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He seems to think the original diagnosis of MC was incorrect. He had based it off of the first colonoscopy i had done with the other doctor which was not complete records. Now that he did his own Colonoscopy and could see for himelf he feels it is truly just UC.
I am actually noticing a difference today. I have that feeling of 'euphoria' that Kelly was talking about which in a way is nice since i have been so down lately. I have less abdominal pain and i am running to the bathroom less.
So far so good!
Thanks for asking
Diagnosed with MC on 1/8/2008 after 7 months of flare. 2nd colonoscopy and new diagnosis of UC on 3/11/2008.
I'll bet your doctor is right about the first diagnosis. That seems logical.
It sounds as though the treatment is right on track, so that's really good news. Hopefully, in a day or so, you won't be running to the bathroom at all - you'll be casually bebopping in there the way it was before your symptoms started. LOL.
I have a hunch that since you and your doc caught the UC so early, (apparently you don't have any serious lesions, if you've never had any bleeding problems), you aren't near as likely to ever have any of the serious complications that so many UC patients have to endure, (as long as you're faithful to your treatment program). Of course, you will have to work out your long-term treatment program to suit your needs, and your lifestyle, but I believe it's been shown that for many UC patients who are gluten sensitive, the GF diet will help/allow them to maintain remission.
Please keep us informed. We love to read about success stories, and it's certainly high time that you enjoyed some success with your treatment program.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Guess it is possible that you could have had MC that changed into UC as when I saw my GP last month he indicated that he suspects I may have been heading into UC as well! When I spoke to the GI about this he just said the treatment is the same so regardless it really makes no difference what type of IBD it is at this stage, we just need to get you well enough to live your life again.
ErinD wrote:He called me at 5:30pm to tell me he had gotten all my biopsies back and had a diagnosis for me from my 2nd colonoscopy done last week.
He actually diagnosed me with UC and is taking me off Entocort and putting me on Prednisone as I need something stronger. I am very torn about being on Prednisone. I want to feel better, definitely, but i am also nervous about side effects. I know it affects everyone differently and i shouldn't worry about it until it happens.
I have to call him back in a week and let him know how i am feeling on the prednisone and then we will go from there.
My first GI doc dx'd me with UC- based only on the fact that I had some very mild inflammation that you could see under a microscope and didnt look like to him like it was MC. I even asked him about microscopic colitis but he told me that it wasnt consistent.
At any rate all the meds he every gave me, EXCEPT entocort, never worked a bit- they actually made me worse because of the milk (lactose) inthe Asacol. My new GI doc now things that I probably have MC as my colonoscopy was absolutely clear- no signs of anything- even the biopsies came back clean.
You are always entitled to a second opinion and though that does mean yet another prep and c scope- it could be very worth it.
Did he say why he thought you had UC? Do you ever pass blood your bowel movements? I know a lot about UC since I once thought I had it- and I never ever had blood (except from a damn fissure that hurt like the dickens) which led me to believe I didnt have UC.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Yes, this GI is actually my second opinion. My first doc diagnosed me with IBS, no MC, no IBS...you get the picture... Unfortunately my first GI was a nutjob who ended up getting her license to practice suspended shortly afterwards.
After doing my research i went to this GI doc (Rated #1 GI in my state at the #1 Hospital). This was my second colonoscopy (he also did the PillCam first but nothing found) and the new GI could see the inflammation immediately. He did take a ton of biopsies as well just to make sure nothing else was going on. I was passing blood in the stool too so i am pretty confident in his diagnosis. I have been on prednisone for a week now and i feel so much better, almost myself again. (I have been on Librax, Bentyl, Lomotil, Asacol, Entocort, etc with nothing working as well as diet) I talked to the doctor today and i have to maintain this dose for another week and then we will talk about tapering.
I was sick for so long and lost so much weight that i am ok with the side effects of pred right now. Its a nice change!
Diagnosed with MC on 1/8/2008 after 7 months of flare. 2nd colonoscopy and new diagnosis of UC on 3/11/2008.
Unfortunately my first GI was a nutjob who ended up getting her license to practice suspended shortly afterwards.