not sure about the good news now

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sunny
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not sure about the good news now

Post by sunny »

I thougth with 2 negative samples, I was home free....but the GI doc wants me to go on the 3rd dose of vanco as she thinks the c-diff is still present and that the tests were false negatives. I said I don't want to take another round of an antibiotic after 7 weeks on it if I am not sure I have c-diff. SInce I only am having 3-5 episodes and those are ususally confined to the morning hours, I am just not convinced it is c-diff. I asked her about LC recurrrance and she said LC does not usually present this way and c-diff was a life-threatening illness and she wants to be sure it is gone. sigh.... :roll: We compromised with waiting a few more days to see if the D increases...in the mean time , she upped the colestid to 3 one gram tabs twice daily, and to continue the probiotics. I am so confused and not sure if I am dong the right thing or not....
but at least I have my bouquet of tulips!!! :wink:
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tex
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Post by tex »

Sunny,

You have good reason to be confused. This is a tough call. On the one hand, C. diff is indeed a serious threat, because if it turns up again, it could be much harder to eradicate, if it gains resistance to the antibiotics, so I can see your doctor's concern. On the other hand, you are correct, and your doctor is confused about LC, if she thinks that it should not still be present.

One question? Did you pass any blood with the C. diff? If so, was it a regular occurrence, or did it disappear soon after treatment started? Did it ever resume? I'm guessing that you're not passing any blood with the D now. If you never passed any blood, while treating the C. diff, then if I were in your shoes, I would definitely go through the treatment again, just to be on the safe side. It shouldn't hurt you, as long as you continue to take the probiotics. Even if you did pass blood previously, and are not doing so now, there is certainly a risk that there could be a residual "pocket" of bacteria somewhere that could get the infection started again.

Otherwise, if I felt "brave", I might try the "wait and see" approach, (especially if blood was a regular feature during the early stages of the treatment). - but, of course, if the D increases, it would probably be prudent to go through the treatment again.

The fact that your doctor thinks that LC can be "cured" by a short course of corticosteriods, is the whole key to this dilema. I have a hunch that if she were better acquainted with the facts about MC, she would not be suggesting a third course of antibiotics.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by barbaranoela »

Sunny-----I can imagine how U are feeling---once again *trial and error*-never know what this *round* might do for U-----and I shall be waiting @ *homeBase* :smile: for U---and give the signal :thumbsup: *SAFE* and gaining a home-run!!!!!

That *wellness-road* is waiting for U!!!!!

luve Barbara :bigbighug:
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Post by starfire »

Wow, that is a tough decision to make. I am really paranoid about "superbug" type problems so I'd probably be inclined to make sure the CDiff is "dead and buried".

Thats just me though and I know you are sick and tired of taking the antibiotics. Can't blame you.

Good Luck!!

Love, Shirley
When the eagles are silent, the parrots begin to jabber"
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tex
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Post by tex »

I would be very interested in hearing, (okay, maybe "seeing" is a better choice of words), Polly's thoughts on this, since she went through so many rounds of treatment with antibiotics last year, because of her unrelenting sinus infection, especially since she also has LC.

Tex
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sunny
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Post by sunny »

thanx for the quick responses....
Tex....no, there is no blood, never has been...in fact that was why I didn't think I had c-diff the first time we tested....and yes...she just dismissed my query re: LC...
Barbara....I loved the basebal metaphor! thanx for waiting for me at home base...made me cry!!
Shirley....I hear you loud & clear! thanx for the reminder....espec. in light of Tex's reminder about the bug being harder to eradicate....talked to the pharmacist this afternoon and she verified that one....but she said she understood my hesitancy also...."just don't wait for too long" she said.
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JJ
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Post by JJ »

Hi Sunny....that is indeed a tough situation to be in....sorry you are going through this!

:bigbighug:

Take care kiddo....JJ
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sunny
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Post by sunny »

Thanx again, my friends!! My dear son-in-law is a Podiatrist at Kaiser and he wrote advising I see an Infectious Disease Doc...his thought is that they are often more progressive and actually avoid using antibiotics a lot of the time. He also included the protocol from the chiefs of Infectious Diseases, 2005....very interesting especially re: probiotic recommendations. Isn't this all just too exciting? :???:
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Post by Polly »

Hi Buddies!

Tex, I would agree wih Sunny's SIL - it's time to see an infectious disease expert. I never went that route, but then I was not dealing with a bug as potentially serious as C. diff. At least based on the 5 negative cultures that I had.

Sunny, I would put my eggs in the basket of the "expert" at this point. Good luck!

Love,

Polly
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sunny
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Post by sunny »

Thanx Polly for adding your opinion on this!! I called and learned i need a referral so called GI doc's nurse and she said she would talk to her and if she didn't want to refer for some reason i could contact my primary care...( she's the one who was insulted when i requested an endocrinologist for my diabetes and hashimoto's disease)....so am waiting a return call from Dr. Kao and hoping she will not be insulted also :shock: .
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tex
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Post by tex »

Sunny,

Some doctors seem to have a height problem - they can't see over their egos. :lol: :lol:

I had the same problem with my doc. He doesn't know how to properly treat hypothyroidism, and the last time I saw him, I told him that my symptoms were back, and/or had never really cleared up. He told me that since my TSH is within the "normal:" range, (2.75, if I recall correctly), there's nothing more that he can do for me. (To make matters worse, he uses an obsolete range, 0.5-5.5) He didn't check free T4, free T3, nor did he test for thyroid antibodies. <sigh> I still have almost all of the symptoms of hypothyroidism, even though I am on a low dose of levothyroxine. I wouldn't even have that low dose script if I hadn't talked him into checking free T4 initially, because my TSH was higher, but still within the upper limits of the obsolete range that he, (and the lab that he uses), goes by. Free T4, though, was out of the "normal" range, (and probably still is).

When I asked if he thought I should check with an endocrinologtist, he said he could recommend one, but then he hemmed and hawed, and seemed a bit defensive, and he never did come up with a name. As soon as I get the time to do it, I need to locate a new doc. My doc is taller than average, but I think he could probably still benefit from a couple more inches of height. LOL.

Tex
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sunny
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Post by sunny »

Tex....I have a similar problem...she does recognize the new guidelines however. funny thing, i kept complaining and she finally figured out what her chart said was my dosage was not what she called in to the Rx last year!!!!!!! so i am now taking 2 different strenghts alternating every other day..... .75 and then 1.0 levothyroxin....hmmmmm
love the height problem!! :lol:
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
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