Joan,
Sorry to hear about your cat, I know how you feel, I had two cats disaprear, but I live in coyote territory, so I don't have them for pets anymore. I would love to hear your post about the blood type diet. There are so many diets out there anymore it can just get crazy to find the one that works. I work with lots of patients in our office with high cholesterol, and it all comes down to staying away from most processed foods and eating fresh whole (organic if possible) foods for every meal every day. I have tried so hard over the years to to this, I cook extra when I am at home, and pack lunch with leftovers etc. It seems we have gotten so far off track with the typical American diet that it is killing us with heart disease, diabetes, cancer, various digestive disorders and new diseases that involve the immune system.
I was just reading an article that the new administration has two bills in process to "increase" food safety, HR875 and SB425, but what it will do is make it harder for small farmers and organic farms to produce and sell. It would be the end of the neighborhood farmers markets. They plan to pass regulations on how food is grown placing standards on how much and what type of fertilizers and pesticides will be REQUIRED for growers to use. We all know how poor information regarding our condition is disseminated by the powers that be. Imagine if we let our government control every aspect of food production in this country!!!Scary!!!
I am brand new to Microscopic colitis
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Shirley,
Your Carlsons Cod liver oil looks great, Cold water fish from a clean source. I went to Carlson's website and I like the MedOmega Fish Oil much Better. Also good sources, but much higher concentrations of DHA and EPA. You really can't get too much of the good stuff from fish oil unless you have sensitivities. Omega 3 fatty acids interfere in the pain and inflammatory pathways of Arichonidonic(sp?) Acid ( I don't know if any one has noticed but I can't spell anything). Cod liver oil is good, but Oil from Salmon, Mackerel and krill has a much greater concentration of the good stuff. I have recently received advertisements for a new prescription drug (imagine that) that is just fish oil. It has been heated and distilled and most of the fatty acids have been destroyed, but the drug companies can make money off of it, and that is all that matters (sarcasm).
Your Carlsons Cod liver oil looks great, Cold water fish from a clean source. I went to Carlson's website and I like the MedOmega Fish Oil much Better. Also good sources, but much higher concentrations of DHA and EPA. You really can't get too much of the good stuff from fish oil unless you have sensitivities. Omega 3 fatty acids interfere in the pain and inflammatory pathways of Arichonidonic(sp?) Acid ( I don't know if any one has noticed but I can't spell anything). Cod liver oil is good, but Oil from Salmon, Mackerel and krill has a much greater concentration of the good stuff. I have recently received advertisements for a new prescription drug (imagine that) that is just fish oil. It has been heated and distilled and most of the fatty acids have been destroyed, but the drug companies can make money off of it, and that is all that matters (sarcasm).
Thanks, when I finish the Cod Liver Oil that I already have I will order the MedOmega Fish Oil you recommended. I know Dr. Mercola has switched to recommending Krill Oil and sells it under his own label. What brand do you use?
I agree about the prescription med............ and anything the gov't approves simply must be "processed" to make it safe for human consumption. *tongue in cheek*
Joan, I'm looking forward to reading about the blood type diet also. Is this something you have used? If so, how did it work for you?
Love, Shirley
I agree about the prescription med............ and anything the gov't approves simply must be "processed" to make it safe for human consumption. *tongue in cheek*
Joan, I'm looking forward to reading about the blood type diet also. Is this something you have used? If so, how did it work for you?
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
Shirley,
We sell a product in our office from a company called integrative therapeutics called Eskimo Pur EFA. It is a very pure norwegian fish oil that has been through rigirous testing and study. We like it better than other brands we have sold because it has lemon oil and rosemary added, and the company guarantees no burp of the fish oil. In the more than 10 years we have used it no one has returned it. I have found the krill oils to be too expensive for patients to buy regularly, so I have opted for a good quality fish oil. This product is distributed to medical offices so I am not sure it is available to the general public.
KD
We sell a product in our office from a company called integrative therapeutics called Eskimo Pur EFA. It is a very pure norwegian fish oil that has been through rigirous testing and study. We like it better than other brands we have sold because it has lemon oil and rosemary added, and the company guarantees no burp of the fish oil. In the more than 10 years we have used it no one has returned it. I have found the krill oils to be too expensive for patients to buy regularly, so I have opted for a good quality fish oil. This product is distributed to medical offices so I am not sure it is available to the general public.
KD
Oh, I thought you were using the Krill Oil. The Carlson's I use has lemon also and doesn't make me burp either. I most likely wouldn't use it if it did. HaHa
Maybe I'd better check to see if that MedOmega Fish Oil is flavored also.
