Sorry, but i need to whine today.
I am on my liquid diet today getting ready to start my prep tonight for my 2nd colonoscopy tomorrow. I have been feeling just awful even on the Entocort and the gluten, diary free diet. I have lost 6 more pounds this month being on the Entocort and i am now officially 'underweight'.
I am not being too positive about this procedure tomorrow. Everyone is telling me the doctor is the best GI in the state at the best hospital in the state and he knows what he is doing. With what happened with my first GI and colonoscopy i know its the right thing to do, but i am just so afraid he will find nothing, the biopsies will be fine this time and he will have no diagnosis.
Sometimes i wonder if maybe they are looking into the wrong disease with me. I know it has to be something because how could i be so sick with *nothing* wrong? But again, i have been dealing with this for so long with no relief it is getting the best of me.
My husband and i had to cancel our honeymoon trip to Ireland and unfortunately lost the money on that which was not fun. He has been wonderful to me and a huge help with the kids but i feel so bad that he has such a burden right now due to me being constantly sick. He tells me not to worry about it and i guess i should listen to him but i still feel bad.
I'm sorry i am whining today buti am just so down and frustrated with feeling this way for so long.
Need to whine....
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Need to whine....
Diagnosed with MC on 1/8/2008 after 7 months of flare. 2nd colonoscopy and new diagnosis of UC on 3/11/2008.
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greengirl78
- Adélie Penguin
- Posts: 69
- Joined: Fri Feb 15, 2008 6:36 am
- Location: Massachusetts
That's not whining Erin... This can be frustrating to live through. Constant D, doctors not taking you serious, all the stress of your life - and all you want to do is crawl in to bed and tell everyone to STOP.
I know I was second guessing myself that anything was wrong with me, only because the GI doc didn't seem to take me seriously. All the tests came back negative, and after the colonoscopy I was told to take a probiotic, and call the doc in four months. <-- I didn't feel as if he were taking me seriously after that, considering that's what I had been doing for over two months.
I am so sorry to hear about you losing your money on your honeymoon. That really sucks! It sounds like you have a good support system at home, and here of course! Hopefully this time the colonoscopy goes much better for you. It sounds like you are going to be getting top notch care...
Know that we all care, and are hoping for the best for you.
I know I was second guessing myself that anything was wrong with me, only because the GI doc didn't seem to take me seriously. All the tests came back negative, and after the colonoscopy I was told to take a probiotic, and call the doc in four months. <-- I didn't feel as if he were taking me seriously after that, considering that's what I had been doing for over two months.
I am so sorry to hear about you losing your money on your honeymoon. That really sucks! It sounds like you have a good support system at home, and here of course! Hopefully this time the colonoscopy goes much better for you. It sounds like you are going to be getting top notch care...
Know that we all care, and are hoping for the best for you.
If we are peaceful, if we are happy, we can blossom like a flower, and everyone in our family, our entire society, will benefit from our peace. - Thich Nhat Hahn
You go ahead and whine!!
We've all had our days, too!!
Hoping that this time you get the answers that you need to get yourself on the mend!
I lost weight weight also when diagnosed and I still only weight 122 pounds.. I just live with as long as I know that I'm not sickly and I eat pretty healthy..
Thinking of you~
Dee~~~
We've all had our days, too!!
Hoping that this time you get the answers that you need to get yourself on the mend!
I lost weight weight also when diagnosed and I still only weight 122 pounds.. I just live with as long as I know that I'm not sickly and I eat pretty healthy..
Thinking of you~
Dee~~~
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Kellyerin222
- Adélie Penguin
- Posts: 88
- Joined: Fri Feb 29, 2008 12:35 pm
- Location: Granger, Indiana
- Contact:
Erin,
I am sorry things have been rough for you lately. Do not be in the least bit hesitant to whine as you do need the support of others, it is healthy to get things out in the open and receive that support.
I do understand where you are coming from with the fear of the Doctor finding nothing wrong and then it is more questions. After my colonoscopy when he said visually everything looked good I had mixed feelings. Part of me sighed with relief (as I do not wish to be sick), but the other part of me wanted to cry with "why are you not finding something wrong when I know there is?". The good thing is you said that others said he is a great GI Doc, and that does count.
I am sorry about your trip to Ireland and losing the money. That is a hard one and I wish I could say something to help ease the pain, but I am at lose for words right now. Is there is a possibility that when you are able to find more things out with your GI that you two can reschedule the trip to Ireland? If that is so, then that might be something you can look forward to.
The Prep for the colonoscopy is always hard-- the liquid diet and then the meds to flush the system. I know when I had my prep the day before I felt very down and just like I wanted to ly in bed with the covers over my head and cry.
(((Hugs))) to you and I am sorry you are going through this. One thing is you WILL get through this. It seems difficult right now, but do keep your chin up!!
Kel
I am sorry things have been rough for you lately. Do not be in the least bit hesitant to whine as you do need the support of others, it is healthy to get things out in the open and receive that support.
I do understand where you are coming from with the fear of the Doctor finding nothing wrong and then it is more questions. After my colonoscopy when he said visually everything looked good I had mixed feelings. Part of me sighed with relief (as I do not wish to be sick), but the other part of me wanted to cry with "why are you not finding something wrong when I know there is?". The good thing is you said that others said he is a great GI Doc, and that does count.
I am sorry about your trip to Ireland and losing the money. That is a hard one and I wish I could say something to help ease the pain, but I am at lose for words right now. Is there is a possibility that when you are able to find more things out with your GI that you two can reschedule the trip to Ireland? If that is so, then that might be something you can look forward to.
