Jan,
Welcome to our on-line family. I hope you have your symptoms under control these days. Whether you do or not, please feel free to ask any questions that come to mind.
I notice that you're intolerant to oats - so am I. I have a hunch that not many people in this world actually know for sure whether or not they are intolerant to oats. Good for you. How in the world did you figure that out? It took me a lot of trial and error testing.
Again, welcome aboard - it's good to see you posting.
Tex
Checking in
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Tex,
When I was first diagnosed with LC there were a lot of things that I just couldn't eat. I did keep a food journal for over a year. I did the gluten stool test and it came back as potentially gluten sensitive. I just found that if I ate anything with oats (including Cherrios) that I got hit harder with the D. Earlier this year I did a series of blood tests for allergens. Oats came back very high on the sensitivity. The other was eggs (duh), pinto beans, lima beans and casins. Occasionally I will eat an egg but haven't seen the reaction that I do with oats.
I have been somewhat in remission for over a year. I have had to use both predisone and entrocort to get where I am. Most days I don't have formed stools but it isn't the watery, multi trips to the potty kind. My GI seems to think this is what I will live with cause they can't come up with anything else. I should have my next colonoscopy in about a year so we'll see if they find anything on the biospsy this time.
Jan
When I was first diagnosed with LC there were a lot of things that I just couldn't eat. I did keep a food journal for over a year. I did the gluten stool test and it came back as potentially gluten sensitive. I just found that if I ate anything with oats (including Cherrios) that I got hit harder with the D. Earlier this year I did a series of blood tests for allergens. Oats came back very high on the sensitivity. The other was eggs (duh), pinto beans, lima beans and casins. Occasionally I will eat an egg but haven't seen the reaction that I do with oats.
I have been somewhat in remission for over a year. I have had to use both predisone and entrocort to get where I am. Most days I don't have formed stools but it isn't the watery, multi trips to the potty kind. My GI seems to think this is what I will live with cause they can't come up with anything else. I should have my next colonoscopy in about a year so we'll see if they find anything on the biospsy this time.
Jan
Tex,
Though I haven't put oats on my intolerance list, I avoid them completely. DH put Laura's Oats, which are supposed to be gluten-free, in meat loaf a year ago and I had a pretty immediate reaction. I've been too afraid to test them since then.
Gloria
Though I haven't put oats on my intolerance list, I avoid them completely. DH put Laura's Oats, which are supposed to be gluten-free, in meat loaf a year ago and I had a pretty immediate reaction. I've been too afraid to test them since then.
Gloria
You never know what you can do until you have to do it.
Gloria,
I'd bet a GF cookie that you will probably remain intolerant to oats, though you may be less sensitive to it than you were before you finished the healing process. I believe that the sections of the amino acid chain for avenin are more similar to the corresponding sections in wheat gluten, than the relevant sections of the amino acid chains of casein or soy, but, of course, that doesn't guarantee that your immune system will "sort" them in that particular order. IOW, as always, YMMV. LOL. You're apparently much more sensitive to oats than I am.
Tex
I'd bet a GF cookie that you will probably remain intolerant to oats, though you may be less sensitive to it than you were before you finished the healing process. I believe that the sections of the amino acid chain for avenin are more similar to the corresponding sections in wheat gluten, than the relevant sections of the amino acid chains of casein or soy, but, of course, that doesn't guarantee that your immune system will "sort" them in that particular order. IOW, as always, YMMV. LOL. You're apparently much more sensitive to oats than I am.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Jan,
You may be more sensitive to oats than I am. I did a "pure oat" challenge a little less than two years ago, and I had to eat them for a few weeks, before noticing any type of reaction. Of course, I only ate them for breakfast, twice a week. I continued to eat them, (twice a week), for a total of six weeks, at which point the D set in, and became chronic, so I stopped the challenge. It took about six more weeks, for the D to go away, after that.
That was the first time that I had eaten oats, since my symptoms began, so it may have taken a while for my body to build up a sufficient level of antibodies to trigger a reaction. Now that I am "sensitized" to oats, whenever I eat them, they thoroughly flush out my system, beginning about 5 or 6 hours after I eat them, (consequently, I avoid oats completely, now).
