Sept., and October. I'm on one a day for November. My doctor wanted me to go this route first without to much diet experimentation. But, for the most part, I''m staying away from white flour and so far, so good.
I appreciate this site and all the info. available!
Becky
I was on 2 Entocort daily for Aug., Sept., and October. I'm on one a day for November. My doctor wanted me to go this route first without to much diet experimentation. But, for the most part, I''m staying away from white flour and so far, so good.
I appreciate this site and all the info. available!
Becky
Becky
- barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Helllo Becky---I have to say that Tex covered it all---
I had been Xercizing--way before MCC took over my life-
Woke one day and was glued to the bathroom throne *WITH CONSTANT WATERY MOVEMENTS)--thinking I had a virus but when it worsened I realized something was amiss---
My GP started me on PEPTO---bad step for me--allergic to the Bismuth in it--
Then had a 3 hour lactose test---which showed AT THAT TIME I was lactose intolerant---so a watchful eye on that--and some ingrediants that I soon found triggered the runs---
Then went to a GI---who knew ZIP about MCC---and I,not being smart enuf to question further,stayed with him for years--losing weight also--and housebound frequently--
Finally I went to a different GI and this is where my life took a change--Unfortunately I had to take Prednisone + Colazal(an anti inflammatory agent)--an upper GI series---sigmoids+biopsies every time I went for a visit---on and on--
But it did the trick---and as Tex said---cannot cure but CAN CONTROL--
The weird thing is---I now CAN tolerate lactose???
But I happened to be weird so thats OK--
Becky, there is so much info here---and I am sure everyone will pop in with suggestions here and there---so it be your chore to find the right path- cus REMEMBER we are all so different in the usage of meds----
Good luck---and lets hear how U do--
Barbara
I had been Xercizing--way before MCC took over my life-
Woke one day and was glued to the bathroom throne *WITH CONSTANT WATERY MOVEMENTS)--thinking I had a virus but when it worsened I realized something was amiss---
My GP started me on PEPTO---bad step for me--allergic to the Bismuth in it--
Then had a 3 hour lactose test---which showed AT THAT TIME I was lactose intolerant---so a watchful eye on that--and some ingrediants that I soon found triggered the runs---
Then went to a GI---who knew ZIP about MCC---and I,not being smart enuf to question further,stayed with him for years--losing weight also--and housebound frequently--
Finally I went to a different GI and this is where my life took a change--Unfortunately I had to take Prednisone + Colazal(an anti inflammatory agent)--an upper GI series---sigmoids+biopsies every time I went for a visit---on and on--
But it did the trick---and as Tex said---cannot cure but CAN CONTROL--
The weird thing is---I now CAN tolerate lactose???
But I happened to be weird so thats OK--
Becky, there is so much info here---and I am sure everyone will pop in with suggestions here and there---so it be your chore to find the right path- cus REMEMBER we are all so different in the usage of meds----
Good luck---and lets hear how U do--
Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
-
- King Penguin
- Posts: 3859
- Joined: Fri May 13, 2011 5:56 pm
Hi Becky and Welcome to our Family......I have been in off medication for two years now. And If I stay away from the foods that bother me, I do really well. I was On asacol and it helped alot, but 2 years ago found I no Longer need it. I still have a long way to go to perfect my diet. A food diary helped me Identify the "bad" foods I was eating. Now If I have a flare it's partly because of stress or maybe something I ate in a weak moment. Good Luck and again welcome, Oma
May I be more compassionate and loving than yeterday*and be able to spot the idiots in advance
Becky,
It sounds as though your treatment program is working pretty well, and I get the impression that you plan to eventually stop the Entocort treatment completely. Or am I wrong? Quite a few members here stay on a maintenance dose of one Entocort capsule per day, or every other day, or even every third day, and do okay on that treatment schedule. Some do the same with Asacol.
Concerning exercise and MC - this is just my opinion, (based on my own experience), but once my gut began to heal, and my more obvious symptoms disappeared, (such as the D, and other GI symptoms), the body aches and pains, (and brain fog), all slowly disappeared. However, if I slipped up on my diet, and ate something to which I was/am intolerant, the symptoms would be right back.
As my healing progressed, though, the individual reaction episodes, (if I ate something I shouldn't have), became shorter and shorter, and less severe. The reason I kept having occasional reactions, is because I had trouble convincing myself that I was intolerant to casein, (the protein in dairy products), and zein, (the protein in corn), so I kept "testing" myself, to see if I was over the "temporary" intolerances. LOL. I always stayed 100% GF, though.
I never noticed that I felt any worse after working, (IOW, after doing a lot of hard physical labor), though I was mighty tired, of course. Before I started the diet, though, on the really severe days, I was pretty much unable to work, because the aches and pains were pretty rough, and I was often nauseated, had migraines, and very little energy, (to say nothing of uncontrollable D).
I wasn't taking any meds, however, because back in those days, I wasn't even aware that there were any meds that would help. That was before I discovered Sally's original MC discussion board, and my GI doc never found anything wrong with me, (he didn't take any biopsies, during the colonoscopy), so sadly, I was on my own. Shortly after I began to recover, I discovered the wonderful group of people here, and I soon learned more about MC from them, than my ex-GI doc will ever know.
Tex
P S Thanks for the kind words about the site.
It sounds as though your treatment program is working pretty well, and I get the impression that you plan to eventually stop the Entocort treatment completely. Or am I wrong? Quite a few members here stay on a maintenance dose of one Entocort capsule per day, or every other day, or even every third day, and do okay on that treatment schedule. Some do the same with Asacol.
Concerning exercise and MC - this is just my opinion, (based on my own experience), but once my gut began to heal, and my more obvious symptoms disappeared, (such as the D, and other GI symptoms), the body aches and pains, (and brain fog), all slowly disappeared. However, if I slipped up on my diet, and ate something to which I was/am intolerant, the symptoms would be right back.
As my healing progressed, though, the individual reaction episodes, (if I ate something I shouldn't have), became shorter and shorter, and less severe. The reason I kept having occasional reactions, is because I had trouble convincing myself that I was intolerant to casein, (the protein in dairy products), and zein, (the protein in corn), so I kept "testing" myself, to see if I was over the "temporary" intolerances. LOL. I always stayed 100% GF, though.
I never noticed that I felt any worse after working, (IOW, after doing a lot of hard physical labor), though I was mighty tired, of course. Before I started the diet, though, on the really severe days, I was pretty much unable to work, because the aches and pains were pretty rough, and I was often nauseated, had migraines, and very little energy, (to say nothing of uncontrollable D).
I wasn't taking any meds, however, because back in those days, I wasn't even aware that there were any meds that would help. That was before I discovered Sally's original MC discussion board, and my GI doc never found anything wrong with me, (he didn't take any biopsies, during the colonoscopy), so sadly, I was on my own. Shortly after I began to recover, I discovered the wonderful group of people here, and I soon learned more about MC from them, than my ex-GI doc will ever know.
Tex
P S Thanks for the kind words about the site.