My Enterolab results

[geargirl]

Hi All

After 2 full weeks of waiting I just received my Enterolab results. As I read it, and Tex I look forward to hearing what you have to say, I am Gluten, Soy, Chicken and Egg sensitive. It looks like I am borderline for Dairy. Does that mean that I can in deed have dairy? Like cows milk or cheese? What about Casein? I don't know where that fits in this equation??? Not even sure that I know what it is. Anyway, I am stunned to be honest. Please chime in.....I am so glad to know what has been causing the problems...but now my head is swimming. What in the world do I eat now?!?! I have been drinking and eating soy by the gallons! I have a lot of learning ahead of me. I can do it but for now...I am stunned and bummed.

A) Gluten Sensitivity Stool and Gene Panel Complete
Fecal Antigliadin IgA 26 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 17 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 10 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0202

HLA-DQB1 Molecular analysis, Allele 2 0602

Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6)

C) Egg, Yeast, and Soy Food Sensitivity Stool Panel
Fecal anti-ovalbumin (chicken egg) IgA antibody 15 Units (Normal Range <10 Units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 7 Units (Normal Range <10 Units)

Fecal Anti-Soy IgA 62 Units (Normal Range <10 Units)

Does this also mean that turkey is off the menu as well? I know that they are both poultry but not the same. Hmmm....maybe that is a question for Enterolabs.

Thanks for taking the time to take a look at my results. As surprised as I am by the results I am very glad to be in a day and age where we have such valuable knowledge vs playing the guessing game. Thank you Tex for your encouragement to have me get the testing done. I would have never guessed soy, chicken or egg to have been causing me any problems! I have a lot of research to do. Time to hit the books! I look forward to feeling good again. Something I have not felt in a long time. I am hoping I will once again have energy, less achiness and the brain fog will lift. Could it be possible?

Thanks again!
Geargirl

[tex]

Hi Geargirl,

You are quite correct about being gluten, soy, and egg sensitive, but that does not imply that you are sensitive to poultry meat. You should be able to eat virtually any meats, as long as they have not been injected with, or marinated in, a solution that contains gluten, soy, or eggs, (or milk).

Casein is the primary protein in milk, and therefore it is found in all dairy products. You can buy lactose-free dairy products, but you cannot buy casein-free dairy products. (Lactose is a sugar, casein is a protein). A test result of exactly 10 is a positive test result, unfortunately, so you are casein intolerant, also, and you will need to avoid all dairy products. I suppose the possibility exists that at some point in time, after your gut has had several years to heal completely, you might possibly be able to tolerate small amounts of dairy products, but I wouldn't count on it. In the meantime, you need to avoid all dairy products, in order to heal.

Your gene test results show the first allele to be "0202". Is it possible that you made a typo error there, and it should actually be "0201"? If so, that would be the most common celiac gene type, and the other is a gene that predisposes to non-celiac gluten sensitivity

Hopefully, once you eliminate all those food intolerances from your diet, all those miserable symptoms will soon be history. Thanks for posting your results.

Tex

P S Do you mind if I add your gene test results to our compiled list of gene molecular analysis results?

[JLH]

Some food companies to try are Ian's and Enjoy Life (ha!). Read the labels, though.

This is NOT fun.

[Dee]

Hi Geargirl!
Sorry that you have joined the ranks of the food intolerances.
You question, what can you you eat now??
It depends on what your diet consisted of before your test results.
You can have any meat, as Tex has stated and explained which ones to watch out for.
You can have vegetables and fruits, noting when shopping these items are located on the perimeters of the grocery stores.
You'll have to start reading food labels ,and thanks to the new food labeling laws , it does help people that have food allergies or intolerances.
If you have a Whole Foods or Health Food store nearby they carry items that are free of your now known intolerances.
There's a website called the allergygrocer.com and you can click on a box that will ask your different food intolerances and you click on the ones like gluten, dairy, soy, eggs and the website will bring up items that are free of those.
If you need help with anything, give us a HOLLAR!!!!!!

Dee~~

[Gloria]

Hi Geargirl,
My reaction to my Enterolab test results was exactly the same as yours. I was stunned and initially had a hard time accepting them. You can take some solace in the fact that your Quantitative Microscopic Fecal Fat Score indicates that you don't have any malabsorption problems. That's a very good thing and means that you are getting nutrition from the foods you are eating. Not everyone with MC can make that claim.

