Hello, I am a 24-year-old Spanish girl, do not speak very well English for what I write the messages with a translator. I sit(feel) the possible mistakes.
They diagnosed theirs microscopic colitis a time ago, I have tried colestiramina, entocord, mesalazina and another medicine without obtaining results.
Also I did diet without gluten for 6 months even having everything negative and do not improve anything, I am driven to despair, need your help, doctors do not give me any solution and I every day am worse. All do diet without gluten?
what do you think about this?
you should me explain what is " enterolab" and how contact them?
thank you!
help me please
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hola Bea and 
You will be interested to know that one of our active members here is Tessa, who lives in Spain. She is fluent in English and also has had the tests through Enterolab. I know she will be delighted to help you. I will send her an email to let her know you are here.
Many found that 6 mo. is not long enough on the gluten free diet. For me, it took almost 9 mo. and for some it took a year or longer. Other intolerances are also common with MC. Dairy (casein) and soy especially. These may also have to be eliminated in order to attain remission.
Also, most of us have had a negative blood test for celiac diasease, but we still have significant sensitivity to gluten. The tests at Enterolab can tell you if you have sensitivity to gluten, dairy, soy, eggs, etc.......even if the blood test you already had was negative. You can find Enterolab at www.finerhealth.com.
It's wonderful to meet you, and don't worry, I am certain that you will find a way to regain your health as most here have.
Love,
Polly
You will be interested to know that one of our active members here is Tessa, who lives in Spain. She is fluent in English and also has had the tests through Enterolab. I know she will be delighted to help you. I will send her an email to let her know you are here.
Many found that 6 mo. is not long enough on the gluten free diet. For me, it took almost 9 mo. and for some it took a year or longer. Other intolerances are also common with MC. Dairy (casein) and soy especially. These may also have to be eliminated in order to attain remission.
Also, most of us have had a negative blood test for celiac diasease, but we still have significant sensitivity to gluten. The tests at Enterolab can tell you if you have sensitivity to gluten, dairy, soy, eggs, etc.......even if the blood test you already had was negative. You can find Enterolab at www.finerhealth.com.
It's wonderful to meet you, and don't worry, I am certain that you will find a way to regain your health as most here have.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Thank you Polly for your response.
With the diet gluten free did not improve anything, and I believe that the corn does not sit me well, it is possible?
The soybean that is not good for me.
Do you believe then that people have microscopic colitis are celiacos?
could you say me what is Tessa mail?
now you have any treatment?
love
With the diet gluten free did not improve anything, and I believe that the corn does not sit me well, it is possible?
The soybean that is not good for me.
Do you believe then that people have microscopic colitis are celiacos?
could you say me what is Tessa mail?
now you have any treatment?
love
Hola Bea!
At the top of this page, click on the message board. You can send a personal message to Tessa. Just type in Tessa for "user name". You can write in Spanish to her.
You may have many intolerances to food, like me. I cannot eat corn or soy either. No, many people with MC are not celiacs (that is because the usual blood test for celiac disease is negative for most of us). But we can still be extremely sensitive to gluten. We call it "gluten sensitivity" instead of celiac disease. And most doctors don't even know about this!
I have never taken any medication and have been in remission for 9 years now by diet alone. But it took me almost 9 mo. for the diarrhea to stop. Now some take Entocort and start the diet at the same time. Then, they stop the Entocort after at least 6 mo, and then can do diet alone.
Love,
Polly
At the top of this page, click on the message board. You can send a personal message to Tessa. Just type in Tessa for "user name". You can write in Spanish to her.
You may have many intolerances to food, like me. I cannot eat corn or soy either. No, many people with MC are not celiacs (that is because the usual blood test for celiac disease is negative for most of us). But we can still be extremely sensitive to gluten. We call it "gluten sensitivity" instead of celiac disease. And most doctors don't even know about this!
I have never taken any medication and have been in remission for 9 years now by diet alone. But it took me almost 9 mo. for the diarrhea to stop. Now some take Entocort and start the diet at the same time. Then, they stop the Entocort after at least 6 mo, and then can do diet alone.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Yes, my diet is strict like a celiac. I do NOT eat gluten. Also, I have found that I cannot eat corn, soy, yeast, eggs, or any dairy (milk, cheese, yogurt, ice cream) either. If I avoid ALL of these, I have no diarrhea.
By the way, you are doing just fine with your English! I understand everything you have said.
By the way, you are doing just fine with your English! I understand everything you have said.
