Had Pillcam and met with nutritionist.

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Pat
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Had Pillcam and met with nutritionist.

Post by Pat »

The pill cam was quite interesting. After they hooked me up - electrodes stuck all over my abdomen and a receiver over my clothes ( about 5 x7 inches big) on a wrap around my abdomen I swallowed it. Then my daughter and I went to a nutritionist (later about that) then to lunch and shopping. I had to wear the pack for 7 1/2 hours. My daughter was amazed that we weren't stopped because someone could have thought I was a suicide bomber. Looked like it anyway! Will get the results in 5 - 10 days, but with the holidays in there it could be 2 weeks.

The nutritionist had a lot of little helpful hints. None earth shattering but all combined may help some.

1. She wanted to know exactly what supplements I was taking. She said she will probably recommend among other things a prescription fish oil.

2. She said to eat smaller meals, but more of them. And always include protein.

3. She said not to eat so much fat (like on meats). I was eating it for the calories. She said if I am malabsorbing fats it just creates more D!

4. Increase Lomotil from 4 to 8 a day, especially before bed so that I don't wake up to go. Need the sleep.

5. Take probiotic on empty stomach with 8 oz water. Lomotil at the same time.

6. She was most concerned with my anemia and osteopenia. She wanted all lab results in the last year.

7. For the osteopenia other than diet and supplements she recommended a personal trainer. They will encourage more workouts (can't cheat) and better workouts. Weight bearing exercise is so important for bones. I do some but probably not enough.

8. She also recommended I get some sort of anti anxiety medication. I really don't feel that I am anxious but she thought it was a good idea.

9. She recommended a publication call Living Without. Maybe some of you have heard of it. www.livingwithout.com

I meet with her again in January.

Pat
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Post by grannyh »

Most of what the nutritionist had to say seemed like common sense to me. However, 8 Lomotil a day would make me almost comotose. I took one a day in the morning for almost a year and was totally exhausted all the time.. made me soooooooooooo sleepy. We all metabolize things differently maybe the sleepyness was just the way I react, though.
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Post by grannyh »

I do react to most medicines differently than the doctors expect so that must be why the lomotil made me so sleepy. Even 4 a day would have done me in I can't imagine taking 8... LOL
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tex
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Post by tex »

Pat,

I'll bet that *was* an interesting experience. It will be interesting to see what it shows, (if anything).

Eight lomotil per day is just a normal maximum dose, so it shouldn't cause any problems, unless you're especially sensitive to atropine, (which is in there to discourage overdosing). I assume that you're familiar with atropine, and are aware of it's effects, and side effects, (at larger doses).

Living Without is an excellent magazine for anyone with food intolerances. I've subscribed to it for a number of years. Every issue has interesting articles about personal triumphs over various intolerances, sometimes there are articles by doctors, and and there are a lot of recipes, suitable for people with various types of intolerances.

Do you have anemia and osteopenia? If you mentioned it before, I apparently forgot about it. If that's the case, I'd bet a GF cookie that you're a celiac, (also). You might or might not have villous atrophy, but lack of villous atrophy does not rule out celiac disease.

If I recall correctly, you were scheduled to do that procedure on Wednesday, so I assume you've already returned the camera by now, after you were "through" with it. Or have they already developed "disposable" cameras, for that job?

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Pat »

LOL, yes they are disposable. Don't know when it passed or if it has passed.

I am anemic and have osteopenia. Dr. Fine says I have the genes for celiac and the antibodies and fat malabsorption. I am eating GF, DF, SF and FF. I seem to have the most noticeable trouble with fructose. I just can't handle any period. This new nutritionist seems to want to help me. I just have to be patient.

I only notice a dry mouth and tiredness with the Lomotil. I was tired before so I don't know if it contributes that much.

Merry Christmas everyone!!!!!!!

Pat
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