Hi all,
Joanna's post mentioning that she was experiencing vertigo at times, (after being in remission for a couple of years), reminded me of how tenuous remission can be at times. For the past couple of weeks, I've been having D, and don't know why - no other symptoms, (except maybe a little bloating), just D, and it's not serious, but it's persistent.
After being in remission for about four and a half years, and 100% GF for over six years, (to the best of my knowledge), I'm beginning to wonder if I might be a victim of the dreaded "new food intolerance" phenomenon. Or, could it be due to the "seasonal effect" that we've discussed before? This is the time of year when others have had unexplained flares, in the past.
Joanna, have you had a problem with vertigo in the past, (at other times of the year), or is this your first experience with it?
Stuff such as this makes me wonder if we are really in remission due to our treatment programs, or merely enjoying spontaneous remission, that was "triggered" by our treatment programs. The point is, if we are really in remission, we shouldn't be having symptoms that occur without a logical reason.
Tex
Remission Can Be Kind Of Fickle At Times
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Remission Can Be Kind Of Fickle At Times
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
annie oakley
- King Penguin
- Posts: 3859
- Joined: Fri May 13, 2011 5:56 pm
HI Wayne!
Your post reminded me of something I wanted to share, but forgot!
I changed my gastric reflux meds from Nexium to Prilosec due to cost two months ago. I found that I have decreased D since then and almost "normal" bowel movements.
While discussing this with a coworker (yes, we talk there too because there are two other women in my office with similar problems hmmmmmmm?) She said that she was taking Nexium for a year and had the same problem - immediate D and all the time running to the pot. Anyways, her mother was put on the same medication and had the same problem. When both changed meds, the D stopped or diminished significantly. I changed due to the cost but found that they may have something there.
Doing much better on the Prilosec in that department but it doesn't stop the stomach burning as well as the Nexium did.
Just an observation..........
Love,
Mars
Your post reminded me of something I wanted to share, but forgot!
I changed my gastric reflux meds from Nexium to Prilosec due to cost two months ago. I found that I have decreased D since then and almost "normal" bowel movements.
While discussing this with a coworker (yes, we talk there too because there are two other women in my office with similar problems hmmmmmmm?) She said that she was taking Nexium for a year and had the same problem - immediate D and all the time running to the pot. Anyways, her mother was put on the same medication and had the same problem. When both changed meds, the D stopped or diminished significantly. I changed due to the cost but found that they may have something there.
Doing much better on the Prilosec in that department but it doesn't stop the stomach burning as well as the Nexium did.
Just an observation..........
Love,
Mars
"Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful." -- Buddha
Mars,
That's good news on the decreased D, but sorry to hear that Prilosec doesn't do as well in the gastric department. It's hard to win sometimes, isn't it. Anytime you can cut the D way down, though, and save money at the same time, has to be a step in the right direction.
I noticed in your later post on the "Project" topic, that the carpel tunnel problem is still giving you fits these days. Have you tried wearing wrist supports with splints while you're sleeping. My brother used to have a big problem with carpel tunnel, and he said that helped him a lot, (it allowed him to sleep some nights, when the pain kept him awake, otherwise). He "cured" his problem by changing jobs. He used to stack bags on pallets, when we couldn't get enough help at my corn cleaning facility, and he's now a realtor.
Love,
Tex
That's good news on the decreased D, but sorry to hear that Prilosec doesn't do as well in the gastric department. It's hard to win sometimes, isn't it. Anytime you can cut the D way down, though, and save money at the same time, has to be a step in the right direction.
I noticed in your later post on the "Project" topic, that the carpel tunnel problem is still giving you fits these days. Have you tried wearing wrist supports with splints while you're sleeping. My brother used to have a big problem with carpel tunnel, and he said that helped him a lot, (it allowed him to sleep some nights, when the pain kept him awake, otherwise). He "cured" his problem by changing jobs. He used to stack bags on pallets, when we couldn't get enough help at my corn cleaning facility, and he's now a realtor.
Love,
Tex
This topic is on my mind too.
Two weeks ago I had my first serious run in with constipation. I've been feeling like my colon wasn't happy, and finally I went 5 days without clearing it fully. I had a virus or something at the same time, and the combination of 'obstruction' and fever landed me in the hospital for 2 days.
I've been on ducosate with good results since then. Yesterday, the I started passing a lot of water thru my bowels again. I went 6 times yesterday and it's about the same today. Well, it would be, except I started the morning with 3 saline enemas because I had to go in for an emergency flex sigmoidoscopy because my physical therapist found lumps in my rectum. The GI discovered it was just hemorrhoids. I digress. I'd trade lower GI tracts and pelvic floor muscles with just about anyone right now - except you guys.
I'm passing water again tonight, and it isn't from those enemas. I have no idea what I've done to deserve this again. I'm really careful with gluten and dairy. I've been eating some soy sauce for a few weeks, but that seems like a stretch. I don't think I fully appreciated how good my bowels have been for the last few months.
"crap"
Oh, and prilosec didn't work well enough for me. I'm on protonix.