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hola Bea,
As Polly wrote, it takes longer than 6 months, (muchas veces, requiere mas tiempo de seis meses), for the gluten-free diet to be productive. Tambien, no coma ningunos productos lácteos, soja, o maize.
Estoy enviando usted un e-mail con un otro e-mail address for Tessa, cuál puede ser mas bueno, por ella.
Tex
As Polly wrote, it takes longer than 6 months, (muchas veces, requiere mas tiempo de seis meses), for the gluten-free diet to be productive. Tambien, no coma ningunos productos lácteos, soja, o maize.
Estoy enviando usted un e-mail con un otro e-mail address for Tessa, cuál puede ser mas bueno, por ella.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
hola tex!
Do you diet gluten free too??
and, how old are you?? I read that patients with colithis microscophic are 60 years old, but I have got 24 years old!
some doctors in spain, say me that colithis microscophic it´s the same that IBS.
I was 6 months gluten free, in february I return to eat gluten, and i´m similar. During those 6 months diet for me was very difficult, because ( i don´t know in USA) but in spain a lot of products contain gluten, and more important it´s than in the restaurants, bars, coffes...there are posibilities to pollution wiht gluten.
You care to posible pollution with gluten¿ for mi it´s very hard
and the last cuestion! jejeje, how do you know you are intolerant something?
do you understand??? ( my english it´s horrible,For five years that I it do not study), This pathology there was teaching me Englis.
love
Do you diet gluten free too??
and, how old are you?? I read that patients with colithis microscophic are 60 years old, but I have got 24 years old!
some doctors in spain, say me that colithis microscophic it´s the same that IBS.
I was 6 months gluten free, in february I return to eat gluten, and i´m similar. During those 6 months diet for me was very difficult, because ( i don´t know in USA) but in spain a lot of products contain gluten, and more important it´s than in the restaurants, bars, coffes...there are posibilities to pollution wiht gluten.
You care to posible pollution with gluten¿ for mi it´s very hard
and the last cuestion! jejeje, how do you know you are intolerant something?
do you understand??? ( my english it´s horrible,For five years that I it do not study), This pathology there was teaching me Englis.
love
Welcome, Bea.
You have already gotten some good answers to many of your questions, but I think I can help on the age question. I am 27 years old now, but I was diagnosed last summer when I was 26, and I have had symptoms since I was 21. Like you, I was worried when all of the information on the internet said that microscopic colitis is a disease of elderly women. I think that is just because more biopsies and other tests are run routinely on older people, so doctors miss a lot in younger people and wrongly assume that we don't have MC. There are members here of all ages--one as young as 3 (her mother is a member).
Your English is fine--I can understand all that you're saying. I understand how you feel about spending so much time studying, though, and then not using the language enough. I have a minor in French from college, but I really struggle with it, now.
Courtney
You have already gotten some good answers to many of your questions, but I think I can help on the age question. I am 27 years old now, but I was diagnosed last summer when I was 26, and I have had symptoms since I was 21. Like you, I was worried when all of the information on the internet said that microscopic colitis is a disease of elderly women. I think that is just because more biopsies and other tests are run routinely on older people, so doctors miss a lot in younger people and wrongly assume that we don't have MC. There are members here of all ages--one as young as 3 (her mother is a member).
Your English is fine--I can understand all that you're saying. I understand how you feel about spending so much time studying, though, and then not using the language enough. I have a minor in French from college, but I really struggle with it, now.
Courtney
Hypothyroid 05/05
LC/CC 07/08
Celiac 07/08
LC/CC 07/08
Celiac 07/08
Welcome, Bea,
So sorry this is happening to you. I was told for 7 years that I had IBS, but then correctly diagnosed with MC. I may have both. Going on the gluten free diet is very difficult no matter where you live. It is very difficult to eat out, almost impossible, but some of the restaurants here in the US have a gluten free menu. Keep reading and keep trying and keep asking questions; No questions are too silly!
Pat
So sorry this is happening to you. I was told for 7 years that I had IBS, but then correctly diagnosed with MC. I may have both. Going on the gluten free diet is very difficult no matter where you live. It is very difficult to eat out, almost impossible, but some of the restaurants here in the US have a gluten free menu. Keep reading and keep trying and keep asking questions; No questions are too silly!
Pat
Hola Bea,
Yes, I have been using the gluten free diet for almost 7 years. I have been free of symptoms for 5 years.
I was in my 50s when my symptoms started. I am 67 now. We have members of all ages. As Courtney said, our youngest member of this board is 3, but she was only 2 years old when diagnosed, (ella tiene solo dos años), but she is doing very well, ahora. Many members are in their 20s, like you.
