My 2 Year Old was just diagnosed with LC :(

Camryn'sMommy · Post by **Camryn'sMommy** » Fri Sep 05, 2008 8:04 am

Bad diaper :( :( :(

She woke up this morning with explosive D. It was all up her back and she was really upset. She pointed to it smudged on her bed and said "its a mess". It was all over the back of her crib. I immediately had to give her a bath and she kept telling me she was sorry :(

Possible causes: She had chocolate soy milk (she won't have that again) and she had a piece of Turkey Tenderloin (which I later found out had smoke flavoring in it). Any other ideas? Everything else was gluten free. Here is what she ate:

- GF blueberry muffin
- GF rice noodles w/garlic
- GF peanut butter puffs
- GF waffles

One other possible cause is that she might have grabbed some of her brother's cheerios. I'm sad :(

Post by **tex** » Fri Sep 05, 2008 8:16 am

It might have been the soy milk. Also, some meat products are injected with a "tenderizing" and "moisturizing" solution that contains gluten, in some cases. The preservatives used could also be a problem.

I don't know what peanut butter puffs are, but just about any highly processed foods can contain things that cause problems, due to their long ingredient list. Sometimes we don't know what it is in them that causes the problem, but probably it's cross-contamination. The less processing, the better. IOW, cooking from scratch, starting with basic, (unprocessed), ingredients, is by far the safest.

Sorry for the setback, but it's sometimes two steps forward, and one step backward, in the healing process.

Tex

JLH · Post by **JLH** » Fri Sep 05, 2008 8:52 am

Tell me about it.

Post by **tex** » Fri Sep 05, 2008 12:26 pm

Camryn's Mother,

Joan's post reminded me that quite often, as we eliminate problem foods from our diets, other problems become evident. IOW, after we remove gluten and dairy from our diets, some of us will then discover that we are also intolerant to soy, or corn, or something else. Probably, those foods were a problem to begin with, but we were reacting so strongly to the gluten and or diary products, that our bodies didn't have the capacity to produce antibodies to the soy or corn, or whatever, until the reaction against the gluten and/or dairy began to subside.

As Polly has pointed out many times, approximately half of those who are gluten and dairy intolerant, are also soy intolerant. But that's not the main reason why I am so concerned about the soy in Camryn's diet. Soy can cause many health issues, but the one that is the most life-altering, is arguably it's tendency to cause premature puberty in girls.

Why do you think this country is seeing girls reach puberty at progressively younger and younger ages? The problem coincides exactly with the period of time during which The American Soybean Association lobbyists managed to convince the government, the medical establishment, and subsequently the American public, that soybeans are not only safe to eat, but healthy. Nothing could be further from the truth.

I've been a farmer, or otherwise engaged in agriculture, all my life. I have experimented with growing soybeans in the past, (this was about 15 or 20 years ago, and I never actually sold any on a commercial production level). By personal experience, I can tell you that if you add something like 2% raw soybeans, to the ration fed to beef calves, you had better be extremely careful when you are anywhere around them, because without warning, at any moment, they may spray you with liquid manure, from over 20 feet away. I kid you not. The lectins in soy beans cause the beans to be very toxic, in the raw state. Cooked soybeans in the ration will usually not have such a dramatic effect, but they still have to be used carefully in a ration, for various reasons. They are suitable for animal feed, (in a feedlot setting, primarily), but I don't consider them to be suitable for human consumption.

I'm not the only one who feels this way, obviously, and here are a couple of references that I suggest you read. The first one is rather long, but it offers a very good discussion about the problems with allowing children to eat soybeans, and I highly recommend that you read it thoroughly, as soon as you have the time. This is a well-documented article, from the May/June, 2004 issue of Mothering magazine, and it contains 111 references, (you can click on a link at the end of the article to see the references). I can post links to many other articles about the risks of letting kids eat products that contain soybeans, if you want to see more evidence.

http://www.mothering.com/articles/growi ... story.html

http://ww.westonaprice.org/soy/teensbeforetime.html

The article at the following link describes an experiment with feeding the soy isoflavone, genistein, (which is suspected to be the component in soy infant formulas that may cause the problem), to baby hamsters, (since it would be unthinkable to do this experiment with human babies):

http://www.lehigh.edu/~inbios/schneider/soy.htm

That article is by Jill E. Schneider, Ph. D., who is a faculty member at Lehigh University. If you would like to see a PDF of the actual research report, it can be found at:

http://www.lehigh.edu/~inbios/schneider ... oy.ppt.pdf

I find it to be interesting reading.

Tex

sunny · Post by **sunny** » Fri Sep 05, 2008 1:18 pm

Aw, shucks!!! That is a setback! I had one too!! urgghhh!!! Perhaps you can tell Camryn that Gramma Sunny had an "oopsie" too...... Right in the middle of Costoc....at the very back of the store......walking as fast as these old legs and a huge crowd would allow me....but I didn't make it.

I keep a food diary and just not sure what happened......I had been having blueberries for the past few days with no reaction, but perhaps 3 days in a row was too much.
Have you considered joining a celiac group? they have sections for moms with kids with gluten intolerances and you might get some more ideas on snack ideas and food plans???? www.celiac.com and click on forums....and give her a big hug from me!!!

Sara East · Post by **Sara East** » Fri Sep 05, 2008 2:51 pm

Sorry to hear about your accident in the store, I know how embarrassing it is to have one :) I've been lucky and not had one in public but I've had quite a few at night, in bed, next to my hubby. Luckily he's a very understanding guy and is also a Paramedic so he's sees gross stuff all the time. It's so embarrassing being a 30 year old married woman having accidents in bed! When I had the flu last year it was the worst, I had an accident almost every night.