Your best bet is to bite the bullet and immediately eliminate all of the foods to which you are intolerant. In addition, you should begin keeping a food journal where you list everything that you eat each day and record the type and number of BMs you have each day. Hopefully, your symptoms will subside once you eliminate your intolerances. If they don't, then you either have additional intolerances that you need to discover, or you haven't totally eliminated your known intolerances.

The two most difficult products to eliminate completely are soy and corn. They are both used extensively as additives in prepared foods. For example, tuna packed in water is actually in a soy-based broth. You have to read the labels before you buy anything. You can find helpful suggestions on this site: http://www.perskyfarms.com/phpBB2/viewforum.php?f=6

The easiest way to avoid what we call "food landmines" is to eat meats, vegetables and fruits, as Dee wrote. I actually think that I'm eating better now than I was before I was diagnosed with MC because I'm not eating a lot of empty calories.

We are here to help you and certainly understand what you are feeling. Please don't hesitate to ask questions.

Gloria

[geargirl]

Thank you to everyone that took the time to respond to my results with valuable information and encouragement.

Tex, Thank you for the explanation of my results. I now understand the casein issue. You do a great job of explaining the information! Please feel free to use my test results for the gene molecular analysis. As far as the gene results are concerned I double checked and it is indeed "0202". I had actually just copied and pasted the results. So the "0202" means that I am predisposes to non-celiac gluten sensitivity is that correct? Since eggs are an issue can egg substitutes be used?

JLH & Dee, Thank you for the information on some places to shop. I actually started looking at the websites today. Since I am located in Austin, TX, home of Whole Foods I am a particularly lucky girl! I remember when Whole Foods was a small little store! I have and will continue to spend a lot of time and money there. lol.

Gloria, Thank you for the validation and knowing that I am not the only one that felt stunned and bummed with the results. I was relieved to hear that. I thought I was being a bit dramatic when the tears were rolling down while reading the results and realizing what they meant. I then felt guilty after feeling that way considering the fact that it is such a small thing in the big scheme of things. My son, a combat medic in the Army, was deployed to Afghanistan July 26th and compared to what he is going through, this is nothing. He joined after 9-11 to help make a difference. Sorry for the digression. Just a little info on what is going on and why I felt that way. All in all it will just take a little getting used to. A new way of thinking if you will. I am not a red meat eater but I am coming around to the notion that I might need to rethink my needs vs personal thoughts. After reading what you stated on how soy is one of the hardest to eliminate I went to the pantry and there in the "packed in water" tuna can was soy. Oh boy oh boy, do I have a lot of reading ahead of me. lol. The idea of keeping a food and elimination diary is an excellent idea. Right now my diary would read....rice and water. LOL. All kidding aside....great information.

Thanks again for all the good info. I feel so lucky to have found this site and to all of the good people that take the time to help others just like me. Keep up the good work. I have a feeling I will be asking more questions now that I know what is really going on inside of me!!! No more guess work!

Geargirl


PS Tex....I guess I don't need to eat those live roaches after all!

[tex]

So the "0202" means that I am predisposes to non-celiac gluten sensitivity is that correct? Since eggs are an issue can egg substitutes be used?

No, the "0202" allele will still be a celiac gene, but that doesn't mean that you will ever develop celiac sprue, it just means that it's possible for that to happen. It definitely will never happen, as long as you follow the GF diet. One way of looking at the gene issue is to consider the serologic equivalent for that allele. Its HLA-DQ 2 (Subtype 2), which is the most common celiac gene. The other known celiac gene allele is 0302, which has the serologic equivalent, HLA-DQ 3 (Subtype 8).

Yes, you can use any of the egg substitutes, so long as they don't contain any eggs, (actually, most of the commercial substitutes consist of mostly egg whites, so obviously they're not suitable for you), or any of your other intolerances. I noticed yesterday that Dee added a fairly substantial list of egg substitutes, and tips on using them, in Dee's Kitchen:

http://www.perskyfarms.com/phpBB2/viewforum.php?f=7

You're most welcome,

Tex

P S I have the utmost respect and admiration for your son - being a combat medic has to be one of the most challenging jobs in the world.