Hotrod,
The generic versions of budesonide, advertised on the internet, would have to be illegal knockoffs, since the patent on budesonide does not expire until two years from now.
http://colitis.emedtv.com/entocort-ec/g ... ocort.html
Tex
Question regarding flares...
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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RUBYREDDOG
- Adélie Penguin
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- Location: Glendale, Ca.
As someone who recently retired, I have to say that Rose's family is fortunate that she can be home to prepare three different dinners a day. That would be pretty difficult for someone who is working. Working women are lucky to even get one meal on the table. LOL
Greengirl,
It's not very difficult to modify dinners so that they are gluten free. I've always felt that dinner is the easiest GF meal of all to make. Wheat flour pasta is easily replaced with brown rice pasta which is available at Whole Foods and Trader Joe's, along with many other chain stores. When I make a pasta dish, I cook gluten pasta for him and rice pasta for me. We don't eat bread for dinner because DH is a diabetic. I use rice flour for gravies and I don't notice any difference. He will heat a frozen pizza and I'll have something else.
Breakfast is one meal that we never share. I'm intolerant to eggs so my pancakes and waffles don't have the same consistency as those made with eggs and gluten. We each make our own. We also eat different cereals. We have a four-slice toaster and two slots are for my bread; two are for his.
I use my GF bread and his wheat bread for sandwiches.
I rarely make desserts now, due to my intolerances and DH shouldn't eat them anyway.
Gloria
Greengirl,
It's not very difficult to modify dinners so that they are gluten free. I've always felt that dinner is the easiest GF meal of all to make. Wheat flour pasta is easily replaced with brown rice pasta which is available at Whole Foods and Trader Joe's, along with many other chain stores. When I make a pasta dish, I cook gluten pasta for him and rice pasta for me. We don't eat bread for dinner because DH is a diabetic. I use rice flour for gravies and I don't notice any difference. He will heat a frozen pizza and I'll have something else.
Breakfast is one meal that we never share. I'm intolerant to eggs so my pancakes and waffles don't have the same consistency as those made with eggs and gluten. We each make our own. We also eat different cereals. We have a four-slice toaster and two slots are for my bread; two are for his.
I use my GF bread and his wheat bread for sandwiches.
I rarely make desserts now, due to my intolerances and DH shouldn't eat them anyway.
Gloria
You never know what you can do until you have to do it.
Hi Greengirl,
No way I am doing two meals. If DH doesn't want what I am making he can go down and get takeaway!
Like Gloria, I find pasta useful. I make a quick tomato sauce while the water for the pasta is boiling and it takes very little time. I started by doing his and hers pasta, but then got him to try the Orgran buckwheat pasta, and now he is happy for me to serve this.
I also do a lot of meals of simple grilled meat with mashed potato (for him) and microwave vegies. The meal is ready by the time the potatoes are cooked. My other favourite is simple stir fries with boiled rice. I can have soy, so I do sauces by pouring in some tamari (wheat free soy sauce) maybe a spoonful of honey for honey soy flavour, or thai fish sauce. It always looks different because I change the vegies from week to week.
Then on the weekend I often do a roast, and use a GF gravy, so that is easy too.
Lunch at work is more of an issue for me. If I have been too lazy to prepare something beforehand (like soup or frittata) I just keep a packet of corn thins at my desk, and add some sliced tomato or avocado, or some safe hommous. I keep some frozen safe sausage rolls in the work freezer and zap them in the microwave in emergencies. (OK, sometimes the definition of 'emergency' is 'desperately want comfort food')
If you gave us an idea of what you normally eat, maybe we can suggest similar alternatives?
Lyn
No way I am doing two meals. If DH doesn't want what I am making he can go down and get takeaway!
Like Gloria, I find pasta useful. I make a quick tomato sauce while the water for the pasta is boiling and it takes very little time. I started by doing his and hers pasta, but then got him to try the Orgran buckwheat pasta, and now he is happy for me to serve this.