Love, Shirley
Maybe I'd better check to see if that MedOmega Fish Oil is flavored also.
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
Hey KD:
I was diagnosed with MC in November and was on Asacol for from Nov-Feb 2 tabs 3 times a day and took enough Lomotil, to sink a battle ship. I am also a RN and trying to run an ambulatory surgery center and be in an OR does not work with 5-13 bouts of "d" a day, long story short, my GI doc put me on Entocort 3 mg x 3 a day along with the Asacol in Feb after a trip to the ER, I started with 3mg x 2 once a day being scared of how the steroid would effect me. After close to a month I am getting back to normal and now cutting back to Entocort 3mg x 1 a day, and Asacol 2 x 2 day. I feel better than I have in months and really feel this was needed a good month or so before prescribed. I lost 18 lbs during this event, and now I am gaining some back.
You are not alone in this and by the way finding this support group has helped me so much, info from Tex and others that live with this MC and have been there, I told my GI doc on last visit about the support group and I think he should tell any pt with MC about this group. Knowing you are not alone and you can get better really helped me. I am able to eat without having to put the plate down and run to the BR. Hang in there, and I hope my experience in some way can help you.
My GI also tested me for gluten allergy which I do not test positive for, but have been on low fat diet, cheating some now since I am feeling better.
LW
I was diagnosed with MC in November and was on Asacol for from Nov-Feb 2 tabs 3 times a day and took enough Lomotil, to sink a battle ship. I am also a RN and trying to run an ambulatory surgery center and be in an OR does not work with 5-13 bouts of "d" a day, long story short, my GI doc put me on Entocort 3 mg x 3 a day along with the Asacol in Feb after a trip to the ER, I started with 3mg x 2 once a day being scared of how the steroid would effect me. After close to a month I am getting back to normal and now cutting back to Entocort 3mg x 1 a day, and Asacol 2 x 2 day. I feel better than I have in months and really feel this was needed a good month or so before prescribed. I lost 18 lbs during this event, and now I am gaining some back.
You are not alone in this and by the way finding this support group has helped me so much, info from Tex and others that live with this MC and have been there, I told my GI doc on last visit about the support group and I think he should tell any pt with MC about this group. Knowing you are not alone and you can get better really helped me. I am able to eat without having to put the plate down and run to the BR. Hang in there, and I hope my experience in some way can help you.
My GI also tested me for gluten allergy which I do not test positive for, but have been on low fat diet, cheating some now since I am feeling better.
LW
LWalker
Thought I would give an update to my adventures with MC. I have moved to Phase III of the Guts and Glory diet, and am doing pretty well. I have been D free except for 2 short spurts (pun intended) on LFri evening after a trip to PF Changs and Sat Am. Other wise have progressing well. I have added many fruits and vegies including lettuce which I was cautious of, and chicken, ground beef, salmon, Ahi Tuna. I continue on the goats yogurt or keifer twice a day and the natural antinfalmatories and 8 probiotic caps a day. I am finally starting to feel a little more like myself every day. 
I had some time today to puruse the Medscape website for more info about MC and other IBD. I was surprised that there were so many articles written by allopathic physicians that linked MC to gluten intolerance or CD. It seems like some are starting to get it. What I did notice that was prominent we the number of articles that discussed Probiotics and link between abnormal intestinal microflora and IBD. I have included an exerpt from one of those articles below FYI
"The aetiology of ulcerative colitis is still unknown. It is believed that altered immunological function, resulting from an abnormal interplay between genetic susceptibility and certain environmental factors,[1] contributes significant role on the mucosal inflammation of the intestinal tract. More and more evidence shows that enteric microflora plays an important role in initiating and maintaining the inflammatory response in ulcerative colitis.[2,3] Enteric microflora of ulcerative colitis becomes aberrant, with normal microflora decreased, such as bifidobacterium and lactobacillus, and harmful and potentially harmful bacteria increased.[4] There has been close relationship between aberrant enteric microflora and mucosal immune function disorder. Tolerance of lamina propria mononuclear cells (LPMC) exists to enteric flora in normal intestine, but tolerance is broken in intestinal inflammation, especially in ulcerative colitis.[5]
There are at least 500 different enteric microbial species, which have different biological properties and functions. The normal microflora may interact with intestinal epithelia and mucosal immune system. However, the interaction is disordered and inflammation accompanied by imbalanced enteric microflora.[6,7] Supplement with probiotics may stabilise and balance the indigenous microflora, and normalise the host–microbe interaction.[8,9] Modification of intestinal microflora by probiotics may have therapeutic effect on inflammatory bowel disease.
