I seem to tolerate only chicken, turkey, fish and buckwheat cereal. I tried millet yesterday and boy was that a mistake! I wonder if millet flour would do the same as the whole millet. I would love to make Cristi's muffins but I don't know what I would use in place of the banana. I'll have to ask Dee that one. I am down to 99.5 Lbs. Seems my dh and I have some achy virus. We ache all over and have a headache. This hasn't been a great day! Lots of Tylenol. I don't feel I am getting enough good nutrition; I just don't tolerate any veg or fruit. All this meat has got to be hard on one's system. I do eat chicken thighs so it does have some fat, but I am tiring of all the meat. I used to eat lots of fruits and vegetables and I miss them! I am even suspicious of what I am eating because I don't have solid BMs or even semi solid. If I stay on these 4 things I feel I am just constipating myself and then when I go it is liquidy. So it does slow down things quite a bit to eat this way. Still have mucus.
I am considering (at my dh's urging) taking Entocort again. I was never on this restricted a diet when I took it before. It helped some. No s/e. Maybe I would be able to tolerate a few veggies with it? I am so concerned about my nutrition.
Pat
Struggling
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Pat!
I agree with you that you aren't getting anything but protein in your diet and you do need to add some more food items.
If you didn't experience any side effects while on the Entocort, my suggestion is for you to go back on it, starting with the initial, 3- 3mgs in the am.
Then slowly try some vegetables that you cook until soft. Same with some fruits.
I'm not familiar with the muffins that you'd like to make, so post the recipe and I'll help you out with it.
You have me concerned as far as your diet and weight.
Love
Dee~~
I agree with you that you aren't getting anything but protein in your diet and you do need to add some more food items.
If you didn't experience any side effects while on the Entocort, my suggestion is for you to go back on it, starting with the initial, 3- 3mgs in the am.
Then slowly try some vegetables that you cook until soft. Same with some fruits.
I'm not familiar with the muffins that you'd like to make, so post the recipe and I'll help you out with it.
You have me concerned as far as your diet and weight.
Love
Dee~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
Pat,
Sorry you're having such a bad day. I thought all those miserable viruses had finally left Texas.
If you didn't notice any side effects from the Entocort before, then it certainly might be worth a try, along with your current diet. At the very least, as you say, it might allow you to add a few items back into your diet, to help with your weight, especially since Entocort has a reputation for causing weight gain, anyway. I see you even have potatoes and rice listed as intolerances. That really does narrow the possibilities. Are avocados off limits also? And things like cauliflower and eggplant? Are you avoiding eggs, and things like corn, just to be on the safe side, or do you suspect them to be a problem?
Tex
Sorry you're having such a bad day. I thought all those miserable viruses had finally left Texas.
If you didn't notice any side effects from the Entocort before, then it certainly might be worth a try, along with your current diet. At the very least, as you say, it might allow you to add a few items back into your diet, to help with your weight, especially since Entocort has a reputation for causing weight gain, anyway. I see you even have potatoes and rice listed as intolerances. That really does narrow the possibilities. Are avocados off limits also? And things like cauliflower and eggplant? Are you avoiding eggs, and things like corn, just to be on the safe side, or do you suspect them to be a problem?
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Pat,
I'm so sorry that you're losing weight.
I'm not eating a wide variety of vegetables: broccoli, asparagus, cauliflower, potatoes and beets, all cooked thoroughly, but at least it's somewhat of a change each day. Your diet sounds pretty restricted.
I believe that buckwheat is actually considered a fruit, so you can consider that you're eating at least one fruit!
Small consolation, I know.
I use buckwheat flour quite a bit in my cooking, but it must be blended with other flours. I see that rice and potatoes are out. Can you tolerate tapioca flour or cornstarch? Can you eat coconut? You probably can't eat tomatoes because they have fructose.
If your insurance pays for Entocort (I seem to remember that it doesn't), you should probably go back on it. I think we sometimes underestimate the effect Entocort has on our gut. You might find that you'll do better on it with such a restricted diet. Now that I'm off of it completely, I can't slip up at all. I had D yesterday and don't know if it was due to the new coconut yogurt or the ham I had for Easter. But at least I'm able to narrow down the problem to a few foods now. I truly hope you can reach that point soon.
Gloria
I'm so sorry that you're losing weight.
I'm not eating a wide variety of vegetables: broccoli, asparagus, cauliflower, potatoes and beets, all cooked thoroughly, but at least it's somewhat of a change each day. Your diet sounds pretty restricted.I believe that buckwheat is actually considered a fruit, so you can consider that you're eating at least one fruit!
Small consolation, I know.I use buckwheat flour quite a bit in my cooking, but it must be blended with other flours. I see that rice and potatoes are out. Can you tolerate tapioca flour or cornstarch? Can you eat coconut? You probably can't eat tomatoes because they have fructose.
If your insurance pays for Entocort (I seem to remember that it doesn't), you should probably go back on it. I think we sometimes underestimate the effect Entocort has on our gut. You might find that you'll do better on it with such a restricted diet. Now that I'm off of it completely, I can't slip up at all. I had D yesterday and don't know if it was due to the new coconut yogurt or the ham I had for Easter. But at least I'm able to narrow down the problem to a few foods now. I truly hope you can reach that point soon.