The Prep for the colonoscopy is always hard-- the liquid diet and then the meds to flush the system. I know when I had my prep the day before I felt very down and just like I wanted to ly in bed with the covers over my head and cry.
(((Hugs))) to you and I am sorry you are going through this. One thing is you WILL get through this. It seems difficult right now, but do keep your chin up!!
Kel
Currently waiting results to see exact problem.
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
ERIN~~~~~~ dont apologize for the need to *whine*---we have all been there and have *whined* away many many times--
This is what friends are for---to listen---to let U know we all care and that we are always wishing the best for each and everyone---
U have seen my posts---- --I come here and *cry* my heart out about family stuff---
U have to let it out----so my dear Erin---just let it out anytime U feel the need--
Luve Barbara
This is what friends are for---to listen---to let U know we all care and that we are always wishing the best for each and everyone---
U have seen my posts----
--I come here and *cry* my heart out about family stuff---U have to let it out----so my dear Erin---just let it out anytime U feel the need--
Luve Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
Hi Erin,
You've already received a lot of great support in this thread, so let me just point out that your GI doc will come up with the correct diagnosis. Doctors don't acquire a sterling reputation such as you've described, unless they actually know what they're doing, and they truly care about their patients. They acquire a reputation like that by working harder than their peers, and by successfully diagnosing and treating patients.
I'll guarantee that when you are finally able to break free from the grips of MC, and that realization sinks in, you won't be able to hold back the tears of joy. Good luck with the exam.
Tex
You've already received a lot of great support in this thread, so let me just point out that your GI doc will come up with the correct diagnosis. Doctors don't acquire a sterling reputation such as you've described, unless they actually know what they're doing, and they truly care about their patients. They acquire a reputation like that by working harder than their peers, and by successfully diagnosing and treating patients.
MC can affect virtually every organ in the body, and because of it's systemic effects, when it's at it's worst, it can make you feel as miserable as any disease ever described. Trust me, after you conquer it, and get your life back, you will be amazed at how incredibly good you feel again. At one time or another, I think that all of us actually thought that we would never be able to experience what's it like to "feel good" again.Erin wrote:Sometimes i wonder if maybe they are looking into the wrong disease with me. I know it has to be something because how could i be so sick with *nothing* wrong? But again, i have been dealing with this for so long with no relief it is getting the best of me.
I'll guarantee that when you are finally able to break free from the grips of MC, and that realization sinks in, you won't be able to hold back the tears of joy. Good luck with the exam.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Erin....if that's what you call whining....welll....humph....I've got you beat. 
i am a world class whiner and have been perfecting my complaining now for many many years. 
Keep in mind that it is important to actually have SOMETHING to whine about!! And what you are dealing with is really something.....so keep whining on this forum so we can encourage you to do more....much more!! Hope this gave you a smile and you realize that you are delaing with some pretty discouraging circumstances and it is "normal" to voice your grief at what is happening...and I think it is just that: grief. We are gieving a lot of things with this disease, not the least of which is the loss of what life used to be like before we got sick. I am feeling "whiny" myself today and will write later when I can stop crying....
Sunny
i am a world class whiner and have been perfecting my complaining now for many many years. Keep in mind that it is important to actually have SOMETHING to whine about!! And what you are dealing with is really something.....so keep whining on this forum so we can encourage you to do more....much more!! Hope this gave you a smile and you realize that you are delaing with some pretty discouraging circumstances and it is "normal" to voice your grief at what is happening...and I think it is just that: grief. We are gieving a lot of things with this disease, not the least of which is the loss of what life used to be like before we got sick. I am feeling "whiny" myself today and will write later when I can stop crying....Sunny
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annie oakley
- King Penguin
- Posts: 3859
- Joined: Fri May 13, 2011 5:56 pm
Go On ahead and Whine if that's what you call it. I call it confiding in your friends. There's hope and light at the farrrr end of the tunnel but you will come throuh with flying colors cause we are all rootin for you, Love Oma
May I be more compassionate and loving than yeterday*and be able to spot the idiots in advance
Erin,
I know this is difficult but your doctor seems willing to figure this out. That's a huge obstacle!!!!! Entocort didn't work for me and neither has the GF, DF, SF diet. I am still on the diet (doctor said to stay on it, I had the Enterolab tests) and now on Prednisone and Imuran and it is helping finally. This new doctor of mine is willing to find something that works because I had such bad D and such a hard time with the weight. It takes time and patience. Keep your chin up! I will say a prayer for you!
Pat
I know this is difficult but your doctor seems willing to figure this out. That's a huge obstacle!!!!! Entocort didn't work for me and neither has the GF, DF, SF diet. I am still on the diet (doctor said to stay on it, I had the Enterolab tests) and now on Prednisone and Imuran and it is helping finally. This new doctor of mine is willing to find something that works because I had such bad D and such a hard time with the weight. It takes time and patience. Keep your chin up! I will say a prayer for you!
Pat
Hi Erin,
I just wanted you to know that you may not find the perfect words to make you feel better here, but we are "listening" via your written words. We hear you and understand what you're going through. I think at times, I can second guess myself when I rely on the medical field for validation. We believe in you, how you're feeling and the complaints and symptoms you have. Here, we are family and we care about you!
I just wanted you to know that you may not find the perfect words to make you feel better here, but we are "listening" via your written words. We hear you and understand what you're going through. I think at times, I can second guess myself when I rely on the medical field for validation. We believe in you, how you're feeling and the complaints and symptoms you have. Here, we are family and we care about you!
Becky
SUCKS. Big time.