Microscopic colitis, (MC), is not the same as IBS. IBS is not an inflammatory bowel disease. MC is an inflammatory bowel disease, in the same group as Crohn's disease, and ulcerative colitis.
Yes, it is very difficult to avoid gluten in the USA also, so it is very hard to follow the diet, and it is expensive. It is also difficult to avoid all dairy product ingredients, and even more difficult to avoid soy. Soy is in many, many products.
Eating in restaurants is very risky, so most of us do our own cooking at home, and we do not use processed, (manufactured), foods, unless we are very sure that they are safe. We eat very simply. We buy plain meat, fish, or poultry, and a few basic vegetables, and cook them all very well. After our intestines have sufficient time to heal, (a year or more), sometimes we can begin to add foods to our diet, again, (but we never eat gluten again - nunca).
If we eat anything that we are intolerant of, we have diarrhea, aches, pains, gas, bloating, headaches, and sometimes we cannot think clearly. Many of us have sent stool samples to Enterolab, in Dallas, Texas, for testing of food intolerances, but I do not know if they can send a test kit to Spain. I could find out, if you are interested in trying to do that.
Si, comprendo. Your Englis is much better than my Español. Please continue to ask questions, and we will try to help in any way we can.
Love,
Tex
Yes, I have been using the gluten free diet for almost 7 years. I have been free of symptoms for 5 years.
I was in my 50s when my symptoms started. I am 67 now. We have members of all ages. As Courtney said, our youngest member of this board is 3, but she was only 2 years old when diagnosed, (ella tiene solo dos años), but she is doing very well, ahora. Many members are in their 20s, like you.
Microscopic colitis, (MC), is not the same as IBS. IBS is not an inflammatory bowel disease. MC is an inflammatory bowel disease, in the same group as Crohn's disease, and ulcerative colitis.
Yes, it is very difficult to avoid gluten in the USA also, so it is very hard to follow the diet, and it is expensive. It is also difficult to avoid all dairy product ingredients, and even more difficult to avoid soy. Soy is in many, many products.
Eating in restaurants is very risky, so most of us do our own cooking at home, and we do not use processed, (manufactured), foods, unless we are very sure that they are safe. We eat very simply. We buy plain meat, fish, or poultry, and a few basic vegetables, and cook them all very well. After our intestines have sufficient time to heal, (a year or more), sometimes we can begin to add foods to our diet, again, (but we never eat gluten again - nunca).
If we eat anything that we are intolerant of, we have diarrhea, aches, pains, gas, bloating, headaches, and sometimes we cannot think clearly. Many of us have sent stool samples to Enterolab, in Dallas, Texas, for testing of food intolerances, but I do not know if they can send a test kit to Spain. I could find out, if you are interested in trying to do that.
Si, comprendo. Your Englis is much better than my Español. Please continue to ask questions, and we will try to help in any way we can.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
thank you all, you are very kind.
i have got genetic results, but i think that my doctor do not know to interpret.
this is my genetic results, know someone translate?
Locus HLA- DRB1
Locus HLA- DRB3
Locus HLA- DRB4
Locus HLA- DRB5
Locus HLA- DQA1- DQA1* 0301 DQA1*0303
Locus HLA- DQB1- DQ8 ( 3) DQB1* 0302
Locus HLA- DPB1
i have got genetic results, but i think that my doctor do not know to interpret.
this is my genetic results, know someone translate?
Locus HLA- DRB1
Locus HLA- DRB3
Locus HLA- DRB4
Locus HLA- DRB5
Locus HLA- DQA1- DQA1* 0301 DQA1*0303
Locus HLA- DQB1- DQ8 ( 3) DQB1* 0302
Locus HLA- DPB1
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Greetings from me also BEA~~~~
U are doing just fine---with your english---
I was not diagnosed properly by first GI---spent many years miserable---but changed GI's and received the help I needed to get me back in shape--
I was very lucky because I didnt suffer as others have---so I didnt have to watch my foods---just lactose but that is no longer a problem for me either---
So happy U found us-----and dont get discouraged--everything will sort out--it takes time but U can get to a better way of living--
Barbara
U are doing just fine---with your english---
I was not diagnosed properly by first GI---spent many years miserable---but changed GI's and received the help I needed to get me back in shape--
I was very lucky because I didnt suffer as others have---so I didnt have to watch my foods---just lactose but that is no longer a problem for me either---
So happy U found us-----and dont get discouraged--everything will sort out--it takes time but U can get to a better way of living--
Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control