I notice you didn't list gluten, (or wheat), with your intolerances. Are you not sensitive to wheat gluten? Are you maintaining your remission by diet, Entocort, or a combination?
Sorry to be so nosy, but we try to learn as much as we can about this disease around here, and the best source of information, is those who have the disease.
Thanks,
Tex
You may be more sensitive to oats than I am. I did a "pure oat" challenge a little less than two years ago, and I had to eat them for a few weeks, before noticing any type of reaction. Of course, I only ate them for breakfast, twice a week. I continued to eat them, (twice a week), for a total of six weeks, at which point the D set in, and became chronic, so I stopped the challenge. It took about six more weeks, for the D to go away, after that.
That was the first time that I had eaten oats, since my symptoms began, so it may have taken a while for my body to build up a sufficient level of antibodies to trigger a reaction. Now that I am "sensitized" to oats, whenever I eat them, they thoroughly flush out my system, beginning about 5 or 6 hours after I eat them, (consequently, I avoid oats completely, now).
I notice you didn't list gluten, (or wheat), with your intolerances. Are you not sensitive to wheat gluten? Are you maintaining your remission by diet, Entocort, or a combination?
Sorry to be so nosy, but we try to learn as much as we can about this disease around here, and the best source of information, is those who have the disease.
Thanks,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex,
I don't mind you being nosy. I totally understand. I kind of hung in the background for quite a while before I joined. Here are the answers to some of your questions.
I don't seem to have problems with wheat, not like with oats. I don't tend to eat much wheat but when I do I don't get a reaction. Right now I'm maintaining myself with diet alone. My last flare was May '07 and was due to overindulgence of popcorn and stress. I went back on Entocort for about 3 months and haven't had any since.
During this three year journey I found I am allergic to sulfa drugs so this rules out Asacol and Colazol. Boy did they both make me sicker than I already was. I can handle the predisone but sure hate to use it. With the cost of insurance co-payments for non-generic drugs that may have to be my choice if I flare again.
Since I quit smoking last year and have been also dealing with the loss of my Mom last year to cancer I have tended to overindulge with food (and put the weight on). I've been working with a dietian but seem to spend a lot of time also educating her on what I can and cannot eat. I still have problems with raw or slightly cooked veggies. If I cook them very well done I don't have any problems. I also have problems with most raw fruit. Occasionally I'll indulge in a fresh apple but know that I have to keep the Immodium close at hand. I found your comment about spinach to be an interesting one (on one of your previous posts). I love it but can't eat it in any shape or form.
I have also been following the input on Vit. D. In some blood tests that I had earlier this year the Dr. said the "norms" the labs put on the report are way low. He told me to start taking it even though I do get sun. When I was at the rheumatologists last week there was an article in Arthritis Today that said a lot of back pain could be coming from loss of bone in the spine and that Vit. D helps. I guess I'll continue to keep taking it.
I have been having a lot of muscle and joint issues these last few years. I know they say that most immuno issues aren't heriditary but my Mom had scleroderma and lupus and my Dad had several arthritis. I go back to the rheumatologist next week. I'm a new patient so there was lots of blood and x-rays. It will be good to get the results. I know everytime they do a SED rate that mine is up.
Well, I feel like I've almost told you my whole life story. Thanks for letting me share.
Jan
I don't mind you being nosy. I totally understand. I kind of hung in the background for quite a while before I joined. Here are the answers to some of your questions.
I don't seem to have problems with wheat, not like with oats. I don't tend to eat much wheat but when I do I don't get a reaction. Right now I'm maintaining myself with diet alone. My last flare was May '07 and was due to overindulgence of popcorn and stress. I went back on Entocort for about 3 months and haven't had any since.
During this three year journey I found I am allergic to sulfa drugs so this rules out Asacol and Colazol. Boy did they both make me sicker than I already was. I can handle the predisone but sure hate to use it. With the cost of insurance co-payments for non-generic drugs that may have to be my choice if I flare again.