One strain of bifidobacterium, Bifidobacterium longum, as had been shown in the former study, could down-regulate inflammatory cytokine secretion from inflammatory intestinal epithelia.[10] In this experiment, the probiotic strain was used to coculture with colonic biopsies of active ulcerative colitis to explore whether probiotics could modulate inflammatory cytokine secretion from inflamed colonic tissues and display therapeutic effect on ulcerative colitis. Our findings demonstrate that probiotics could be a potential therapeutic drug to treat active ulcerative colitis."
When I read Jordan Rubins book, the link to probiotics made so much sense to me, first rest the gut so the good bacteria had an appropriate palate, then flood the gut with good bacteria to resume normal functioning. I can't tell you how much difference the probiotics have made for me. I have noticed with dispensing supplements in our Chiropractic office that all supplements are not alike. it is important to take a supplement that will not be destroyed by stomach acids. Just some information you might all be interested in. Hope you all had a great day!!
KD
I had some time today to puruse the Medscape website for more info about MC and other IBD. I was surprised that there were so many articles written by allopathic physicians that linked MC to gluten intolerance or CD. It seems like some are starting to get it. What I did notice that was prominent we the number of articles that discussed Probiotics and link between abnormal intestinal microflora and IBD. I have included an exerpt from one of those articles below FYI
"The aetiology of ulcerative colitis is still unknown. It is believed that altered immunological function, resulting from an abnormal interplay between genetic susceptibility and certain environmental factors,[1] contributes significant role on the mucosal inflammation of the intestinal tract. More and more evidence shows that enteric microflora plays an important role in initiating and maintaining the inflammatory response in ulcerative colitis.[2,3] Enteric microflora of ulcerative colitis becomes aberrant, with normal microflora decreased, such as bifidobacterium and lactobacillus, and harmful and potentially harmful bacteria increased.[4] There has been close relationship between aberrant enteric microflora and mucosal immune function disorder. Tolerance of lamina propria mononuclear cells (LPMC) exists to enteric flora in normal intestine, but tolerance is broken in intestinal inflammation, especially in ulcerative colitis.[5]
There are at least 500 different enteric microbial species, which have different biological properties and functions. The normal microflora may interact with intestinal epithelia and mucosal immune system. However, the interaction is disordered and inflammation accompanied by imbalanced enteric microflora.[6,7] Supplement with probiotics may stabilise and balance the indigenous microflora, and normalise the host–microbe interaction.[8,9] Modification of intestinal microflora by probiotics may have therapeutic effect on inflammatory bowel disease.
One strain of bifidobacterium, Bifidobacterium longum, as had been shown in the former study, could down-regulate inflammatory cytokine secretion from inflammatory intestinal epithelia.[10] In this experiment, the probiotic strain was used to coculture with colonic biopsies of active ulcerative colitis to explore whether probiotics could modulate inflammatory cytokine secretion from inflamed colonic tissues and display therapeutic effect on ulcerative colitis. Our findings demonstrate that probiotics could be a potential therapeutic drug to treat active ulcerative colitis."
When I read Jordan Rubins book, the link to probiotics made so much sense to me, first rest the gut so the good bacteria had an appropriate palate, then flood the gut with good bacteria to resume normal functioning. I can't tell you how much difference the probiotics have made for me. I have noticed with dispensing supplements in our Chiropractic office that all supplements are not alike. it is important to take a supplement that will not be destroyed by stomach acids. Just some information you might all be interested in. Hope you all had a great day!!
KD
Hi,
I didn't get a chance to finish reading the last few posts, but just wanted to add that cod liver oil has too much Vit A in it for those of (many) of us with osteoporosis or a lesser degree of bone loss. I would go with the other fish oils of the quality mentioned earlier as it has less Vitamin A, although not nearly as high as cod liver oil.
Hadn't mentioned this in a while, so thought I'd throw this out again in case some of you hadn't heard that before.
Luce
I didn't get a chance to finish reading the last few posts, but just wanted to add that cod liver oil has too much Vit A in it for those of (many) of us with osteoporosis or a lesser degree of bone loss. I would go with the other fish oils of the quality mentioned earlier as it has less Vitamin A, although not nearly as high as cod liver oil.
Hadn't mentioned this in a while, so thought I'd throw this out again in case some of you hadn't heard that before.
