TEX and all

[JLH]

GI's office called just now and said doctor is not familiar with the tests but that I might have celiac disease and that they would send me GF diet info. (The gal on the phone didn't realize I have my first appointment tomorrow!)

I said I think my test results show that I DO NOT have celiac but that I have been GF since June (right after I got my LC diagnosis from her.)

[JLH]

I gave permission for them to talk to my GI. Now if she will only talk to them........

[angy]

dont know if thats good news or bad news still at least if you get the c diagnosis you know where your going...

hope all goes well with the docs jlh and be sure to get all you can from them...

[JLH]

At least she read the report. LOL

The nurse at EL isn't there there this week. The woman who answered the phone at EL seemed like she knew a lot. She said my records shows that I do NOT possess a marker for celiac which is what I thought.

[angy]

god back to square 1 huh!!!It anoys me that docs just fob u off about celaic...just cos it aint showing in the blood test...

[tex]

Hi Joan,

The lady at Enterolab is right. Your gene test results are:

HLA-DQB1 Molecular analysis, Allele 1 0301
HLA-DQB1 Molecular analysis, Allele 2 0603
Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6). Predisposes to gluten sensitivity and MC, but not celiac.

While it's not impossible that you could be a celiac, based on your genes, it's very, very unlikely, (since you don't have a celiac gene).

It's a moot point, though, since you are obviously quite gluten sensitive, so the treatment is the same.

Tex

[JLH]

Thanks. I just don't know what to say about this! Maybe she was too busy to read it carefully. I just don't get it.

Should be an even more interesting first appointment than I had previously imagined. This makes me really apprehensive.