Johns Hopkins Hospital in Baltimore, Maryland is compiling a registry of those who have Collagenous and/or Lymphocytic Colitis. To view their GI Research page click here http://hopkins-gi.nts.jhu.edu/pages/lat ... ease=29#20 .
This is the only research site I have found that is specific to CC and/or LC. Johns Hopkins is compiling their registry for future use and no trials are imminent. Nevertheless I registered as I feel it's important to be on the record.
Johns Hopkins Collagenous/Lymphocytic Colitis Registry
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh, mbeezie
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annie oakley
- King Penguin
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- Joined: Fri May 13, 2011 5:56 pm
OMG
I went to the Johns Hopkins site to register and read the LC and CC info there. In the diet area it mentions low fat diet and elimination of foods with lactose and caffeine but NOT a word about gluten!DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Hi Joan,
No, you're not the only one who disagrees with Johns Hopkins' position on gluten. Unfortunately, like most medical "experts", they endorse the "official" "medical establishment" position, regarding gluten, which is, "if a patient is not a celiac, then gluten sensitivity is not a possibility". That's a real shame, because otherwise, they have a very good reputation for medical care.
Tex
No, you're not the only one who disagrees with Johns Hopkins' position on gluten. Unfortunately, like most medical "experts", they endorse the "official" "medical establishment" position, regarding gluten, which is, "if a patient is not a celiac, then gluten sensitivity is not a possibility". That's a real shame, because otherwise, they have a very good reputation for medical care.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.