Camryn'sMommy · Post by **Camryn'sMommy** » Fri Sep 05, 2008 10:13 pm

Thanks for the suggestions everyone. I will take the soy thing seriously. Tex, I'm going to show my husband what you said. I think he is going to agree 100% with you. My problem is this...what do I give her to drink if she can't have milk, soymilk or most juices? I think I said this in a previous post, but she won't drink plain water. I gave her the cranberry juice tonight (watered down 50%) and she really liked that. She called it orange juice and I was ok w/that! She loves OJ and I felt so bad taking away from her....if she thinks the cran is OJ, that is a good thing! Sorry to hear about everyone's accidents - it does not sound like a good time. I understand stomach pain - I've had it my whole life! (except during pregnancy and nursing!)

Good night! Oh, not sure if I posted this, but I ordered the enterolab tests. How long does it take for the test kits to come in?

Post by **tex** » Fri Sep 05, 2008 11:13 pm

How about one of Pacific Natural Foods' milk substitute drinks. They offer almond, hazelnut, and rice. Their ad does not state that they are soy-free, but if you click on the "nutrition info" links, you will see that they are indeed all soy-free. Pacific also makes some good, allergen-free soups.

http://www.pacificfoods.com/products-nut-grain.php

Or hempmilk, (to me, hempmilk tastes better than cow's milk - it's sweeter):

http://www.worldpantry.com/cgi-bin/ncom ... nbr=950031

Here are a bunch of recipes for making nut milk at home:

http://nomilk.com/nutmilks.txt

Don't forget to try Polly's 50-50 blend of Welchs 100% Grape Juice and club soda. Camryn might like that, also.

Tea works for most of us, and green tea, especially, seems to be soothing for the tummy, if you think she might like tea.

on ordering the Enterolab tests. To be honest, I don't recall how long it took for my test kit to arrive, (though I'm sure they send them out promptly), but I do remember that the frozen sample was picked up by DHL for overnight delivery, and I got the results back by e-mail in 10 days, (on a Sunday afternoon). Maybe someone else remembers how long it took to get their test kit.

G'night,
Tex

JLH · Post by **JLH** » Sat Sep 06, 2008 5:48 am

No, I don't remember how long it took for the kit to arrive but my results took almost three weeks. That is the time frame they had said.
I had the soy, yeast, eggs test done after the first panel and that took around two weeks.

Post by **tex** » Sat Sep 06, 2008 8:24 am

My tests were done over three years ago. As the word gets around, they're probably doing a lot more tests these days. Imagine how busy they'll be if the mainstream medical profession eventually wakes up and starts using this service.

Tex

Camryn'sMommy · Post by **Camryn'sMommy** » Sun Sep 07, 2008 9:47 pm

Camryn had a bad day today. She was doing good for the last 5 days or so (only going about twice a day). Today she went 5x's and the last one was really bad. It was down her leg and she was saying "I'm sorry Mommy" again. I hate this! She did eat a cherrio today - she found it on the car seat. Her brother must have dropped it.

How does the enterolab stuff work? I know they send me the collection supplies in the mail. Is the poop frozen or is it a smear stick type of thing?

Post by **tex** » Sun Sep 07, 2008 10:37 pm

Sorry to "hear" the bad news. As bad as it is, some cases are worse - some of us have as many as 15 to 30 episodes a day, during flares. I'm one of the "lucky" ones - I typically had from 5 to 7, though occasionally there were a few more, and on some days, less.

For the stool tests, you collect the sample in a special container, (they need a significant amount, not just a smidgen), seal it, and then freeze it, so that it will be frozen when it's picked up by the shipping company. If you ordered the gene test, for that test you merely rub a special sterile cotton swab on the inside of each cheek, (inside the mouth, IOW), allow it to dry, (being careful that it does not get contaminated with anything), and then place it inside the envelope which is provided for it.

Yep, Cheerios contain wheat starch. They also contain trisodium phosphate, which is a cleaning agent, stain remover, and degreaser, commonly used to prepare surfaces for painting. Why it's in there, I have no idea, but Cheerios evidently contains a significant amount of it, because it's listed as the 6th ingredient, out of a total of 17.

Thanks for the update.

Tex

kate_ce1995 · Post by **kate_ce1995** » Mon Sep 08, 2008 5:07 am

Cross contamination is one of the hardest! Especially with a child who isn't old enough to distiguish between gluten containing and not. Because she gets upset, maybe talk to her about how it might have been the cheerio and that when she sees them she must not eat them. Many of our member react from far less a dose of gluten.

Its also not unusal (at least for me) to have some good days, followed by back to bad, followed by good as the gut heals. Eventually the good days get more numerous and the bad less. I think you are on the right track with eliminating the soy milk at least for the time being. You can water down OJ too...my folks did that for my sister. Maybe some iced herb tea?

Katy

RUBYREDDOG · Post by **RUBYREDDOG** » Mon Sep 08, 2008 10:31 am

I did the Enterolab tests 3 months ago. It took 8 days for the kit to arrive. The instructions are very clear. Just follow them and you should receive your results in 3 weeks. Check on line and you can see the details of your account. Samples must be mailed on tuesday or wednesday am at the latest. THEY NEED TO GET THEM BY THURSDAY AT THE LATEST IN ORDER TO HAVE ENOUGH TIME TO PROPERLY STORE YOUR SAMPLES. This is all explained in their instructions. Good luck

Hotrod

Camryn'sMommy · Post by **Camryn'sMommy** » Mon Sep 08, 2008 2:53 pm

We got the enterolab supplies in the mail today. Now I just have to wait for her to go. I guess I'll send it out on Wednesday since it has to be frozen for 24 hours.

I can't believe that about Cheerios! My son Logan loves them. Maybe I'll get some at Whole Foods that don't have those chemicals in them. I'm sure there is another brand at Whole Foods.