I just read the responses to my post
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Hi Wayne,
You can either continue a thread, or start a new one, if you don't care for long threads - whatever suits your fancy. Most of us just continue them, but after they get to be two or three pages long, it's probably best to start a new one. It's also best to start a new thread if the topic has changed. Some members prefer to start new threads almost every time they post, which is okay, too.
Here's Dr. Fine's website. He has MC himself, and has done a world of research on MC and gluten sensitivity. He has developed a process for stool testing for antibodies, and established a fully accredited lab, to carry out the testing. There's a lot of good information on his site, about MC and gluten sensitivity.
http://www.finerhealth.com/
The testing routine involves ordering a test kit, which will include shipping instructions for overnight delivery, by DHL. The sample is sealed in a container, and frozen, before shipping. If you decide that you want an additional test at a later time, the lab keeps your sample for about a year, so you can order another test within that time frame, without submitting another sample. Most insurance companies will not pay for stool tests, though some of them will pay, if the test is ordered by a doctor. Most doctors are still not up to speed regarding this technology, so most of them will scoff at the idea of doing a stool test. The results, however, are far more accurate than any blood test ever developed, and a few doctors are slowly beginning to "see the light". Most doctors, in fact, (especially GI docs), will insist that diet has no effect on MC reactions. They are quite incorrect, of course.
The stool tests for gluten antibodies, can reliably detect antibodies for up to about a year after eliminating all gluten from the diet. The other food antibodies, though, can be reliably detected for only a few weeks after that particular food is eliminated from the diet. By comparison, the classic celiac blood tests can only reliably detect antibodies for a couple of weeks after gluten is withdrawn from the diet, and only full-blown celiacs will test positive with the blood tests. IOW, it's best to take the test sample before you begin a GF diet, in order to get maximum potential from the test, whether you use a blood test, or a stool test, but you have much more leeway, with a stool test. Virtually none of us here would test positive to a celiac blood test, even though we are highly gluten sensitive, (unless, of course, we actually had fully-developed celiac disease).
No, not all of us are gluten sensitive. Probably a sizable majority are, but not all of us who are gluten sensitive use the diet alone, to control our symptoms. Some use meds along with the diet, in order to get relief from symptoms sooner, and then they drop the meds later, after their gut heals. Some find it necessary to use meds in addition to the diet, due to their extreme sensitivity. And, some are quite happy with the control they get using meds such as Asacol, or Entocorto, and little, or no, diet limitations. Everyone chooses what they feel is best for them, and their particular lifestyle.
A number of us, (myself included), discovered that the GF diet worked for us, by trial and error. In my case, I wasn't even aware of Enterolab, back in those days, but I did have some tests done later, to verify that I was on the right track. Many choose to get tested, these days, though, to remove any doubts, and to speed up the decision making, for developing a treatment plan.
Enterolab also offers gene testing, for genes connected with celiac disease and gluten sensitivity. That information is interesting, but not necessary, for your treatment. IOW, if you can afford the expense of the additional test, the information may be useful for your family members, but that test does not offer information essential for your recovery. We gain insight by comparing our gene test results, and if you are interested in this sort of thing, I have tabulated a list of gene test results, here:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=2645
One thing that we have learned from this list so far, for example, is that people with double DQ 1 genes, have multiple food intolerances, are extremely sensitive to those intolerances, and usually have a very tough time achieving remission. For example, HLA-DQ 1,1 (Subtype X,X), would be a double DQ 1 result, and we have several members with that combination.
You seem to be doing fine on the communications.
Tex
You can either continue a thread, or start a new one, if you don't care for long threads - whatever suits your fancy. Most of us just continue them, but after they get to be two or three pages long, it's probably best to start a new one. It's also best to start a new thread if the topic has changed. Some members prefer to start new threads almost every time they post, which is okay, too.
Here's Dr. Fine's website. He has MC himself, and has done a world of research on MC and gluten sensitivity. He has developed a process for stool testing for antibodies, and established a fully accredited lab, to carry out the testing. There's a lot of good information on his site, about MC and gluten sensitivity.
http://www.finerhealth.com/
The testing routine involves ordering a test kit, which will include shipping instructions for overnight delivery, by DHL. The sample is sealed in a container, and frozen, before shipping. If you decide that you want an additional test at a later time, the lab keeps your sample for about a year, so you can order another test within that time frame, without submitting another sample. Most insurance companies will not pay for stool tests, though some of them will pay, if the test is ordered by a doctor. Most doctors are still not up to speed regarding this technology, so most of them will scoff at the idea of doing a stool test. The results, however, are far more accurate than any blood test ever developed, and a few doctors are slowly beginning to "see the light". Most doctors, in fact, (especially GI docs), will insist that diet has no effect on MC reactions. They are quite incorrect, of course.
The stool tests for gluten antibodies, can reliably detect antibodies for up to about a year after eliminating all gluten from the diet. The other food antibodies, though, can be reliably detected for only a few weeks after that particular food is eliminated from the diet. By comparison, the classic celiac blood tests can only reliably detect antibodies for a couple of weeks after gluten is withdrawn from the diet, and only full-blown celiacs will test positive with the blood tests. IOW, it's best to take the test sample before you begin a GF diet, in order to get maximum potential from the test, whether you use a blood test, or a stool test, but you have much more leeway, with a stool test. Virtually none of us here would test positive to a celiac blood test, even though we are highly gluten sensitive, (unless, of course, we actually had fully-developed celiac disease).