Gloria
You never know what you can do until you have to do it.
Tex,
All those things are suspect.
Dee,
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=9098 Here is the recipe. Maybe you know of another without eggs, fruit, or veg. Thanks.
Pat
All those things are suspect.
Dee,
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=9098 Here is the recipe. Maybe you know of another without eggs, fruit, or veg. Thanks.
Pat
Pat,
I just made this muffin recipe with blueberries and no topping, but I don't see why it wouldn't taste fine without fruit:
http://www.perskyfarms.com/phpBB2/viewt ... ht=muffins
I don't know if you have your own blend of GF flour. I'm finding that I can experiment a little bit with the blends that I use and they seem to still work fine.
Ener-G egg replacer does have potato starch or flour as an ingredient, though. I don't know what you are using as an egg substitute.
Gloria
I just made this muffin recipe with blueberries and no topping, but I don't see why it wouldn't taste fine without fruit:
http://www.perskyfarms.com/phpBB2/viewt ... ht=muffins
I don't know if you have your own blend of GF flour. I'm finding that I can experiment a little bit with the blends that I use and they seem to still work fine.
Ener-G egg replacer does have potato starch or flour as an ingredient, though. I don't know what you are using as an egg substitute.
Gloria
You never know what you can do until you have to do it.
-
MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Hi Pat,
I think you have probably the most restricted diet out of all of us. I do not tolerate millet in any form so not sure the flour would work for you. My guess is that the entocort would be fine for you to start again and I am pretty sure it would enable you to add in at least some more variety. All that protein seems to be a real blocker for me.
Love, Maggie
I think you have probably the most restricted diet out of all of us. I do not tolerate millet in any form so not sure the flour would work for you. My guess is that the entocort would be fine for you to start again and I am pretty sure it would enable you to add in at least some more variety. All that protein seems to be a real blocker for me.
Love, Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
___________________
Resident Birder - I live to bird and enjoy life!
Pat,
I am so sorry to hear you are struggling so badly. If the Entocort did not bother you than I would really consider going back on it. I can't take that stuff at all, but please don't suffer any longer. At least you would be able to add some things back in your diet and hopefully gain some weight.
Love,
Rose
I am so sorry to hear you are struggling so badly. If the Entocort did not bother you than I would really consider going back on it. I can't take that stuff at all, but please don't suffer any longer. At least you would be able to add some things back in your diet and hopefully gain some weight.
Love,
Rose
Thanks to all for your help.
Tex, sorry for the short answer. I was in a hurry. My son is here with his crew. While he is waiting for dental school to start in Aug. he is cutting down dead trees on our property for my FIL, BIL, and DH. He sells some for firewood or barbeque wood and he does other odd jobs for income. The guys stay here 2-3 -4 nights a week and of course mom cooks for them. It is work but also fun to be around my son.
I seem to have reacted to zuchinni, cauliflower, green beans, brocolli, carrots, onions, all other squashes, brussel sprouts, and asparagus. BTW I love all of the above except maybe green beans. I have always been a big advocate of vegetables and fruits. It's killing me to not eat them, but right now I will do anything it takes to get this MC under control and I'd rather do it without drugs. Have tried the drugs and the best help I got was with Imuran and Entocort at the same time but I was eating most everything except fruit. Wasn't normal by any means but tolerable. I do admit on this present diet I do not get up in the night except to urinate. The volume is much less; used to be a quart. Just not solid. My concern on this diet is my weight and nutrition. I've always been a thin person. Even when pregnant I only gained 25 lbs with each pregnancy. I tried to gain more but I just don't gain easily. It's just as frustrating to be too thin as too heavy, just a different problem.
Thanks again, I don't know what I would do without each of you!
Pat
Tex, sorry for the short answer. I was in a hurry. My son is here with his crew. While he is waiting for dental school to start in Aug. he is cutting down dead trees on our property for my FIL, BIL, and DH. He sells some for firewood or barbeque wood and he does other odd jobs for income. The guys stay here 2-3 -4 nights a week and of course mom cooks for them. It is work but also fun to be around my son.
I seem to have reacted to zuchinni, cauliflower, green beans, brocolli, carrots, onions, all other squashes, brussel sprouts, and asparagus. BTW I love all of the above except maybe green beans. I have always been a big advocate of vegetables and fruits. It's killing me to not eat them, but right now I will do anything it takes to get this MC under control and I'd rather do it without drugs. Have tried the drugs and the best help I got was with Imuran and Entocort at the same time but I was eating most everything except fruit. Wasn't normal by any means but tolerable. I do admit on this present diet I do not get up in the night except to urinate. The volume is much less; used to be a quart. Just not solid. My concern on this diet is my weight and nutrition. I've always been a thin person. Even when pregnant I only gained 25 lbs with each pregnancy. I tried to gain more but I just don't gain easily. It's just as frustrating to be too thin as too heavy, just a different problem.
Thanks again, I don't know what I would do without each of you!
Pat