How Do I Know if I'm Multiply Intolerant?

Discuss issues related to multiple intolerances here.

Moderators: Rosie, JFR, Dee, xet, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh, mbeezie

Post Reply
Polly
Moderator
Moderator
Posts: 5185
Joined: Wed May 25, 2005 3:34 am
Location: Maryland

How Do I Know if I'm Multiply Intolerant?

Post by Polly »

Good question, right?

Here are possible answers:

1. Remission does not occur after eliminating gluten or gluten/dairy for a reasonable amount of time. It is difficult to define "reasonable" since it varies from person to person - it's related to how much damage the gut has already sustained and factors like whether or not medication is also being used and how quickly one is able to completely eliminate gluten from the diet. Usually it takes at least some months to see success after eliminating gluten or gluten/dairy.

2. Problems (diarrhea, bloating, fatigue, etc.) recur after a period of time of successful GF or GF/DF dieting. We have found that it is possible to develop new intolerances over time.

3. You have a "double DQ" gene pattern, like "double DQ1" (that's mine!). I found this out through Dr.Fine's genetic tesing. Apparently those with this pattern are much more likely to have multiple intolerances.

Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
JLH
King Penguin
King Penguin
Posts: 4282
Joined: Tue Jun 17, 2008 9:34 pm

Post by JLH »

Is an MI considered to be over one (gluten) intolerance or over the top three (gluten, casein, and soy)?
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
Polly
Moderator
Moderator
Posts: 5185
Joined: Wed May 25, 2005 3:34 am
Location: Maryland

Post by Polly »

Hiya Joan!

Good question! I don't think we ever actually defined this. We coined the phrase "multiply intolerant" so I guess it's OK to further define it.

Strictly speaking, does multiple mean more than one? Or two? Does anyone know the definition of multiple? If it means more than one, then anything other than gluten would be M.I.

Practically speaking. we could divide between gluten and dairy and everything else, since GF/DF so often seem to go together. That would mean 3 or more for M.I.

What do y'all think?

Love,

Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

According to Webster, the definition of "multiple" is:
consisting of, having, or involving several or many individuals, parts, elements, relations, etc.; manifold
The definition of "several" is:
being more than two but fewer than many in number or kind
Thus, having three or more intolerances would be "multiply-intolerant", just as Polly suggested.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
Courtney
Gentoo Penguin
Gentoo Penguin
Posts: 298
Joined: Fri Sep 26, 2008 5:06 pm

Post by Courtney »

I would say it makes sense to consider anything past the main 2 (Gluten and Dairy/Casein) to be MI. Practically, there are a lot of recipes, cookbooks, etc, out there for GF/CF, and it's a lot easier to find convenience foods that don't include those. Add anything else into the mix, though, and it becomes much more difficult.

Just my 2 cents.

Courtney
Hypothyroid 05/05
LC/CC 07/08
Celiac 07/08
Nancy
Adélie Penguin
Adélie Penguin
Posts: 131
Joined: Tue Jun 07, 2011 11:35 am

Post by Nancy »

Does your test result say "Double DQ1"? My test result says HLA-DQ 2,3 (Subtype 2,7)
User avatar
TooManyHats
Rockhopper Penguin
Rockhopper Penguin
Posts: 550
Joined: Fri Jan 14, 2011 9:30 pm
Location: New Jersey

Post by TooManyHats »

Personally, I would consider multiply intolerant to mean anything more than gluten, dairy, and soy.

When I was first told to avoid all 3 of those I was horrified thinking how could I possibly eat??? Now? I think that would be a breeze.
Arlene

Progress, not perfection. :devilangel:
User avatar
Gloria
King Penguin
King Penguin
Posts: 4767
Joined: Sat Jul 07, 2007 8:19 am
Location: Illinois

Post by Gloria »

Arlene,

:iagree:

Gloria
You never know what you can do until you have to do it.
User avatar
tex
Site Admin
Site Admin
Posts: 35070
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Nancy,

A double DQ1 test result would appear this way:

Serologic equivalent: HLA-DQ 1,1 (Subtype X,X)

You can review Polly's results, and results for many of us in the listing at this link:

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10084

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
polly890
Posts: 6
Joined: Fri Oct 28, 2011 8:58 pm

Post by polly890 »

I completely agree with Courtney. I'm allergic to gluten, corn and rice. So many gluten-free foods contain corn and rice as a substitute. That's my definition of multiply intolerant and it makes purchasing pre-made or packaged food quite difficult. At least it cuts down on the processed foods that I eat and forces me to eat very naturally, which, of course, keeps me healthier and limits what I have to use in my HSA.
Post Reply

Return to “Discussions About Multiple Intolerances And Treatment By Dietary Changes”