Two weeks ago I had my first serious run in with constipation. I've been feeling like my colon wasn't happy, and finally I went 5 days without clearing it fully. I had a virus or something at the same time, and the combination of 'obstruction' and fever landed me in the hospital for 2 days.
I've been on ducosate with good results since then. Yesterday, the I started passing a lot of water thru my bowels again. I went 6 times yesterday and it's about the same today. Well, it would be, except I started the morning with 3 saline enemas because I had to go in for an emergency flex sigmoidoscopy because my physical therapist found lumps in my rectum. The GI discovered it was just hemorrhoids. I digress. I'd trade lower GI tracts and pelvic floor muscles with just about anyone right now - except you guys.
I'm passing water again tonight, and it isn't from those enemas. I have no idea what I've done to deserve this again. I'm really careful with gluten and dairy. I've been eating some soy sauce for a few weeks, but that seems like a stretch. I don't think I fully appreciated how good my bowels have been for the last few months.
"crap"
Oh, and prilosec didn't work well enough for me. I'm on protonix.
No Gluten,casein,soy,eggs,yeast
-
MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Hi Reggie,
So sorry to hear things are going so bad for you. I am rushing this a.m. but thought I would mention that usually soy sauce has wheat in it and caramel color, both of which I have found will really affect me and you being GF just might be having the same problem.
Love, Maggie
So sorry to hear things are going so bad for you. I am rushing this a.m. but thought I would mention that usually soy sauce has wheat in it and caramel color, both of which I have found will really affect me and you being GF just might be having the same problem.
Love, Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
___________________
Resident Birder - I live to bird and enjoy life!
Mars,
Do you remember years ago when the choice was Prilosec or Prevacid? I was given Prevacid which gave me totally liquid D. I tried it 3 times with the same result. Then they switched me to Prilosec and it was fine. The first time I tried Prevacid it took a week or so to react...after that it was immediate.
Wish you could get some relief from all your symptoms.
Love, Shirley
Do you remember years ago when the choice was Prilosec or Prevacid? I was given Prevacid which gave me totally liquid D. I tried it 3 times with the same result. Then they switched me to Prilosec and it was fine. The first time I tried Prevacid it took a week or so to react...after that it was immediate.
Wish you could get some relief from all your symptoms.
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
-
barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
this surely indictaes how differently meds work on us--
again---waaaaaaay back---
--I always go that far back---I was given Prilosec-----and that caused me Vertigo issues--and like I was 
--feeling spaced out---so off that--naturally issued to my by the old GI---Dr. Kramm!!! 
Now it is Nexium------and I had tried Aciphex--which was very good--but more costly than Nexium---so I switched back to the Nex.
A look see down the esophogus showed clean----but every so often I get that
feeling---and this is where my nurse friend Betty told me to drink as hot as U can---glass of water--then guzzle CLUB soda---which I did and big big BURPS---kept burping up and I felt better-
--
She said it was a clogged gall bladder attack---went for that testing and have no GP issues--very confusing--but that club soda works!!!
When someone aske me---what ailments have U-----I say *AGE*!!!
luve Barbara
again---waaaaaaay back---
--I always go that far back---I was given Prilosec-----and that caused me Vertigo issues--and like I was --feeling spaced out---so off that--naturally issued to my by the old GI---Dr. Kramm!!! Now it is Nexium------and I had tried Aciphex--which was very good--but more costly than Nexium---so I switched back to the Nex.
A look see down the esophogus showed clean----but every so often I get that
feeling---and this is where my nurse friend Betty told me to drink as hot as U can---glass of water--then guzzle CLUB soda---which I did and big big BURPS---kept burping up and I felt better---
She said it was a clogged gall bladder attack---went for that testing and have no GP issues--very confusing--but that club soda works!!!
When someone aske me---what ailments have U-----I say *AGE*!!!
luve Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
Tex,
Sorry to hear about your flare. Have you gotten any clues foodwise? Weren't there some foods that you had originally stopped but then added back into your diet? Maybe it's worth revisiting them?
I am having D right now, which I am positive is due to the antibiotics I have taken for my sinus infection. Not the Cipro - in fact the during the many weeks I took it, my GI tract was PERFECT! But since the infection has persisted even after surgery, I had to take Bactrim (which gave me horrendous D) and then the Z Pack again. Now, however, I am on nebulized azithromycin, which I started 3 days ago. It's a great idea - hopefully very little will be absorbed systemically and my gut can get back to normal. Not to mention that hopefully the antibiotic will get to the actual area where it's needed to clear up the infection - once and for all. This has been a long haul.
MC is such a tricky disease (and so is chronic sinusitis, as I am learning). There is so much that is not known. SIGH.
I hope you figure out something ASAP.
Love,
Polly
Sorry to hear about your flare. Have you gotten any clues foodwise? Weren't there some foods that you had originally stopped but then added back into your diet? Maybe it's worth revisiting them?
