Alleryg to Entocort

Discussions on the details of treatment programs using either diet, medications, or a combination of the two, can take place here.

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shekoe
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Alleryg to Entocort

Post by shekoe »

I was diagnosed with mc 2 yrs. ago. Was able to control flare ups with Pepto Bismol until three weeks ago. Started Entocort(9 mg.) Tuesday. Thursday broke out in itchy rash. Started taking Benedryl and stopped the Entocort. Itching and rash have improved. Has anyone else had this reaction? Thanks.
JLH
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Post by JLH »

:welcome:

No, I am trying to control my symptoms by diet alone. I am gluten, soy and casein free. Other PP have had bad reactions.

I gave up Pepto Bismol fairly recently.
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
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tex
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Post by tex »

Hi, and welcome to the group. Yes, a fair number of members have had some sort of adverse reaction to Entecort. Some develop neurological symptoms, and a few have developed a rash, or some other allergic symptom. Statistically, something like 60 to 65 % of patients are helped by Entocort, and even though it's one of the safest "effective" treatments available for MC, unfortunately, as with all meds, a few of us fall victim to it's side effects.

I haven't had any personal experience with Entocort, but a lot of members here have used it, or are using it now.

Have you tried any of the 5-ASA meds? Some of us have been helped by them. They include Asacol, Pentasa, Colazal, Rowasa, Lialda, etc.

Again, welcome aboard.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
shekoe
Little Blue Penguin
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Location: Charleston, SC

Entocort allergy

Post by shekoe »

Thanks for the welcome and helpful info. Will discuss alternative medications with my M.D. Ironically, I was getting a positive response to the Entocort but the itching was maddening and, having had other allergic reactions in the past, I knew I needed to stop the drug.
G'ma Mary
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Post by G'ma Mary »

Welcome to the Board!!!

I have never taken meds to treat my MC, but am controlled now by diet alone. It took several months for relief without meds (Entocort was not available back when I was diagnosed), and at times I find myself jealous of those who can use meds to control symptoms while they work on it with diet. Anyway, what I'm trying to say is that it is possible to control symptoms wthout the benefit of meds. On the other hand, some people find great relief from meds.

Also, a word about the use of Pepto. My GI did suggest that when I was first diagnosed, and I got some relief with it, though not as good as I have now with diet alone. My GI told me I could use it basically "forever", but I discovered from this Board that it is a heavy metal and if we take too much we can have toxic side effects. Apparently, that doesn't happen to everyone, but I didn't want to risk it at all. I contacted my GI with information I got from this Board and he said he wasn't familar with toxic problems. He contacted other GI's and called me back and instructed me to stop taking it. The large dose recommended for MC should only be taken for 8 weeks. The heavy metal remains in the system, so going off it for a time and trying it again is not safe. If you have questions about this, please feel free to ask us. Lots of others here are more familar with this issue than I am.

Again, welcome aboard and please feel free to ask any questions you have, or come to vent or share at any time you like.

G'ma Mary
Those who are not part of the solution, are part of the problem.
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