No, not all of us are gluten sensitive. Probably a sizable majority are, but not all of us who are gluten sensitive use the diet alone, to control our symptoms. Some use meds along with the diet, in order to get relief from symptoms sooner, and then they drop the meds later, after their gut heals. Some find it necessary to use meds in addition to the diet, due to their extreme sensitivity. And, some are quite happy with the control they get using meds such as Asacol, or Entocorto, and little, or no, diet limitations. Everyone chooses what they feel is best for them, and their particular lifestyle.
A number of us, (myself included), discovered that the GF diet worked for us, by trial and error. In my case, I wasn't even aware of Enterolab, back in those days, but I did have some tests done later, to verify that I was on the right track. Many choose to get tested, these days, though, to remove any doubts, and to speed up the decision making, for developing a treatment plan.
Enterolab also offers gene testing, for genes connected with celiac disease and gluten sensitivity. That information is interesting, but not necessary, for your treatment. IOW, if you can afford the expense of the additional test, the information may be useful for your family members, but that test does not offer information essential for your recovery. We gain insight by comparing our gene test results, and if you are interested in this sort of thing, I have tabulated a list of gene test results, here:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=2645
One thing that we have learned from this list so far, for example, is that people with double DQ 1 genes, have multiple food intolerances, are extremely sensitive to those intolerances, and usually have a very tough time achieving remission. For example, HLA-DQ 1,1 (Subtype X,X), would be a double DQ 1 result, and we have several members with that combination.
You seem to be doing fine on the communications.
Tex
Hi Wayne ,
I'm not on a GF diet... I also haven't had the testing done at Enterolab, but hope to do so in the coming year. I have been taking Entocort for the past several years and it allows me to live a fairly normal life. I was VERY allergic to Asacol, so my GI tried the Entocort. Stress seems to be a huge factor with me, and my symptoms improve as the stress improves in my life. I am starting a new job in the fall and moving in two weeks, hahahaha....that's a lot of stress! I am back on a low carb diet....I have eliminated many sources of gluten in my diet and am mainly eating meat. I also feel better when I eliminate sugar from my diet. I am looking forward to the Enterolab test so I will know for sure what's going on. Many of us have tried a variety of drugs and other paths. We have learned that we all are different, and what works for one, doesn't necessarily work for another. I was really depressed when I learned I had this darn CC, but there is hope, and this group has given that to me.
Once again...I am soooo glad you found us....Take care kiddo...JJ
I'm not on a GF diet... I also haven't had the testing done at Enterolab, but hope to do so in the coming year. I have been taking Entocort for the past several years and it allows me to live a fairly normal life. I was VERY allergic to Asacol, so my GI tried the Entocort. Stress seems to be a huge factor with me, and my symptoms improve as the stress improves in my life. I am starting a new job in the fall and moving in two weeks, hahahaha....that's a lot of stress! I am back on a low carb diet....I have eliminated many sources of gluten in my diet and am mainly eating meat. I also feel better when I eliminate sugar from my diet. I am looking forward to the Enterolab test so I will know for sure what's going on. Many of us have tried a variety of drugs and other paths. We have learned that we all are different, and what works for one, doesn't necessarily work for another. I was really depressed when I learned I had this darn CC, but there is hope, and this group has given that to me.
Once again...I am soooo glad you found us....Take care kiddo...JJ
Hi & Welcome Wayne!!
Sorry I missed your first post but I see others have jumped in and answered your questions.
Get use to that because when one isn't available there will always be someone at the other end of your computer to answer your questions and help you out in any way possible.
Dee~~~~
Sorry I missed your first post but I see others have jumped in and answered your questions.
Get use to that because when one isn't available there will always be someone at the other end of your computer to answer your questions and help you out in any way possible.
Dee~~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
-
annie oakley
- King Penguin
- Posts: 3859
- Joined: Fri May 13, 2011 5:56 pm
Hi Wayne, I haven't had a gluten test either but I elminated alot of things I used to eat. I did not learn of gluten from a doctor, I learned about it here from all the great people here. Everyone here is more than willing to offer suggestions about most anything. I have been in remission for over 3 years, but I will have an occassional flare when I eat a trigger food or blatenly eat a quart of Ice cream. And every time I have a flare since I have been in remission the response time is quicker. So I try and watch all I eat. Of course I don't have it nearly as bad as some. Since I was diagnosed in 2001, my arthristis seemed more noticable. And I was diagnosed with osteoarthritis as well as Ruemetoid and Fibro. I keep coming to this board because of the great kind hearted friends and family here. I know I can get many ears to listen good news or bad news. Plus they are quick to help, comfort and and just be a friend.
Love Oma
Love Oma
May I be more compassionate and loving than yeterday*and be able to spot the idiots in advance
Wayne, stop beating yourself up over the cheesecake.
From what I've experienced, guilt just brings your whole attitude down, and it doesn't change anything! Going GF isn't easy! Google some gluten free blogs and you'll see how everyone struggles to give up their favorite food. Be kinder to yourself. This is an overwhelming life change! Let the guilt go, although I know it's easier said than done when you're sick from what you ate. Been there. Done that.
From what I've experienced, guilt just brings your whole attitude down, and it doesn't change anything! Going GF isn't easy! Google some gluten free blogs and you'll see how everyone struggles to give up their favorite food. Be kinder to yourself. This is an overwhelming life change! Let the guilt go, although I know it's easier said than done when you're sick from what you ate. Been there. Done that.