Since I quit smoking last year and have been also dealing with the loss of my Mom last year to cancer I have tended to overindulge with food (and put the weight on). I've been working with a dietian but seem to spend a lot of time also educating her on what I can and cannot eat. I still have problems with raw or slightly cooked veggies. If I cook them very well done I don't have any problems. I also have problems with most raw fruit. Occasionally I'll indulge in a fresh apple but know that I have to keep the Immodium close at hand. I found your comment about spinach to be an interesting one (on one of your previous posts). I love it but can't eat it in any shape or form.
I have also been following the input on Vit. D. In some blood tests that I had earlier this year the Dr. said the "norms" the labs put on the report are way low. He told me to start taking it even though I do get sun. When I was at the rheumatologists last week there was an article in Arthritis Today that said a lot of back pain could be coming from loss of bone in the spine and that Vit. D helps. I guess I'll continue to keep taking it.
I have been having a lot of muscle and joint issues these last few years. I know they say that most immuno issues aren't heriditary but my Mom had scleroderma and lupus and my Dad had several arthritis. I go back to the rheumatologist next week. I'm a new patient so there was lots of blood and x-rays. It will be good to get the results. I know everytime they do a SED rate that mine is up.
Well, I feel like I've almost told you my whole life story. Thanks for letting me share.
Jan
Jan,
Welcome to the group and thank you for posting! You've provided a lot of helpful information to those of us who are still struggling. It's interesting that you still can't eat raw veggies or fruit even though it's been a year and a half since you had your last flare. It makes me realize that I need to be patient in introducing fresh foods back into my diet.
Gloria
Welcome to the group and thank you for posting! You've provided a lot of helpful information to those of us who are still struggling. It's interesting that you still can't eat raw veggies or fruit even though it's been a year and a half since you had your last flare. It makes me realize that I need to be patient in introducing fresh foods back into my diet.
Gloria
You never know what you can do until you have to do it.
Jan,
A few other members have problems with sulfa drugs in general, and a few more may be allergic to them, because they react to Asacol.
Labs that use obsolete ranges for tests, really bug me, because most doctors won't question the lab data. The lab my doctor uses, for example, uses an obsolete range for TSH values, (I have hypothyroidism), and he trusts their range values, even though I know that the American Association of Clinical Endocrinologists recommended a major revision of that range over five years ago.
My arthritis hasn't been nearly as active since I've been on the diet, so I've never been to a rheumatologist - I'm putting it off as long as I can. I don't know why my doc even bothers to check my sed rate, because whenever he does, it's always up, but he just shrugs, and blames it on pollen in the air, or some other "allergy". LOL.
I believe that's probably correct about back pain, bone loss, and vitamin D. A few years ago, I was never concerned about vitamin D, here in the South, but the more I learn about it, the more I think we probably need more of it. After all, the paleolithic people probably didn't wear near as much clothing as we normally do, on the average, and they were out in the sun virtually every day, hunting, and foraging for food.
Thanks for the information, and the insight.
Tex
A few other members have problems with sulfa drugs in general, and a few more may be allergic to them, because they react to Asacol.
Labs that use obsolete ranges for tests, really bug me, because most doctors won't question the lab data. The lab my doctor uses, for example, uses an obsolete range for TSH values, (I have hypothyroidism), and he trusts their range values, even though I know that the American Association of Clinical Endocrinologists recommended a major revision of that range over five years ago.
My arthritis hasn't been nearly as active since I've been on the diet, so I've never been to a rheumatologist - I'm putting it off as long as I can. I don't know why my doc even bothers to check my sed rate, because whenever he does, it's always up, but he just shrugs, and blames it on pollen in the air, or some other "allergy". LOL.
I believe that's probably correct about back pain, bone loss, and vitamin D. A few years ago, I was never concerned about vitamin D, here in the South, but the more I learn about it, the more I think we probably need more of it. After all, the paleolithic people probably didn't wear near as much clothing as we normally do, on the average, and they were out in the sun virtually every day, hunting, and foraging for food.
Thanks for the information, and the insight.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.