As I put on my pink breast cancer bracelet for BC awareness month, I thought about one for MC. I imagine it would be brown. I think I wouldn't be as brave as Ally and tell the world.
I couldn't believe that nobody commented on that brave young lady when I posted about her........
Awareness ribbons and bracelets
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Awareness ribbons and bracelets
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Joan,
Where is the post about Ally? I must have missed it.
I think I actually might wear a MC bracelet so I can tell people the hell that those of us who have it have to go through sometimes.
Every person that I've mentioned it so far just doesn't get it. They think it's IBS or spastic colon.
Sheesh!
Where is the post about Ally? I must have missed it.
I think I actually might wear a MC bracelet so I can tell people the hell that those of us who have it have to go through sometimes.
Every person that I've mentioned it so far just doesn't get it. They think it's IBS or spastic colon.
Sheesh!
The thread is titled
Ally's Law and another potty access card.
There is a PP site search icon at the top of the page, NOT the Google one. First is FAQ, then Rules and then the Search.
There is a PP site search icon at the top of the page, NOT the Google one. First is FAQ, then Rules and then the Search.
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
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Camryn'sMommy
- Adélie Penguin
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- Location: Langhorne, PA, USA
I wish there was something (like an allergy bracelet) that I could put on Camryn to tell people she can't eat gluten. When she goes to school it will be especially hard. Even her 1st dance class was hard when they passed out the dum dums. Of course every 2 year old would want one. Luckily they were gf, but still...I had to worry about it until I got home.
Mommy to Camryn - 8 years old - dx'd with LC 8/08
This company offers Medical Alert bracelets for kids, plus other options for kids who refuse to wear medical alert type bracelets, due to self-consciousness.
http://www.laurenshope.com/MedicalIDJew ... ldren.html
You can click on the "kids medical ID bracelets" link on that page, to see the bracelets designed for kids.
Tex
http://www.laurenshope.com/MedicalIDJew ... ldren.html
You can click on the "kids medical ID bracelets" link on that page, to see the bracelets designed for kids.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I just took a look at the post about Ally's Law and the Potty Access Card. I remember something similar happened to my brother when he was a toddler (that had to do with the fact that he was still being potty trained and not with IBD, but he would have been fine if the staff in the retail store had allowed my mom to take him to their restroom). My SIL is a retail store manager; maybe I'll run this by her at some point and see what she has to say. Sounds like great Thanksgiving conversation 
.
Anyway, my main point in posting is to comment on the fact that the card says that the person carrying it has "Crohn's or Ulcerative Colitis." There's no mention of MC. I think it's great that we can use the card, but terrible that there is so little recognition of the fact that MC even exists, much less of the fact that it's every bit as debilitating as Crohn's or UC. Guess I have "diagnosis envy."
It's unfortunate, too, that because MC can be--let's face it--kinda gross, many people (including me, although I try not to be) are uncomfortable talking about it. D is one thing, I guess, but most people are beyond understanding the fact that many times we can't "hold it." I have great admiration for Ally.
Courtney
.Anyway, my main point in posting is to comment on the fact that the card says that the person carrying it has "Crohn's or Ulcerative Colitis." There's no mention of MC. I think it's great that we can use the card, but terrible that there is so little recognition of the fact that MC even exists, much less of the fact that it's every bit as debilitating as Crohn's or UC. Guess I have "diagnosis envy."
It's unfortunate, too, that because MC can be--let's face it--kinda gross, many people (including me, although I try not to be) are uncomfortable talking about it. D is one thing, I guess, but most people are beyond understanding the fact that many times we can't "hold it." I have great admiration for Ally.
Courtney
Hypothyroid 05/05
LC/CC 07/08
Celiac 07/08
LC/CC 07/08
Celiac 07/08
There's probably no point in putting MC on that card, because if you tell someone you have MC, you get a blank stare. Right? If you tell them that you have "an inflammatory bowel disease", and add that "it's like Crohn's disease, or ulcerative colitis", you get their attention. Anyway, that's the way that I usually explain it. Those terms are much more effective than trying to explain to someone how an inflammation that is so "covert" that it takes a microscope to even see it, could be a serious problem. At least that's how I look at it.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Oh, yes, I quite agree, in terms of explaining what's going on to the general public, and I would use that strategy in explaining the situation. My point is that if MC is never mentioned at all, it will never get the attention we need for it to get. No one will ever have heard about it if no one ever says it. What I would like to see would be MC included in documents, etc, that list IBDs. Also, if MC is out there and people have heard of it, then people who have it might be more likely to be properly diagnosed. I looked at every website, search engine, etc, I could for five years, and MC never came up. It was always Chron's and UC (or IBS *sigh*). Now, having heard of it, when I use the terms "lymphocytic colitis" or "collagenous colitis" I at least get something, although not a lot. I guess my point is, it's hard to just stumble upon it, and if it got anywhere near the attention Chron's and UC get, it would not only benefit those of us who have been diagnosed but also those who should be.
Courtney
Courtney
Hypothyroid 05/05
LC/CC 07/08
Celiac 07/08
LC/CC 07/08
Celiac 07/08
Crohn's and Colitis Foundation (CCFA) told me it wasn't an IBD. This was from their VP for Research! They later said that was a mistake.
I sent them the link from the first site I Googled which was the IBD Center at Northwestern U.
"Microscopic Colitis
Microscopic colitis (MC) is a third type of IBD. There are two types of microscopic colitis: collagenous colitis and lymphocytic colitis, both of which can be treated with medications. Common symptoms of MC are abdominal pain and diarrhea, but visualization of the colon via colonoscopy shows no abnormal changes or inflammation. The physician takes biopsies of the colon, which are used to make the diagnosis of microscopic colitis. It is thought that MC may be associated with Celiac Sprue (gluten-sensitive enteropathy). "
I sent them the link from the first site I Googled which was the IBD Center at Northwestern U.
"Microscopic Colitis
Microscopic colitis (MC) is a third type of IBD. There are two types of microscopic colitis: collagenous colitis and lymphocytic colitis, both of which can be treated with medications. Common symptoms of MC are abdominal pain and diarrhea, but visualization of the colon via colonoscopy shows no abnormal changes or inflammation. The physician takes biopsies of the colon, which are used to make the diagnosis of microscopic colitis. It is thought that MC may be associated with Celiac Sprue (gluten-sensitive enteropathy). "
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Courtney,
Agreed. MC is treated as if it were the proverbial "red-haired stepchild" of the IBDs. Searching for info on MC on the net is pretty much like trying to diagnose it - if you don't know what you are looking for, you will never find it.
Tex
Agreed. MC is treated as if it were the proverbial "red-haired stepchild" of the IBDs. Searching for info on MC on the net is pretty much like trying to diagnose it - if you don't know what you are looking for, you will never find it.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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tamijoy2000
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http://www.myibd.org/RestroomMedAlert/index.html
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=7921
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=7921
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.