I also do a lot of meals of simple grilled meat with mashed potato (for him) and microwave vegies. The meal is ready by the time the potatoes are cooked. My other favourite is simple stir fries with boiled rice. I can have soy, so I do sauces by pouring in some tamari (wheat free soy sauce) maybe a spoonful of honey for honey soy flavour, or thai fish sauce. It always looks different because I change the vegies from week to week.
Then on the weekend I often do a roast, and use a GF gravy, so that is easy too.
Lunch at work is more of an issue for me. If I have been too lazy to prepare something beforehand (like soup or frittata) I just keep a packet of corn thins at my desk, and add some sliced tomato or avocado, or some safe hommous. I keep some frozen safe sausage rolls in the work freezer and zap them in the microwave in emergencies. (OK, sometimes the definition of 'emergency' is 'desperately want comfort food')
If you gave us an idea of what you normally eat, maybe we can suggest similar alternatives?
Lyn
Greengirl,
My husband does the vast majority of our cooking because he really enjoys it (finds it relaxing!) and is a much more creative cook than I am. I am usually his sous chef! We made the decision to have a mostly GF kitchen and to cook GF when we prepare a meal together. Breakfast, I usually eat my brown rice cream cereal and he eats some sort of breakfast bar (not GF), not being a big breakfast person. Lunches are on our own--the worst part, for me, is figuring out what to take to work for lunch. Dinners are GF, so that there's only one preparation and clean-up. My DH is not completely GF himself, but he doesn't mind eating what I eat at home. In short, when we eat separately he's not GF, but when we eat together, he is. Really, rice or potato, veggies, and a protein are not that difficult to make both GF and appealing. If I were you, I'd take your DH up on his offer to try the diet with you. It's nice to have some support, and my DH has discovered quite a few GF products he likes better than their gluten-filled counterparts.
Gloria,
Can you have the 1-2-3 Gluten Free mixes? I make buckwheat pancakes from those using one of Dee's egg substitute suggestions, and DH likes them better than "regular" pancakes.
Courtney
My husband does the vast majority of our cooking because he really enjoys it (finds it relaxing!) and is a much more creative cook than I am. I am usually his sous chef! We made the decision to have a mostly GF kitchen and to cook GF when we prepare a meal together. Breakfast, I usually eat my brown rice cream cereal and he eats some sort of breakfast bar (not GF), not being a big breakfast person. Lunches are on our own--the worst part, for me, is figuring out what to take to work for lunch. Dinners are GF, so that there's only one preparation and clean-up. My DH is not completely GF himself, but he doesn't mind eating what I eat at home. In short, when we eat separately he's not GF, but when we eat together, he is. Really, rice or potato, veggies, and a protein are not that difficult to make both GF and appealing. If I were you, I'd take your DH up on his offer to try the diet with you. It's nice to have some support, and my DH has discovered quite a few GF products he likes better than their gluten-filled counterparts.
Gloria,
Can you have the 1-2-3 Gluten Free mixes? I make buckwheat pancakes from those using one of Dee's egg substitute suggestions, and DH likes them better than "regular" pancakes.
Courtney
Hypothyroid 05/05
LC/CC 07/08
Celiac 07/08
LC/CC 07/08
Celiac 07/08
I make my pancakes from scratch using my flour mix. I believe I also have Bob's Red Mill pancake mix which is pretty good. What egg substitute do you use for pancakes? I use Ener-G egg substitute. Have you found a better substitute? I don't believe I've seen the 1-2-3 Gluten Free mixes. Some of the flours in the commercial mixes contain bean flours, which I can't eat. I find it cheaper to make my own flour blends using my grain mill.
My husband will eat GF products, but he doesn't really like them. When I ask him how he likes something, he'll say "It's OK." If it's not too difficult to make his regular product, we do. We take turns cooking, or sometimes work together on meals.
