Hi Lara, Saw you post about being 32 and having a doc who says "people your age don't have this".
Tell him he's WRONG! I developed MC at 29 (diagnosed at 30). Now 35, gluten free and med free. My doc didn't even believe in MC.
Welcome to the best place on the web to discuss MC. You've found a wonderful group.
Katy
Hi Cookishoes
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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kate_ce1995
- Rockhopper Penguin
- Posts: 1321
- Joined: Wed May 25, 2005 5:53 pm
- Location: Vermont
Hi Lara and welcome
Yes your doctor is very wrong as I am sure most people on the board would agree MC can start at any age. I live in the UK and they take the same approach here about the age MC starts and I believe it is because of screening programmes for the over 50's for bowel cancer that they pick it up more.
Once again welcome and hope you feel better soon
Yes your doctor is very wrong as I am sure most people on the board would agree MC can start at any age. I live in the UK and they take the same approach here about the age MC starts and I believe it is because of screening programmes for the over 50's for bowel cancer that they pick it up more.
Once again welcome and hope you feel better soon
Hi Lara,
And
to the group. Mini is exactly correct, in that you can't find MC unless you look for it, and to look for it you have to know how to look for it. Doctors simply don't normally look for it in any age group, let alone in younger patients, because it is still considered to be a "rare disease of older women". In fact, though, we have members who have children with MC. If I recall correctly, one was six, (or less), when diagnosed, and another was about 13 years old. And, of course, we have a number of members who are men, who range in age from their 20s and upward, and many women in just about every age group. Obviously, MC is a disease that can strike at any age, but the doctors seem to be very slow in learning how to diagnose it, and how to properly treat it.
Again, welcome to the board, and I hope that you can learn a few things from our discussions about our experiences concerning how to deal with MC, and use the information to make your own life easier, and more enjoyable.
Tex
And
to the group. Mini is exactly correct, in that you can't find MC unless you look for it, and to look for it you have to know how to look for it. Doctors simply don't normally look for it in any age group, let alone in younger patients, because it is still considered to be a "rare disease of older women". In fact, though, we have members who have children with MC. If I recall correctly, one was six, (or less), when diagnosed, and another was about 13 years old. And, of course, we have a number of members who are men, who range in age from their 20s and upward, and many women in just about every age group. Obviously, MC is a disease that can strike at any age, but the doctors seem to be very slow in learning how to diagnose it, and how to properly treat it.Again, welcome to the board, and I hope that you can learn a few things from our discussions about our experiences concerning how to deal with MC, and use the information to make your own life easier, and more enjoyable.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I'd like to welcome you to the board also. Sure hope you'll keep posting, asking questions, whatever. Sorry you had to end up with this disease but I'm sure you'll find a way to deal with it as most of us have here.
Shirley
Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
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cookishoes
- Posts: 5
- Joined: Mon Mar 17, 2008 12:18 pm
- Location: Ohio
Hello !
Hello All!!!
Nice to meet you and I appreciate the support and welcome
Reading your posts, I have realized that microscopic colitis is more common amoungst a variety of people.
I do have to say that although my Doc said that I was young, I really appreciate that he didn't give up and just tell me I had IBS like so many before had said. I have been working with him for about a year now and before that I went about 4 years telling docs from time to time and always being told it was probably IBS.
I have been on Asacol (horrible and gave me back pain), of course pepto and immodium. And whenever I take Immodium, I get terrible pain on my left side and underneath my ribs. Also, Entocort which was great but as you all know it's a steroid and shouldn't be used long term. I also tried cholestryamine which gave me nausia and heart burn (great more stomach problems LOL)
So, now I'm trying aloe vera juice (my own idea from another site). So, we'll see.
I am curious about the celiac disease. My Doc did do many tests early on. The one thing he tested was actual biopsies from from endoscopy to check for celiac disease. They came back negative, but I'm wondering if the biopsies are reliable. I have to say I really don't think that's my problem. My biggest food problems are most vegetables, raw or cooked. And then it is just random, good days and bad days.
I get frustrated especially on the bad days when I can't even go anywhere and all I want to do is sleep because the whole process is so exhausting.
Anyways, Anyways, enough about me for now and sorry for starting to babble.
Thanks so much for the support and good luck to all who are struggling with this. Maybe someday they will actually figure out the real cause and we can all start healing and not just treating symptoms!!!
Take care!!!!
Lara
Nice to meet you and I appreciate the support and welcome
Reading your posts, I have realized that microscopic colitis is more common amoungst a variety of people.
I do have to say that although my Doc said that I was young, I really appreciate that he didn't give up and just tell me I had IBS like so many before had said. I have been working with him for about a year now and before that I went about 4 years telling docs from time to time and always being told it was probably IBS.
I have been on Asacol (horrible and gave me back pain), of course pepto and immodium. And whenever I take Immodium, I get terrible pain on my left side and underneath my ribs. Also, Entocort which was great but as you all know it's a steroid and shouldn't be used long term. I also tried cholestryamine which gave me nausia and heart burn (great more stomach problems LOL)
So, now I'm trying aloe vera juice (my own idea from another site). So, we'll see.
I am curious about the celiac disease. My Doc did do many tests early on. The one thing he tested was actual biopsies from from endoscopy to check for celiac disease. They came back negative, but I'm wondering if the biopsies are reliable. I have to say I really don't think that's my problem. My biggest food problems are most vegetables, raw or cooked. And then it is just random, good days and bad days.
I get frustrated especially on the bad days when I can't even go anywhere and all I want to do is sleep because the whole process is so exhausting.
Anyways, Anyways, enough about me for now and sorry for starting to babble.
Thanks so much for the support and good luck to all who are struggling with this. Maybe someday they will actually figure out the real cause and we can all start healing and not just treating symptoms!!!
Take care!!!!
Lara
HI Lara,
Welcome to our group! My sister swears by aloe vera juice. She mixes it with water and drinks it down, daily. She uses hers for heartburn/reflux and not for MC.
Most of us have problems with fresh/raw veggies and most cooked ones until the gut heals. It seems that green beans are the most tolerable until that happens. I personally find that I am able to eat certain foods ok one time and they bother me the next.....
It might help to keep a diary of foods eaten and the length of time it takes for a reaction. You might be able to identify the trigger foods and eliminate them, at least until you are healing.
Good luck in your treatment plan, we are here to help and guide based upon our experiences. Keep in mind that we are all different and react to foods/meds, etc differently though.
To your continued improvement,
Mars
Welcome to our group! My sister swears by aloe vera juice. She mixes it with water and drinks it down, daily. She uses hers for heartburn/reflux and not for MC.
Most of us have problems with fresh/raw veggies and most cooked ones until the gut heals. It seems that green beans are the most tolerable until that happens. I personally find that I am able to eat certain foods ok one time and they bother me the next.....
It might help to keep a diary of foods eaten and the length of time it takes for a reaction. You might be able to identify the trigger foods and eliminate them, at least until you are healing.
Good luck in your treatment plan, we are here to help and guide based upon our experiences. Keep in mind that we are all different and react to foods/meds, etc differently though.
To your continued improvement,
Mars
"Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful." -- Buddha
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cookishoes
- Posts: 5
- Joined: Mon Mar 17, 2008 12:18 pm
- Location: Ohio
Thanks
Hi Mars!
Thanks for the support advice! I will definetly keep reading!!!!
P.S. I'm also from Ohio
Cleveland
Take Care!!
Lara
Thanks for the support advice! I will definetly keep reading!!!!
P.S. I'm also from Ohio
Cleveland
Take Care!!
Lara