Hi Lucy!
Well, it's a long story ! I think Maggie was on the board first, beat me by a few days - huh, Maggie? Also CAMary was there a little before me. Of course, Sally was there!
My story: My first bout with MC ended with a spontaneous remission
after a colonoscopy. My doctor told me I had MC, but didn't elaborate and I didn't ask any questions since I was into remission. I thought MC meant a small virus of some sort - hahah - dumb me. Thought that was the end.
8 months later - remission over and then I found out what MC REALLY meant! Tried asacol, rubinal forte (something like that - Maggie tried it too), they didn't work. Doctor was about to try Prednisone - no way! I read about Dr. Fine and called him for a phone conference. He recommended the Pepto treatment and that worked! It took the full 8 weeks but I went into remission. It was gradual. I had 2 phone conferences with Dr. Fine. My GI didn't seem to know much about the disease and he is one of the top GI's in the city. It was very frustrating, to say the least.
Dr. Fine also recommended testing for gluten intolerance because he felt that I wouldn't stay in remission if I was gluten sensitive. Had the test - positive for gs and intestinal damage from gluten.
Started the gf diet in September, 2001. That's when I joined Sally's board. I've been very strict with the diet and feel great. No set-backs at all! Now gf is second nature and just a part of who I am. I'm proud to have gained new skills -like cooking - (haha) as a result.
I'm thrilled to say the least. It was difficult in the beginning, but Sally, Mary, Maggie and others kept me sane! I owe the world to them.
I don't want this reply to get too long, so I'll stop - feel free to ask questions.
Love,
Alice
Alice's story
Personal experiences with diet as a means of controling the symptoms of Microscopic Colitis and related issues, should be posted here.
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