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Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Dee
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New Members!!

Post by Dee »

:wave: Hi & :welcome:
Deb, Leslie & Teresa!
Happy that you have found us and don't hesitate to ask questions...
So happy to have found my online family a few years ago and now we have added 3 more since I've been on vacation...



Dee~~~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
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Littlekicker
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Post by Littlekicker »

Good morning Dee,
Thanks for the warm welcome!!!
I would not be in remission now if it were not for you and all the others here; I've been skulking around the website for 3+ months...
I'm still feeling a little hesitant to post but I'm sure I will come around.
Have a Great Day!!!
LOL,
Leslie
JLH
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Post by JLH »

Post away. :twisted: We aren't scary.........
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
Dee
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Post by Dee »

Leslie,
No need to be hesitant about posting here kiddo!
Just remember! We have all walked in your shoes pertaining to MC..
There is nothing that can't be discussed here and we're all pulling for you!!!



Dee~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
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Littlekicker
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Post by Littlekicker »

Thanks, Joan & Dee!!
Dee, I see that you are in Ohio; are you a "Buckeye"? Also, wanted to know if you GI is informative regarding MC; I believe it would be worth the drive. Mine is completely worthless. I'm removing him from my health loop except to get the Entocort. :wink:
LOL,
Leslie
Dee
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Post by Dee »

Yep!! I sure am a "Buckeye" but it's to bad that those Texans outsmarted us in the Bowl game minutes before the final!! LOL!!!
Sadly, I don't have a good GI either. I'm maybe with him in his office 5 minutes and that's to get my prescription refilled. He's always been like, "This is what you have and sends you on your way.
I did get to inform his new, female, nurse practitioner in during my appt. in September and gave her this website & Dr. Fines. She definitely wasn't ahead of my game.....
Where are you located in Ohio??
I'm in North Canton.

Dee~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
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Littlekicker
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Post by Littlekicker »

Dee,
I'm just north of Columbus.
I had printed out Dr. Fine's website and tried to give it to my GI in the hopes that he would ok the tests; he glanced at it, rolled his eyes (for the 2nd time during this appt) and threw it down. So much for trying!!!
LOL,
Leslie
Dee
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Post by Dee »

My GI reacted the same way when I tried to show him my results from Dr. Fine's testing.
He wanted no part of it!!!
North of Columbus??
Hmmmmmm!
I would think that there would be some good GI's in the Columbus area.
Let me do some researching for you & I'll see what I come up with.

Dee~~~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
Dee
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Post by Dee »

Do a Google search on the Ohio State Medical Center.
There are links that will provide you with GI doctor's .
You can usually then type in a doctor's name and alot of times you can bring up information about them.


Dee~~~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
JLH
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Post by JLH »

Silly me, I'm hoping that my doc will someday get around to looking at Dr. Fine's web sites. I'm going to work on it very slowly. If her other MC patient responds to a GF diet maybe it will happen.

Is Dr. Fine the originator of the GF diet for MC?

We lived in Columbus (Whitehall) when DH was in grad school at OSU. I graduated from there, too.
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
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tex
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Post by tex »

Joan,

Good question. Polly probably knows the answer to that one. There was an MC newsletter that dates back to 1995, where some of our members shared information, but I'm not sure if they discovered that the GF diet worked, or if they got that information from Dr. Fine, in 2001. IOW, Judy Malinowski's MC/CC Club newsletter was sharing information about the diet in 2001, but I'm not sure if Dr. Fine was promoting the diet along with the Pepto treatment at that point, or if he added the diet to his plan later.

I'm just a "new kid on the block", in the MC game - I joined Sally's old board on July 5, 2004, as I recall. I had already been on the GF diet for almost two years, at that point, and had achieved remission about six months prior to joining that board. I'm guessing that Dr. Fine discovered gluten-sensitivity early on, during his research, and he originally proposed the GF diet, as part of the Pepto treatment.

http://www.colitis.malinowski.com/

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
JLH
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Post by JLH »

Thanks, Tex.

You mean it could take me another year to get to remission? :shock:
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
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tex
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Post by tex »

Joan wrote:You mean it could take me another year to get to remission? :shock:
I hope not. I was a bad patient, because I wasn't very patient. :lol: I kept testing myself almost every couple of weeks, with either corn or dairy products, to see if I was over my intolerance to them. Remember, that was before I had ever met anyone in this group, so I didn't really know how to go about it - it was learn-as-you-go, for me. By constantly "challenging" myself, naturally, I never gave the inflammation an opportunity to completely fade away. It finally dawned on me that this approach wasn't working, so I stopped eating everything but meat, potatoes, rice, and a couple of well-cooked veggies, and in a few weeks, I was in Shangri-la. :grin:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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MaggieRedwings
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Post by MaggieRedwings »

Morning Joan,

I am sure Tex was not a bad patient on the GF diet. LOL

It could take longer but if you stick with it, you will be successful. It has been a very long road for me but then again, I am multiply intolerant to a good number of foods so it has been harder. Right now, I think that being off of all meds, I might be seeing light at the end of the tunnel. I am so hoping so.

Love, Maggie
Maggie Scarpone
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JLH
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Post by JLH »

Wow, you sure are Maggie, makes me look like I have nothing to complain about at all.......I'm glad you are doing better.

The only thing I test are the Enjoy Life chocolate chips. LOL
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
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