Yesterday
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Wayne-----I am at a loss for words----I am so sorry about all your family issues---and I really dont know what to say to try and comfort U--
I hope U get to feeling better----and your flower pics. are just beautiful
Many big hugs
Barbara
I hope U get to feeling better----and your flower pics. are just beautiful
Many big hugs
Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
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MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Hi Wayne,
So sorry to hear of the family problems and that you are feeling so poorly. I will join you on the poorly side. By the way, my gastro doctors considers me his biggest challenge after 8 years of this. Hang in there.
Love, Maggie
So sorry to hear of the family problems and that you are feeling so poorly. I will join you on the poorly side. By the way, my gastro doctors considers me his biggest challenge after 8 years of this. Hang in there.
Love, Maggie
Maggie Scarpone
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Resident Birder - I live to bird and enjoy life!
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Resident Birder - I live to bird and enjoy life!
Wayne,
You're right, your doctor is just calling you a challenge, and blaming your lack of response to his treatment, on stress, anxiety, and depression, in order to rationalize his own incompetence. That's pretty common, for GI docs trying to treat MC. For the most part, they're simply lost, and we're an "embarrassment" for them, since they don't know what to do about us. MC causes stress, anxiety, and depression, not the other way around, though they can certainly add to the misery of an MC "flare". I'm very sorry to hear of all the family issues - that certainly tends to keep the pressure on, as far as stress, anxiety, and depression are concerned.
I'm not a big fan of Lotronex, since it has a history of causing ischemic colitis, (which is bad stuff, to say the least):
http://www.lawyerseek.com/Practice/Phar ... ronex-P87/
This quote from that site is enough to make my hair stand on end:
This is just my opinion, of course, and my opinion is worth zilch in medical circles, but IMO, you will need to find a GI doc who at least understands the basics about treating MC, if you are going to go the Med route. Otherwise, unless you are the luckiest guy in the world, you will find yourself repeatedly "stair stepping" from one potent drug to another even more potent drug, on a somewhat regular basis, until you finally run out of drug options, and your body is a disaster area, due to all the accumulated damage from all the side effects, and unresolved symptoms. If you want to stop the misery in your gut the easy way, though, (and the economical way), I'd suggest you try the diet, before you start trying the "big guns" in the pharmacy.
Whatever you choose to do, though, we'll be here to support you, 100%.
Tex
You're right, your doctor is just calling you a challenge, and blaming your lack of response to his treatment, on stress, anxiety, and depression, in order to rationalize his own incompetence. That's pretty common, for GI docs trying to treat MC. For the most part, they're simply lost, and we're an "embarrassment" for them, since they don't know what to do about us. MC causes stress, anxiety, and depression, not the other way around, though they can certainly add to the misery of an MC "flare". I'm very sorry to hear of all the family issues - that certainly tends to keep the pressure on, as far as stress, anxiety, and depression are concerned.
I'm not a big fan of Lotronex, since it has a history of causing ischemic colitis, (which is bad stuff, to say the least):
http://www.lawyerseek.com/Practice/Phar ... ronex-P87/
This quote from that site is enough to make my hair stand on end:
Those are pretty scary odds, and enough to make me feel that any doctor who would be willing to prescribe such a med for MC, is either irresponsible, or very highly insured, (or both).Some reports indicate that 1 out of every 350 women who take Lotronex for six months will suffer from ischemic colitis.
This is just my opinion, of course, and my opinion is worth zilch in medical circles, but IMO, you will need to find a GI doc who at least understands the basics about treating MC, if you are going to go the Med route. Otherwise, unless you are the luckiest guy in the world, you will find yourself repeatedly "stair stepping" from one potent drug to another even more potent drug, on a somewhat regular basis, until you finally run out of drug options, and your body is a disaster area, due to all the accumulated damage from all the side effects, and unresolved symptoms. If you want to stop the misery in your gut the easy way, though, (and the economical way), I'd suggest you try the diet, before you start trying the "big guns" in the pharmacy.
Whatever you choose to do, though, we'll be here to support you, 100%.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
..and has been for 24 yrs..im sorry about your family loss and sadness... may god give you strength..Hi Wayne!
I agree 100% with what Tex said. I am an M.D. but am sad to say that I am frequently embarrassed by my colleagues' behavior. This is a case of blaming the victim, and you are absolutely on target in noting that you DID, after all, have a legitimate diagnosis of MC. Stress makes MC worse, of course. But it does not CAUSE cause MC. I'm glad you are not falling for that crap.
I would also agree with Tex that a gluten-free diet trial might be in order before trying more meds that are dangerous or that you already know do not work. Have you considered it? If you decide to try it, there are many folks here who would be happy to help. The majority of those with MC do have gluten sensitivity, as I'm sure you've seen here. An easy way to ease into it might be to eliminate all pasta, breads, cereals, pastries, desserts, and soy sauce for just one week to see how you feel.
My great grandmother raised dahlias and sold them. I tried growing them for several years and loved them. They are hard to beat!
Love,
Polly
I agree 100% with what Tex said. I am an M.D. but am sad to say that I am frequently embarrassed by my colleagues' behavior. This is a case of blaming the victim, and you are absolutely on target in noting that you DID, after all, have a legitimate diagnosis of MC. Stress makes MC worse, of course. But it does not CAUSE cause MC. I'm glad you are not falling for that crap.
I would also agree with Tex that a gluten-free diet trial might be in order before trying more meds that are dangerous or that you already know do not work. Have you considered it? If you decide to try it, there are many folks here who would be happy to help. The majority of those with MC do have gluten sensitivity, as I'm sure you've seen here. An easy way to ease into it might be to eliminate all pasta, breads, cereals, pastries, desserts, and soy sauce for just one week to see how you feel.
My great grandmother raised dahlias and sold them. I tried growing them for several years and loved them. They are hard to beat!
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.