Hi,
Recently diagnosed with Lymphocytic Colitis and IBS. Since I like to ready, does anyone have suggestions for books on the topic of treatment and prevention, and how to cope with these illnesses?
Rhonda
Books on Lymphocytic Colitis and IBS
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Rhonda, we are very happy that you found us. We are here to offer as much information and support as you would like. We suggest you read as much as you can on this very site as well as at Dr. Fine's site www.enterolab.com It is all very overwhelming at first.
Ask any questions you may have. I promise you that you will see light at the end of the tunnel even though I'm sure you think I must be crazy.
As our guru, Tex, says,"You can get your life back."
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Hi Rhonda,
Welcome to our internet family. To be honest, I'm not aware of any books that correctly and accurately address LC, (and/or IBS, for that matter, though there has been a lot written about IBS). The problem lies in the fact that the mainstream medical community is almost totally clueless about how to properly treat LC, in order to actually achieve lasting remission.
You can forget about the IBS diagnosis, because if you control your LC symptoms, your IBS symptoms will disappear, also. Technically, you cannot have IBS and LC concurrently, because IBS is, (by definition), a default diagnosis that doctors have chosen to name the situation where they don't have the foggiest idea what's wrong with a patient. If, after going through all the tests, no other disease can be diagnosed, then the default diagnosis is IBS. Many doctors, however, in a foolish attempt to save face after making an incorrect diagnosis, still insist that a patient has IBS, after another disease has been diagnosed. That's simply
, IMO. After biopsy samples are taken and examined, in almost every case, IBS suddenly turns into MC, (Microscopic Colitis).
Like the medical community, the internet is also full of misinformation about MC, (including LC and CC), and much of it is posted by some of the most prestigious medical institutions in the world. The problem hinges on the fact the most doctors incorrectly fail to recognize that gluten sensitivity can occur without the presence of fully-developed celiac disease, so they insist that food intolerances have nothing to do with MC, or any of the other Inflammatory Bowel Disease, (IBD), for that matter. Well duh, the sole purpose of the digestive system is to process food, and if any of that food causes an intolerance reaction, then the digestive system is in trouble, and it "throws a fit". As simple as that concept is, most GI docs still don't understand it, though a few are beginning to see the light.
The bottom line is, if you want to spend a bunch of time and money on treatments that don't work, simply follow what the medical community generally recommends for treating LC. If you want to actually control your LC symptoms, and get your life back, and save all your money, then read all the information forums on this site, and read the discussion forums, and note all the success stories. And, please ask any questions that come to mind. We don't sell anything here, but we do help people get their lives back, after the medical community fails them.
No one truly understands MC unless they have it, and we have accumulated the largest database of valid information about MC, in the world, by sharing our experiences here, and by determining what works, and what doesn't work. Our members are slowly re-educating their GI docs, by demonstrating to them how they have achieved remission, by ignoring the advice that their doctors gave them, and by acting on the information that they learned here.
Again, welcome to the board, and good luck on your journey back to health.
Tex (Wayne)
Welcome to our internet family. To be honest, I'm not aware of any books that correctly and accurately address LC, (and/or IBS, for that matter, though there has been a lot written about IBS). The problem lies in the fact that the mainstream medical community is almost totally clueless about how to properly treat LC, in order to actually achieve lasting remission.
You can forget about the IBS diagnosis, because if you control your LC symptoms, your IBS symptoms will disappear, also. Technically, you cannot have IBS and LC concurrently, because IBS is, (by definition), a default diagnosis that doctors have chosen to name the situation where they don't have the foggiest idea what's wrong with a patient. If, after going through all the tests, no other disease can be diagnosed, then the default diagnosis is IBS. Many doctors, however, in a foolish attempt to save face after making an incorrect diagnosis, still insist that a patient has IBS, after another disease has been diagnosed. That's simply
, IMO. After biopsy samples are taken and examined, in almost every case, IBS suddenly turns into MC, (Microscopic Colitis).Like the medical community, the internet is also full of misinformation about MC, (including LC and CC), and much of it is posted by some of the most prestigious medical institutions in the world. The problem hinges on the fact the most doctors incorrectly fail to recognize that gluten sensitivity can occur without the presence of fully-developed celiac disease, so they insist that food intolerances have nothing to do with MC, or any of the other Inflammatory Bowel Disease, (IBD), for that matter. Well duh, the sole purpose of the digestive system is to process food, and if any of that food causes an intolerance reaction, then the digestive system is in trouble, and it "throws a fit". As simple as that concept is, most GI docs still don't understand it, though a few are beginning to see the light.
The bottom line is, if you want to spend a bunch of time and money on treatments that don't work, simply follow what the medical community generally recommends for treating LC. If you want to actually control your LC symptoms, and get your life back, and save all your money, then read all the information forums on this site, and read the discussion forums, and note all the success stories. And, please ask any questions that come to mind. We don't sell anything here, but we do help people get their lives back, after the medical community fails them.
No one truly understands MC unless they have it, and we have accumulated the largest database of valid information about MC, in the world, by sharing our experiences here, and by determining what works, and what doesn't work. Our members are slowly re-educating their GI docs, by demonstrating to them how they have achieved remission, by ignoring the advice that their doctors gave them, and by acting on the information that they learned here.
Again, welcome to the board, and good luck on your journey back to health.
Tex (Wayne)
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Rhonda, and welcome.
There are quite a few books on IBS, but please beware of them if you have MC. As Tex mentioned, it's really quite impossible to have both at the same time, and I bet your doc was just trying to save face. The reason I say to beware of IBS books, is bc the recommended high-fiber treatment for IBS will almost certainly make your MC worse. (I read some of these books after being diagnosed several times with IBS, and I can tell you they're a waste of time if you have MC. The best thing you can read is this site, and it's better than a book bc you can actually have discussions and ask questions!
Welcome again!
Courtney
There are quite a few books on IBS, but please beware of them if you have MC. As Tex mentioned, it's really quite impossible to have both at the same time, and I bet your doc was just trying to save face. The reason I say to beware of IBS books, is bc the recommended high-fiber treatment for IBS will almost certainly make your MC worse. (I read some of these books after being diagnosed several times with IBS, and I can tell you they're a waste of time if you have MC. The best thing you can read is this site, and it's better than a book bc you can actually have discussions and ask questions!
Welcome again!
Courtney
Hypothyroid 05/05
LC/CC 07/08
Celiac 07/08
LC/CC 07/08
Celiac 07/08