Felt GREAT on the prednisone. Until sunday night. Was woken up from deep sleep with severe abdominal pain. My stomach was rock hard and distended. I tried to put up with it for 4 hours then woke up hubby and he had me call GI doc. They were concerned about Toxic Megacolon and to be on the conservative side told me to go to the ER.
Went to ER and was put on IV and given Dilauded for pain management. Blood taken as well as X-Rays. Blood showed elevated white blood cell count and extremely low potassium. Also showed stool back-up in X-Ray. They gave me a suppository and sent me home. Called the GI doc to update the next day and they contacted the hospital to get the results. He said the White Blood Cell was most likely due to the Prednisone and the Potassium level was common with UC patients. Otherwise i was feeling good again so he told me to continue the pred until i start my taper tomorrow.
Great, no problem...still feeling really good again..UNTIL......
I get home today and i have a message from the hospital i went to that night as well as my primary care doctors office, both urging me to call as soon as possible. I called the hospital first as my dr. office was closed and the charge nurse spoke to me. She said the radiologist had read my X-Rays from the other night and had found a 'dense mass' in the left abdomin that really needs to be looked into further. This is the second time this has happened to me. The first time was in the fall when they thought i had kidney stones. At that time my PCP sent me for CT scan and they said it was nothing. She said that now it is larger and my PCP was going to schedule me for another CT Scan and an MRI. I asked what her concern was about it and being a nurse she could only instruct me to call my PCP tomorrow morning to discuss further.
So now i am a bit panicky. Could it be something else? could it just be nothing again and i am panicky over nothing? I went through Cervical Cancer in my early 20's and had to have a hysterectomy a few years ago due to severe endometriosis (however i do still have both ovaries) so i am not sure if it is related to that?
I am so overwhelmed and confused. I know i should just wait and see what the doc says, but to be honest i am so tired of this rollercoaster ride.