Luce
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lotuspetal
- Posts: 9
- Joined: Thu Apr 23, 2009 8:27 pm
Hi, KD,
I just joined this forum recently, and have found it to be a great source of help. I'm also a cyclist, among other things, so I am interested in any suggestions about working with this condition and being able to keep up our passion for all things two wheeled! I've had CC for about 9 years, and have tried many alternative treatments, and have decided on a course of drugs--something I've never done before. I find in particular that I have problems with the ingredients in many of the electrolyte replacement powders that are added to water for long rides. I've ridden century rides with MC, and it is not fun; mostly, I would load up on Immodium if necessary and pay the price later (as we know, it only delays things). I feel that my energy has suffered during this also. Lara Bars seem fine for me; not sure about some of the gels. Also problemmatic are what to eat when you have done a long ride, or during the food breaks on organized rides.
So, I'd be happy to share any suggestions about riding and MC.
Helen
I just joined this forum recently, and have found it to be a great source of help. I'm also a cyclist, among other things, so I am interested in any suggestions about working with this condition and being able to keep up our passion for all things two wheeled! I've had CC for about 9 years, and have tried many alternative treatments, and have decided on a course of drugs--something I've never done before. I find in particular that I have problems with the ingredients in many of the electrolyte replacement powders that are added to water for long rides. I've ridden century rides with MC, and it is not fun; mostly, I would load up on Immodium if necessary and pay the price later (as we know, it only delays things). I feel that my energy has suffered during this also. Lara Bars seem fine for me; not sure about some of the gels. Also problemmatic are what to eat when you have done a long ride, or during the food breaks on organized rides.
So, I'd be happy to share any suggestions about riding and MC.
Helen
Helen,
I have found that Hammer Nutrition products are gluten and lactose free. I have not had much trouble tolerating them. They sell those at REI and I am sure you could get them at your local bike store or order on line. I use the product perpetium (protein carbo and electrolyte replacement) for long distance rides, pack a few of the gels (apple cinnimon is great) and like the coconut,cashew, choco chip bars. I am having a little flair of my MC for the last two weeks (some cramping and nightime stools, but not watery diarrhea, stools are a little looser though), can not pinpoint a reason, considering a refresher of the Guts and Glory diet for a week or so.
Just attempted my 100 mile ride, trained real hard and was ready. Started Sat May 2, in Santa Rosa Ca it has rained all day the day before, and was kind of misty drizzly when we started. The weather continued to deteriorate, and when the water was pooling in the toes of our shoes and we were soaked through at mile 26 we called it a day. Good thing we did as the rain continued to worsen throughout the day. Found another 100 ride a little closer to home on May 23, think we will try that, don't want all of that training to go to waste.
I have found that Hammer Nutrition products are gluten and lactose free. I have not had much trouble tolerating them. They sell those at REI and I am sure you could get them at your local bike store or order on line. I use the product perpetium (protein carbo and electrolyte replacement) for long distance rides, pack a few of the gels (apple cinnimon is great) and like the coconut,cashew, choco chip bars. I am having a little flair of my MC for the last two weeks (some cramping and nightime stools, but not watery diarrhea, stools are a little looser though), can not pinpoint a reason, considering a refresher of the Guts and Glory diet for a week or so.
Just attempted my 100 mile ride, trained real hard and was ready. Started Sat May 2, in Santa Rosa Ca it has rained all day the day before, and was kind of misty drizzly when we started. The weather continued to deteriorate, and when the water was pooling in the toes of our shoes and we were soaked through at mile 26 we called it a day. Good thing we did as the rain continued to worsen throughout the day. Found another 100 ride a little closer to home on May 23, think we will try that, don't want all of that training to go to waste.
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lotuspetal
- Posts: 9
- Joined: Thu Apr 23, 2009 8:27 pm
Oh, it's frustrating to have to quit; I lived in coastal northern California, and am well acquainted with squishy wet shoes, not to mention many types of Gore Tex clothing items. I'm happy to be in Flagstaff, where it is windy but sunny. Hopefully your flare up will clear--I tried diet for years without a lot of success, the drugs seem to be helping at this point.
Good luck on the next ride!
I've used Hammer gels and I think they were OK, and have heard good things about perpetium; I think I don't do well with the malodextrin additives. Thanks for the tips.
Good luck on the next ride!
I've used Hammer gels and I think they were OK, and have heard good things about perpetium; I think I don't do well with the malodextrin additives. Thanks for the tips.