I am having D right now, which I am positive is due to the antibiotics I have taken for my sinus infection. Not the Cipro - in fact the during the many weeks I took it, my GI tract was PERFECT! But since the infection has persisted even after surgery, I had to take Bactrim (which gave me horrendous D) and then the Z Pack again. Now, however, I am on nebulized azithromycin, which I started 3 days ago. It's a great idea - hopefully very little will be absorbed systemically and my gut can get back to normal. Not to mention that hopefully the antibiotic will get to the actual area where it's needed to clear up the infection - once and for all. This has been a long haul.
MC is such a tricky disease (and so is chronic sinusitis, as I am learning). There is so much that is not known. SIGH.
I hope you figure out something ASAP.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi Polly,
It's great to see you posting again. I've been practically "dying" to know how you were doing, and if you had finally conquered that "seemingly invincible" infection, but I didn't want to be nosey, (well, at least I didn't want to appear to be nosey. LOL). I'm sorry to hear that you're still fighting it, and I hope that the "space-age-sounding" treatment that you're using now, will finally quell it, once and for all. As you say, it certainly should target the affected area much better than swallowed pills.
I believe you're thinking is right on target, regarding my problem. I had resumed eating some GF chocolate chip cookies, that I used to eat, (after about a two year hiatus), and it dawned on me early this week, that the D started a few days after I began eating those cookies. After eating them daily, for somewhere between one and two weeks, I noticed that each time I ate some of them, the D would really pick up in volume, and it would happen sooner each time, after I ate them. The last ones I ate, (at mid-week), caused D and gas within a couple of hours. I cut them back out of my diet that day, and the D went away in a couple of days. So far so good, so I think that was it.
I guess I'm a slow learner, because thinking back to the time when I stopped eating them in the first place, I remember that I stopped eating them because they appeared to be causing me to have D, and I suspected that the GF bakery where I ordered them, had changed ingredients, or slipped up, or something of that sort, even though the ingredient list was unchanged, and appeared to be safe. (Prior to that, I had been eating them without incident, for a couple of years). Anyway, the bottom line is, (as we all know), just because an ingredient list appears to be safe, doesn't guarantee that it is safe for us, individually.
I notice that provided I haven't eaten a "bad" food item for a long time, (like a couple of years), I don't react to it immediately - I have to eat it long enough to build up a sufficient antibody level to trigger a reaction, which apparently takes a while, in my case. (The same thing happened with the oats). IOW, it usually takes several days or more for symptoms to show up, and by that time, I've already decided that the item is safe. LOL.
Good luck. I certainly hope the nebulized treatment works.
Love,
Tex
P S Just thinking out loud: As you are aware, it is "suspected" that there "may" be some sort of link between MC and chronic sinusitis. Therefore, the sinus problems may well be due to an ingested, (or inhaled), "antagonist", which contributes to the inflammation, and/or enhances an environment which benefits the proliferation of certain strains of bacteria. I wonder if it's possible that something in the diet, (or something missing from the diet), could be enhancing the robustness of the bacterium causing that infection.
It's great to see you posting again. I've been practically "dying" to know how you were doing, and if you had finally conquered that "seemingly invincible" infection, but I didn't want to be nosey, (well, at least I didn't want to appear to be nosey. LOL). I'm sorry to hear that you're still fighting it, and I hope that the "space-age-sounding" treatment that you're using now, will finally quell it, once and for all. As you say, it certainly should target the affected area much better than swallowed pills.
I believe you're thinking is right on target, regarding my problem. I had resumed eating some GF chocolate chip cookies, that I used to eat, (after about a two year hiatus), and it dawned on me early this week, that the D started a few days after I began eating those cookies. After eating them daily, for somewhere between one and two weeks, I noticed that each time I ate some of them, the D would really pick up in volume, and it would happen sooner each time, after I ate them. The last ones I ate, (at mid-week), caused D and gas within a couple of hours. I cut them back out of my diet that day, and the D went away in a couple of days. So far so good, so I think that was it.
I guess I'm a slow learner, because thinking back to the time when I stopped eating them in the first place, I remember that I stopped eating them because they appeared to be causing me to have D, and I suspected that the GF bakery where I ordered them, had changed ingredients, or slipped up, or something of that sort, even though the ingredient list was unchanged, and appeared to be safe. (Prior to that, I had been eating them without incident, for a couple of years). Anyway, the bottom line is, (as we all know), just because an ingredient list appears to be safe, doesn't guarantee that it is safe for us, individually.
I notice that provided I haven't eaten a "bad" food item for a long time, (like a couple of years), I don't react to it immediately - I have to eat it long enough to build up a sufficient antibody level to trigger a reaction, which apparently takes a while, in my case. (The same thing happened with the oats). IOW, it usually takes several days or more for symptoms to show up, and by that time, I've already decided that the item is safe. LOL.
Good luck. I certainly hope the nebulized treatment works.
Love,
Tex
P S Just thinking out loud: As you are aware, it is "suspected" that there "may" be some sort of link between MC and chronic sinusitis. Therefore, the sinus problems may well be due to an ingested, (or inhaled), "antagonist", which contributes to the inflammation, and/or enhances an environment which benefits the proliferation of certain strains of bacteria. I wonder if it's possible that something in the diet, (or something missing from the diet), could be enhancing the robustness of the bacterium causing that infection.
I'll keep my fingers crossed.