As an aside, what really turned me off about trying (once again) to figure out additional food intolerances, was eating roasted buckwheat cereal. I couldn't even force myself to finish the bowl. I love Arrowhead's Buckwheat cereal flakes, but the cooked buckwheat without any fruit was too awful. I might try cooking the unroasted buckwheat sometime to see if it's more palatable. All my breakfast choices include rice as an ingredient or fruit, and I was testing both. I'm back on Entocort and am doing better.
Gloria
My husband will eat GF products, but he doesn't really like them. When I ask him how he likes something, he'll say "It's OK." If it's not too difficult to make his regular product, we do. We take turns cooking, or sometimes work together on meals.
As an aside, what really turned me off about trying (once again) to figure out additional food intolerances, was eating roasted buckwheat cereal. I couldn't even force myself to finish the bowl. I love Arrowhead's Buckwheat cereal flakes, but the cooked buckwheat without any fruit was too awful. I might try cooking the unroasted buckwheat sometime to see if it's more palatable. All my breakfast choices include rice as an ingredient or fruit, and I was testing both. I'm back on Entocort and am doing better.
Gloria
You never know what you can do until you have to do it.
Tex,
You are too kind. A lot of what I cook my husband is usually the same as the kids. Sometimes I cook theirs and Dad just eats the same when he gets home or I cook for Bill and the kids will eat leftovers the next night. Also, Bill is a business man and goes out to lunch quite often, therefore, he is usually not hungry most of the nights. I am by no means superwoman, I am just doing what works for my family. Also, a lot of what I eat during the weeks is a can of tuna or baked fish. Oh yeah Tex, I wanted to tell you that I actually ate chicken last week w/o any problems (Woo Hoo). But a lass, I did jinx myself, the last 2 days I have been in the office with explosive water. Such as life. I am just grateful that I woke up on the top side of the dirt today.
Love,
Rose
You are too kind. A lot of what I cook my husband is usually the same as the kids. Sometimes I cook theirs and Dad just eats the same when he gets home or I cook for Bill and the kids will eat leftovers the next night. Also, Bill is a business man and goes out to lunch quite often, therefore, he is usually not hungry most of the nights. I am by no means superwoman, I am just doing what works for my family. Also, a lot of what I eat during the weeks is a can of tuna or baked fish. Oh yeah Tex, I wanted to tell you that I actually ate chicken last week w/o any problems (Woo Hoo). But a lass, I did jinx myself, the last 2 days I have been in the office with explosive water. Such as life. I am just grateful that I woke up on the top side of the dirt today.
Love,
Rose
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greengirl78
- Adélie Penguin
- Posts: 69
- Joined: Fri Feb 15, 2008 6:36 am
- Location: Massachusetts
Thanks all for the info. I realized as I read through this thread, that we do eat mostly gluten free - it's just lunches that will have to be modified. I have been making us both salads the past week, and we both are enjoying it much better than the standard sandwich. Our dinners usually consist of some sort of fish/chicken/meat, grilled, with veggies and rice.
Breakfast we are both on our own, and more often than not I end up getting some sort of very unhealthy pastry across the street from my work at Dunkin Donuts.
The alternative pastas, are they tasty? I have seen them at Trader Joe's, just haven't tried any of them out yet.
Has anyone tried this gluten free flour substitute? http://www.julesglutenfree.com/SearchResults.asp?cat=3
It seems somewhat pricey, but I do love baking.
My Irish temper got the best of me today, and I was ready to fire my GI doc. I have been waiting well over 2 weeks to get in to see him. So, I had my primary call him yesterday to try and move the appt. up, and his response? "she has an appt. on Friday (the 15th)." Thankfully his nurse was understanding when I spoke with her - I told her how this is making work near impossible, and I have pretty much stopped eating... just to have some relief. I now have an appt. on Tuesday.
Breakfast we are both on our own, and more often than not I end up getting some sort of very unhealthy pastry across the street from my work at Dunkin Donuts.
The alternative pastas, are they tasty? I have seen them at Trader Joe's, just haven't tried any of them out yet.
