Hi all,
Just a short update on my Entocort experience.
I started taking it 13 days ago. After just 4 days, I started to have formed bm's and that has continued so far. (9 days in a row) Yeaaa!!!!
I can't believe it worked so fast. I am considering reducing to 2 pills a day. (6 mg) but I will probably wait another week before I try that.
I have noticed three things. First, my transit time has changed. Instead of bm's at 6 and 9 a.m., they are coming at 6 a.m. and 3 p.m. They are about the diameter of a dime. (lately some are slightly larger) and the color has changed from my usual dark brown to a lighter brown. Has anyone else experienced this while taking Entocort?
Of coarse the best part is I have no apparent side effects as I did while on Prednisone.
I can't believe I resisted taking this drug for so long. (11 months) What a dummy. I do believe, as others have stated, that diet is the most important factor in achieving remission, but, for some of us drugs can be an huge help in controlling the symptoms of MC.
Well, so far so good. I still have a long road to travel before reaching remission but its really nice to go a full week without d. I have not done that for 18 months.
Hotrod
Entocort...........I like it
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RUBYREDDOG
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Congratulations!
Of course, the reason why it worked so quickly, is almost certainly because you have already been following the diet for so long, that it didn't take much additional inflammation control to tip the balance, and get you into "Remission Land". As I often say, "all is fair in love and war, and bringing MC under control".
I can't offer any insight into your question, since I've never taken Entocort, but as promptly as it brought improvement, there's a very good chance that you're correct in thinking that you may be able to reduce the dosage very soon - at least, I would have the same thoughts, if I were in your shoes.
Thanks for posting the good news. Remission seems to be very elusive for some of the toughest cases, but it's great to see that you've finally arrived.
Tex
Of course, the reason why it worked so quickly, is almost certainly because you have already been following the diet for so long, that it didn't take much additional inflammation control to tip the balance, and get you into "Remission Land". As I often say, "all is fair in love and war, and bringing MC under control".
I can't offer any insight into your question, since I've never taken Entocort, but as promptly as it brought improvement, there's a very good chance that you're correct in thinking that you may be able to reduce the dosage very soon - at least, I would have the same thoughts, if I were in your shoes.
Thanks for posting the good news. Remission seems to be very elusive for some of the toughest cases, but it's great to see that you've finally arrived.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
That's fantastic news, Hotrod! I thought you'd have a quick response because you've been following all the diet recommendations. I think you'll be able to reduce the Entocort quickly, too.
I had an opposite experience with my stool color once I went off Entocort. I used to have a darker stool and now it's lighter.
It's good to read that you don't have the side effects that you did with Prednisone. I didn't tolerate Prednisone well, either, but haven't had any problems with Entocort. I think it's the way to go with this disease as long as there are no side effects.
Gloria
I had an opposite experience with my stool color once I went off Entocort. I used to have a darker stool and now it's lighter.
It's good to read that you don't have the side effects that you did with Prednisone. I didn't tolerate Prednisone well, either, but haven't had any problems with Entocort. I think it's the way to go with this disease as long as there are no side effects.
Gloria
You never know what you can do until you have to do it.
It took me several years to get down to two pills a day then another year to get to one. I still take an extra entocort for a day or two when needed. But then I am not eliminating things from my diet. Everything in moderation.. but sometimes I go overboard on things I shouldn't... like Chocolate cream filled donuts from Dunkin Donuts:)
Glad to hear you have been successful with Entocort too.
grannyh
Glad to hear you have been successful with Entocort too.
grannyh
After being off Entocort for 5 weeks, I've resumed taking it again. I'm going to try to take one pill every three days, as I was prior to going off it. I took one pill yesterday and am already seeing a difference.
Thank you for sharing your experience, grannyh. It is helpful to read about others who've had success using a maintenance dosage to control their symptoms. It sounds like you don't have a regimen of taking it on a regular basis, but rather now and then when your symptoms require it. How frequently would you say you need to do that?
Gloria
Thank you for sharing your experience, grannyh. It is helpful to read about others who've had success using a maintenance dosage to control their symptoms. It sounds like you don't have a regimen of taking it on a regular basis, but rather now and then when your symptoms require it. How frequently would you say you need to do that?
Gloria
You never know what you can do until you have to do it.
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RUBYREDDOG
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grannyh,
Donuts used to be my one feel good food. They are here in my office complex almost every day (and they are free as well). I used to endulge about twice a month but it's been around 18 months since I have had one. Boy, if only.......
Gloria, sorry to hear that you are back on Entocort. At 2 pills a week, that's really a low dose. I would think that you are truly very very close now. Maybe a little more healing time will do it.
Hotrod
Donuts used to be my one feel good food. They are here in my office complex almost every day (and they are free as well). I used to endulge about twice a month but it's been around 18 months since I have had one. Boy, if only.......
Gloria, sorry to hear that you are back on Entocort. At 2 pills a week, that's really a low dose. I would think that you are truly very very close now. Maybe a little more healing time will do it.
Hotrod
Hotrod,
Kinnikkinnick makes some awesome GF donuts. They are also dairy-free, and soy-free, (at least my favorite flavor, Vanilla Glazed, are GF, DF, and SF). They make other flavors, so be sure to check the label, before you buy, but I believe that they are also safe. Naturally, they are also expensive, but if you crave a safe donut, they are worth it. They are excellent! You can find them in the freezer, in most health food stores.
