Well I'm still learning on the eating trying to get an appetite back to eat. I wanted to say hello and I welcome any advice or ideas on eating. Thanks for letting me join and giving me the support I'm gonna need.
Tami
New Member Here
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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tamijoy2000
- Adélie Penguin
- Posts: 67
- Joined: Wed Oct 01, 2008 12:17 am
- Location: JACKSONVILLE, FLORIDA
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New Member Here
Hello, everyone, how are you doing? Well I've been recently diagnosed with MC on the 12th of September. It been a rough September for me. I wind up losing bout 20lbs. I'm on Lialda and prednisone, lomotil and immodium. My dr up my prednisone last week which has greatly helped my diarrhea im down to maybe 1 or 2 or no bowel movements. Where it was 2 every hour.
Well I'm still learning on the eating trying to get an appetite back to eat. I wanted to say hello and I welcome any advice or ideas on eating. Thanks for letting me join and giving me the support I'm gonna need.
Tami
Well I'm still learning on the eating trying to get an appetite back to eat. I wanted to say hello and I welcome any advice or ideas on eating. Thanks for letting me join and giving me the support I'm gonna need.
Tami
Hi Tami,
Welcome aboard! Wow! Your doctor has you taking a lot of meds, but if you were having two BMs per hour, virtually all day long, you obviously have a lot of inflammation, so I can see his or her reason for going a bit overboard, to try to get it under control. The prednisone should work pretty fast, if it's going to, so you should soon be able to stop using the lomotil and immodium, (or at least cut way down on using them).
Until our gut has time to heal, we do best if we eat rather bland foods, with a minimum of fiber, and all vegetables and fruit should be well-cooked, (never eaten raw). After you have been in remission for a while, you will be better able to tolerate other food selections.
I assume that your GI doc intends for you to keep using the prednisone until you achieve remission, and become stabilized, and then you will taper off it, and use the Lialda as a maintenance treatment. If that doesn't work, you may find it necessary to eliminate some food items from your diet, in order to maintain remission, but it's too soon to tell whether that might be necessary, at this point.
I thought that prednisone usually stimulates most people's appetite, but maybe I'm thinking of something else. I hope you keep making good progress, and please don't hesitate to ask any questions that you might have.
Tex
Welcome aboard! Wow! Your doctor has you taking a lot of meds, but if you were having two BMs per hour, virtually all day long, you obviously have a lot of inflammation, so I can see his or her reason for going a bit overboard, to try to get it under control. The prednisone should work pretty fast, if it's going to, so you should soon be able to stop using the lomotil and immodium, (or at least cut way down on using them).
Until our gut has time to heal, we do best if we eat rather bland foods, with a minimum of fiber, and all vegetables and fruit should be well-cooked, (never eaten raw). After you have been in remission for a while, you will be better able to tolerate other food selections.
I assume that your GI doc intends for you to keep using the prednisone until you achieve remission, and become stabilized, and then you will taper off it, and use the Lialda as a maintenance treatment. If that doesn't work, you may find it necessary to eliminate some food items from your diet, in order to maintain remission, but it's too soon to tell whether that might be necessary, at this point.
I thought that prednisone usually stimulates most people's appetite, but maybe I'm thinking of something else. I hope you keep making good progress, and please don't hesitate to ask any questions that you might have.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Greetings and 
Tami~~~~
I thought the same as Tex---about the amount of *meds* ---yet if they help cant discount the dosages--
The PRED. really helped me but it didnt increase appetite----and while on the Pred. my GP had me walking every day----thankfully it was in the the nice weather---the walking was to keep all the vital organs *awake* as I put it---so that the pred. didnt close them down----as he put it!!!
U will get better------when U feel down---get over here
and just let it all out----no matter how small/big an issue is--
Barbara
Tami~~~~I thought the same as Tex---about the amount of *meds* ---yet if they help cant discount the dosages--
The PRED. really helped me but it didnt increase appetite----and while on the Pred. my GP had me walking every day----thankfully it was in the the nice weather---the walking was to keep all the vital organs *awake* as I put it---so that the pred. didnt close them down----as he put it!!!
U will get better------when U feel down---get over here
and just let it all out----no matter how small/big an issue is-- Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
Hi Tami,
I found this board less than a week ago, and already it has made such a difference in my life. I now feel that I have somewhere to turn, to people who know what they are talking about and have lived through it. And not only lived, but thrived. It's great to have people to ask questions of and people who know that I am not just crazy or stressed (although I probably am both of those, too
), but I actually have a legitimate issue in my colon!
Looking forward to "talking" to you.
Courtney
I found this board less than a week ago, and already it has made such a difference in my life. I now feel that I have somewhere to turn, to people who know what they are talking about and have lived through it. And not only lived, but thrived. It's great to have people to ask questions of and people who know that I am not just crazy or stressed (although I probably am both of those, too
), but I actually have a legitimate issue in my colon! Looking forward to "talking" to you.