Has anyone tried this gluten free flour substitute? http://www.julesglutenfree.com/SearchResults.asp?cat=3
It seems somewhat pricey, but I do love baking.
My Irish temper got the best of me today, and I was ready to fire my GI doc. I have been waiting well over 2 weeks to get in to see him. So, I had my primary call him yesterday to try and move the appt. up, and his response? "she has an appt. on Friday (the 15th)." Thankfully his nurse was understanding when I spoke with her - I told her how this is making work near impossible, and I have pretty much stopped eating... just to have some relief. I now have an appt. on Tuesday.
If we are peaceful, if we are happy, we can blossom like a flower, and everyone in our family, our entire society, will benefit from our peace. - Thich Nhat Hahn
Rose,
You work pretty hard, considering all the time and energy consumed by all those "office visits". Raising a family, and making a house, a home, is a full time job, without any additional demands on your time and energy. Dealing with MC is usually a full time job, by itself.
That's good news about the chicken. Now if we can just figure out what's causing the chronic D.
I apologize if you've already considered this, but I can't remember - have you ruled out hormonal effects? Any oral form of estrogen and/or progestins can trigger colitis for some women, whether the supplement is in the form of a contraceptive, or an HRT, (or whatever). This risk apparently applies only to oral treatments - transdermal patches seem to be safe, for most users.
One of these days, we're gonna locate the last piece of the puzzle.
Love,
Tex
You work pretty hard, considering all the time and energy consumed by all those "office visits". Raising a family, and making a house, a home, is a full time job, without any additional demands on your time and energy. Dealing with MC is usually a full time job, by itself.
That's good news about the chicken. Now if we can just figure out what's causing the chronic D.
I apologize if you've already considered this, but I can't remember - have you ruled out hormonal effects? Any oral form of estrogen and/or progestins can trigger colitis for some women, whether the supplement is in the form of a contraceptive, or an HRT, (or whatever). This risk apparently applies only to oral treatments - transdermal patches seem to be safe, for most users.
One of these days, we're gonna locate the last piece of the puzzle.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Greengirl,
I'm unfamiliar with that brand of GF flour, but maybe someone else has tried it. As for GF pastas, some are good, some are bad, and some can be improved by attention to detail, while preparing them, (such as the rinse, that Dee suggests). I'm not much of a pasta eater, but if I were shopping for some, I would definitely look for the ones most highly recommended by other members, here. My impression is that Trader Joe's handles GF products that are generally quite good, but I have to admit that I've never been to one of those stores, because I'm not aware of one in my part of the world.
I'm glad you were able to get your appointment moved up. Too many GI docs consider MC to be nothing but a "nuisance disease", (just a little diarrhea). It's a shame that they can't all have the opportunity to have to live with it for a few months, at least, just to see how much fun it is to go to work every day, when you feel miserable, and the main thing on your mind is whether or not you will be able to make it the bathroom in time.
Good luck with the appointment - I hope that it will be truly beneficial.
Tex
I'm unfamiliar with that brand of GF flour, but maybe someone else has tried it. As for GF pastas, some are good, some are bad, and some can be improved by attention to detail, while preparing them, (such as the rinse, that Dee suggests). I'm not much of a pasta eater, but if I were shopping for some, I would definitely look for the ones most highly recommended by other members, here. My impression is that Trader Joe's handles GF products that are generally quite good, but I have to admit that I've never been to one of those stores, because I'm not aware of one in my part of the world.
I'm glad you were able to get your appointment moved up. Too many GI docs consider MC to be nothing but a "nuisance disease", (just a little diarrhea). It's a shame that they can't all have the opportunity to have to live with it for a few months, at least, just to see how much fun it is to go to work every day, when you feel miserable, and the main thing on your mind is whether or not you will be able to make it the bathroom in time.