Tex
Kinnikkinnick makes some awesome GF donuts. They are also dairy-free, and soy-free, (at least my favorite flavor, Vanilla Glazed, are GF, DF, and SF). They make other flavors, so be sure to check the label, before you buy, but I believe that they are also safe. Naturally, they are also expensive, but if you crave a safe donut, they are worth it. They are excellent! You can find them in the freezer, in most health food stores.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex,
I'm afraid that the Kinnikkinnick donuts contain eggs and Hotrod lists them as one of his intolerances.
I've tried making egg-free donuts. I actually found a donut and a bismarck pan at the local Goodwill. They satisfied my desire for donuts, but they were very sweet and not soft, most likely due to not having eggs. They also didn't rise very high. I've pondered making yeast-raised donuts which might be lighter and higher, but I haven't found a GF recipe without eggs.
I use the bismarck pan to make hamburger buns and it works great. I make the buns using extra batter from my bread recipe. I also bought a French bread pan and use the French bread for Italian beef sandwiches at a local restaurant. It works much better than the Ener-G hotdog buns I used to use.
Gloria
I'm afraid that the Kinnikkinnick donuts contain eggs and Hotrod lists them as one of his intolerances.
I've tried making egg-free donuts. I actually found a donut and a bismarck pan at the local Goodwill. They satisfied my desire for donuts, but they were very sweet and not soft, most likely due to not having eggs. They also didn't rise very high. I've pondered making yeast-raised donuts which might be lighter and higher, but I haven't found a GF recipe without eggs.
I use the bismarck pan to make hamburger buns and it works great. I make the buns using extra batter from my bread recipe. I also bought a French bread pan and use the French bread for Italian beef sandwiches at a local restaurant. It works much better than the Ener-G hotdog buns I used to use.
Gloria
You never know what you can do until you have to do it.
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RUBYREDDOG
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jodibelle352
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I've been on Entocort since Oct. of "08".
I have to chuckle when I remember my GI saying that this treatment would probably only be for 6-8 weeks.
Let me count the ways.......ROTFLMAO.................Yup, 7months or 28 weeks and still counting.
I'm truly not trying to be sarcastic but for myself I have come to accept the saying;"Easy does it" to be very effective in regards to taking Entocort.
I have managed to work myself down to 6mgs. daily (2 capsules) and have also tried to lower the dosage which within 24-36 hours I knew my body wasn't going to accept the lower dosage yet. So I'm just saying; keep trying but don't become disheartened if your body doesn't accept being on a lower dosage. It just may take a little more time. Each and everyone of us is very different and so are our bodies.
Entocort has done wonders for me but I also do my very best to watch my diet very closely. Yes......................at times I've given in to temptations and have paid dearly for it. You would think after being in pain for 1-2 days a person would realize what an idiot they've been. But we are only HUMAN and so desperately want to be NORMAL again.
I'm very happy to hear that the Entocort is working so well for you and keep up the good work. It's done amazing things for me and it's great to hear that you are able to tolerate this med as there are many who are unable to take it. This disease is so unpredicatable when so many food intolerances play such an important factor in how others react to certain treatments.
Love and God Bless:
Jodi
I have to chuckle when I remember my GI saying that this treatment would probably only be for 6-8 weeks.
Let me count the ways.......ROTFLMAO.................Yup, 7months or 28 weeks and still counting.
I'm truly not trying to be sarcastic but for myself I have come to accept the saying;"Easy does it" to be very effective in regards to taking Entocort.
I have managed to work myself down to 6mgs. daily (2 capsules) and have also tried to lower the dosage which within 24-36 hours I knew my body wasn't going to accept the lower dosage yet. So I'm just saying; keep trying but don't become disheartened if your body doesn't accept being on a lower dosage. It just may take a little more time. Each and everyone of us is very different and so are our bodies.
Entocort has done wonders for me but I also do my very best to watch my diet very closely. Yes......................at times I've given in to temptations and have paid dearly for it. You would think after being in pain for 1-2 days a person would realize what an idiot they've been. But we are only HUMAN and so desperately want to be NORMAL again.
I'm very happy to hear that the Entocort is working so well for you and keep up the good work. It's done amazing things for me and it's great to hear that you are able to tolerate this med as there are many who are unable to take it. This disease is so unpredicatable when so many food intolerances play such an important factor in how others react to certain treatments.
Love and God Bless:
Jodi
May God and All His Angels, watchover, protect and guide you "One Day At A Time".
Hi Hotrod, I'm glad the entocort has been so good for you. It's been great for me, too. I'm still in the full dose phase until August, and then I'll start experimenting. I'm sensitive to eggs too, but I have had the Kinniwick donuts and they don't bother me. I actually ate them by accident not noticing the egg ingredient. I don't know if the entocort is preventing the reaction or what. I know if I accidentally get soy, I really react even on the entocort. Good luck, JoAnn
JoAnn,
Others here have mentioned that they are able to eat eggs when they are used as an ingredient in baked goods, but not alone. I believe I tested them in some rolls over 1 1/2 years ago and didn't have a reaction, but I also was on at least 2 Entocort pills per day then.
Once I feel I've stabilized again, I think I'll try putting them in something I bake to see what happens.
It's very helpful to read about other's experiences. Thank you for sharing yours.
Gloria
Others here have mentioned that they are able to eat eggs when they are used as an ingredient in baked goods, but not alone. I believe I tested them in some rolls over 1 1/2 years ago and didn't have a reaction, but I also was on at least 2 Entocort pills per day then.
Once I feel I've stabilized again, I think I'll try putting them in something I bake to see what happens.
It's very helpful to read about other's experiences. Thank you for sharing yours.
Gloria
You never know what you can do until you have to do it.