Courtney
So happy you found us.The first step is to eliminate gluten from your diet.
Second step is to read as much as possible on this web site.
Third step is to read www.enterolab.com
(Is that OK FMs? KISS principle)
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Joan,
(Since you asked) - While there is nothing wrong with the plan that you outlined, (it's definitely effective), not everyone wants to adopt "the diet", because of the significant lifestyle changes that it imposes. Some choose meds, instead. Therefore, we prefer to let everyone decide for themselves which path they want to follow, to achieve remission, and we try to do our best to support them, regardless of how they choose to go about it. We are all different, and we each have to make our own decisions about what is best for us, based on our ideals, and our lifestyle.
Tex
(Since you asked) - While there is nothing wrong with the plan that you outlined, (it's definitely effective), not everyone wants to adopt "the diet", because of the significant lifestyle changes that it imposes. Some choose meds, instead. Therefore, we prefer to let everyone decide for themselves which path they want to follow, to achieve remission, and we try to do our best to support them, regardless of how they choose to go about it. We are all different, and we each have to make our own decisions about what is best for us, based on our ideals, and our lifestyle.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I did learn about going GF from this site (PP) first. I found it after trying to do due diligence on EL.
When I was talking to EL, the person there told me to go GF. I think she was surprised when I said I already was GF.
When I was talking to EL, the person there told me to go GF. I think she was surprised when I said I already was GF.
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
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tamijoy2000
- Adélie Penguin
- Posts: 67
- Joined: Wed Oct 01, 2008 12:17 am
- Location: JACKSONVILLE, FLORIDA
- Contact:
Thank you
Thank you for the warm welcome. I'm very happy I found this site I've found alot of interesting information on here.
I'm doing better my b.m are way down. I have to check in tomorrow with my dr to let him know bout that and start to be tapered off the pred. It has helped and I've been on pred. before cause I have asthma and it give you an appetite for sure but this time I had no appetite, but I think it slowly coming back now. I get really hungry at nite and especially late at nite. I try not to eat that late but sometime I do.
On the GF I am trying to some products that are GF just hard to find many and they are expensive. Oh the other day I did find some soda that made with pure sugar cane. I had saw that alot of you guys were drinking that and I found a few cans. It taste exactly the same. I was thinking it was gonna taste bad. Thanks for the recommendation
I'll be back later on today and write some more. I wanted to hop on and say thanks for the advice and recommendation. Glad that there are other people going thru this with me. I'm the only on in my family with this so it kinda hard when they don't understand alot bout it. Thanks again
Tami
I'm doing better my b.m are way down. I have to check in tomorrow with my dr to let him know bout that and start to be tapered off the pred. It has helped and I've been on pred. before cause I have asthma and it give you an appetite for sure but this time I had no appetite, but I think it slowly coming back now. I get really hungry at nite and especially late at nite. I try not to eat that late but sometime I do.
On the GF I am trying to some products that are GF just hard to find many and they are expensive. Oh the other day I did find some soda that made with pure sugar cane. I had saw that alot of you guys were drinking that and I found a few cans. It taste exactly the same. I was thinking it was gonna taste bad. Thanks for the recommendation
I'll be back later on today and write some more. I wanted to hop on and say thanks for the advice and recommendation. Glad that there are other people going thru this with me. I'm the only on in my family with this so it kinda hard when they don't understand alot bout it. Thanks again
Tami
Just wanted to welcome you to the board and encourage you to "hang in there". Sometimes it takes a lot of trial and experimentation to get a handle on this thing. I maintain with Asacol but not everyone responds well to it. I started out with Prednisone (don't want that again unless there is no choice) and then Entocort. Others have done meds in conjunction with diet and eventually go off the med. Something will work for you.... unfortunately, it may take some time.
My best wishes for you......
Shirley
My best wishes for you......
Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
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RUBYREDDOG
- Adélie Penguin
- Posts: 158
- Joined: Tue Jun 10, 2008 4:45 pm
- Location: Glendale, Ca.
Welcome Tami, I'm new as well (since June) I would just like to mirror the advice of others by BEING PATIENT. We all want this to just go away so we can resume our lives without being within sight of a bathroom 24/7. But it is going to take some time to heal your gut.
There is a lot to read on this site. As you navigate through, things will become clearer to you as to what approach you want to take toward remission. We are all different, but one thing for sure, we all have been where you are now.
For me, the emotional support here has been as valuable as the advice on treatments for this disease.
Good luck and ask a lot of questions.
Hotrod
There is a lot to read on this site. As you navigate through, things will become clearer to you as to what approach you want to take toward remission. We are all different, but one thing for sure, we all have been where you are now.
For me, the emotional support here has been as valuable as the advice on treatments for this disease.
Good luck and ask a lot of questions.
Hotrod