Good luck with the appointment - I hope that it will be truly beneficial.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex,
I am not on any HRT (not yet at least) and do not take any oral contraceptives (make me wacko). So I don't think that is the missing puzzle piece. Boy would I like to find it too, when I was running this am I barely made it to the office. But right now I am in my calm b/f the storm time.
Love,
Rose
I am not on any HRT (not yet at least) and do not take any oral contraceptives (make me wacko). So I don't think that is the missing puzzle piece. Boy would I like to find it too, when I was running this am I barely made it to the office. But right now I am in my calm b/f the storm time.
Love,
Rose
Gloria,
Here's a link to the buckwheat pancake mix:
http://www.shop.123glutenfree.com/produ ... roductId=3
I use Dee's egg substitute suggestion of 1 egg = 2 Tbsp. water + 1 Tbsp. oil + 2 tsp. baking powder in these, and that seems to work to make them more the consistency of non-GF pancakes. Incidentally, I tried buckwheat cereal once, and had the same response--couldn't bring myself to finish the bowl. I'm also avoiding legumes-- because of my intolerance to soy, I imagine other legumes are at least an irritant at the moment.
Greengirl,
Some of the rice pastas are pretty good. Overall, I think most people on the board like the Tinkyada brand. If you have a Trader Joe's nearby, the store brand is very good and much cheaper than many other brands.
Courtney
Here's a link to the buckwheat pancake mix:
http://www.shop.123glutenfree.com/produ ... roductId=3
I use Dee's egg substitute suggestion of 1 egg = 2 Tbsp. water + 1 Tbsp. oil + 2 tsp. baking powder in these, and that seems to work to make them more the consistency of non-GF pancakes. Incidentally, I tried buckwheat cereal once, and had the same response--couldn't bring myself to finish the bowl. I'm also avoiding legumes-- because of my intolerance to soy, I imagine other legumes are at least an irritant at the moment.
Greengirl,
Some of the rice pastas are pretty good. Overall, I think most people on the board like the Tinkyada brand. If you have a Trader Joe's nearby, the store brand is very good and much cheaper than many other brands.
Courtney
Hypothyroid 05/05
LC/CC 07/08
Celiac 07/08
LC/CC 07/08
Celiac 07/08
Courtney,
Thank you for the link and the information on the egg substitute. I'll have to try that egg substitute the next time I make the pancakes. I'm glad to read that I'm not the only one who didn't enjoy the roasted buckwheat cereal.
Gloria
Thank you for the link and the information on the egg substitute. I'll have to try that egg substitute the next time I make the pancakes. I'm glad to read that I'm not the only one who didn't enjoy the roasted buckwheat cereal.
Gloria
You never know what you can do until you have to do it.
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greengirl78
- Adélie Penguin
- Posts: 69
- Joined: Fri Feb 15, 2008 6:36 am
- Location: Massachusetts
You are all so wonderful! I love being able to come here and get truly great advice, and understanding. Thank you so much.
Now, about going GF - my husband is game, and we are starting this week, tomorrow actually. My question is - cooking utensils, pans, and the like - do I have to give everything a deep cleaning when making the switch?
I am lucky, Trader Joe's is only a half hour away, and I make a trip at least once a week. They have a 7 (!) page list of gluten free items which they carry, which I think is fantastic. I also made a friend with one of the librarians at the local library, when checking out books on gluten free cooking. Her house is GF, both of her children are gluten intolerant, so she has been giving me pointers.
Now, about going GF - my husband is game, and we are starting this week, tomorrow actually. My question is - cooking utensils, pans, and the like - do I have to give everything a deep cleaning when making the switch?
I am lucky, Trader Joe's is only a half hour away, and I make a trip at least once a week. They have a 7 (!) page list of gluten free items which they carry, which I think is fantastic. I also made a friend with one of the librarians at the local library, when checking out books on gluten free cooking. Her house is GF, both of her children are gluten intolerant, so she has been giving me pointers.
If we are peaceful, if we are happy, we can blossom like a flower, and everyone in our family, our entire society, will benefit from our peace. - Thich Nhat Hahn