help me please

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tex
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Post by tex »

Bea,

I am not a DNA expert, but I believe that the first allele, (HLA- DQA1- DQA1* 0301 DQA1*0303), refers to a gene that predisposes you to gluten intolerance.

The second allele, (HLA- DQB1- DQ8 ( 3) DQB1* 0302), refers to the second most common gene that predisposes to celiac disease.

In other words, your serologic equivalent is HLA-DQ 3,3 (subtype 7,8).

If anyone disagrees with my interpretation, please don't hesitate to correct me.

If I have interpreted your genetic test results correctly, then you are the only member here to have double DQ3 genes.

We have other members with double DQ1 genes, and some members with double DQ2 genes. The significance of this is that people with double DQ genes have many more food intolerances, and it is much more difficult for them to achieve remission, (control their symptoms). For example, Polly and Gloria both have double DQ1 genes. Look at the long list of food intolerances listed under their avatars, to the left of their posts. They are both in remission, by diet alone, but it was very difficult for them to achieve remission, due to their genes. It took Polly a year, and it took Gloria almost two years. I see that you have already figured out that in North America, we call maize, corn.

This is very important information, so if you need help translating what I have written in this post, please let me know, and I will try to translate it, or perhaps Tessa could help you to understand what I have written.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gloria
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Post by Gloria »

Hola Bea,
Estudié español hace cuarenta años para que yo podría llegar a ser profesora de Español. He cambiado mi mente y se convirtió en profesor de matemáticas en lugar. Estoy utilizando un sitio de la traducción porque me ha olvidado tanto español. Espero que usted pueda entender lo que escribo. Su Inglés es comprensible.

También no como gluten, productos lácteos, soja, huevos y legumbres. Cuando eliminé el gluten, nada ha cambiado porque también tengo muchas otras intolerancias a los alimentos. Entocort me ayudó. Ahora, gestionar mi MC con la dieta sola y nunca comer ninguno de mis intolerancias.

Creo que Tessa ha escrito que hay tiendas de comestibles en España que venden alimentos sin gluten. Como otros han escrito, la soja se encuentra en muchos alimentos y es más difícil de evitar. Maíz, en forma de jarabe de fructosa, también es muy difícil de evitar en los alimentos procesados.

Espero que usted será capaz de leer el post en este sitio web. Si no, puede intentar ir a Google, como yo lo he hecho, y copiar y pegar las palabras en función de la traducción (en el marco del vínculo más ..).

Gloria
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bea
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Post by bea »

thank you very much everyone for responding.

Tex: So do you think i have intolerance? as could be sure? I don´t know where to go for say me

Enterolab is reliable? I have told my parents and not very sure (of course since here is so long and unsafe) with enterolab tell me what foods I am intolerant? what cost and finally the evidence?

tex as you told me you would appreciate if you could tell me if they can send me the test to Spain?

thanks!! love
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Post by Polly »

Bea,

I know that Tessa ordered Dr. Fine's tests from Spain. So hopefully it is still possible to do this.

Enterolab is completely reliable and is certifed by all appropriate federal and state agenices. I can't recall any member here ever being unhappy with Enterolab, and MANY have ordered the tests over the years.

Love,

Polly
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tex
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Post by tex »

Bea,

Yes, based on your symptoms, and your genes, it is very likely that you have at least several food intolerances.

Yes, as Polly said, Enterolab is very reliable. They test for specific foods. In other words, each test is for only one food. They have tests for gluten, casein, (dairy), soy, egg, yeast, and they also have a test for malabsorption, (which is a fecal fat test), and they have tests to determine if you are having an autoimmune reaction. The cost for each test is 99 USD, (though one or two tests cost more or less). 99 USD would be about 75 EUR, for each test. They also offer combinations of tests, at reduced prices, such as egg, yeast, and soy, for 199 USD, (150.60 EUR), total, for all three tests.

If you purchase some tests, they will ship you a test kit, with instructions, and after you collect the sample, you will need to freeze it, and ship it by overnight delivery, through the carrier that they specify. Shipment can only be made on certain days, so that they receive it in time to process it before the weekend. All that information will be in the instructions. After they receive the sample, they will e-mail you the test results in about 2 weeks. In this country, the shipments are made by DHL. I believe that DHL delivery service is also available in Spain.

I have e-mailed Enterolab about sending a test kit to Spain, and hopefully, I will hear from them soon, so that I can relay the information to you.

By the way, Polly is a doctor. She was one of the first people in the world, to discover that MC can be controlled by diet. She has MC, like the rest of us, and we are very fortunate that she is willing to share information with us. She is a wonderful friend.

Love,
Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Tessa
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Post by Tessa »

Hi my friends, hola Bea

Just wanted to say that Bea and myself are in touch by e-mail since yesterday (and very active e-mail)... :smile:
I will try to help her with everything I can...

Tex you have provided excellent genetic information. You always surprise me. :yourock:

As I mentioned to Bea, you are all very helpfull (as always) :bigbighug:
and she can also count on you.

Love,
Tessa

Translation for BEA:
Hola amigos, hola Bea

Sólo quería decir que Bea y yo estamos en contacto por correo electrónico desde ayer (y un correo muy activo)
Intentaré ayudarle en cuanto pueda...

Tex, le has facilitado una información genética excelente. Siempre me sorprendes.

Como le dije a Bea, todos estáis siempre dispuestos a ayudar (como siempre)

Y también puede contar con vosotros.
Con cariño,
Tessa :smile:
DX Secondary Adrenal Insufficiency= Panhypopituitarism,POTS & MC. Anaphylactic reaction to foods & some drugs.
Gluten & Dairy free diet+hydrocortisone, Florinef, Sea Salt, Vit B Complex, Potassium, Sodium, Magnesium...
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tex
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Post by tex »

Thank you Tessa,

for helping Bea, (and for your kind words).

I hope you are feeling well, dear friend, and your health is improving.

Love,
Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
bea
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Post by bea »

hi!! yesterday I was whit the doctor, he said me that he dind´t think that I´m celiac, but I have low iron in all my test and my gene are positive ,he told me that I will make a gastroscopy tomorow. I think that gastroscopy is will negative.

about colitis he said me that is a colitis unspecific, and nobody knows the cause. I told him about this forum and most people whit colithis microscopic do diet gluten free. but he wasn´t sure.

He told me too, that perhaps in the future could be devolepd in ulcerative colitis! but I have read that this is not so.


thanks again, you are being very helpful.
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tex
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Post by tex »

Hola Bea,

40% to 90% of adults who have celiac disease, have low iron, due to malabsorption of nutrients.

Colitis linfocítica has many causes, including certain medications such as NSAIDs, PPIs, SSRIs, stopping smoking, parasites, bacterial infections, influenza, untreated celiac disease, etc. Some doctors have difficulty understanding that, because they think that a disease should have only one cause.

You are correct, you do not have to worry about developing ulcerative colitis. Your risk of developing UC is no more than the average person on the street. It is true that a few people with MC have developed UC later, but those people continued to eat gluten, which means that their inflammation was not completely controlled. If you control your inflammation, then your risk of developing UC later is extremely low, (almost zero).

You are very welcome. Good luck with the gastroscopy tomorrow.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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